After Radiation
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Dear Grannydukes,
To return the questionnaire on fibrosis and auto-immunity to me you could scan it and then send it email back to me. If you're not able to scan it I'll try to think of another way for you to get it back to me. Maybe a PO Box or an address. So sorry to hear the way your RO treated you. They're so irresponsible! They never should be handling such a lethal weapon/material! My Rad Onc is no better. He didn't even tell me I have RIF - to this day. My Best, Eliza0 -
Eliza---I sent you a PM...
Ducky---soon ya gonna be good as new...have a few vodkas...nothing will bother you then.Tomorrow is gonna be a brigh new day...
TorriGirl----I sent you a PM with all my info for facebook.I broke the cardinal rule.I came out of the closet only for the PANTS and the stage4 sstas.and of course Gina,Sherry and JOJO.I just couldnt resist you girls.Our sistas in the newspapers......YAY.
I sure hope other sistas who have auto immune diseases are gonna help Eliza with her questonaire.We need all the info we can get sistas.and i bet everyone here knows or has at least one of these diseases.Good luck Eliza
Huggggggggs K
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Hi ducky - You and I finished rads within a couple days of each other and shared our experiences back on the 2011 Rads thread. I wanted to let you know I started having pains exactly like the one you described at the same time you felt them. When I take a deep breath, I feel a pain. I was thinking it might be heart-related as my pain is right near my heart. My cancer was right above my heart so my boost treatments were targeted directly above my heart. I was out of town when you first posted so just saw this today. I'll be interested to hear what your docs have to say. All the best, Gabby
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Gabby---stick with Ducky---she will keep you posted with every detail....and she knows her stuff.and if all fails she gets the vodka.....smart lady...keeps us cracking up.0
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Gabby, the Doc told me to go see either my Cardio, or my PCP..........................late yesterday afternoon the achy feeling went away.........not sure what the hell it was, but for now it is gone.................It felt more like muscle then anything else, nothing sharp, just annoying..........I will let you know if it comes back again, and if it does I will go see about it then.....................
Actually how the hell are you suppose to know what ails your ass.............they jab you with needles, then they remove either all, or a portion of your favorite gals, then what is left of you gets cooked till your 'well done", and after that they put your sorry ass on a pill that gives you every SE known to man...........so I ask you...................HEY DOC............WHAT THE F--K DO YOU THINK ALL MY ACHES AND PAINS ARE FROM.....................
...Guess what "Smacky", it didn't take a medical degree to figure out what the f--k is wrong......................ok, now I'm gonna go find the Vodka, and follow it with a Kahula chaser...............yum............................
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By the way Gabby dear.................how the hell are you ...........................and your right Granny.....................we stick together, there ain't nothing we can't beat..................Yowza, Yowza...................................
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Ra Ra Ree kick it in the knee, ra ra ras kick it in the other knee! Cancer sucks, let's all forget the knees and kick it's ass.
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duckyb1
I am 3 1/2 months out of rads.I just started having soreness under my left radiated breast.Very sore to the touch.almost felt like a fractured rib.Then as the days went by it isn't as sore.But still there.I called my RO and she said if it doesn't go away to come in for an x-ray.I didn't have this until after my mammogram and follow up exams from all the doctors in September.I thought it was from everyone poking and looking at me.But it is still here about 1 month later.Somedays it is more sore than others.Might have to go back next week to see what's up!:(
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Walley I have the same soreness, rads stopped in June, scans scheduled for Nov. My bra pushing on the same spot even hurts - and I 'm in elastic hold nothing bras. If someone tries to touch me in any of the radiated area - from my clavicle to my bottom rib around my side up the underarm - i'm flinching at the least and screaming at the most.
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ducky - you crack me up but you are so right about the damn doctors. They do all this shit to us and then can't explain why we have all those aches and pains. Hope you have an extra glass - I could use a shot of vodka about now.
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I had the same soreness several months after rads. It hurt to the touch but now when I breathed. RO said if my ribs were broken it would hurt to breath. The soreness would go away and it did. Now all my other aches and pains in the breast are there to stay
don't like them one bit but everyone says they are permant. Really hoping that when I get my BMX it will take care of the nerve pain.Gina I like your cheer!!!!
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well it looks lke we are back to the pain again.grrrrrrrrr.i too am having pain under the arm..its raining here and my onco said i will/could/should/might have ths pain forever/yay!!!well im just jumpin for joy over ths shit.my surgery was a yr ago...DUCKY---i gotta start drinkin with ya....alcohol hates tho.
im on a rant.i hate this pinktober again!!!!!!I dont really watch TV but im in Brooklyn and where ever i go the TV has this pink shit...komen.AMA,Cancer hosp.Kiss my lill ass and find a damn cure/vacine.end of rant.
feel betta everyone.its gonna rain a few days here.i need something to blame.hugggs K
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granny - Sorry you are feeling the pain again. Wish I could help you. Blame it on the rain??? Could be like some of us that have arthritis and the rain has a way of flairing it up. October is half over - hang in there sweetie.
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Just had a phone conversation with my daughter.................Guess I was on a "roll"...........she mentioned a song that Martina McBride just put out, and it is about BC............she told me a few things in regard to the words........can't remember what it is called...................
I said to her................Know what Michele..............it isn't about the "cancer" itself.......it is about all the shit you go through, before, during, after, and "long after"........................It is not about the "awareness", we're all fucking aware of cancer, especially the ladies who have gone through BC. For us it never ends.......................they don't need to make anyone more aware ........if your not aware that BC exists, then your living under a rock.............................what we need is a vaccine to cut down on the cases of BC , and the cases of recurrance............
We are diangosed, jabbed with needles, cut open, poisoned by chemicals, fried like a hunk of meat, and then put on drugs that make us lose our QOL....................................and after all that "bullshit", we are told to hope, hope understand, (not assured) of possibly getting through the next 5 years without a recurrance............................
Sure asshole, buy your "pink shit".............wear all your buttons..............walk your ass off....................sing Happy Birthday to me.....................but honestly all that means nothing to a "breast cancer patient"...............................what we want is for all the "do gooders" out there to find another way of making us "aware"....................................show us a vaccine, that gives is "hope" and says to every BC patient.......................FINALLY, THANK GOD FINALLY.
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Ducky I so know how you feel. I am planning on having a BMX to keep from getting scanned everytime I turn around. I am 49 years old. My MO thinks that since I already went through treatment that I should just get scanned every six months with mammo's and MRI's. I'm thinking what kind of stinking quality of life is that going to be. He says if it comes back or if I can a secondary cancer which he says I am at high risk for we will find it early. I don't want it to come back or find another one and want to cut my chances as much as possible. If my BS had given me my choices and the whole big picture to begin with I would have choosen the MX but she did not so now that I know the big picture I am going through with the BMX. I want to some day be able to see my MO once a year. If I don't have the MX the least I can go is every six months for life. I figure it took my cancer 14 years to go from a B9 issue to cancer so I don't want to be dealing with this again when I am 65 and looking at a BMX at that time. I figure I should have it done while I am young and healthy. I like him but no thank you. I don't think he was really getting what a worry wart I am. I think he realizes now. As Granny is always saying where the h**l is that vacine.
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Rochester Mayo Clinic is set to test a vaccine against breast and ovarian cancer starting early next year. Let's hope it leads to something. Unfortunately, you know how long these trials can take, and how sloooow the FDA is to approve things. Kudos to the 50 brave women who were chosen for this, because this trial is a safety check....you know, let's make sure this doesn't cause more harm then good kinda trial. Scary. I shamefully admit to being too cowardly to participate in trials and studies, but if not for the people who do, then where would we be? Hoping it goes well for both the trial participants and their doctors.0
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Panmars that is great news I had not heard of that.
Just got my six month mammo and US scheduled for next Friday. Can't wait to smash my boobs again! not But don't want to miss getting them checked either.
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Grannydukes,
Did you get the Genie bras? If so,did you like them? Did they have enough support for larger breasted women?
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My onc told me they are going to be starting a vaccine trial at my cancer center. I don't really belong on this thread, but have been lurking to see what goes on since I started rads last week. A little over 3 weeks (not that I'm counting) until I can officially be here.
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I lurked here too kay when I was going through radiation to see what I could look forward to....
The vaccine trial sounds interesting!
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I agree, the vaccine trial sounds very interesting. I don't think I can be on it though. I will have to ask her about the qualifications for it. But it would be wonderful if it works out for all of us.
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Welcome, kay! Lots of good advice here. Hope rad treatments go smoothly for you!
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ok sistas...lets see how this puter is gonna hold up today!!!!.
Ducky----you went from friggin to fuckin cancer in a few days.I think we are gonna get kicked off the boards.ha.We all hear ya but the outside world does not.the only ones who get it are the ones who hear the word cancer and your name in the same sentence.period.not even our closest.FIND A DAMN CURE!!!!!!!
Panmars---I have not heard about the study.I would go into it in a heartbeat.I did a dbl.blind study on migraines yrs ago.i took over 100 needles in my head and face and never got the botox,only the placibo.lol.I wish this does happen.I sure hope the FDA and the FTC does not dragggggg their feet on this....and i hope and pray it works for those lucky 50 people who were chosen.can you keep us posted if you hear anything?
Wally----AH the Genie bras....i sure got them.quite a while ago.i like them a lot.they are not the best but damn they sure are comfortable and the price is right.now they are on the HSN or QVC not sure sooo it s kinda a hot item.My friend ordered them and is waiting months.I havnt worn all of them yet as i have about 15 different bras and my breasts are still sore at times.I rate them a 8.pretty good huh!.
Kay---welcome---nothing like getting a head start and listening to the sistas who know it all.If one didnt have it someone on this thread sure did.Stay with us.
well the puter did good.gotta check the rest of my sistas.hugggs JO JO...good weekend everyone.pain free.K
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oh Wally im a 34DD.does that answer your question??????
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Kay glad you joined us now as you will be finishes before you know it. and we will all give you support
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I am done done done. I am done done done. As of today. I gave them my badge and my gown and said, here take these, I don't need them. Now to find a job and get in shape. One of my best friends took me out for a celebratory dinner tonight and my daughter and I are celebrating with brunch tomorrow. Boy cat celebrated by peeing outside the box and girl cat by swatting the strip thing that you pull off the cap of the milk bottle all over the house. What a wild bunch of creatures! Wheeeee!
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Congratulations bedo!!! Happy dance!!0
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Congrats Bedo, doing the Happy Dance for you
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love to hear done done done.congrats.0
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Congrats Bedo! Be good to yourself...we are happy and dancing for you!
Tori
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