TRIPLE POSITIVE GROUP
Comments
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Well They are giving me Lupron Shots along with Tamoifen but many oncologists says a hysterectomy is better because the Lupron only lasts for so long! Yes I had a Pet Scan in Dec. before my Surgery & just had a Bone Scan!
The 2nd OPINION doctor found out I had high Insulin levels & need meds for it & could have been a result of my cancer because it affects the cells in your body because it's hard to get rid of the Sugar in your body! So my husband took the call & I got home & called him back but the office was CLOSED! Now I need to wait until Monday not sure y they just didn't call the meds in to Pharmacy then unless they want to talk to me first! So I better take care of this now because Cancer feeds on Sugar & I don't need extra sugar in my bloodstream for it to feed off of!!! DOES ANYONE ELSE HAVE THIS ISSUE?
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DOES THIS MEAN I AM DIABETIC? BLOOD SUGAR VERUS INSULIN CAN SOMEONE TELL ME CUZ I THOUGHT THEY WERE THE SAME? NOW I AM CONFUSED?
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goutlaw - there is a difference between high insulin and high blood sugar. You need some clarification on which thing it is. If you have a high insulin level it means your pancreas is making too much insulin and your body is not using it correctly, if you have high blood sugar you may need insulin, or other meds, to control it.
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congrats honeybair! Diet wise, I have been recommended Anticancer: A Way of Life, which is a good read anyway. I don't follow it 100% but I try to as best I can, it's a healthy way to live anyway.
speaking of diets, who was it who offered to post a few recipes of southeast Asian cuisine? kathec and I have our lemon grass plants growing and we need something really tasty to do with them.
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Hi goutlaw- I am diabetic - nornally they would say your sugar is high or elevated. High insulin could be a result of being insulin resistant. Your body uses insulin to break down sugar and your body produces insulin to break down sugar. So if you have alot of insulin it may be that you are not breaking down the sugar - don't worry about this right now - if you are taking treatments they sometimes are giving you steriods which will elevate your sugar and therefore elevate you insulin - right now I would try to watch your carbs - like potatoes, pasta and bread and definitely sugar until you see the doc - believe me if it was seriously high - they would make sure they got something to you asap.
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Cypher - here is my Tom Kha Gai recipe! aka Chicken in Coconut Milk Soup
- 2 cans (13.5 oz) coconut milk
- 2 - 3 stalks lemongrass, white part only, peeled and cut into 1” pieces
- ½ inch piece galangal, thinly sliced
- 2 tablespoons chopped shallots, preferably pink
- one thai chili finely chopped (more if you are brave...if you don’t like spice, just halve a few chiles lengthwise instead of chopping)
- 8 oz fresh mushrooms (button or something exotic if you like)
- 1 # boneless chicken breasts thinly sliced
- 2 to 3 tbsp of fish sauce, to taste
- 3 kaffir lime leaves, stemmed and chopped finely
- ½ cup chopped cilantro
- 2 tbsp fresh lime juice
- 1 tbsp brown sugar (more or less to taste)
- Put the galangal and lemongrass each into cheesecloths and tie.
- Bring coconut milk, lemongrass, galangal, shallots, chilies, and mushrooms to a boil.
- Reduce heat, simmer 3-5 min.
- Add chicken, fish sauce, and lime leaves. Return to a boil. Make sure chicken cooks completely.
- Add lime juice, brown sugar and cilantro and remove from heat.
- Remove seasonings in the cheesecloths.
- Serve and enjoy.
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And here is my Green or Red Curry with Chicken or Beef or Shrimp recipe:
- 2 cans of coconut milk plus ⅔ cup skim milk or almond milk
- ½ can of commercial green or red curry paste (I like Maesri brand)
- 1 # boneless chicken breasts or stir-fry beef, thinly sliced
- veggies you want in your mix - chop and put in as many as you want - some like lots of veggies - some like lots of sauce - veggies I like: japanese eggplant, mushrooms, bok choy - but choose whatever you like best!
- 1 red bell pepper, chopped (the one veggie I ALWAYS add - yummy and pretty)
- 2-3 tablespoons brown sugar (be careful to not make it too sweet - this has to be “to taste”)
- 4 kaffir lime leaves, stemmed and chopped finely
- 2 bunches loosely packed fresh sweet thai basil leaves
- 4 tbsp fish sauce
- Spoon thick coconut milk off top of the can and heat it over medium high in a wok or large pan, stirring constantly, for 3 to 5 minutes. You will see it separate with little strands of oil becoming apparent when it is ready. (if it doesn’t separate you can add a little oil if needed, but I usually don’t need to)
- Add curry paste and stir fry for 2 minutes, stirring constantly, until fragrant.
- Add chicken/beef and cook until opaque on all sides - several minutes.
- Add remaining coconut milk and regular milk and bring to a boil.
- Add all veggies - simmer until slightly soft.
- Add lime leaves and fish sauce. Add sugar one tablespoon at a time, until you get the amount of sweetness you like. If it is not salty enough, add a bit more fish sauce - slowly - again - until you get the taste to your preference.
- Add the thai basil.
- Serve over jasmine rice and ENJOY!
P.S. To make with shrimp, just add them in when the veggies are nearly cooked but make sure the soup is boiling at that point.
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Yes they said HIGH INSULIN-which Im taking is hypogyclemia so my body don't break down Sugars
& just Read I should not eat Sugars or carbs because Carbs turn into Sugars! So maybe that is what fed my tumor I was thinking lol Omg this is awful one thing after another! Welp looks like I should eat nothing but Fruits& Veggies:(
He said that could cause my weight gain & me not loosing it also facial hair:( ugh Well I am glad they checked my insulin !!! It might help for a recurrence so it stops feeding on Sugar! My have bad Genes ugh
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go outlaw....watch the fruits. Lots of sugar there.
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so, I need to look at my PS Tuesday and say, " do whatever you think will look right AND will let me sleep on my tummy" ?
I had crazy piles of pillows so I could sleep when I was pregnant, and my favorite nights when mine were little were when they'd cluster-feed right before bed so I'd be drained dry and could sleep on my tummy!!
And I confirmed that my itch was crazy nerve stuff. When I was taking my shirt off I realized that my shirt rubbing the edge of the TE was causing a tickle / itch around my ribs (in the back!). Sure enough, when I touch or rub there, I feel it about 5 inches away. SO funny! And you should have seen me today shelving books and passing out chess sets and trying to not let my arm rub my foob . . .
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goutlaw. I am a type 2 diabetic with some insulin resistance. If your insulin levels are high and your sugars are too you have insulin resistance. That means your body produces insulin but does not know how to use it. The problem with type 2 is that it is hard to guess how much insulin your body produces and how much insulin that your body uses. It's a balance. If your life were in danger you'd be in the hospital while they tried to level them out. When I was diagnosed my blood sugar numbers were over 300 fasting. During tx with the steroids my numbers were up over 500. I did not end up in the hospital from that though. They handled it with oral pills. One to help my body produce insulin and one to help my body use it correctly. Some other doctors will use insulin just to get the numbers down and then go on oral meds. So it sounds like your doctor's are on top of the situation and you'd be in the hospital if it were really bad. Diabetes sucks but it can be controlled. The damage to your body is uncontrolled sugar. So you take control.
Here is some simple info.
1. Count carbs. 15 grams of carbs is one serving. Every meal should be 3 -5 servings of carbs. So two pieces of bread would be two servings. Cheese is usually about 9 carbs so a ham and cheese with butter or mayo would be 4 servings. Read the carb grams.
So half a large potato is 1 serving
1/2 cup of rice
1/2 cup of noodles.
2. Sugars are carbs - carbs are sugars
Count the same. 2 pieces of toast and jam is 3-4 servings of carbs.
3. You need balance - fruit has carbs. Find a simple list of carbs in fruit on the net.
But a medium apple is about 1 serving.
A small orange
Half a banana
15 cherries
Just a few approximate carb counts.
4. A good snack might be a stick of string cheese and some grapes.
Handful of raisens and a handful pretzels
Hummus and celery sticks.
Chips and salsa.
That should get you through the weekend. PM me if you want some help.
Sorry I got carried away! LOL. I just remembered the total feeling if what do I do? When I was diagnosed. LOL
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thanks, ladies! I am taking the acetyl carnitine & the L glutamine on the advice of my onc nurses - was already doing the B6 - not taking as much as the bottles say but the acetyl gives me some indigestion. It has seemed to help except if i have to be on my feet a lot at work. Last chemo was Jan 8 so i'm still hoping it will gradually go away - was just weird that it really get bad till I was done with chemo.
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Thanks now I take 500mg two times Daily!! Metformin geez I feel like a pill head@33
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gout, the Metformin is to help your body use the insulin your body makes. That is a large dose. That's what I am on. It is the maximum amount they give.
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notbuyinit, as I understand it, chemo has an anti-inflammatory effect, so it is apparently not uncommon to not have a lot of arthritis problems etc. during chemo, but have them come back a bit worse afterwards. That is what happened with me.
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thanks dancetrance! I will give those a whirl. I think we also had a Cambodian in our midst ... perhaps she'll pop back in with some recipes.
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Goutlaw - glad that your doc gave you some meds to help with your insulin and sugar issue and moon will be a great resource for you going forward with that med. I think I will end up on it once my treatments start but have controlled my diabetes by diet for the last two years by eliminating the fast carbs (potato, pasta, rice, bread, wheat, corn and large fruits - i do eat berries and of course NO sugar) from my diet but know this is going to be difficult to do going forward through chemo and such. I lost 60 lbs in 2 years by changing my diet and felt like I was 10 years younger - then BAM - BC - oh well.
Question should I expect any baseline tests prior to starting treatment? And if so - what are they? I did have a bone scan as I had bad shoulder pain as the same time as I was diagnosed that I had for over two months and of course I had a breast MRI - but what else should I expect and what should I ask for if not offered? Thanks in advance all.
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tests to look for other cancer-related problems would be a PET or CT w/contrast to rule-out mets.
They'll also do tons of bloodwork - just to make sure everything looks normal. (CBC, metabolic profile at least)
You probably had an EKG before surgery. I think most MOs will order a baseline echocardiogram or MUGA before you start chemo - then you'll repeat at intervals depending on which cocktail they give you.
I think that's all I had done. I'm sure others will chime-in with their experiences.
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honeybair congratulations. BTW a neighbor of mine who was diagnosed just months after me, also triple positive and stage III (several smaller tumors and lots of nodes) is still NED and doing fine. We are both doing Anastrozole... but they are all ESD (estrogen sucking drugs).
goutlaw The relationship of sugar to cancer isn't that straight forward. Ready this explanation from Dana-Farber. Granted refined sugar isn't good for you in general especially for diabetes and heart so cutting it out is good. linky
You must talk to your doctor about this. Have your list of questions ready for Monday. Also some fruits have more sugar than others. Grapes are very high in sugar. I think berries are not as bad. Blueberries seem to be one of the best fruits, high in antioxidants. Granted I hate blueberries.
cypher What do you like? I used to make a lot of Thai food. I have a few good recipes.
McKatherine There are women with lat flaps that feel itches on their back but need to scratch the new location. Crazy!
linda505 I did a BRCA test. I did get a bone and pet scan of abdomen but it may not be done for you being stage I with no nodes.
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Linda - I had a CBC, CMP, CEA, CA-27/29, Vit D level, bone density (dexa) scan, PET scan and an echocardiogram. It is important to have a pre-treatment baseline for both the dexa to know about your bones, and the echo for your ejection fraction percentage, because systemic treatment can affect both. You may have periodic repeat echoes during the year of Herceptin to monitor whether your cardiac function is still healthy. I had a post-treatment echo and PET scan, and continue to have the labs every six months.
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Yes I had a MUGA too before treatment.
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Lago, thanks for the link. The part that stuck with me was
"In fact, many cancer patients are led to believe they must follow a restricted sugar diet for fear of causing cancer growth in themselves if they do not adhere. This fear and rigidity often promotes a very stressful experience. The stress will actually lead to an increase in blood sugar as well as compromised immunity. These negative health effects are actually the exact opposite of the purported benefit of such a plan"
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Lago, thanks for the cancer sugar ingestion link. It supports what my MO told me last Thursday pertaining to sugar and cancer.
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linda, if I had to do it all over again, I would have asked for a PET scan before starting chemo. That way if it was clear I would feel assured that I was truly stage II (in my case) and not an asymptomatic ...you know ... I don't know the "con" argument on that, other than the expense, excess radiation, and false positive potential, but perhaps others can chime in. The brca is also a good idea. Actually I would also ask for a tumor market test and C-reactive protein, which shows inflammation. Neither of them would tell you too much in and of themselves but I wish I had a pre-chemo baseline. In fact I would probably just want a really thorough blood panel to have that pre chemo baseline.
lago, I guess something that isn't too much work, has a lot of veggies if possible, and dancetrance has provided two recipes with coconut milk so maybe somethings without. And with lemon grass!
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It is important to note that all cells in the body need sugar to function, sugar does not just feed cancer cells. Even if you eliminate refined sugar ( which is a generally good idea) many foods contain natural sugars, or substances the body will convert to sugar to maintain function.
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Thank you all for the suggestions on what to ask for prior to starting chemo - I have made a list and will go over these items with my MO on friday. My biggest concern is what of these are my insurance going to cover ugh. Feeling pretty good 11 days post surgery - energy level is good and sleeping but man these TEs feel weird. Next week is doctor plus week - on tuesday I see my BS who is giving me the BRCAplus test - she says insurance will cover this where they would not cover the regular brca test? On thursday I see my PS and on Friday I see my MO. I have had more doctors appointments in the last two months then I have had in the 56 years prior!
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cypher, I had never heard that about chemo - no wonder my lower back ache is back ha!
you probably all know this already - but a stuffed animal - for whatever reason - works way better than a pillow for soothing a sore "breast" - I sleep with a stuffed puppy every nite under my arm !
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what did you ladies have in the way of tests at the year mark? I am due in July & all my doc wants to do is a mammo of my remaining breast - seems like that is not enough. had a CT and lung scan after my mastectomy...they completely discouraged my having a PET scan. My Onc has never done anything but bloodwork & says most of the "tests" they have are inconclusive.
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notbuying, that was my experience. I didn't have much problem with allergies either.
The year mark from what? also it doesn't say what your stats were. I have a mammo alternating with an MRI every 6 mos (b/c my tumor didn't show up on the mammo so I need mris) other than that MO just does blood work periodically unless there are any troubling symptoms. I had to lobby for the bone scan I had on Friday (should get results tues or wed). also echos for heart functioning, but that might have more to do with the clinical trial I'm on, or was on. that's not for cancer though. (it's b/c of the Herceptin + pertuzamab, but I think I was in the placebo group, sigh)
ok I am having tenderness in my right rib area, on the cancer side. I had this before around the time I finished treatment but had a CT scan and a bone scan then and they were both clear. It went away. Now it's back. It might be a pulled muscle or something like that. I can actually feel a cord on my right side around the area where the pain is, and I do NOT feel it on the opposite side. I'd appreciate everyone's thoughts on that ...? Thanks.
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Man I would love some magic potion for neuropathy! Have given up on neurontin. My feet and hands burn the same on it or off. Figure i take enough drugs. I take super B complex of some sort-and have since prior to BC moving in. Have changed brands but does not seem to make a difference. Shoes-I love to buy them-but prefer not to wear them. Mine generally come off @ my office door. Mine hurt less without shoes also.
So bring on the magic potion. Or alcohol.
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