Starting Chemo in Nov. 2011...anyone else?
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I am good, no problems medically. I am doing a lot of worrying about other people, like my pregnant daughter who had gotten very hormonal and negative. She is wearing me out! Then there is my mother who is 92 and living in a nursing home in NC. She is getting dementia, I guess, but it is so annoying. She wants me to come for her birthday, but she doesn't remember the last time I was there. The trips take a whole day to go and another whole day to get back, and she can't understand that I do not want to be that far away with my daughter's due date so close. On a brighter note we saw Jersey Boys. It was really good. If you are/were a Frankie Valli and the Four Seasons fan, I highly recommend it. Beth, I hope you are healing well. Phyllis, any news about your tests?
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I have one open place under my left implant that is healing slowly. My skin itches. I think that is the last stage in the healing process. I am taking Xeloda-7 days on, 7 days off. I am feeling better each day. I think I may have overdone it yesterday or the pill makes me not want to sleep. I can't seem to get going today. I can't wait to get beyond this stage in my life.
It's been hot here the last couple of weeks. A tropical storm or hurricane is developing so the weather might get crazy the next couple of days.
I hope each of you are doing well. Praying for Phyllis.
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Hello to all...I am sorry to have been gone for so long, but I see our thread is getting less and less activity. I just had a call from my MO letting me know that my tumor markers are high and I have to go for a PET scan. I am terrified to say the least. I didn't know where else to say this and feel I would be understood. If anyone happens to read this, please send prayers my way. Hugs to all...Linda
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I know this is scary sounding, so I am sure you will be understandably anxious until you get more information. I hope the PET will be soon and will show no signs of cancer anywhere. I have heard that the tumor markers are not very reliable, so try not to panic too much. I am sending you a big hug!
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Thanks so much Bahamamom, I truly appreciate your support and the hug! I hate this damned disease. I have tried to find out how accurate tumor marker tests are both here and elsewhere. I guess some MO's really think they are a good tool and others don't even do them for their patients. I originally did all the testing for my diagnosis in July and August, so this timing makes me really not want to "go there" during these months. I know being superstitious is dumb, but I hate this deja-vu feeling. I will be anxiously (to say the least) waiting to get the PET scan scheduled and over with. Thanks, again for your kind words. Hug to you, too!
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linnyhop,Gentle hugs, this all soooooo sucks! and yes PTSD. Let us know when the PET scan is and we will all be right there with you.
Nel
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Linnyhopp,
Prayers are headed your way. I hope everything turns out negative. Please keep us posted.
Susan
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Thanks Sushane & Nel. I can always count on all of you for support and. caring thoughts. I am a wreck as you can imagine. My PET scan is scheduled in 2 weeks. I am hoping I can keep it together. I just feel so defeated. I will keep in touch. Hugs to all of you!
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linnyhopp,Don't forget to keep breathing ( I always need that reminder in these situations) post and let us know how you are doing.
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Linda, so sorry you're having to deal with this. Hope your pet scan is scheduled right away. Hugs from me, too.
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Thanks Nel & Grandma. I am writing this and trying to remember to breathe. I will definitely keep you posted. I wouldn't wish this stuff on anybody. Have a good rest of the weekend.
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LinnyHop,
hugs on their way! Q
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Thanks, Quaatsi ~ I appreciate your hugs more than you know.
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Sorry it's taken me so long to post. Linny, good luck on your scan. I hope it's nothing.
My biopsy was positive for triple negative breast cancer neoplasm. I was lucky enough to get enrolled in a clinical trial at MD Anderson in Houston for patients with one to three points of bone metastases. I will have 3 to 4 months of chemo then intensive rads to the tumor site.
My RO called it a curative trial so I'm pretty hopeful. I start the carboplatin/gemzar tomorrow.
Phyllis
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Phyllis, I am happy to hear from you again. I was worried that you may be feeling down, but you sound like you are dealing with this as best as anyone could. I am so sorry that you are having to go through more chemo and radiation. I hope that this type of chemo is easy on the side effects. Do you live in or nest Houston, or are you having to travel for the treatments? The clinical trial sounds like a good one. Please keep us posted. We are here and want to help if we can.
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Just wanted to drop in and say hello to all of you. Phyllis, I hope that trial is a curative one. It is wonderful to be involved in a promising trial. I wish you the best and look forward to hearing about how it is going for you. Thanks for the good wishes on my upcoming scan. I am so scared of what might be. I wish I could just skip it, but we all know that would be foolish. Like Bahamamom, I hope this trial is easier than the original treatment.
Hugs to all...Linda
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Phyllis, I am so sorry to hear your news. Praying the best for you.
Linnyhop, Hoping the best on your scan.
I always hope the treatment we go through will stop this. I finished rads on June 3. Two weeks ago, I found out it has moved to my back. I began rads again last week. 33 treatments. At my onc visit today, I heard about another lady who has been battling the same cancer and I am and her chemo is working. I was so encouraged. This was her 4th or 5th drug but it is working! She didn't give up and neither will I. I felt like I could conquer the world today.
Everyone, hang in there and be encouraged. There is hope.
Hugs and blessings to all!
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beth, Oh crap on this cancer. You will rock this as you have before and know we are here for you
Gentle hugs for Linny, Phyllis and Beth
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Beth, I can't even find the words to describe what I feel. I'm stunned, but also amazed. You have such a positive attitude.
Phyllis, I hope this does prove to be a cure. You also have a wonderful attitude. You're amazing, too.
I admire you both so much. You can do this.
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Linda, I'm scared for you. I would say try not to worry, but I know that's impossible. It's so awful that they make us wait. I have my yearly mammogram coming up Thursday and I would like to skip it. Ignorance is bliss.
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Beth, Nel & Grandma ~ Thanks so much for your caring words. I am scared to death right now. On top of it, I have my mammogram and bone density test tomorrow. And oh joy! The pet scan is scheduled for 4 pm on Thursday, so I have to be at work all day without eating or drinking anything to boot! This is just so nerve wracking all the way around and I hate that any/all of us have to go through these horrible, nerve-wracking times. Like you, Grandma, I could SO SKIP ALL OF THIS STUFF! I will try to make it through and stay positive. Hope all of you have a great week! Hugs...Linda
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Had my mammogram today. The technician said there were some changes in my non-cancer breast that after closer images she and the radiologist were confident they were breakdown of fibrous tissue caused by femara. I have my annual appointment with the breast surgeon next month and will see what she thinks. Cancer side is looking better. The scar tissue has diminished quite a bit. So I'm mildly concerned, but not really worried, since I will also see my oncologist in a couple weeks.
Linda, Did you have your pet scan today?
Beth, how's the new treatment going?
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Phyllis, I hope your new treatment is kind to you and turns out to be a cure.
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Hello All! Treatment is going okay. Tired and itchy. Oh my the itchiness!. I can't scratch or rub my skin because the bumps are so sensitive. I talked with my onc on Thursday. The radiation is working on the larger bumps on my back. I have two new places on my chest. She said when I finish my radiation, I will start the chemo. It is called Navelbine and is working for the other lady. Her cancer was spread much worse than mine and this drug is working to shrink the cancer. I am praying it works for me also. This is such encouraging news. I had begun to wonder if anything would work.
Praying for all that we have cancer and stress free days. I keep looking forward to the first week in September. We are going to Orlando with the babiez. This is what keeps me going these days. I cannot wait!
Gentle Hugs and Big Blessings to all!
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Linda, I am hoping your wait to hear the results from all your tests is a short one. For some reason I am much more antsy waiting for results after the tests are performed than I am while I am just for the tests to get done.
Phyllis, how are the new treatments going? I am hoping for minimal side effects for you.
Beth, this seems like a never-ending ride for you. I am excited that you are going to get to spend a restful vacation with your grandchildren. Remember to take it easy; it is easy for toddlers to wear us out, even when we are in good health. Have you tried any cremes for the itching? What about sarna? I think it is pretty gentle.
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Grandma, hopefully, the changes in both of your breasts are benign. It makes sense that both the surgeries and the treatments would create some changes, but I know it is easy to panic when there is any possibility or suggestion of more cancer. I am sure we will forever have that uneasiness. I hope you get reassurances at your upcoming appointments.
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linda, beth, Phyllis and Grandma (hope I did not forget anyone) Thinking of all of you and keep us posted.
Be well
Nel
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Hello friends...I am feeling so blessed and grateful because my PET scan showed NO RECURRANCE! I haven't gotten the results of my mammogram and bone density tests yet, but I am hoping the PET scan is a positive note for those as well. I am not sure if the scan trumps the mammogram. All I know is that I am a very lucky woman today and my wish for all of us is that we can stop and ultimately be cured from this rotten, lousy BC! I love each and every one of you for your support and caring.
Grandma ~ I am praying that the radiologist was correct with the comments made. I kind of think that a doctor doesn't go out on a limb with the things he said without being pretty sure he/she is right about what they say.
Beth ~ I am keeping positive thoughts and prayers that the treatments you are doing will kick the BC to the curb. I have to say the itchiness would drive me crazy. As we used to say when I was in elementary school...it's like having the cooties...lol!
Nel ~ thanks for being such a wonderful support. I know you have had a lot to deal with and your generosity of spirit is truly appreciated.
Bahamamom ~ I hope all of the loved ones you have been worrying about are doing better. My husband and I have been in the same situation with parents and it really is a struggle, especially when you have a HUGE reason for keeping your stress level down.
Phyllis ~ How is going with your clinical trial. Praying that it truly is a curative for you and the others involved. Please keep us posted on how it is going.
Sorry this is such a long post, but I wanted to make sure I read all the posts and let you know I am thinking of you. It's been almost 3 years of ups and downs for many of us, but I know I couldn't have made it without my November 2011 buddies!0 -
Linda, I'm so happy your pet scan was clear. Yay!
Hope everyone else is doing well.
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Yay Linda!!!!!0
