Australian Sisters
Comments
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Is the new forum working out for All?
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Yes ...very nice to have a special place for Australian and New Zealand posters. I have been a member here for six years and over that time I have seen many Australian threads sink and die because of lack of support as members move on and newbies don't see them.
Good work Trish and thanks Mods.
jezza
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Yes - thanks Mods :-)
Hopefully the new forum will attract many more Aussie and NZ ladies to join in.
Trishxox
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Great! We hope so too, for you all!
And, thanks for your persistance, and patience.
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Jenn I did a trip to the USA via Singapore and London and NZ on the way back last September. It was the first time I had ever held a passport or left Australian shores. It was so much fun and I would love to be able to do it again but I'm afraid finances would not allow. I did a thread or more like a travel diary on the forum and if you would like to read it I will post the link for you.
Yay Trish!!! and thanks Mods for giving us our own forum! What a nice surprise!
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Thanks Mods!
Yes, post the link Chrissy please :-)
Feel like crap but am sitting in the pre-op area at our local private hospital with my DH. He has had upper stomach probs for a number of months now and is finally having an endoscopy to check out everything. Cross your fingers that it's a simple ulcer or something will you everyone? There's a part of me terrified it's something worse...
I had to chuckle inwardly when the nurse asked me to confirm that I am the able-bodied person driving him home... Um, yep that's me - the one with the Taxol pain and pneumonitis! :-/
Jenn0 -
Chrissy, can you post it to me please. Once when you sent the link before, it didn't work. I'd love to read about your travels. I hear they are a hoot!.
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Ok girls, hope it works!
http://community.breastcancer.org/forum/34/topic/773915
Just incase it doesn't work the thread is called 'The Journey has just begun aka Chrissyb's USA adventure'. I'll also bump it for you so it will be near the top of the active topics........do you get the idea I would like you to read it?.....lol
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Yay, something to read while I'm sitting here waiting for hubby to come back... Jenn
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Hi there Ladies, i got my results today from mamo, not a clean bill i am afraid. have to go back to have a special kind of mamo on the 12th of june, they have found significant changes in r breast, that they are concerned about, if they not happy they are going to a biopsy and then it goea from there. i was hanging on the hope they would tell me it was all clear as i had not heard, but they have probing quite extensively due to past DX. abit of a let down, but i got over other one, just another challenge and yet could be ok, still worrying though and another waiting game. but i would rather they be sure, than stuff up. so that is the latest.
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Awe Midnight, I'm so sorry to hear that........I know how much you were hoping for clear. What kind of Mammo are they going to do on the 12th? Have they given you any details on it? It's a good thing tht they are not taking anything for granted and are doing a thorough job of checking it all out........that really is a good thing. Try not to worry too much although I now that is always easier said than done but do give it a try.......it is just another bump in this BC road.
Love n hugs. Chrissy
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So sorry to hear that Midnight. There is good news though. Thank goodness thanks to your dx last year, you are under constant surveillance and if it is dcis or idc, its been found very very early. I can't tell from your profile - are you on arimidex or tamox? Did you do chemo or rads last year? Did you have a lumpectomy or a masectomy? As you are new to me from only the last few days I would love to know a bit more in case any knowledge I have is of assistance to you, or at the very least so I can offer you informed sympathy and support over the next little while of the waiting game.
Please dont feel any pressure in responding to my questions. Just if you feel like it mate.
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Oh Midnight, I'm sorry to hear that too. I'm hoping with everything I have that it will turn out to be nothing. It's horrible that you have to wait so long though. I had mine last week, and the mammo was done, the doc read it straight away, then did the u/s straight after, and if they'd seen anything, they would have done a biopsy there and then. This was through the public system too. Not always that efficient here, but Canberra Hospital is brilliant.
Jenn keeping everything crossed for your hubby
Trish
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Hi Midnight. So sorry that you are facing all these uncertainties. As Lyndal said, at least with your monitoring if it is another cancer (and lets hope not) then it would have to be early. But I guess that's not very much constilation to you at the moment.
It is a horrible waiting game, but we are here for you.
Cheers, Kate
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Throw me into the pile of people thinking of you midnight :-) Hopefully it turns out to be not a big problem...
Hubby is OK. Has a hiatus hernia but not advanced too much. Just add another surgery needed onto our list :-(
Jenn0 -
thanks Girls, yes they are pretty on to it, and they were last time. Lynda i am on tamoxifen, i had lumpectomy, they did a sentinel node biopsy and i had a wire put thru. They said it is a mamogram that is similar to mri that can catch another angle and get more of a picture of what changes there are. I thought the tamox and rads were supposed to prevent it coming back if thats what it is and i did not expect it the other boob, i thought maybe the the same one. oh well i can only be thankful i am getting a good team looking out for me. they say my age has alot to do with it, been 50. flaming hormones lol
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Midnight did you by any chance get lots of chest x-rays at some point in your childhood? I did and I recently found out that because of those I am at a much higher risk of getting BC. For this reason I am now seriously considering having a double mastectomy asap. The docs are insisting on rads because of my macromet positive node but I really don't think it will make much difference to my stats for recurrance...
Jenn0 -
Hiatus hernia runs in my family. My father in particular suffered badly from it. Diet with the removal of garlic, spices, herbs and basically anything that makes food taste yummy was how he managed for many years till he finally had the op. Just throwing that out there in case your hubby doesnt want an op in the near future.
With dad, all he had to do was smell an onion in the house and he'd start burping and having reflux lol. Growing up I had no idea rissoles were supposed to have onion and other yummy stuff. Ours were mince meat with carrot and egg yolk to bind them
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Lyndal, my DH's mother had one too and finally had the surgery to fix it a few years ago after years and years of discomfort. I know that the chronic reflux can lead to oesophageal cancer so we want to get onto this quickly. It will be better to have the surgery while still young (we are both only 47yrs) and fit rather than wait until he's older and less able to stand the surgery... Also, his breath is soooooooo bad that I'm not sure I can stand it for years ;-)
Jenn0 -
Midnight, it does sound like your team is fully on top of things. Im going to keep my fingers crossed for you and hope for b9 cycts caused by the hormones settling down.
You and I sound like we have similiar initial dx's. Im now 45 and I have an area of my remaining breast being checked regularly due to a suspicious area which at the moment appears to be only cysts. I thought after being forced through menopause 3 years ago, I wouldnt have had enough in my system to make changes to my breast sigh.
Im with you, flaming hormones indeed.
Jenn your at one of the top hospitals arent you? Can they give you time before starting rads so you can make an informed calm decision about bmx without the added pressure of an immediate time frame? I personally think you deserve a month or two off to recover from the chemo and let any chemo brain that you incurred settle down so you can clearly think through your position and your options, before making such an important decision.
If you go ahead with the bmx, having rads first seems unnecessary unless they are intending to irradiate your arm lymphs or somewhere else away from the breasts.
Edited to add lololololz at the bad breathe comment Jenn
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Ha, if only there was a surgery to cure snoring! Paul should really go and have a sleep study but of course he doesn't think he has a problem. I've even taped him and played it back and talk about D-NILE!! 'that's not me!' he says. Oh yeah? that's right I sneak around taping other men snoring I forgot! It is so bad that I often go and sleep in our spare bedroom and even then I hear him gagging, splutering and coughing all at once (that's inbetween the dreadful snoring). My biggest fear is I will wake up one day and he will be dead - seriously. And he's only just 50.
So if there is surgery out there to fix any ailment, I'm all for it. Anything to improve one's (and partners) quality of life.
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Lyndal - you got it. They want to radiate the axilla level 1 and level 2 nodes because of the nodes thing...
If I have the BMX with immediate reconstruction they will not be able to do skin/nipple sparing on the side that already had the cancer so that side will need to be totally taken and reconstructed. They may be able to do skin/nipple sparing on he other side though, although I think the BS thinks that it would be better to do both sides the same...
Jenn0 -
Kate my DH was the preverbial rattler of the rafters until recenly when he lost 25kgs. Now I worry because I don't hear him......lol! Just the occassional rumble but very few and far between and very soft. There is definitely no more apnea happening.
Jenn my mum had a hiatus hernia that was repaired over forty years ago. To this day she is still doing very well and rarely has a problem with it. Not good news but certainly not the worst.
Love n hugs. Chrissy
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It was sooo hard sitting there waiting today for Tony to come out... I nearly had a panic attack I think. He and I have seen the insides of far too many hospitals in the past few years - mostly for me but the list is ridiculous for two quite healthy people in their mid/late 40's...
Me - gallbladder removed January 2009, chest pains mid-year 2010 (trip to emergency twice), ripped anterior talo-fibula ligament off my ankle bone in December 2010, pneumonia August 2011, BC December 2011.
Hubby - lumbar discectomy December 2010, umbilical hernia caused by the December 2010 surgery (needs repair), and now this hernia...
Ah well, off to hug him (but avoid the breath)... Jenn0 -
Jenn as you know I only have the one boob left and I use a foob when not lounging around at home.
Ive wished from even before the surgery that they had taken both. Im ashamed to say its not even primarily for the reduction of risk of any recurrance. Its mainly from an aesthetic view point. To me I look lopsided and to be frank I would prefer to be dead flat if I had a choice. As a rule Im not a vain person and in my circumstances, its not like anyone else will see me nekkid (well except all the dr's, nurses, mammo and us techs etc etc argggh). Its just that when I look in the mirror all I see is a one uddered cow. I'll admit its better since the scars have faded, but I have serious envy over those who have had the bmx with no recon. Most of the clothes nowadays we can get away with being flat. Or for a special occasion wear a bra with 2 a's for a slight bump.
Ive thought very seriously over the last few years on whether to have recon or not and at this stage the answer is a firm no. I may change my mind when one of the new techniques is available in australia and for human use, but in the meantime I really wish they had taken both off so that I could be flat.
You are not me and every one of us is different, just thought I would put it out there that life might be just as nice with no boobs in case you hadnt considered it from that point of view. Hope im not coming across as trying to rubbish having recons, thats the last thing I intended.
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Lyndal I'm with you on the wishes.. I am also one hung low and it is getting lower as we speak as I quite often wear no bra. I have lymphadema under my arm where the nodes were taken and find that a bra, even the comfy Ahh Bra can and does seem to cut that area when I have swelling.
I did originally want a recon but was told by the PS to loose 30kgs and then he might look at me. I was exactly the same weight that I am now.....yes overweight but not terribly so. I was devistated to start as if I had known that, I would not have had a mastectomy........the lessons we learn along the way and at that time I had not found this site and any information was hard to come by. Everything was so very rushed, one week between dx and surgery. Not much time to catch a breath.
Jenn, make sure you know the effects and are very comfotable with your decision before going ahead with anything.
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Jenn, is there any relationship to the fact you had pnuemonia last year and now have pnuemonitis? It must be a relief to know what is going on with hubby.
How's the weather Trish? Exciting shopping day out today, we bought chainsaw blades for firewood! The nights are so cold and frost every morning, so pretty but brrrrrrrr.
Chrissy, you trip sounds like it was great. I just love your profile picture, it makes me smile everytime I see it. Look forward to grandchildren.
Midnight, glad they are keeping an eye on you, I always feel when they are listening to you and checking up it is easier to cope. Big hug.
Lyndal, I am waiting for Brac results to decide on Mx. My mum had one removed, says she is still unbalanced after 10 years and her back and shoulder hurt.
Thinking of everyone, xxx
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Kylie the little one with me in my avatar is my gorgeous niece. My grands are a little larger....lol.....aged between 13, 14, 15 and 16 and all boys!
Evangeline is now just 2 and quite the little madam.
The trip was fabulous! I really didn't want to come home I was having so much fun and seeing so many new things.
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Thank you sisters for your understanding, insted of going to Australia and checking out leech mirracle its very handy to ask local ladies about that.
Sorry for disturbance and seee you in other topics!
Regards.
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Himalaya - no problem - we're here to help.
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