TRIPLE POSITIVE GROUP

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  • thanks, Hapb. I will create a better list based on what you all contribute...we could then save it and attach when someone else asks? I knew about the mushrooms, but didn't realize carrots were any big deal? Cool ;). Also will add in the super fruits.

    Celery is just one of those you have to watch go because of the pesticides.

    I just like having all this at the back of my mind for a general guideline. I also don't want to let it overwhelm me.

  • LTWJ, congrats!!

    ladies where can we buy grass fed meat? does it say on the label

  • specialk
    specialk Posts: 9,299

    kae - my regular grocery store has a selection of grass fed beef, I believe Trader Joe's does, as does Whole Foods.

  • I red an article in a local paper that one should not eat too much meadow mushrooms, Agaricus in English? The white one that is very common in the stores.

    Great, now I do not know how to switch of the italics. Anyhow, they contain some cancerogenic substance. The article was written by a mushroom picking expert. I am picking mushrooms myself so I was interested and red it just to find out that I will not eat that much of Agaricus anymore.

  • I specifically asked about lemons and oranges and was told that they were ok, the grapefruit is a different thing.

  • Anyone on weekly Taxol, did you lose your eyelashes and eyebrows?

  • Thanks SpecialK

  • Cherry-sW

    Just finished my 9th cycle of taxol. The hair on my head has thinned a lot. I estimate maybe 30% is gone. But it's still enough that I can do a bit of a comb over the hairless parts and get away with it. Still have my eye lashes and my eyebrows. Fingers crossed that it stays that way. Oh and still have hair on my legs and unmentionables. lol.

    Saadia

  • T-Sue
    T-Sue Posts: 207

    Cherry and Saadia - congrats on knocking off another Taxol!

    I too had my hair thin out quite a bit on weekly taxol. I was able to get away bare-headed until about cycle #10. Ever since then I have been wearing a hat or scarf. In retrospect, I wish I had buzz cut it at that point rather than doing the comb over. I am now 3 weeks PFC (post final chemo) and it has only just stopped shedding. I would say I have 10% of my hair left. I had it buzz cut last night and it is such a relief!

    I have been watching my eyebrows and eyelashes VERY closely because I hear that many women lose them in the month after chemo. My eyebrows have thinned out significantly, but they still look ok. My eyelashes seem to be fully intact with no evidence of shedding. I bought a bottle of castor oil and apply it daily to the base of my eyelashes (using a q-tip on my eyelids) and rub it into my eyebrows. I also rub it into my scalp the night before I shower, wear a scarf over it while I sleep, and wash it out in the morning. I don't know if it helps with shedding and regrowth, but it makes me feel like I'm doing something.

    Smile

  • bji
    bji Posts: 116

    Cherry-sw By taxol #5 my hair had thinned about 50%, and since I couldn't color it, it was very grey. I had it buzzed short and wear my wig when I go out. At home if cool I wear a bamboo cap or go bare. My hair is growing, kinda peach fuzz about 3/4 in. My eyebrows and eyelashes stayed intact until recently. I am 4 weeks PFC and suddenly eyebrows and eyelashes shedding. Haven't shaved my legs or armpits all summer, but now feel like they are getting stubbly. Final taxol August 16, had my first herceptin only (triple dose) the next week. Our diagnosis very similar.


  • hello fellow cancer warriors. Sorry I have not been able to post for quite some time but you are all in my daily prayers! Specialk I'm so happy you made it through the storm ok!
    Kattis, congrats on your new job!

    I value all the information and experiences shared here so much as no one in my world can relate to what we go through. I have been feeling frustrated lately because now that I'm done with HP everyone seems to think I can go back to my old life - working 70 hours a week and then weekends filled with insane social requests. I am still recovering from the two surgeries, the Letrazole seems to be causing fatigue and the body aches seem to be increasing again. I shouldn't complain but some days the thought of recurrence worries me because of the high stress life that I can't seem to escape. Is this hormonal or does anyone else feel like this? I want to run away and hide so I won't have to deal with anyone or anything but that seems cowardly.

    Sorry for the rant, thanks for listening

  • specialk, posey, toughcookie, Hapb, all...thanks so much for the diet info. I am intrigued and find it difficult to know what is best to follow. I try to eat mostly vegetarian but agree it's really tough and not always satisfying. Some days I go completely bonkers and head right for something sweet but I think that's related to stress. I do feel a million percent better when I eat "clean foods" (organic, unprocessed, no sugar) so that motivates me to make better choices more often.

    I'm all for sharing tips on nutrition and like Shelabela suggested we should all do what we're comfortable with. Information is definitely our friend and I love everyone's input

  • Please take me with you Hapb! I feel that way too. I must get better at saying no
    Thanks for making me feel better
  • suburbs
    suburbs Posts: 398

    deni1661, I can completely relate to your comments. After a day at the office, I am a dish rag and require a nap. Entertaining others requires more energy than I have right now. No matter how much I wanted to be done with treatment and get back to normal, I nowdon't think that can happen.

  • suburbs and deni, i feel the same. i am ready to collapse from fatigue late in the day....and the funny thing is,my onco tells me i should be feeling better by now....

  • hap, bloodwork is ok.


  • Saadia1, T-Sue, BJI, thank you for the responses, that I just can post a question and get an answer from people going through the same thing, this is worth a lot.

    I probably only have 30-40% of my hair left on my head, I did not dye it since July so there is a lot of grey coming out. It is already cold here and I am wearing hat. I cut my long hair so I have a short bob and it is still visible under the hat. All other hair on my body are still on, but some start shedding. Eyebrows are still on but they stop growing, the same for my nails, they got a little longer during the past two weeks and after the last two infusions got pink half way through from the nail bed.

    I also have some spasmatical head aches once in awhile, like it hits inside of my head in different places at a time and then stops. Worries me a lot actually, is kind of scary. Yesterday evening I also got it in my neck. My back is hurting too, I went to two PT this week, one of them worked manually on my muscles ties and another one confirmed that it hurts because of this.

  • Deni1661, just take it in your pace and think about yourself, no one else knows what you need better than you do. I was very social few years back, then I had some rough years and stopped inviting people over throwing the parties, I still did but not on the same scale and I saw that some people got less interested and I actually saw of them less and less. Just stay focus on yourself and your own needs. I am worried about everything, my PT told me that my back pain is related to my stress levels and I should try some yoga and meditation otherwise I am just so tense.

  • I have another question, why should we avoid aluminium-bound deodorants? I just saw that the anti-perspirant I was using had some aluminium in its description. I remember someone has mentioned it here.

  • KB870, How long did it take until your eyelashes grow back? You said fast I just wanted to know how fast?

  • specialk
    specialk Posts: 9,299

    cherry - link about deodorant

    https://www.cancer.gov/about-cancer/causes-prevention/risk/myths/antiperspirants-fact-sheet

    For those recovering from chemo and targeted therapy - allow yourself as long to recover as you were in treatment, and then some. Most see a return of some energy at about the six week point as their blood counts and hemoglobin start to normalize, but know that the process of a return to pre-treatment counts can take 6-12 months. This is an incremental process, so be patient.

  • Thank you SpecialK, I will try to find another deodorant. I am only in the beginning of my treatment and it feels like such a long way that I am just cannot see any end of it yet.

  • T-Sue
    T-Sue Posts: 207

    Good advice SpecialK, thank you. It's hard want to get back to my pre-treatment activity level. I really have to stop myself from overdoing it.

    Cherry - the link that SpecialK provided sums up why I switched to a "natural" antiperspirant. When you first switch, it takes a few weeks for your body to adjust and you will notice some body odor. Stick with it because after a few weeks, the body odor goes away and the "natural" antiperspirant works just as well as the aluminum deoderant. Someone told me this AFTER I had done all of this and I wish I had known about it beforehand.


  • T-Sue, I was just checking online for an aluminium free one. So far I did not find any that is both an antiperspirant and aluminium free. What is yours?

  • No, we do not have this brand but I will keep looking

  • HapB, Amazon is online so we do have it, but back in July I ordered a book from there and it never arrived, but I will try with this deodorant. The delivery may cost a fortune though

  • T-Sue
    T-Sue Posts: 207

    Cherry, As HapB mentioned, I have used Tom's of Maine. Another one that I like is called, inelegantly, "Primal Pit Paste." It's made here in the U.S. and I get it at a natural grocer. Not sure if it is available abroad but they have a website: primalpitpase.com. Also, both are ich is available on Amazon.


  • No, got the answer: Sorry, this item can't be shipped to your selected address.

  • About deodorant ...

    This is strange.

    When I first got my diagnosis, I thought I smelled differently. My husband and MO said they didn't smell anything.

    After my mastectomies, I did not need deodorant. I have not worn any since July 2016.

    I have no order not even after a hard workout or a day in the garden.

    Vicky


  • cherry,not sure how close to you are to Stockholm, but I have a friend who shops at paradiset. She said you might be able to find all natural deodorant there. She's from Sweden and married to a good friend of mine from college. They moved back to Sweden about 10 years ago.