Weekly Taxol group
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I don't recall who asked about diet. I found this list on the MD Anderson web site. https://www.mdanderson.org/publications/focused-on...
I think the diet is a moving target, though. I remember when people were avoiding eggs and now its considered a good source of protein and choline and good fats.
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I have rosy cheeks too, and they're getting rosier with each tx. I'm starting to look like I've been playing with grandma's rouge
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This last 24 hours has sucked. 14 months ago I had back surgery, it had felt great up until I started these treatments. Is muscle pain, bone pain a side effect? Cuz my back and my knee that I hurt a few years ago hurt so bad I can hardly walk....
Anyone else have bone/muscle pain?
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Interesting that others are "blushing." No idea if it's the Taxol or the steroid, but I hope the rosiness is fleeting because I'm far too lazy to wear foundation.
Shelabela, my encapsulated shoulder has been extremely painful while on Taxol and the pain doesn't respond to medication as it normally would. My oncologist warned me that bone pain can be problematic with the drug. Yours may be willing to prescribe something to help, especially at night if it affects your sleep.
Lyn
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Nottheboss - Thanks! I hope my taste buds come back that quickly.
I get rosy cheeks normally so it has gotten much worse while on Taxol. My is flushed at the start of treatment but then I'm white as a ghost afterwards. The redness comes and goes though during my other days.
AbbyG - bone pain and achiness is a side effect. I find walking helps! I also take Tylenol if it gets really bad.
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it's the steroid that causes flushing. I don't know why the oncologists and nurses never seem to mention that little side effect - it was disconcerting when it first happened to me. Once I knew what caused it, I just enjoyed the "healthy" glow and the extra energy the steroid gave me.
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We have just decreased my steroid to see if it will help with the horrible breakout I am getting. So far it hasn't helped! I have weekly treatments and it seems like my face clears up on Sunday just in time for another treatment on Monday!
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Just heading into taxol number 3. After each taxol I've been flushing badly for about 24 - 36 hours. It's definitely steroid related in my case. I also have a horrible acne type rash on my forehead and chin which I think is again from the steroids. Like the flushing it's bad straight after the taxol but begins to clear before I go in for the next one. Anyone have this? Don't mind losing my hair but hate looking like a spotty teenager :-(
I also have mild muscle and joint pain and general achy feeling. Biggest problem is that I don't feel mentally tired or that I need to sleep but when I go out for half the walk I would normally do or go to the shopping centre I feel like I am going to have a heart attack I'm so wrecked.
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Can someone tell me why you're talking about Benedryl?
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I'm sorry, I should clarify that....I'm going to be starting Taxol and never had chemo. Why are you talking about Benadryl? Has anyone worked during this? I plan on staying home and concentrating on wellness but feel guilty for not going back to work.
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thebrave5 - I did work through weekly taxol, except for infusion day. The side effects are nothing like what I assumed they would be when I first heard the word "chemo". Taxol generally doesn't cause nausea. I did have some issues with alternating constipation and diarrhea, but OTC meds helped with that. There were days when I had to spend a few extra hours at home to be near a bathroom... But overall, I was glad to keep working and have that distraction. I used cold caps to save my hair, so the only people at work who knew I was going through cancer treatment were the people I told.
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Elizabeth 7,
I have broke out something horrible from Taxol. My face as well as my chest area. I also get taxol weekly, wth Herceptin and Prejeta every 3 weeks.
Like you losing my hair was hard but the pimples are horrible. I clear up about Sunday, just in time to go back Monday.
The Brave5,
I am working every day except treatment day. So far I've been able to
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I only work time in the early mornings, so I worked every day including treatment days. I just went straight over from work since it was close by.
I had bad joint and muscle and bone pain for several days each week. I also feel like every injury I ever had was brought back to mind. Hurt my knee 8 years ago? Now it is killing me. Hopefully that fun side effect will go away soon...
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bravepoint-thx! Just took a Tylenol and am planning a (slow) walk tomorrow.
Thebrave5- I'm working too (have to, insurance is under me) but only half-day on treatment days. Don't feel guilty for staying home, there is no right or wrong way. Just do what's best for you
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Hello Ladies, I find myself moved to this thread. I started my first treatment of Taxol/Avastin today. I just finished 10 sessions of radiation on some fractured ribs and pain on my sternun. I did Taxol in 2007, went on Aridimex for years, then had a nagging back ache and finally went in and was diagnosedi in2014 with MBC. So my latest PET/CT scan, didn't have any new lesions, however increased uptake. My MD talked me into this combo. I did very well on it in 2007, he wants to knock the cancer down. The only thing that I remember about the side effects were bone pain on the third day. Then with the right pain meds, it was tolerable. Lots of good advice here, I will take some time to read through the thread. Good luck to all of you. Maybe my eyebrows will grow back, I haven't seen them since 2007!
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Taxol and herceptin weekly for me. Sixth infusion was yesterday. I had been having trouble with consitipation post infusion (usually on day 2) so drank a bottle of sodium celtrate on Thurs. to "clean out" early. I think that is finally for me the right strategy. Had a good day yesterday - even slept through part of the infusion (I think they upped my benadryl but didn't realize it until later) and slept better last night than my usual steroid high. Was able to drive and played bridge in the afternoon. Hubby and I had "date night" - dinner and the Ramsey Lewis Quartett - FANTASTIC.
I have enough energy today to play nine holes of golf although I will probably want a nap after golf.
My hair really begin to fall out at 3 plus weeks. I had a long buzz cut at 4 weeks and a short buzz at 5. I liked the week 4 look but am covering except at home now. Some stubble now but I too much to shave it. Stylist said to come back next week if it wasn't completely gone with washing. Yes, it does itch and pull until you get some of the weight off. As others have noted, I got my free Brazilian too. I'm glad not to have to shave my legs.
As you will note, we all seem to get slightly different drug combination and predrug cocktails depending on our diagnosis and MO and how we react on the first dose. Be sure to tall you MO and PA all the side effects you are experiencing and if they get too bad between treatments, call in.
In my reading of these boards, Taxol and herceptin side effects (beside the hair loss) are fairly mild compared to our sisters who are getting loaded doses every 3 weeks. My infusion therapist told me it would be a snap when I went to just herceptin at week 13. No "cocktail" and then 30 minutes of herceptin and hair would begin to return. I'm reading that insurance would pay for a wig but not certain it's worth it as I have a few from a friend.
Welcome back. WE CAN DO THIS
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Hi all! Glad to have found this thread as I am starting Taxol on wed for 12 weeks, then switch to A/C for 4 rounds. Any insight in the hair loss? As I read, it seems at least some on taxol alone are losing hair but others who started with A/C and then taxol are having their hair start to grow back on taxol?? Just wondering what to expect. Thanks!
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Poodle lover - I did A/C for 4 cycles first then the 12 weeks of Taxol. One more Taxol next Friday. Yeah!! My hair fell out about 2 weeks after my first A/C. It started growing back after a few weeks into Taxol. It's about 1/2" long now, spiky and white! It wasn't all white before.... I got a wig but find it hot to wear even though the weather is freezing here! I much prefer a hat or scarf.
Good luck!
Gail
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I just had week 6 of 12 of Taxol and herceptin (that 13 sessions of just herceptin). My hair fell out about week 3 of Taxol. I'm probably a member of an elite group of 70 year olds who has a Brazilian! I was told by infusion therapist on Fri. that my hair would start to come back in after the taxol stopped. Said herceptin alone is a very easy drug. No pre cocktail or anything. Hope she's right.
Feeling good even though yesterday was busy day. WE CAN DO THIS.
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Thanks for the info ladies. LOL Taco1946 to the Brazilian. Hadn't thought much about that yet!
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I started AC+ weekly T a week after Gail, but only have stubble, a bit like a man with a five o'clock shadow. :-(
Lyn
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I hadn't thought about it either until the rest of you started talking about it. At least I knew what it was since my daughter is an aesthetician. The extra benadryl I got yesterday gave me a reasonable night's sleep last night and a good nap this afternoon but I am floating around here tonight. Oh well, I'll catch up before the next round.
WE CAN DO THIS.
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I need help with the tingly, ichy everywhere sensation. I've tried benadryl tablets, cortisone cream, and it's worse tonight - 2 days post 6th taxol. Any other suggestions or do I just take a sleeping pill and wait it out.
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Hey Taco,
No help here Cuz I'm that way also. Do get some relief with sesame seed oil. So not sure if your skin is very dry. I know when I am I feel like you are describing.
I also soak in a bath with lavender Epsom salts. Best of both worlds.
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Taco and shelabela--not sure if this is helpful or not but I have a friend who is also going through Taxol treatments. She described the same exact feeling as you. It was determined that it was a side effect of the steroids she is getting before they give the Taxol.
I did not get that with my Taxol treatments. The steroids only caused me to lose a lot of sleep. The worst SE I had from Taxol was that it caused my legs and back to be really achy for a couple days after each treatment.
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My MO did say that pain like that is a SE. I have the OK to take a stronger pain med. Yay!
Yesterday I had my 6th treatment. Half way done with this plan, then on to 8 weeks of AC. Going to take it 1 week at a time.
Some days I feel so ugly with losing my hair, the rash and so forth, but i keep looking at the final result! Some days are so hard
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Thank you taco1946- I am on Taxol / herceptin weekly 12 weeks. I too started falling out week 3. I've cut hair short ... my avatar is my picture right before being re diagnosed with BC round two.
I appreciate your post and will probably buzz cut soon. Part of me regrets cutting it short but I think the long hair falling out was too much !!
Thank you
Daniella
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hi taco
I had that same stuff going on with 1st treatment. Not sure this time cause just did #2. But I finally started taking something they gave me for anxiety before bed. Seems to work.
Something else going on tonight. Wide awake midnight and now is 3:31 am. Pacific time. Just keeps us dancing doesn't it? I hope you find relief.Elaine
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Had my first treatment yesterday which went fine; however, I was unable to sleep last night from the Decadron despite taking Ativan and melatonin before bed and Benadryl 1/2 way through the night. Anyone find a medication or regimen that works to deal with this side effect
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hi poodle lover - I was up till 4am on the 2nd day. The steroids are so strong! Following night, had a sleeping pill. Hoping tonight will be easier.
Hi Taco, Shelabela I've got tingles mainly on hands and feet - but worried as it was only my first of 12 Taxol! Anyone else get tingling first time round?
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