TRIPLE POSITIVE GROUP
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Welcome Sheila6!
I had 1 round of taxotere after 3 cycles of FEC - couldn't handle the taxotere so switched to 6 weekly infusions of taxol. Last one is tomorrow. My surgery was March 17 and I was diagnosed Feb 27. I NEVER believed that time would pass so quickly - or that I would feel stronger and better about myself and my life than I do right now.
I know that this might sound bizarre but cancer has brought many positives with it. I have met wonderful people; know more about myself than I did before - have had some great opportunities to share my story and volunteer to help others while being able to work out at my gym 4-5 times a week.
I am most thankful to everyone on this board for helping me through this journey. This is a great place with wondeful women whom I am proud to call sisters.
You will do just fine!!!!
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Hi footballnut, thanks for your response. Glad to hear you have one more treatment, I agree it does go by rather quickly. I am glad I gave joined this board. Looking forward to sharing more about my journey. By the way I have friends in Minden Ontario. I visit there at east one a year. Well not this year, but looking forward to visiting next year in the fall.
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Footballnut, so good to hear about all the exciting events in your life. You are an amazing lady! I'm on the couch for a week AGAIN, following my final chemo. Totally in awe of how much you have been able to accomplish while going through tx. Going to checkout your Rocking It Bald page, great name, btw.
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hello all,
I've been finishing rads, 5 more. Not burned just tanned well. I'm running and biking and strength training.
Muga last Friday had heart ejection fraction down 13%to 52. I started at 70%. I have 6 more months,I'm hopeful I will make it.
Lago. Congrats on 4 years!
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Sheila6 I think I was in shock for about a year. If you can try to do some kind of exercise. Walking is good. Even if it's only for 10 minutes. Believe or not it can help with the fatigue. Won't remove it completely but just help. I know I would have to nap around 4pm or 5pm while on chemo. I am not a napper but surgery and chemo… I required naps. Can you sleep under your desk at work
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Dear Shiela6, welcome to a community of supportive and compassionate individuals. We read your post here and we are truly sorry you are going through all of this. We hope you find the support and information that you need and keep your positive attitude.
Sending you our best wishes with your treatment and recovery. We hope your energy levels improve and you recovery goes well.
The Mods.
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Good morning +++ ladies! Like footballnut, I have been out living life! After two years, I finally had my prophylactic MX on "the good side" and DIEP reconstruction on both. My surgery ended up being 18 hours! Thank God for a young, talented surgeon who was able to work through the complications. Turns out, my blood started clotting and each time he was near finished attaching the artery, he had to redo it. Poor hubby that had to wait all those hours with no news! Ugh! I spent 8 days in the hospital, and now it has been three weeks since. I am quite exhausted an still have much healing to go, but I have to say...waking up with a breast after not having one for 2 years was simply amazing! I just love it.
I am now on blood thinners and will be seeing a hematologist. I have been pulled off of Tamoxifen and need my MO to address that. I have had four previous surgeries with no issues, so this came out of left field.
My hair grew back quickly and full. My eyebrows came back, but oddly the strays I used to pluck did not. My aches and leg pain from the Herceptin disappeared, too. I am left with a small amount of neuropathy in my toes, but pretty much back to me!I know I don't post much, but I do lurk and keep up with you. Hugs to all the newbies. I hope you will continue to look for the silver linings, because there are many blessings to be found along this strange and unexpected journey we are all taking together.
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Thanks All for the welcome! I have been doing some exercise, mostly walking. Would like to getting back into my strength training. Before being diagnosed, I exercised at least 5 days a week at home DVD's. I live in FL and it is so hot to be walking outside. Looking forward to cooler weather in November. I do have a spin bike in my home as well. Lago I wish I could sleep under my desk LOL. Feeling good this morning, started my steroids, I have my third chemo tomorrow. I hope everyone has a great day!
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Footballnut
Wow ! You bring new meaning to the term " rocking breast cancer" !
Break a leg in all your events:)
Just one more thing... Are ya ready for some football?
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Sheila6
Welcome!
Sounds like you're doing well. Some of us are fortunate to have an easier time of it. I was one of them .Others not so much.
I encourage you to keep a diary . It is one of my greatest regrets that I didn't do so. It is helpful in multiple ways.
I discovered ... After my 5 th chemo ...that. the " steroid rush " period was a great time to clean my closets and other miserable jobs! To tell you the truth, haven't done it since !
There's always someone around in short order to help you through this:)
Again ... Welcome!
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Vballmom
Yikes ! Hope the blood issues will be discovered and alleviated ! Great on thick hair. It's looking like mine will never recover.
Great to hear from you !
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princess am
Congrats on being at the finish line of rads..That was a low point for me .
On to finishing the herceptin and probably hormonal therapy very soon
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Thank you Ashla! I have been keeping a journal. Has been helping me to look back to see how I was feeling during my treatments. I agree about the steroids! I get allot more housework done! I am feeling good. Usually the first week after treatment I get tried, than the last two weeks prior to treatment I feel good. I will still continue Herceptin after chemo is done and also radiation.
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Hi Sheila,
I'm just a little ahead of you, completed my chemo 3-1/2 weeks ago. It was definitely the hardest thing I've ever gone through physically. I had to work full time too, but my boss let me work from home a few times when I was feeling my worst, usually 4 days following tx. People are generally very understanding, so you might see if there is any way you can work from home from time to time, or even ask employees to donate time off if you don't have any left. I have to say except for a few minor SEs I'm feeling really good now, so there is light at the end of the tunnel, and it's not a train.
I go to the radiologist Monday. Can someone tell me the normal procedure for that? 0 -
efcjax...I met the RO. He talked to me about treatment types and options and his recommendations. I went in for exrays and a CT, they marked me with a sharpie and the next day I started daily treatment. I come in and change into a gown, I hop on the table, they move the machine into place and step out. My ca was on the left so I held my breath for each exposure. I had 4 each time. You go 5 days a week. It takes longer to change they to be treated. I had 30 total treatment, 23 whole breast and 7 "boost" to the tumor bed area only. I have a little bit of peeling to my underarm and have only 4 left to go. I have run, biked and strength trained through this part. I was unable through chemo, like you I worked full time, none from home sadly.
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Thanks Princess! I'm glad to hear rads won't be so bad. My cancer center is conveniently located less than 2 miles from my office.
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That will help. They also recommend using aquaphor. I used a cream called prutect, script. It seems to have helped. I am just a little sore under my breast but only 4 more to go. And you dont feel anything at the treatments themselves. Good luck!
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Welcome Sheila! This is definitely the place to be. The board is busy, so you can post those 3 a.m. panicky questions and get an answer pretty quickly. We've mostly all been where you are. I barely survived my first (and only) TCH treatment, so you are doing well, whether you realize it or not. I ended up on weekly taxol. I too worked full time and I was looking back on some of my communication sent around the middle of it, and I was a doofus. I'm a scientist and pride myself on accuracy, but oh boy did I have chemo brain! Tee hee, it goes away.
Jax, rads are a breeze. You'll meet with your RO for a consultation, which is really a lot of explanation and a chance for you to ask questions. Then you'll go for the sim, which involves a CT scan (and at least for claustrophobic me, I was in an open CT). They'll make a mold of you out of a bean bag chair that they position you in and suck the air out of. Then they'll stick bb's on your scar. Your RO will come into the room and read the CT (he/she is looking for where your heart, ribs, lungs, etc are in relation to you lumpectomy or if you had an MX, in relation to where the tumor was). Then they draw on you with a sharpie and stick stickers on you that are waterproof. After that, just like Princess said, the appointments take less time than changing into and out of your clothes. Easy peasy. But listen to them about what you can and can't use on your skin. You want to avoid most products because they can intensify the radiation.
VB mom, bet you a million bucks your issues were caused by tamoxifen. It increases clotting times. Hopefully it will all get sorted out, but I'm glad you are feeling better. And have two boobies!
Ashla, I so wish I kept a journal. I know I went through quite a journey, but as is so normal with us humans, I've blocked so much of it out. Hearing songs that I used to hear driving home from the weekly chemos brings floods of memories back...
FB nut, I just friended you on FB (Jane). And my Colts will beat any team out there this year. We are on FI-ARE!
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Hi all! Welcome to the newbies!
Footballnut! You are one busy lady!
Lago! Congrats on 4 years NED!
My magnesium test came out great. No infusion. But it was only 4 weeks since my last infusion. If next one at the end of this month is ok maybe I can get the port out soon. Heck it's 2 years PFC. So here's hoping. LOL.
Much love to all.
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Efcjax, thanks for your encouraging words,. Ii am glad to be able to still work, keeps my mind busy. But I am able to go home if I am feeling to fatigued. Usually happens during the first week after treatment. I hope all goes well with your rad treatments. I too want to stay close to work , when my rad treatments start. My boss has been very supportive.i am using my vacation time. Which I am glad to have it. Did not take any vacations this year. Hoping to take some time off around thanksgiving.
Pbrain thanks for the radiation information, I will starting that after my last chemo on November 6th. I was told it will start in December. Glad u survived your chemo okay. I cannot sleep tonight. Which is nothing new. Chemo three tomorrow, 3 more to go
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Sheila if you are having trouble sleeping on a regular basis ask your MO if you can take Melatonin for sleep issues. You must ask before you take it because it does interact with some meds.
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Thanks PBrain! Always good to know what to expect. Sheila, I took the generic of Adavan to help me relax and sleep. It also helps with the "twitches." Vbmom congrats on the boobies! I hope everything gets better soon. Football, don't know how you do it all. On chemo I just wanted to sit and stare mindlessly at the tv every evening.
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A warm Welcome to the new ladies. I hope you find hope, encouragement and answers here.
Moon, that is great news on the mag levels. Hopefully you will get another good report with the next one!
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good morning all
Well I rang the bell hard and loud yesterday - twice and will do so again once herceptin is done next June!!
Oh and pbrain. GO BRONCOS!! Can't wait!!!!!!!!
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Awesome news FBN. You look great!!!
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tx Bren!!
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Congrats Footballnut!! I'm sure ringing that bell felt great.
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Congratulations footballnut!!! You look fantastic.
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Way to go FBN! Just in time for the season!!!!!
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Congrats FBN!!! You look great.0
