Weekly Taxol group
Comments
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Jodes001 - I have the exact same problem with my nose. I tried saline but it didn't help at all so yesterday I tried just a tiny bit of Aquaphor & it's helped a lot! I think neosporin might help even more. I'm not quite a week PFC - I really hope this ends soon.
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Lottemarine, I feel the same way about taxol. For
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Hello all,
I had must first round of Taxol the week of Christmas (Dec 22) and had a Neulasta shot the day after. Since then, I had a fever (always low grade, but got higher NYE so I spent the last 3 days in the hospital). They ran all sorts of tests and cannot figure out why I had these fevers (I think I've been fever free - at least high fever free - for 48 hours). I do have terrible night sweats too and a a abdomen scan found that I have an enlarged spleen right now. Has this happened to any of you since having Taxol? It almost felt like the flu (fever, chills, all over body aches), but my flu test came back negative too. They did test me for mono because of the enlarged spleen, but that hasn't come back. My white cell count was crazy high at the beginning of last week (24,000), so I'm wondering if that led to the enlarged spleen? Just looking to see if anyone else has had similar side effects to either Taxol of Neulasta. This was my 1st Taxol, but 5th Neulasta.
Thank you!
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To the one with the Big D - perjeta is definitely your culprit - my MO prescribed Immodium BEFORE it hits - starting I think on day 2 after infusion and it was huge doses. After the first infusion (where perjeta is higher dose, the subsequent ones are 1/2 I didn't have as much problem and didn't need it).
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AngiTee15 - My liver enzymes also spiked at the beginning of Taxol. I was told that was expected, and they did come down after a few weeks.
Jodes001 - I also have the nasty dry/bloody nose thing. Gross.
I will have Taxol #12 this week. I've noticed that I am definitely more tired after the last few treatments. Like sleep for 11 hours and still want to take a nap.
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Can I join in here too? I promise I am nice
My mom was doing the protocol of Fec-D and was supposed to start the D part tomorrow for 3 treatments, 3 weeks apart, however, the doctor isn't happy with how the treatment has been on her body thus far and as such has switched her to weekly Taxol treatments for 12 weeks, no neupogen (isn't qualified for Neulasta here in Canada). What should she expect? I suspect that the neupogen was the cause of most of her issues but who knows? I am wondering if Taxol will be easier on her....
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Ag23, Taxol can defintely cause flu like symptoms. I had those symptoms the first 2 weeks of taxol. This 3rd week wasn't as bad though. Neulasta can cause an enlarged spleen. I'm surprised they gave you neulasta on taxol. My dr said no neulasta on weekly taxol. And I only if my white counts dropped really low would they give me neupogen.
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i just want to second the coconut oil in your nostrils to help with the bleeding. Warm it up in the microwave and apply with a q tip. Works wonders.
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Hi ladies--
I've seen complaints on here about shortness of breath. I have Taxol #5 Wednesday and boy do I get seriously winded going up stairs. My endurance took a dive for sure. My MO doesn't seem concerned since I don't have any chest pain and am doing OK otherwise, but she'll take a look Wednesday. I'm worried since I have AC after Taxol and I think it's tougher on the heart....and heck I live on the 3rd floor and have to get home!
What feedback is anyone else getting about shortness of breath?
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I have shortness of breath walking fast or going up stairs. I am assuming mine is caused by anemia. Are you anemic?
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Hi there homeschool4us! So far my blood counts have been normal so anemia yet. She doesn't seem concerned since it only happens when I exert myself. I will see what the MO says tomorrow.
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Vicki - in regards to you liver enzymes, did you do any thing different that they came down? I'm so confused on AC I had no elevations and on the first Taxol I was high.
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MelanieBC, I feel great the day if and the day after chemo. For most people the tiredness hits day 3. I still feel pretty good day 3. Days 4 and 5 are when I am the most exhausted and have body aches. I don't think everyone gets the body aches. Diarrhea started after my second treatment and is pretty much a daily thing for me now, but it's manageable. old tastes fine, but I do have a weird taste in my mouth now all the time.
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I am a week past taxol #3 (I switched to Thursdays so I have a just over a week between 3 and 4 this time ), and my eyebrows are half gone and my eyelashes are more than half gone. My eyes feel irritated all the time so I rub them a lot though which is probably accelerating the hair loss. My head hair was already gone from AC is is maybe growing a teeny tiny bit of fuzz.
The first 2 weeks I thought taxol was worse or as bad as AC, but treatment 3 was much easier in me and I even had a cold. Maybe it was like someone here said and it was still leftover AC yuckiness. Besides having to nap most days, I feel fairly normal this round.
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LRFTexan - I didn't do anything special, and I specifically asked if there was anything I could do to make them go down. There's not. My MO explained that the liver gets used to what we're throwing at it (Taxol) and begins to process it more effectively, so the levels went down. From what I was told, it's normal for them to elevate when we start Taxol. I also had no elevation on AC.
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Good morning everyone, hope you're all doing good. I haven't checked in much since I finished Taxol but I have a question for anyone else who has. I'm 6 weeks PFC and my nails are still here. I really want to get a pedicure but I've heard the nails might come off after chemo and I'm deathly afraid I'll be getting my pedi and my nails will come off in their hands or something! For those that lost your nails after chemo, how long was it after?
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Anyone have a dye study done on their port? I am not getting blood return on my port consistently so they want to do one in 2 weeks. I am wondering why they need to sedate me.
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homeschool4us: I assume if the port didn't work, they might need to manipulate it a little more (either the catheter or the disc, or the port pocket). It might place a new one?
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Had my 1st/12 Taxol on Tuesday. Felt great until last night (Thursday).
Leg pain kept me up all night. Any and all words of wisdom are welcome.
Thanks!
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hello all,
Good news my liver enzymes are back to normal and finished Taxol #3. Homeschool, my port would take chemo but not give blood the last 3 weeks so this week they did the "draino" on it and it works again. They would just take blood from my arm, no big deal. Someone mentioned nails, one of my docs told me keeping polish on them keeps them stronger and I have worn polish the entire time.
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Tesla, my MO got back to me today and basically said what you said. They are sedating in case they need to replace it. I hate to do that though since the sedation makes me sick. If everything is fine, the sedation was for nothing.
Teach6, the first 3 taxols I had horrible aches. Ibuprofen helped some. For me, round 3 I didn't have much of the aches and pains at all. I'm only 1 day out from round 4 so we'll see how this time goes. Although this time I got herceptin and perjeta again so who knows.
LRFTEXAN, Glad you got to do round 3! My chemo center won't even give you the chemo if they don't see a blood return first. I did have to get blood drawn from my arm, but thankfully they got a blood return before chemo. They have tried the alteplase on me before to clean it out and it didn't work.
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Bloody noses are a common side effect. I had them about 2 or 3 times a week on TAxol. They immediately stopped when I finished and now I am getting a little blood again and I think it might be the Tamoxifen. Not bloody noses though.
I had shortness of breath when my port was installed, then my heart started skipping beats. I had a blood clot in my heart which was easily treated with blood thinners.
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Evening ladies!
I have Taxol #6 on Friday. It's very subtle, but I am noticing that my index fingers don't feel as sensitive and I felt some needle pricks in my right foot last night. I'm sure the answer is everyone is different.... But I was curious how fast neuropathy progresses?
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It seems to vary greatly between people, Angtee. Some people get it horribly the first infusion and some people never get it. The most had was some tingling. I took 1 teaspoon of glutamine most days during treatment.
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Does anyone know when we can go back to eating anti oxidants and drinking green tea? Forgot to ask my mo at my last appt and I dont have another one until the 26th.....
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I've been drinking a cup of hot green tea every day. Are we not supposed to? I freaked out a bit a few weeks ago because I read no grapefruit juice on taxol. My MO laughed when I asked her about it and said it's fine to have.
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I wasn't told to stay away from green tea, but I did read conflicting info on the web about it. I had asked my MO about vitamins and probiotic supplements before starting chemo. She was OK with them, but said I shouldn't be going on some elaborate herbalist regimen without consulting her first.
We're probably all getting different advice on this, huh?
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yeah.... I was told no green tea or antioxidants of any kind while on chemo. I love all the conflicting info from each MO....
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homeschool4us, I was drinking tons of grapefruit juice when I first started Taxol. One night soon after, I decided to re-read the material they gave me when I first started AC and it said not to drink grapefruit juice during Taxol. I too, freaked out. I called my MO the next day and through several messages between me, her and her nurse - basically they had no idea what I was talking about and told me not to worry about it. Regardless, I figured it came from somewhere so I didn't drink anymore grapefruit juice.
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Justmaximom, I know what you mean. Even though my MO said it is fine, I just can't bring myself to drink it anymore.
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