Weekly Taxol group
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Pei - I take acid reflux meds daily so I don't have that much indigestion, but I lost appetite during those days
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Pe - my MO started me on 40mg nexium with AC, I asked if I could discontinue it for Taxol and she said no, Taxol is usually worse in regards to indigestion. The nexium works great, no indigestion, call her MO and see what they suggest, she doesn't need to suffer with that. Also until it kicks in, eat small meals so her stomach doesn't get too full, sit upright after eating for at least a couple hours, if she feels it at bedtime sleep propped on pillows. It may take 48 hours before it kicks in.
Good luck
Theresa
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Thank you ladies, that's very good advice. I'll ask the pharmacist on Monday when Mom goes in for her weekly Taxol.
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so day 2 after dd taxol #2. Doing ok. A bit of heartburn . Tomorrow the aches will set in from the taxol and the neulasta. Given up on claritin doesnt work for me. If it is like taxol 1 then will be fairly achey for three days. I have some tylenol 3s to help.
good luck to all us taxol recipients
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Just came back from my weekly taxol #2, can say uneventful except I would love to have so,e blood 😂
So many of us trying to increase our HGB, what can we do beside sucking blood??? Would egg helps? I guess I have to go for burger soon! I'm not a burger girl but I am running out of ideas.
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paulette,
I had chronic anemia and chemo made it worss. I wanted to eat red meat but could not, I took generic slow iron supplements every other day w food, iron pill is usually every day but it has SEs like many others so every other day was right choice for me.
Mimi
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Mimi - that's sucks! What's your HGB number?
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PauletteK, spinach?
Iron
Spinach, along with other green, leafy vegetables,[10] contains an appreciable amount of iron attaining 21% of the Daily Value in a 100 g (3.5 oz) amount of raw spinach (table). For example, the United States Department of Agriculture states that a 100 g (3.5 oz) serving of cooked spinach contains 3.57 mg of iron, whereas a 100 g (3.5 oz) ground hamburger patty contains 2.49 mg.[10] However, spinach contains iron absorption-inhibiting substances, including high levels of oxalate, which can bind to the iron to form ferrous oxalate and render much of the iron in spinach unusable by the body.[11] In addition to preventing absorption and use, high levels of oxalates remove iron from the body.[11][12]
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tpralph- halfway through, yay. I go Monday and hoping the aches are similar and no worse. Mine too were three days. How did the rest of the week go? I felt very normal, hate jinx myself, but hope this continues.
Paulette- I know what you mean, not particularly a red meat person, but if it will get me through this I'll just force myself. We bought some lean steaks and I'll grill those. Plus a burger here and there, maybe a roast once the weather cools off. I don't like many dark leafy greens except spinach so I'll have more of those. I'll talk to MO Monday before infusion about iron pills. I hate iron pills-constipation city! Ugh
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Cherry and teese - I like spinach I will buy couple packs and keep eating them raw and cook. I looked into making beets roots soup that is a lot of iron also. Liver .... I might give that a try. Today I still have steroid in my body so I'm going for burger 🍔. I am not a beef person, steak tastes like cardboard to me since I have chemo also I can't take any spicy not even much pepper. I really became such a picky eater even I hate myself
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Paulette dark green leafy veggies, beets, cream of wheat shellfish esp mussels have lots of iron for your hemoglobin
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other foods I've seen that may help... lentils and dried apricots. I've added a lentil Mediterranean salad to my lunch routine, and apricots for a snack.
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I like to ask how many of you need to have blood transfusion to finish taxol treatment?
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Paulette what is your hgb count?
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Ok, so last prechemo blood work showed I took a big hit in hgb. So I increased meat and dark leafy greens. Got my labs back yesterday and hgb up to 11.3 from 11.2. Hardly any improvement, but I'd just be happy if it stays there. Hoping the diet is what's helping, otherwise it's out of my hands and I hate feeling like I have no control.
Tpralph how are you, is it similar to round 1?
Off to a movie and ice cream, living it up in case #2 Taxol tomorrow is a bummer.
Hugs and prayers
Theresa
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Tpralph- my HGB before last Friday infusion was 9.6 and each taxol knocks down .5, so I might have 9.1 now. I need to pump that up but it is not an easy battle, I can see Teese is trying also, I'm trying to eat more meat on my good appetite day. Can't do much on the bad days. Only can drink ensure add protein. I can see I will need to have blood transfusion to finish my taxol.
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Theresa taxol # 2 nausea got away in me and vomited. Have to remember to take stemitil at first sign of nausea. Pain is about the same by I'm on top of it better. Ur hgb not too bad. My mo says she sees it go down to 9.5 fair bit of time. Mine was 10.6 and steady.
Sorry Paulette about ur hg. but a transfusion will make u fee better!
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Tpralph- don't let nausea took over, need to remember to take your meds. 9.6 isn't bad I just hope I can keep it up don't let it drops. I can't remember what number would they do blood transfusion but I will try to eat more meat. What a tough journey!!
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On our way for Taxol #2 of 4 and it's the first time I'm not wishing I could run away or filled with almost overwhelming dread. As unpleasant as it is, it's easier than AC and almost over. Praying SE similar to first round.
Tpralph. Thanks for the heads up on the anti nausea meds, I was playing with the idea of just waiting to see if I needed to take them. I'll just take it. Glad pain is no worse and you've been able to stay on top of it. Gives me hope.
Paulette, I know your worried about your Hgb, I hope a few diet changes can help keep it stable. My liver enzymes are slightly elevated this time. Interested in what MO has to say about it.
Hugs and prayers
Theresa.
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PauletteK - You can do this! I've done 4 rounds of the red devil (thought it was gonna kill me, 12 rounds of Taxol (not as bad but, it was a little rough and I just had my double mastectomy . I still have 30 rounds of radiation , 6 months to heal from that and then have tissue expanders placed and in for 3 months and then my exchange surgery. YOU CAN ABSOLUTELY DO THIS! I have neuropathy really bad but, it's doable! There have been days I didn't think I was gonna make it...... but I have done and still am continuing to do ! You've got this and I'm here for tou
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tonyaberry - thank you for the kind words I became a woman so busy to cry, I almost cry daily and though about the days before BC. How bad is your neuropathy, I can feel,a little numbness on my figer tips now
Teese - you are our mother hen and 🙏🙏🙏🙏 for you with similar SE as last one so you can deal with it.
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I had my 6th infusion of Taxol yesterday and today I am not feeling this well. Yesterday evening I noticed how swollen my feet have become and put on the socks I use for flying, laid down with my feet up for a while and arrange them to be elevated during the night but still swollen today in the morning. Even my fingers somewhat are. And I have this pain in my left hand that I cannot really determine whether it is neuropathy or bone paint or joint pain. I do not feel it in my finger tips and there is no numbness but my fingers are aching when I am doing something, like in the kitchen or type on the computer. I had a conversation with my nurse yesterday about it and according to her they cannot do anything about the neuropathy but postpone the treatment when it comes. They had an educational class about it last week and the educator told them that even though they experience that B6 helps the patients there is no scientific proof for it. And I do not want to postpone my treatment either.
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Cherry -I'm taking B12 also, it sounds like neuropathy to me. They talked about how our feet might swollen, did the socks helped or not?
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Sorta glad to hear others are experiencing swelling too ... I noticed this week in particular that my fingers and feet are swelling. It doesn't help that it has been 90 degrees (seriously ... crazy Michigan weather), but I was concerned about it being either my blood pressure and/or lymphedema.
Going for Taxol #3 today... not looking forward to the sleepless night. Or more accurately, tired of waking up every two to three hours. Whether it's pain or having to pee, it's exhausting. I stopped taking the ativan because I wasn't having trouble falling asleep (like I was with A/C), but will probably resume taking it in the hopes that it'll help me sleep for a longer period of time.
Overall though, I have to remind myself that Taxol is 100% better than A/C, even with the pain, tingling and sleep issues.
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Had DD # 2 yesterday, went well with no reaction, which meant no extra steroid pushed in my a IV, so last night I slept much better. I decided to take the Ativan at bedtime and again 6 hours later when I got up for the bathroom, fell back to sleep pretty quick, much better than last time when I woke up after 4 hours and then never went back to sleep. Ugh!
After what tpralph said about nausea, I decided to take the Zophran for the first 3 days, just have to take something for the constipation too.
Liver enzymes slightly elevated and MO said if they hit over 100 will decrease dose. So after some investigation on the interwebs I'm going to be eating a lot of leafy greens, avocados, beets, salmon, chicken,etc. good thing I like all that stuff. Very curious if it makes a difference. I have 10 days till next blood draw.
Have a great day, hugs and prayers.
Theresa
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tesse,
Glad DD#2 is done!!! Two more to go right? You are stronger than me i screamed and kicked all 4 DD taxols
I believe I had avocado, cooked brocolli, raw red cabbage and tomato blend in together. Daily 10oz for a week made a diff for next blood test. Went down to mid 80s from mid 90s.
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Thanks Mimi I just sent hubby to load up on beets, avocados, spinach, cauliflower, apples, I can't remember all, but I'm going to do all I can. So glad you saw a decrease, now I'm counting on it too.
Theresa
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JenRuns, the Ativan was a HUGE help getting me to sleep after chemo day. I actually looked forward to taking it because I knew I would sleep so soundly. My MO asked me to only take it for 2 nights after infusion so that I didn't build up a tolerance to it. Hope you rest well tonight!
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About constipation with Zofran. I have not seen anyone talk about plain stool softener. Docusate sodium 100 mg. When I was using zofran I took 2 pills twice a day and it made all the difference. The senokot has a bowel stimulant in it which can cause cramping.
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T-Sue, the Ativan worked like a charm last night ... fell asleep at 11 p.m. and didn't wake up until 6 a.m. Whoop Whoop!!
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