Weekly Taxol group
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GlasgowGirl - When my hair started coming out in clumps, my DH buzzed it off for me. I think it was less upsetting that way.... I wore hats, scarves and a wig. Now at 10weeks PFC, I am going bare headed. My hair grew back snow white but has started to get a bit darker. People that don't know what I have been through have complimented me on my pixie hair cut!
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How are you feeling Dodgersgirl ? I don't even feel like I've had chemo
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tonyaberryman- feel so much better than a Saturday after AC. However, having joint pain in knees today so getting ready to take ibuprofen to see if that helps. Pain feels like I have had in the past when weaning off steroids so not sure if it's Taxol or 3 days out from pre-meds
Hope you skip this step tomorrow
Was sure able to do chores around the house today which I couldn't do on AC and cooked lunch and dinner which hubby appreciated!
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Dodgersgirl - Still doing pretty good. Just a little joint pain today in the knees , nothing unbearable gonna try and get through it without popping a pill. I'll take this over AC any day . We can do this, we are strong tough women. 💪👊
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Tonyaberryman- so far seem to feel better when moving around so think I will try to increase walking during the day. I did take an ibuprofen last night when I went to bed. First time since dx that I have taken one. Not sure it helped so not taking anything so far today.
Thanks for sharing your experiences. It is really great to not feel alone thru chemo
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so got hair buzzed this afternoon and am glad it's done! Don't look like a weird alien which is a major plus 🙈😂.
Dodgersgirl & tonyaberryman - glad to hear you are both doing well.
I am back at clinic on Tuesday to have Pico dressing checked. I really really hope wound is healing this time 🤞🏻
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Thank you, Dodgersgirl !!!! You have really helped me along this journey , so glad I have you and the others for this unkind season.
Glasgowgirl- Hoping its healing as well, please let us know how it goes.
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tonyaberryman - the joint pain seemed to stop during the night!! Maybe I will get today and tomorrow joint pain free?? Sure it will return after Taxol #2 on Wednesday.
Today my nose is running like a faucet. That's fun.
How are you doing?
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glassgowgirl99- I understand about the hair. When mine started really shedding (AC#3), I still had clumps of hair and I felt like I had mange. Felt much better when it was mostly gone. I go bald at home ( except when I get really cold while air conditioning is on) and wear a slouchy ball hat when I go out.
Best of luck with your pico dressing. Hope all is healing well!!
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scrafgal- best of luck with Taxol 12 this week.
How exciting to be at the end of 12 weeks!!
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TonyaBerryman and DodgersGirl. I'm through 5/12 Taxol. Definitely much easier than the AC. My nose also drips like a faucet. It started doing it towards the end of AC. Also my eyes are very watery. MO said it is the chemo and not allergies!
I was told to walk as much as I could. I've been walking the dog a mile or so most days during the AC and am now up to 2 miles on the Taxol. Also started a yoga class. I think it has helped a lot.
Oh and I have peach fuzz on my head! I read here that after week 4 it may start to come back and it is
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anyone else covered in spots? I have horrid little whiteheads on my chin and forehead. Popped up in last week.
Went to radiotherapy planning session today and got a bit weepy. It just feels like another thing to worry about on top of cancer, chemo and my sore/swollen arm. They were really nice though and it was good to have a preview of the machines so I know what I will be dealing with.
But OMG can't wait to be done with chemo! Last one tomorrow! Will anyone from here be moving on to radiotherapy threads?
Love to all xx
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Tinker-bell,
I broke out in little white heads all over my face, The whole time I was on Taxol, Mine did not go away until after I was done with Taxol. It was horrible.
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hi Shelabela they aren't very attractive, are they? How are you feeling now? Are things any easier? I hope so!!
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tinker-bell: please tell us which thread you will move to for rads. I won't be there until fall but would sure like to follow your progress
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bmac16--- woot woot to peach fuzz!! Gotta take victories where they occur!
I need to walk more for sure. Just feel hermit-like during chemo
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Dodgersgirl - My body aches, how about you? I feel like I have PMS cramps.........ugh!!
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Tinker-bell,
They made me feel like a hormonal teen! And looked horrible.
I have since started AC and it sucks! I hate it. I have every side effect they said you "could" get. Mouth sores have been the worst! Loss of appetite, constant headache, body aches (worse then I did on taxol), nausea, fatigue,hemorrhoids like you wouldn't believe. I go every other week. and I feel like crap for most of those days. I finally feel better 2 days before i have to go back.
I have 1 more left then I have surgery scheduled!
Hope things are going ok for you.
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tonyaberryman- my joint aches ended this morning for now.
Definitely had PMS cramps plus as an added fun side effect, chemo provides a nice heavy period for a few days. So lucky
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Hoping my aches stop tomorrow, haven had a period since I started AC. Have another appointment tomorrow for another pap smear, very nervous , hoping it comes back normal. So nervous that I have cancer issues with my downstairs parts too. When will it end
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tonyaberryman-understand the worriesfrom the bottom parts. My PET scan in March showed activity in my uterus and I had to have a biopsy to see if it was cancer, too. Biopsy showed atypical hyperplasia. My gyno once wanted to do an immediate hysterectomy but I was mid AC so they couldn't. Instead I had an emergency D&C which showed no cancer. So, after breast surgery and radiation, I will have a hysterectomy!! I tell my doctors that my lady parts are trying to kill me and me and my med team are trying to kick their butts.
Best of luck with Pap
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Hi friends. Seen BCN today. She checked wound and said it is healing well. Have another Pico dressing on until next week so keeping fingers crossed this will be the last one. No chemo this week either but will get Herceptin on Thursday. If I am totally honest with myself I think it will be another two weeks at least before chemo starts again. All for the best. Get wound healed properly and then fly through the ten cycles of taxol I have left and onto radiation.
Hope everyone is coping with whatever part of the journey they are on. 😊
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Gosh, hate that for you, but again glad I'm not alone on this scary ride of life. I think I'm driving my BF crazy as well, he's keeps telling me to stop worrying.... easy said than done. Thanks Dodgersgirl
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Good news, GlasgowGirl! You'll be back on track in no time!
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Somehow my post from a few hours ago just disappeared! I probably didn't press submit!
Anyhow....GlasgowGirl, Thanks for cheering me on with 2 days to go until I finish Taxol However, I must say that Shelabela has scared the daylights out of me as I start FAC on June 15th!!!! I am sorry that you've had to delay chemo, but it seems to be the best thing in the long run.
VLH...I am always too hard on myself. So, you are right: "impactful" is way too much pressure! I am just happy to have benefited from the wisdom of the ladies here and hope that I can, in turn, be as helpful to someone else at some point. Right now, just trying to muster up the courage for FAC!
Oh, and Tonyaberryman, I got a pap done in week 2 of Taxol and was concerned about doing so because I had read that chemo can somehow cause false positive results! My MO and Gyn didn't think so, but I definitely read it somewhere. I was prepared to get a second one done if things didn't turn out well, but mine came back okay. Hoping the same for you!
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scrafgal,
Sorry for scaring you. I try not to sugarcoat my side effects. I tend tell it like it is. But some don't get every side effect. I for some reason can't did things 1/2 assed. Lol.
I am sure you will do well. I am on AC, do I don't know what FAC is? Is it AC just with something else with it?
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shelabela
No worries. I like your authenticity. I don't like surprises! Everyone has told me that most find FAC way worse than Taxol.
The F is 5-Flouracil (probably misspelled but I am too lazy to look it up)! I am at MDA and they use it more than other cancer centers, as I am learning. And, yes, it is added to the AC as a 3- drug cocktail...which will be my cocktail on my birthday in July. Nice, huh?
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shelabela have you tired the baking soda and salt mouth wash several times a day for the mouth sores along with Biotene toothpaste and mouthwash?
I had been told to chew ice chips during the cytoxan infusion, my chemo center didn't have any so I took in popsicles in a cooler bag and chewed on a couple of those.
Tinker bell. I have my radiation planning on July 24. Let us know which thread you will move too.
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Bmac16,
I have tried everything. This last cycle I do not have as many mouth sores as I did the cycle before. The 2nd treatment I could not even talk they were so bad. This time I only have 1 sore and it is not that big.
I have a popsicle during the A part and then I suck on ice chips the whole time the C part is going. I also use Biotene rinse after every meal.
Thankfully I only have 1 more to go!
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Scrafgal, I'm not familiar with Fluorouracil, but made it through AC plus 11 Taxol treatments. The side effects are stinky, but you can do it!
Lyn
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