Kicking LEs butt!! Exercise & Self Care Log

11314161819235

Comments

  • olearca
    olearca Member Posts: 65
    edited April 2012

    Oh, how I love this thread and you ladies.  Really, it warms my heart and soul every time I come here to read all the positive comments, the cheering, the support - and the gentle and not so gentle reminders that like Carol said we can't live in a tyvek suit!  I am going to check out the Duckskinz (thanks Hugsz). 

    I've got my sleeves on, my pedometer attached and water bottle filled.  Off to get in a short run, a bunch of steps and some core/abs work.  Slow and steady. 

    PS - Carol, I use hibiclens occasionally - like post shingles rash as I've been itching alot (trying so hard not to but given that I don't want to inoculate myself with infection) and I also use it in my pits before shaving just to be as sure as I can be that the skin is clean - with a new, sharp razor each time.  I think it is way too harsh for every day use, but there are times when it can be useful.  Binney is right (as always) about being able to swim - and then take good care after wards.  I've taken to keeping a little supply of abx ointment, alcohol wipes, bandaids in all my bags and purses and cars.  Oh, and sunscreen and bug spray now too.

  • olearca
    olearca Member Posts: 65
    edited April 2012

    Hugz,

    Not sure if you've ever seen this link but here's a great one about water and aquatic exercises for LE.  Might give you some ideas for what to do in the water.

    http://www.lymphedemablog.com/2011/01/20/the-benefit-of-aquatic-exercise-for-lymphedema/

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012

     Today's message to those of you busy kicking LE's butt: 

  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    Catherine, you go girl!  Let us know how the walk went.  Do you walk anywhere interesting?  And yes, we sure do have to have a bag full of provisions with us  now, don't we?

    Hugz, great link, so thank you for that!

    Tina....WOWWWWWWWWWWWWWWWWWW!  And did you create this one while wrapped?  In which case, you get the LE hero award!  (You get it anyway, even if not wrapped while drawing.  This is simply beautiful!

    Carol

  • hugz4u
    hugz4u Member Posts: 1,818
    edited April 2012

    Shoot.. I just lost my post. I wonder why that happened. Now I don't have time to retype.  

    Carol, I just tested my ducksinz and the water rolled off.  I can't remember what happened to it when I went into the pool though. No you are not allowed to fall off the sup board and get wet! 

    Becky, you must have great lung and heart capacity. How long did it take to train up to that level you are doing? I get heavy breathing just walking 4 flights of stairs and can't walk faster than 3.5.

    Olear,You encourage us too, when you report in that you are exercising. Go for it!  Will check out the swim exercise link. Much thanks.

    Tina, LOVE IT, LOVE IT LOVE IT! I will drink lots of water and drown LE's butt to boot! 

    Gotta get to work, I have enjoyed the threads so much lately that I am getting behind in my chores etc. 

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012
    Catherine, the link you posted looks really cool. Going to download the video to my Mac, hoping there is a way to get on my iPad. Congrats to being back on track and feeling better!




    Speaking of being prepared, I recently got two insulated lunch bags as freebies, and I put them in the trunk of my car. One has first aid stuff relevant to LE, sun block, bug spray, water, etc. The other bag has some of the goodies I used to carry in my purse, such as hair brush, paper and pens, allergy meds, Tylenol, hand lotion, lip balm, mints. They weighed me down, and my goal has been to downsize to the smallest cross-shoulder purse possible. The stuff is mostly a duplicate of something I would use at home but might need again if I'm out all day. I'm thinking of putting sets of this stuff in my husband's trunk, too.




    I just returned from my appt with my LE therapist, and my bad arm now measures 1% less in volume than my good arm! Yippee!!! So, she has given me some leniency as far as wearing my sleeve and glove. I am allowed to test the waters, so to speak. Wrapping is something I need to do if my arm feels heavy or has those familiar odd sensations. I think for now I am going to wear the compression during the day, as this is when I tend to swell. (For those times I "forget" because I feel good!) She is ordering a beige sleeve and glove and a new off-shelf sleeve for my left arm for flying.




    Okay, here's the weird news. I developed a rash on the back of my legs when I was in DC for Dr. Massey's conference. Initially thought because I walked several miles in my skinny jeans. However, last week I noticed it had developed on back and front of thighs. Went to dermatologist because I was concerned about it reaching trunk area. She said contact determatitis or eczema, nothing to worry about. I had tried neosporin, cortisone, lots of lotion, and finally benedryl. Benedryl seemed to be working, so she said to continue that and also take Zyrtec in morning, apply lots of lotion and prescription cortisone cream. She asked if I had changed any products I had been using, and darn it, I had switched from the unscented Tide HE to unscented store brand. Well, today at therapist's she looks at the back of my bad arm while doing MLD, sees this red rash and asked if I had noticed it. She shows me in mirror, and it is the dreaded stuff on my legs! Pharmacy just got cream in, and I hadn't started with Zyrtec yet either. I just washed my compression tanks, new sleeve and glove, and night vest with the store brand detergent. She told me to not put my sleeve or vest back on until I had rewashed. Crap! I had wondered if there was something about the jeans since that was the only time I noticed rash occurring. Therapist said it's because these garments are tighter and the areas get more friction or sweaty. Is it okay to use Unscented Tide HE on all of my garments? Vest they say detergent is fine. How about sleeve and glove? I thought therapist had said it was okay, and she didn't tell me otherwise today. She wasn't alarmed, didn't think it was cellulitis, but I do have to rewash entire loads of laundry. Ugh!




    Thank you, Carol and Hugz. The pic is a small sign I made for the kitchen. I did it before wrapping and glove/sleeve. It's just a scrap of paper - I wanted a nicer reminder than the post-it stuck to the counter. This sign is becoming wilted and curled, so I am going to do another one and put in a little frame since it's propped between stove and sink area. I always need to remind myself to drink more water, and I feel noticeably better when I do!
  • hugz4u
    hugz4u Member Posts: 1,818
    edited April 2012

    Tina. Great idea on off loading the purse. I keep a rubber glove in my purse but didn't want the bit of added weight so I cut it off at the wrist.( Every weight adds up to more weight, if we are not cautious.)I am going to keep some stuff in the trunk too. Especially a old glove incase my good one gets wet or dirty.

    Party in order for the 1% reduction! Doesn't seem much but it is. Any down level is a plus.

    Yikes about the rash. I just use the eco friendly soap from Costco for all LE gear and cloths. I am sensitive to most products and this one works for me.

    Gotta check out the swim link exercise now. 

    Found out I don't know how to count.  I was telling you all, that I do 4 floors of stairs but I do that 4 times which is 16 floors. No wonder I can't breathe. Going to walk 50 minutes today.

  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    Tina, your LE arm smaller than your non-LE arm?  That's amazing!  You have truly kicked LE's butt!  But the rash does sound horrid, and how incredibly frustrating to have to re-wash the garments that took so much trouble and time to wash so you could wear them in the first place!  That merits a huge grrrrrr (oh, that's the other thread.  I'm sure they can hear the grrr from way over here!).

    Hugz, 16 floors is huge.  And in my experience, no matter how fit you are, climbing stairs puts you into a gasping state.  I asked a fitness expert about that not long ago, and she reassured me that it when stairclimbing gets you out of breath, it does not mean you are a couch potato. Something about depleting oxygen faster than we can get it back into the muscles (I'm sure I don't have that right.  But there is an explanation for why we can be pretty fit and still have trouble with a long sequence of stairs!).

    Carol

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012

    Hugz, 16 floors is awesome! I need to go find a big building somewhere! I think I am ready to start again once my compression garments are rewashed. My arm is actually 10% smaller than it had been - it is now 1% smaller than my good arm!




    Yes, Carol, at its worst, my LE arm had been 9% larger. Then it was down to 6% larger after 2 days of wrapping 24/7 and several MLD appts. Being compliant with regular sleeve/glove and MLD, then custom sleeve/glove, wrapping and vest for a week were what did the rest. However, my hand still had some swelling, and I asked therapist to compare those measurements to last two, and that area is larger. I woke up this morning with that part swollen, and I think it was due to my poor coverage of part of hand when wrapping last night. I took the hand bandage with me and had her bandage my hand over my glove from the angle I would see and do it. I think that clarified everything finally.




    Reciting these numbers out loud makes it pretty clear that because I am thin, not all LE professionals, even a well respected expert, will be able to recognize a 9% difference in my arm and hand. Thank goodness my LE therapist knows my body well and has the attitude that this difference is huge for me and takes it quite seriously. Ah, good therapists are worth their weight in gold!

  • hugz4u
    hugz4u Member Posts: 1,818
    edited April 2012

    Tina, What a bother to rewash all your LE gear. I try to air dry when I can. I think it makes my garments last longer. LE gear everywear, looks like a compression garment factory.

     Your LE diligence has paid off and now you have a better arm, yes, yes, and yes! I am glad you are thin as you can break the mold when it comes to stereo typing LE patients!  But don't fade away on us and get too skinny. If you do I could lend... I mean give you 30 lbs that I have been lugging up those stairs!

    I don't think I will get walkies in tomorrow, but gardening yes, lots of bending up and down. Usually I go out all day, but now I try to take breaks for my stupid LE  and try to limit myself to 3 hours total only and rotate my gardening tasks.

    Was going to practice wrapping tonight but just don't want to. I hope I don't forget how to.

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012

    Hugz, definitely air drying all sleeves, gloves, tanks, but the night vest company specifically instructs to dry in dryer on permanent press with other clothes and tennis balls. It's composed of small pieces of foam sewn in channels, and the vest is thick like a down vest. My therapist said that one of her patients wanted to air dry, and the little pieces got moldy. So, it's made to handle the dryer, and the tennis balls help puff up the garment. It takes two very long cycles to dry that darn thing! I see major changes in my propane, electric and water bills! Have fun gardening. Hey, if I'm continuing to practice wrapping, I'd appreciate some company, please!! Don't give up until we both master!! :-)

  • BeckySharp
    BeckySharp Member Posts: 465
    edited April 2012
    Not so much posting yesterday.  Was it because we were all out exercising?  Or washing out all of our garments Tina.  Did weights and 30 min elliptical yesterday.  Otherwise busy washing my jovipak,  bandages, etc.  Then errands.  Very cool here today so out to the dam.  When I wrap over my jovipak at night Tina I think of you.  Keep at it.  I remember how proud I was the time I did it in one take!  Ate a piece of chocolate afterwards.Money mouth
  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    Ahh, Becky, you noticed we were quiet, eh?  In my case, I'm purposely taking it easy.  I've had persistent bleeding from one of the spankin' new recon nipples, been in touch with the PS about it, and we want zero bounce/jiggle etc., but no bra either, to avoid squishing the nipples as they heal into shape.  Sigh.  Today I am going to go for a long but very slow walk.  I see the PS on Thursday but hopefully things heal well before then!

    Tina and Hugz, I think that all that wrapping counts as physical activity!  And Becky, you are such a model LE citizen; have a wonderful walk at the dam today.

    Carol

  • ohio4me
    ohio4me Member Posts: 323
    edited April 2012

    This group is encouraging which is what I need. I finished chemo Dec 2011 and radiation March 2012. All is well.

    However, I still have not accepted/adjusted to the whole lymphedema routine. True confessions - I'm hit and miss. I have the sleeve and gauntlet for day time (prob 70% compliant) and use the Flexi-Touch puematic system at night (prob 70% compliant). I need to do better.

    Job travel resumes first of May and it scares me - I have no idea how my arm will do with air travel. Plan to carry the Flexi-Touch machine with me but just having to do that irritates me.

    Have others used the Flexi-Touch? Do you travel with it? Do you manage LE during travel with just MLD? First trip is two nights - maybe I can go with MLD only?

    And - I am on the computer all day (8-10 hours) for work and then in the evening. Constant low grade swelling in hand - any ideas for helping that?

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012
    Welcome, Ohio4me! Consistency can be difficult, but being accountable to the ladies here keeps me on track. We are all at different levels of fitness and stability with our LE, so it's a great support system. Developing a new routine that promotes compliance with LE maintenance and exercise can seem daunting, but it can be done. All you have to do is start and do as much as you can for today. I don't have a Flexi but do MLD regularly. I will let Carol answer your questions about travel since she travels a lot for work and has been successful in maintaining her LE. Others may have info about how they manage computer work. Do you have a glove and sleeve?




    I was able to do some washing yesterday, but not as much as I would have liked. Today is my husband's 50th birthday, so we have had different activities planned with friends Fri evening and last night. Between loads of laundry yesterday, I went out and searched for a carryon suitcase since that is what he requested as gift. Therapist said not to wear sleeve until rash is gone, but I wore the glove for while. Had to take it off, as I could tell it was starting to cause allergic reaction. I had to be very careful looking at suitcases, but I don't seem any worse for wear. Going out to brunch shortly, and washing of vest will have to wait for later, but my custom sleeve and glove are now dry. Taking benedryl at night, zyrtec during day and applying cortisone cream plus lots of lotion is working. I had a jump on my arm, so I don't think that will get as bad as my legs. Will put glove and maybe sleeve on later after showering again and drying off with rewashed towels. Clean sheets on bed last night. Ugh, more laundry later, but black compression tanks and workout pants are clean and dry.
  • ohio4me
    ohio4me Member Posts: 323
    edited April 2012

    Carol - here are some travel questions:

    1) does length of flight have affect on LE?

    2) connecting flights - the up/down - is that better? or worse?

    3) have you done international travel?

    4) can you share the routine that works for you?

    5) what in-flight LE care do you use?

    My first flight is two short hops (1-1.5 each). I have some cross-country flights (4-5 hours) coming up and I'm trying to get out of international travel.

    I'm going to embrace this LE stuff and figure out what works for me. I don't have to like it (yet) but I just need to do it.

  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    Tina, Send a huge happy birthday to your DH!  We know he's a great fellow...flew down in your stead to help when your mom needed encouragement for her PT/rehab; spells you for heavy stuff---deserves a celebration!

    Ohio4me, First, some background: I usually do not see swelling in my arm since taking control with twice daily MLD, frequent belly breathing, exercise and compression wear a while back, and these days, I wear compression sleeve/gauntlet while flying and working out, but (knock on wood) don't need them otherwise. So--take my experience in the context that I have pretty mild LE at this point, and if yours is more developed, you may have more travel and flight issues.

    I do seem to have more trouble with long flights than with short ones (say, 3.5 hours or more).  Ups and downs don't have a big impact.  I live in a secondary air market, so almost every trip requires a connection, and that first flight ranges from 20 minutes in the air to about 75 minutes.

    When I'm on a long flight day, I think the length of a cross-country flight coupled with what we do while traveling that we don't do at home, is what makes my arm ache and tingle, and can trigger visible swelling of my truncal spot below my armpit.  Someone posted an interesting video a while back, of a LE therapist talking about air travel. She maintained that it's not necessarily the pressure change in the airplane that makes us think air travel exacerbates our LE, but that while traveling, we put ourselves thorugh lots of unusual activity--lifting heavy suitcases (even if just to/from car trunk, up onto TSA belt, etc.), carrying an extra large purse or 'personal item' in airline terms; and we move these things totally un--ergonomically (guilty here!!!). Then, we eat airport and hotel and restaurant food (= too much sodium) and we drink less water because it's less available and/or we don't want to have to use the icky airplane bathrooms. And in the airplane, we sit, immobile, not wanting to disrupt other passengers or get in the way of the beverage cart.  Sound familiar?  I think that LE therapist has a point about all the challenges of controlling LE while traveling, although Binney has posted some very interesting stuff in the past about the impact of altitude on LE, so I'm not buying the part of the video spiel that says the cabin pressure (pressurized only to 10,000 feet) does not add to the problem.

    So...what to do?   You can drink more water. I bought a camelback water bottle wtih a taste filter in it, so I no longer spend $3.99 on a little bottle of water, since we cannot bring cheaper, grocery story bottled water through security. Can fill from any water source and it tastes good!. Bottle was not cheap, but savings on airport water has recovered that cost many times over by now. The replacement filter is about $10, but lasts for 350 gallons. That's a lot of water!

    You can make your fist and pump your arm up in the air, ten times, doing this every hour or so on long flights, and at least once on really short ones.  Who cares what the neighbors think?  I do try to sit so my LE arm is on the aisle, so I'm not arm-pumping right next to anyone's head. At the window, the curve of the aircraft wall makes it hard to pump straight up.

    You can belly-breathe really often.

    You can walk at the airport!  My connecting airports are usually Detroit, Minneapolis, or Atlanta, and they are huge airports.  I usually have a long hike to get to my connecting gate, but then I add as much additional time as I can manage, given the schedule, and stay moving at a very fast pace. I wear a pedometer so I know my mileage, and I try to make sure that I'm getting at least 30 minutes and 4,000-5,000 steps in.  Sometimes the bobbing and weaving around other folks slows me down, but I can get a lot of steps into a small amount of time. This means making sure that I'm not carrying anything on my shoulder, so I use a very lightweight and small rolling briefcase for what I must have on the plane with me.  I check my clothing bag now (never did check pre-LE but oh well...) but I teach seminars that require a laptop, often a printer, and sometimes I have to bring a projector. Plus I have my instructor guides, which tend to be bulky, plus my ever-present bottle of water...this all has to roll.  On airport concourses, bags seem to roll with little drag because the floors are nice and even. I do find that the older style, 2-wheel versions work better than the 4-wheel spinners (seems I'm always lifting that one over little curbs and impediments that a 2-wheel version just glides over).  Long story short, with a good little rolling bag, you can move fast, get lots of steps and exercise in, without pulling on hand, shoulder, or causing back problems. Emphasis on little...you need to check bigger/bulkier/heavier bags if you're going to get exercise in while moving through airports.

    On long connections, I've been known to get as many as 5 miles in an airport, moving fast enough to pump up my heart rate. I wear comfortable clothing and keep the pace just under where I would start to sweat and transform into an undesirable seat-mate.  Fortunately, I don't sweat until I'm really worked up (which I maintain is one reason it's so hard for me to lose weight!).  I imagine that there have been some airport folks who have seen me tearing through the corridors, at first thinking I'm late for a flight, and then eventually feeling sorry for me because I'm late AND don't seem to know where my gate is!    I used to feel pretty beat at the end of a travel day, but in truth, since deciding to make use of airport time to get some fast-paced walking in, I really do feel energetic on arrival.  And exercise is good for our LE.  If you try this approach, pull the little bag with your non-LE arm (you're not bilateral LE are you?), obviously to avoid the weight, but also so that you can pump your LE arm a bit as you walk, to get the nice muscle action against the compression sleeve, to move the lymph.

    Finally, some women say they do MLD while flying.  I don't attempt full LE (under a huge sweatshirt? Not sure how they do that; maybe 15 minutes in the icky bathroom?), but I do clear the neck nodes a few times in flight.  And I do full MLD as soon as practical on arrival to hotel room or home.

    So...it's all possible with some planning and effort. Oh, and I am a life-long Buckeye transplanted a while back to Michigan for DH's job. Family is all in Cleveland and Columbus.  We like beautiful west Michigan a lot, but Ohio is still home!

    Carol

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012

    Thanks, Carol! Will do. Hey, I just realized that with examining all those suitcases yesterday and loading a couple in my car, doing lots of laundry, and eating several meals out, that I am experiencing all the stresses of travel without going anywhere! LOL! My hand is not too happy, and tonight I am going to wrap after showering. Will have clean towels and pjs at that point! Vest, too!

  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    Hmm. Tina, they call that a 'staycation' when you're doing fun things. Sounds like you need to work some more fun in, so you can get some mileage out of all the non-travel, travel stress!

    Today DH and I took the dog to a state game area nearby, where we walked just over three miles. The first two and a half were very speedy, which felt wonderful. Then we slowed down, following a path we'd taken several times for winter skiing and snowshoeing. We were hoping to spot a basket lost from the tip of one of DH's poles, thinking it might be visible now, before too much vegetation takes over. No dice!  But it was a nice way to end the walk, alongside a pretty little lake where we had watched ice fishing during the winter expeditions.  Today we watched hooded mergansers diving for food (a handsome kind of duck..and very funny because they dive en masse...almost like one of them says 1-2-3 go!)

    For reasons I cannot identify, I have an achy, achy arm today, so it's in sleeve/gauntlet, which is not typical for me except when exercising or flying.  Just when you think you have this LE thing figured out...!

    Carol

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012

    Is a front coming in? Hope the sleeve and gauntlet bring you relief. Hey, aren't you supposed to limit the movement and friction of your new fipples anyway? Take it easy, my friend, you want those babies to heal nicely. You are such the ever ready bunny!! Nothing will keep you from getting back to full swing, except overdoing if when you're supposed to be good! ;-)

  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    I made sure that today's walking was bounceless. What's killing me is that normally I lift weights M-W-F, but I am reluctant to do so without truncal compression. I usually wear a short-sleeved UA with my sleeve/gauntlet, but no way can I use that compression this week.  I just hate letting the lifting go, because it means dropping back on some weight if I miss more than two consecutive sessions, and I missed two last week because of the surgery. So missing Monday means pulling back on the weights (because I am a very faithful PAL adherent).  Oh well!  But I do think I can walk, just no jogging and need to keep the arms from swinging much, too.  Today I just kept my hands in my pockets.  Ohh that sounds like what my mother said when my brother and I were little and she didn't want us touching candy in the grocery check-out aisle!

    Carol

  • ohio4me
    ohio4me Member Posts: 323
    edited April 2012

    Carol - thank you for all the insight into flying. I haven't decided if I want to lug the Flextouch machine around when traveling. I'm thinking I will leave it home the first flight and see how things go.

    Achy arm - mine is aching today and it has been in the sleeve and gauntlet. Getting ready to do my daily 'spa' treatment which is MLD and Flexi.

  • hugz4u
    hugz4u Member Posts: 1,818
    edited April 2012

    Tina, Thanks for letting me know that we should dry our foam chip garments in the dryer. I was half air drying and then finishing them off in the dryer. But now I will fully dry them in the dryer to avoid mold.

    Tina, Thanks for encouraging me to wrap. I will, If you will. 

    Carol. DId you get out for the long slow walk? Your nip sounds sore. Yikes. I saw SUPing today, It looked so peaceful.

    Becky: Did you get your DAMM walk in? (pardon the pun, I couldn't resist) 

    Walked 5 miles and tackled a steep San Franciso  type hill that I have wanted to do for the last 20 years, I did it, I did it, I did it!  It was 700 steps on my pedometer and it nearly killed me.

  • BeckySharp
    BeckySharp Member Posts: 465
    edited April 2012

    Hey Hugz--way to go.  Hills are my nemeses!  I did get the damm walk in.  Will do so today too but it is very chilly--50s and very windy.  Maybe the wind will give me some caloric resistence.

    Hope everyone starts the week off right exercise wise.  I will do weights for you today Carol.  You lay off for awhile longer.

  • olearca
    olearca Member Posts: 65
    edited April 2012

    Ohio - welcome and Carol has given you all the great tips for travel!  I'm reluctant to start extensive business travel any time soon - but the funny thing is its not so much the LE, but just the nightmare of inconveniences that travel brings that I can't stand any more.  Remember the days when flying was considered "glamorous"?  LE restrictions just sort of "push me over the edge" and I try to get out of travel every time I can. But, I do have to bite the bullet and resume one of these days.

    My arm is killing me today - but the NE just got a huge rain/front - we've been in drought conditions so it was well overdue.  But, my arm is really feeling it.  I'm off for my monthly MLD session with LMT so it could not come at a better time. 

    Tina, Happy birthday to your DH!  My "self-care" consisted of too much wine, too little sleep - but loads of laughs and fun!  A ladies night out on Friday and a concert on Saturday complete with dancing!  I also went to the Dr. Massey conference and I am "a believer".....I completely drank the kool-aid and I was so engrossed and amazed by the session.  She is warm and funny and compassionate - I have alot to think about and digest but it was so good to hear from a Dr who is at least attempting to address LE.  I have so much to say about it but don't want to hijack this thread.  Carol, you are going to love the Chicago session!! 

    Ok, off to the city to see LMT and then getting my "butt" in gear. 

  • Tina337
    Tina337 Member Posts: 516
    edited April 2012
    Carol, I know you're taking good care of yourself. It must be frustrating to have the weightlifting restrictions, but you'll be back to it soon. Just think, no more procedures to set you back since the recon is over. Only thing to be cognizant of is the LE, and you are firmly planted in an excellent routine.




    I can't wait to join you and Becky in reporting weightlifting progress. My therapist and I discussed the PAL program when we met Fri, and we decided I should wait until the first June session because I am travelling for two weeks to FL in mid-May. That is going to give me a full taste of travel plus heat, and I may need some time for my body to settle after returning home. (Taking train vs flying, though, because I don't want to risk/cope with that yet.) If I completed program by beginning of May, I would be immediately travelling to FL and have to incorporate weight training into vacation or lose any progress I had made. The additional stress of weight training with travel/visit with mom might be too much. I can walk while I am away, and there's a pool I can use. So, I am trying to remain patient even though I am tired of waiting. I am starting back with cardio this week and will see how my arm and trunk feel.




    Hugz, that was a terrific workout! Hills are brutal, but I always feel victorious when I tackle them. Glad to help re putting chip garments in dryer. Those are Solaris' instructions for their garments, but I don't know about the other brands. Last night I put more clothes in dryer with vest and it dried a lot faster than first time. It says to do on permanent press, but I dry all of my things on low heat. Yay, glad to know I still have a wrapping buddy! ;-)




    By the way, after rewashing garments, I can tell it was the detergent that was causing the rash. Glove felt much better when I wore it for a short while yesterday. All laundry still isn't complete because I am running an extra rinse to make sure old soap is gone. I think I will don sleeve later, as rash looks like it is fading on arm. I might even be able to wrap tonight. I could feel a difference in how chest, arm and hand felt without night vest and sleeve/glove, and I want to stay with that for a while like I planned.




    Becky, you are cruising with your damm cardio and weightlifting, and that is wonderful!!




    Ohio and Catherine, we just had that front, and it looks like the Phila area is stuck with rain all week. I think that was why my arm and hand felt a little funny without the sleeve/glove and vest Sat night. Hope you guys feel better soon.




    Catherine, I'm glad to hear you enjoyed Dr. Massey's presentation. LOL about the kool-aid! Do you know what Dr. Massey told me that surprised me so? She is actually shy, and it makes her nervous to give these presentations. I said she didn't appear nervous at all and that she has a wonderful and engaging way of speaking. She is funny, too. (Go big or go home!)
  • hugz4u
    hugz4u Member Posts: 1,818
    edited April 2012

    Olera. Sorry about your killing arm. Does that mean there is lots of pain and what kind?  What does Dr. Massey do with the kool-aid stuff?  I am not familiar with her practices. I too wonder if it is worth to fly as all the LE preparation etc.is such an inconvience, I haven't got up the nerve to fly yet either

    Carol,  Excellent info on flying. You are the FLY Queen. You have it down pat.

    Becky. Glad you did your walkies.  I only did a 1/2 hour today and opted for costco pizza instead of stairclimbing, So after work, before I get into my car, I will walk straight over to the 4 floor building and do.my stairs. Shouldn't have had the pizza, it was so salty and not worth the calories that I now have to burn off.

  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    Wow, there are some frustrations still brewing in here, but really, the posts have a very positive tone to them.  That's a very encouraging sign that we're taking LE challenges in stride.

    Today I did end up going to the gym, but only walked for about a half hour, no-bounce slowly, and my weightlifting/stretching was verrrry careful!  Less strenuous than normal, but it felt very good to work muscles and stretch afterwards. The fipples are now healing nicely, so in truth I really did not have to worry today (PS says so too, Becky--I called to check!). But I was prudent anyway.

    Carol

  • ohio4me
    ohio4me Member Posts: 323
    edited April 2012

    olearca - are you saying your arm hurts more due to weather?

  • carol57
    carol57 Member Posts: 1,550
    edited April 2012

    Ohio, that's been a frequent comment in recent months. Several women had horrid discomfort when all the tornados moved thorugh their areas a while back, and that unleashed a lot of chatter about how thunderstorms, or really any significant barometric change, seem to invite LE discomfort.  Have you ever had that experience?

    Carol