TRIPLE POSITIVE GROUP
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Today 1 year ago i got my first Chemo. And now I am getting my last herceptin! I can't believe i have been getting this drug for a year. So happy to be done with this part. Me today! I am not a huge selfie fan.
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Me 1 year ago
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Congrats Shelabela!! Awesome!!!
Can't wait until I can say I'm getting my last Herceptin. I've got a way to go.
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shelabela, thank you, how thoughtful, but I just got home from my PT appointment where she taped my left foot) I do not know what kind of tape she used but it is pink) She said it should make the difference and it feel like it USB already better. The neadekvat news I shouldn’t run on the pavement, the good news my threadmill should be fine. Cherry
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shelabela, did not see your pictures when I replied. Congratulations on your last Herceptin! And look at all this hair! Beautiful
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Looking good Shelabela!
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Cherry-here are a couple links on taping and the Graston technique. The Graston technique is the butter knife thing. It is a tool that works the soft tissue. It hurts like heck when they do it but feels so much better after. A PT used it on my plantar issues as well as when I had a small tear behind my knee. I swear it worked better than any stretches I was doing.
https://heelthatpain.com/plantar-fascia/plantar-fascia-taping/
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Hi Ladies,
Red332, I would love to hear what worked and what didn't for your foot pain. Not sure how to pm you, getting to know this site.
Shelabela, yaaay! Congrats!!!
Someone asked if anyone is on Lupron. I am on Lucrin (I think it is the same thing as Lupron) and Tamoxifen. I needed Lucrin to stop my ovaries, as even chemo didn't stop them. My doctor almost did not believe that during chemo my body worked as if nothing had happened... so I needed to start Lucrin during chemo. I will get it for at least 5 years, once a month as a tiny shot in my belly.
I honestly can say that apart from the foot pain, I am kinda lucky and really did not have to deal with severe SEs. I am 4 more Herceptin shots away from being done, well sort of done. Lately I get chilly a lot, that might be Herceptin. Anyone else experiencing that? Apart from the shitty hot flashes, I am mostly chilly.
Oh, and since hair regrowth was discussed... I was kinda lucky, as my fluff started to grow out before my last Taxol. And since my hair has always been a slow grower, I try to help it with two things: I use Alpecin shampoo every night and I leave it on for 30minutes. And I take a vitamin complex called Hair Clinic. My last chemo was June 20th, 2017 and I stopped wearing a wig in early November. By that time it looked as if it was like that on purpose (very very few people knew what was going on with me so I needed a "believable" length...
Hugs to you all
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Shelabela, yay on your last Herceptin! You look great, time to celebrate. Hope your healing from the grafting is getting better each day.
Posey - I love your hair! My hair used to have a similar texture like yours but now it has gotten so dry and brittle that it breaks off. My hair got really thin when I was on Arimidix but now on Letrazole it has grown in more but still thin due to breakage. I use Palmers Coconut oil to combat the dryness.
Thanks everyone for the kind get well messages, you made my day! I'm getting better at one handed typing lol
Photogirl, sorry you had to join us but welcome to this wonderful group where you will find unconditional support and helpful info.
I get the foot pain too; both feet and it's really bad in the morning. My whole body hurts when I sit too long and it takes a few minutes to loosen up. I haven't been able to exercise since my shoulder and can't wait to start again. I think any form of exercise helps with the pain.
Forgetfulness yes...my care team said part of the problem is HP, part AI and for me having multiple surgeries under general anesthesia for 3+ hours could also cause foggy brain. I think the last part is true; my brain is good for nothing since my shoulder surgery 2 weeks ago. I love to read and these days I can't retain anything and find myself reading the same pages over and over.
It's a long process getting through all this...hang in there. We WILL make it to the other side!
Hugs to all 😊
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Shelabela!
Awesome news! Great pictures! Thanks for sharing....
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Woooooooooo Hoooooooooooo Shelabela !!!!! Whoop Whoop! You go girl!
Photo - it was me! I found that the Lupron caused many of my symptoms, not the tamoxifen. My MO and I decided that tamoxifen was enough, but that was based on my particular cancer's characteristics.
-Tres
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hi Tres,
Oh, okay! Mine was ER an PR sensitive (80% and 30%) and my ovaries seemed to be too strong, so we are doing everything to stop the ER-making. I'm only 36 now, so I guess it might take stronger actions to keep on this artificial menopause.
Deni, thanks for the kind words. This group helped me so much already, but I somehow wasn't brave enough to actually post anything. Not anymore.
I think the more I come to terms of what happened to me, the more relaxed I feel talking to others about it. But still a long way ahead. I find it much more challenging to cope eith the emotional/mental part than it was with the physical part of it0 -
Hi Everyone,
PoseyGirl, gotta say, you made me smile.
GodsWithMe - I dreaded/feared getting a port. (I have skin issues) but I have had no problems - I even forget its there, except when I accidently hit it. But, I have pour veins, they roll and collapse. I had no choice, especially having Herceptin for a year. Its so very convenient. Found Living Proof on Amazon. Now I just have to figure out how to work my DVR.
I am afraid my hair won't grow back. As a baby, my hair was so awful all my baby pictures are with a bonnet. Pixie cuts growing up. I went the perm route - shag cuts, at least I don't have to spend time with the blow dryer, curling iron, gel and moouse. I'll learn to rock the scarf!
Later, rj
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Very interesting, HapB, thank you for sharing
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shelabela ... Congratulations! BTW, I like your shorter hair a lot.
Possey ... those are awesome curls.
About the foot pain and such ... Many, many years ago DH and I went to a "wellness seminar" at our health center. One of the speakers was a Physical Therapist. He said that he did not care if we ever exercised. He only cared that we stretched everyday and purposefully.
Know what my dogs do every morning when they first awake? They stretch. Even my chubby Basset can stretch!
I do some simple foot rotations, side to side pointing, stretching my hands, arms, legs and so forth.
I can tell the difference on days I skip this simple stretching.
I think this might be worth a try.
Vicky
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Sorry, just getting back here after surgery (I had a post-chemo re-excision on Tues to hopefully clear the margin and am waiting for pathology).
Re plantar fascistis:
Taping (by a professional) does a lot to relieve acute pain, but I found it very uncomfortable.
Longterm, custom orthotics are the most important, but they are expensive and take a few weeks so if you think this is temporary, it may not be worthwhile. Also for longterm, the shoe brand Vionic has built in orthotics for sandals, etc that you can't wear your real orthotics with. In the meantime, pre-fab orthotics will help somewhat. I like profoot brand. I also wear running shoes (the stabilizing kind-I buy Mizuno Wave Inspire but most companies make a stabilzing shoe) every day unless I have to look nicer (and replace every six months). V
Very very gentle stretching of the back of the leg can help. Will try to find and post the exact instructions or you may be able to find online. Go very easy at first.
I did PT, and had several cortisone shots (but that's down the road if you don't get relief) and wore a boot for a few weeks when I had a flare-up. All helped temporarily but nothing has solved the problem for me longterm.
There is a treatment that involves sending sonic waves through the foot that my podiatrist recommended that is supposed to "cure" PF 80% of the time. However, it's not covered by insurance and in the US costs about $2k per foot. Coincidentally, the plastic surgeon I consulted with had done it and it worked for him I haven't done that as it's mostly under control right now and I have enough medical bills thank you!
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Hapb thanks for sharing the article. It's good to know there are less damaging treatment options being tested.
Coach, I agree with you and your dogs- stretching is good for many reasons. My PT taught me a number of stretching exercises after my recon. I miss doing them and can feel the tightness creeping back in. I have restricted movement now i.e. due to my shoulder but I stretch the body parts that I can. We have to improvise to get past these roadblocks 😊
BTW - my chiropractor healed my plantar fasciitis problem. It took 3 sessions and has not returned for 3+ years. Also shoes make a big difference0 -
coachvicky, red, what can I say)) Just came home from my 3 km run, jumped into the shower and landed in my bed in my robe thinking let’s check what is going on our TP-thread.. Of course, I did not stretched, not because I do not want or am lazy, I just forget about it even though my PT told me to do it every morning and every evening. So, after that post, I will go and stretch, because I am not lazier than your basset)) Btw, I love bassethounds, in case you have any picture please feel free to post it.
And thank you everybody about your words of advice on plantar fascitis, it got somewhat better after the taping and inserts but today I run for the first time this week, have been running on my threadmill otherwise, so it may get worse again. And the scale still show same weight after two weeks of exercising
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- photo on top is first day of chemo,below is today,last herceptin
0 - photo on top is first day of chemo,below is today,last herceptin
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i look bloated! could it be the arimidex?..
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Kae, congrats on your last Herceptin!!! Yaaay! You did it! You rock! I love your smile (both pics) and you look awesome! Way to gooo!
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Awesome news, Kae! Thanks for the pix.
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thanks ladies..
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Kae that's great! So happy you finished herceptin!!!
Vicky, thanks i get a lot of compliments on it short. I've never had short hair before.
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kae and shelabela - looking good ladies!
jumpship - one of the reasons many oncologists don't rely on CA27/29 is that it is a mercurial marker - influenced by many things. For some patients tumor markers are reliable, for others they don't accurately reflect disease progression. Inflammation can drive the number higher, and if you are experiencing any joint pain from treatment or Femara that may be responsible. It is important to remember that your number is still in the normal range. My oncologist does do tumor markers, mine were always in the normal range - but never below low 20's - until the end of chemo, when theyjumped to the mid-60's. This was due to inflammation from chemo and the number returned to the normal range after a few months. My markers are different every time - sometimes bumping right up against the top end of the range, and have occasionally been above the top end of the range -usually coinciding with some type of injury or inflammatory situation.
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thanks shelabela and special K
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Kae ... Last day! Congratulations! You look wonderful.
Cherry, Have you considered going gluten free and lowering your carbs? I am convinced that gluten adds to my inflammation and join pain.
Vicky
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kae, congratulations on your last Herceptin! Must medel awesome. Six months of chemo behind me, first week of rads done, and still last Herceptin feels so far away for me
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Vicky, I stopped eating any kind of bread a week ago, trying not to eat any carbs either. No potatoes, no rice or bulgur. Ok, tried a tiny slice of my home made banana chocolate bread, but we are talking about tiny. I have a leafy green, tomatoes, cucumbers, bell pepper, onions salad in the morning with either tuna, or egg, or organic chicken breast and a bowl of fruits in the evening. This is to lose all weight in the first place, today I saw this scale to move a little bit, I thought I would cry), but if it takes for me to live on the salad from now one, to get on the good side of the statistics, well, kale, as much as I dislike it here I come.
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Okay, ladies, just had my first oncology appt. I have not figured out how to put all the info underneath the line under my post yet. If anyone can share the link with me on how to do that, that would be great!
I am triple positive, stage 1, grade 1. Sentinel node biopsy and lumpectomy done. HER2+ was confirmed twice by Mayo Clinic. NO lymph node involvement! Here are some numbers: 1.3 cm tumor, ER 90%, PR 75%, Ki67 2-3%. Oncologist is leaning towards giving me 12 weeks of chemo - Taxol, weekly for 12 weeks, with a combination of Herception and Perjeta for 12 months. 6 weeks of rads thrown in there somewhere along the way after chemo. The other option is TCHP for a total of 18 weeks, 6 times at 3-week intervals. Also including 12 months of Herceptin and Perjeta. Does anyone have any thoughts on any of this? I was diagnosed in January and am very new to this, not having known anyone closely that has gone through it. Thank you in advance for any thoughts that you might share!
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