Weekly Taxol group
Comments
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Wow, Susie. That is a big improvement. I will try the red meat every day. Does Molasses have iron in it or something?
Paulette, did you eat lots or red meat too?
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Travel - I eat red meat, and chicken. Just thought of this, my sister in law taught me to make liver water. I don’t like live so I made wate and added ginger with the liver. Boiled the liver with water and ginger and just drink the water only. What’s what I did last week. Will do that again this week.
Susie - will try Molasses
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How did you sleep Paulette?
Wow, that 72 dose glutamine isn't going to last very long. Is anyone buying it on Amazon?
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Oh man Paulette, that sounds gross. Did you drink it cold?
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Travel, I drunk it warm, actually the ginger made the taste better. My sister in law has stage 4 BC for 7 years still fighting so she drinks this to keep up her RBC. She told me to added the chinese dried red dates so it has some sweetness there, Sounds gross, but she said it works for her. So I gave it a try last week.
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TravelHound - my hemoglobin numbers went down each week with Taxol Lowest was Taxol 10 where it was 10.2G/dL but then started climbing again. By the day of Taxol 12, it was at 11.1G/dL.
WBC was lowest at the start of Taxol 7. It was 4.7. By start of Taxol 12, it was 7.0. Now it is 8.4
RBC dropped a lot during Taxol. Lowest was 3.17 at the start of Taxol 11. It is SLOWLY increasing but still low at 3.69. Low RBC makes my feel tired. And when RBC was at its lowest, I would get really winded just walking upstairs. MO said RBC numbers will take a bit of time to recover.
During chemo I made sure to drink a lot of water and made sure I concentrated on eating protein each day.
I lost my eyelashes and eyebrows on Taxol. Both are growing back now.
During chemo I applied lotions to my skin several times a day and felt my skin did really well. BUT now that I am almost 2 months past chemo and hair is starting to grow again, I have so much dry flakey skin everywhere. Wondering it it's due to new skin development happening and pushing out the old dry skin? Feel like I need to exfoliate every hour to get rid of the flakes from my forehead.
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DodgersGirl - my RBC was only 3.95 before chemo, now I’m 3.02,I guess I don’t have that much red blood. My HGB was 12.4, now is 9.9 good thing taxol didn’t make my HGB drops. WBC 7.3 didn’t go down on taxol. Hope I don’t need infusion to complete taxol.
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Paulettek- do you find yourself short of breath upon increased physical activity? My lower RBC counts did that to me.
I think I remember my MO saying she was watching hemoglobin number along with hematocrit percentage. Said that percentage should be at least 30%. We talked about needing blood at some point? And she didn't think my numbers were to that point yet (during Taxol). Hoping your numbers stay up, too.
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DodgersGirl - Waking is fine for me, climbing stairs is fine because I live on a split level house, my HGB is good they are watching this number. MO said watching my trend I should be fine, I just let it play by ears. I’m eating meat and drink my liver water and my numbers aren’t dropping so I’m trying to make them stay. How are you doing now
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Paulettek- doing well at the moment.
See my RO next week to start that process.
Also hope to start physical therapy very soon.
Will you have radiation?
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DodgersGirl -I have to do radiation after taxol. Gosh this process takes forever, isn’t is? Good luck with your radiation, sounds like you will be done before Christmas! Yeah!
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Back to hair - I had short wavey hair before chemo. It started falling out about week 3 and I got a buzz cut which I liked. DH shaved the last of it (he's been doing his own head for years). It's been very slow coming back but I have had partial hair loss in the past for non-cancer events. I had wigs from a friend but never wore them. Just scarves and hats although I am older than many of you. Now - over 6 months post Taxol, I have enough that I am going "coverless" - current hair is also very curly. About as gray as I remembered from before.
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Hi ladies,
I experienced some pains under my feet middle of the night is this joints / muscle pains or neuropathy? I noticed some numbness on my fingertips and this is only taxol #4.
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I've noticed my SEs getting worse too, Paulette. I am due for #5 tomorrow. I have had pains at night, more tingling when I wake up than usual, and I'm just exhausted today. I'm tired and cranky. Lovely combination at work on a Monday!
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Jen - today is my bad day, not enough sleep and no appetite at the same time. I give you a lot of credit working and chemo at the same time, I wouldn’t able to do that. Send you some prayers and best wishes to your infusion tomorrow. I will have my flu shot tomorrow then #5 on Friday
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Hi, I have a question, do you know how much Taxol they administer when one gets it on weekly basis in ml per body weight? I was trying to find myself but I only find in mg but when I get mine it is in ml.
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Cherry, it's administered in mg. Look on the bag during your next infusion and there's a label telling you the drug name and how many mg. Like 300 mg, then it will list the solution it's diluted in and how many ml.
It might also be written in mg/ml.
Taxol. 40mg/ml
If you want to know how many mg then multiply the the total volume they are infusing (how many ml of fluid, like 300ml) by the mg/ml. That will tell you the total mg you were given.
Hope this helps.
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Teese, thank you, on my infusion stand it says 524 ml and I never checked on the bag. I am 168 cm tall and approx 65 kg. I am just trying to understand how much we are supposed to receive per our kg weight or surface, have no idea, during the weekly treatment, in total. I will see my oncologist tomorrow.
Cherry
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cherry, my dose was just reduced from 80mg per meter-squared to 60mg per meter-squared. The meter-squared is based on your height and weight. So I'm assuming most weekly doses are the 80?
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Irfortuna, thank you, I will check it with my oncologist tomorrow, I have an appointment. It was a confusion about the numbers of the infusions I am getting. The nurse asked me whether I knew what was going to happen after the next time and i said another three infusions and she said that she thought I will be done after the next one and I got confused and wanted to compare the dosage, I am in Europe,
Cherry
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My nurse called today and told me they will slow down my taxol infusion due to my heart beat so it will be 3 hours instead of 1 hour so it will be a long day for me.
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Paulette, mine is infused st 50% the first 30 min and then at 100% the remaining 45 min due to the allergic reaction during the second infusion.
What is wrong with the heart beat, did you have a reaction too
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Cherry - yes I got reaction toward on the end, so they are going to slow down the taxol dripping. My heart beats increased on the end, what kind of reaction do you have
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Hi everyone, 1st time posting but I've been reading for a few months. All of you are a wealth on inspiration and information. I need some advice. I started taxol 2 weeks ago and am having trouble controlling diarrhea. I have always had trouble with OTC drugs (no benadryl for me, reacted bad, typical). I took 7 Imodium which finally stopped the runs for 1 day, now I'm back at it. Has anyone just let the big D run it's course? Sometimes I wonder if keeping all this chemo inside the intestines may cause more harm than good? I get terrible intestinal spasms, my appetite is really poor and my blood counts are bad enough to worry about postponing treatment or getting red blood cell transfusions. Avoiding dairy, doing BRAT diet and trying to get protein down but it's a struggle. Any advice would be welcome. I have to go in on Thursday and am dreading going through another week like this.
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CM - call your MO get a stronger meds for your Big D. You don't want to continue with the big D. Meanwhile keep drinking water
I'm low on RBC and talked to my MO about blood transfusion but he thinks I can make it. So we play it by ears.
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I too am very fatigued. In DD taxol and just finished #3. Seem to be more fatigued sitting. Walking feels good but get winded if I go up any incline or if I walk too fast. Also going upstairs from my basement to the upper level I get when did I have to take some deep breaths as I'm coming upstairs. Also the leg pain lasting a little longer this time. Last time I had my chemo on the Thursday and the pain was gone by Monday night . today I still have a bit of aches in the Calves and in the ankles.
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Tpralph, what # of Taxol are you on? Curious because I have #5 today and noticed similar things... the pain is just a little worse, lasts a little longer, etc.
Interestingly, I also noticed what someone else posted (not sure if it was here or on my chemo month board) ... I don't notice the tingling/numbness as much (if at all) when I'm wearing shoes.
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I'm watching over Jen shoulder because I will get my #5 on Friday. Jen did you get your flu shot. I have a great night sleep last night so today I'm all good. Now I'm picking up lunch and I'm hoping my appetite is good also.
Jen - prayers for you within more pains, take the power as you said.
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Thanks Paulette! I did get my flu shot last week. And was happy to see my WBC went back up this past week (to 7). (today was a much better day than yesterday... slept in a bit today and worked from home instead of going in.)
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I had my first Taxol last week. The positive is no nausea, which was horrible with AC. However, I have a lot of muscle/ bone pain in the entire rib area. Anyone else have this? I looked up the side effects of Taxol and myalgias is a common one. It's annoying, but I wonder if it will get worse each week. I'm taking Advil.
Also having a terrible time sleeping. Why am I wide awake at 3am, but when alarm goes off at 6 I'm exhausted? Ativan isn't working. Maybe if I cut out my afternoon cat nap ( which I literally take with my cat!) I'd sleep better at night.
Can't wait until this is over!
Then I can whine about radiation
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