Bone Mets Thread
Comments
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Good luck moosan! I'm so glad your organs are clear. I hope that bad ole tumor shrinks fast. Any talk of rads after that?
I have a kinds of a funny/pathetic story. I've been experimenting with some hoochie coochie mary Jane you know what I mean in edible form for pain. I do it just at night. Anyway, it seems to work. So, when I next see my once I planned to tell her and ask if she would be willing to prescribe. Apparently it is possible to get a RX in MD and have it filled in DC. However, it turns out that my worried mother intends to go with me to the once again. She is more that willing to get the prescription, but I think she will be majorly upset about my experiment. LOL. I'm 57 and hiding that from her. I'll just have to call the one. I doubt she'll prescribe anyway, but it works relatively well compared to pain meds, with no constipation added to the problem. Anyway, I had a tough day yesterday but last night felt pretty darn mellow and giggly.
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I've been thinking of getting a medical marijuana card, dunesleeper. Living in an Oregon college town, I can walk to at least two dispensaries. I'm 54, and I can remember back in the 70's when, as a teenager, my Mom handed me a joint that was going around. Of course, that made it so uncool that I just made a face and passed it to the person next to me!
It's funny what we try to protect our parents from. I haven't told my parents what stage I'm in. I just say I'm in treatment and I'm feeling fine.
I've also started acupuncture. That's probably a topic for the Alternative forum, though.
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Best of luck moosan, and so happy to hear your organs are clear! I find it strange how you presented with shoulder pain but they found something in your lumbar spine. Same thing happened with me. My oncologist said my pain doesn't match where my mets are, very confusing. I wonder if it is referred pain we are experiencing?
Hey dunesleeper! You gave me a chuckle
I had the same experience as you did last night. Although it didn't do alot for my pain I sure slept good and really enjoyed the giggles. I also had a bad case of the munchies, wanted to eat non stop! Which I guess can be a good thing if it gives you an appetite, not that I'm having a problem in that department.0 -
ninetwelve I'm a former acupuncturist.
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LOL annieoakley. Not having an appetite problem either. Last night I went down for ice cream, cereal, and trader Joe's rosemary crackers with butter. It's kind of a matza like thing.
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So you recommend accupuncture? Any experience treating women with BC, supporting their traditional tx?
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I have not had any experience treating cancer, but I can see it being a great treatment supplement. I would start with a clearing treatment called AE, for aggressive energy. That one has a series of needles inserted very shallow about an inch lateral to 6 vertebra. Very relaxing. Next I would work on the Wood meridians to help move the qi, viewing tumors as a sort of stuck qi. I would likely treat Earth too. Beyond that it would be highly individualized. That is 5 element acupuncture. TCM would look at it differently, but I bet they would work at moving qi too.
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I had a MRI Friday on my hip and femur to see why it is so painful since radiation. My natural path who specializes in oncology said it is scar tissue and I need a physical therapist. Anyone else have this problem?0 -
Hindsfeet, reading your post from 2 days ago and wanted to say although I haven't had experience with radiation myself a friend of mine who went through it for the same areas said that it felt worse before it got better. How long ago were rads to that area? I have read however that it can create scar tissue. I hope you get some answers and start feeling better real soon!
I have a question. I've been experiencing terrible pain in my left arm. When my scan was done all my onc mentioned to me was mets to sternum, right rib and L5 Last week I saw my family doctor and was telling her about my painful arm. She was looking at my scan results and said it mentioned increased activity in the left humerus. Why would my onc not mention this and what could that mean? Having a real hard time using it and it's our Thanksgiving here today. Struggled stuffing the darn turkey!
Hope you're all having a good day!
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Hindsfeet - Annie is correct; it's not uncommon for the pain to get worse following radiation and then it gets better. That said, not a bad idea to follow up.
Dune - thanks for the acupuncture advice. I have been considering it for pain relief, especially for my hands.
Annie - I have absolutely nothing useful to say except to recommend that you save a drumstick and bitch slap your MO with it for not mentioning this. Alternatively, a wing might work if you're keen on eating the drumstick. Not constructive advice mind you, but not without merit.
I'd sure go back to the MO and ask him what's going on and why he didn't tell you. Good luck and keep us posted!Hugs to all,
Terre0 -
Terre, your comment had me busting a gut. I was actually picturing bitch slapping my MO with a drumstick
. Too funny, but seriously I'd love to do it! I'm pretty upset I had to find this out from my family doctor. This has me freeked out a little, and it's so painful I'm having a hard time doing anything with it. I have an appt at the cancer centre on Friday for blood work, my pamidronate infusion and a follow up with my MO. I will definitely be bringing this to his attention. On a good note Thanksgiving dinner was very nice but boy I sure tire easily. I had a moment where sadness came over me as I looked at my husband and two beautiful daughters, praying I can be around for them for many more years to come. It's just so hard, still having a rough time accepting this. But I will fight through this and keep positive thoughts. Thank God I found this group of incredible women who have given me courage and strength. Your combined wealth of knowledge is extremely helpful!
Hugs to all, Annie
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was to start Xgeva this wed but postponed due to tooth pulled and getting dry socket but got my bone mets to go along with lung and plural on the 7th of this month. Funny thing is i was the one pushing for the bone scan he did not feel there was a need. Now he says 4 out of 5 "hot spots" are cancer and now he all so believes that the complaints i made of pain are real. Any advice welcome as the whole stage IV is still new and more seem to be added to it.....he mentioned doing rads to my left shoulder as i had been having pain there since before Christmas and was seeing a orthopedic doctor who was telling me it was a pinched nerve in my neck. I can still use the arm it just hurts alot so i tend to not do any lifting and have to be careful when driving more so when turning. The ribs he said where "hot spots" have been hurting since I had the 3 chest tubes back to back and now they tend to burn like as well. Going to try to read thur back post to get maybe a ideal of what to expect but they are like most alot .
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Annie I had mets to my humerus but before they were 'discovered' my pain was horrendous and had been for a long time. By the time we knew about them I had to have a pin put in to stabilize my arm as it was on the verge of shattering. I do wish I had known of them sooner as I have had no end of trouble with that arm ever since........Oh I am forgetting, I had 7 rounds of rads to that arm which, after a flare, proved to deal very nicely thank you with the pain issue. The pain I get now is from rads damage to the muscle and soft tissue and of course where they had to drill through the ball of the humerus to get the pin in as it interfered with the strength of the lifting mechanism of the arm.
OMG! I hope you can understand all that as I feel as though I have just rambled disjointedly.......lol.
liljohnnysmommy, the thing with bone mets if that it is possible to live a long while with them and depending where they are, with few problems other than pain. Bone pain if severe, can always be treated with rads which kills of the activity of the cancer so reducing the pain and in some cases getting rid of it all together. The big thing to remember with bone mets or any mets for that matter, is pain management. If pain is controlled then life can be lived well.
Love n hugs to all! Chrissy
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Hello Chrissyb, I'm glad to see you back on this thread, I hadn't seen you for a while and missed your on spot comments. Hope you're doing awesome and love and hugs to you too.
Aurora
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I am mainly looking for some advice and/or opinions. I was diagnosed in February 2012 with stage four metastatic breast cancer. I had chemo, bilateral mastectomy, and radiation treatments. I had reconstruction surgery in 2013 and almost died in June after surgery complications. I have taken Herceptin every three weeks since I finished my yearly treatment of chemo, surgery, and radiation. I also take Aromasin. I am not having horrible pains in my right arm and clavicle area. I mentioned it to my oncologist, and he said he wasn't sure why. I have a PET scan Nov. 9 (I have them about every four months). I also am having pain (level 10) in my back. I had latissimus flap surgery to use back tissue for breast reconstruction. Pain doctor said I had thoracic radiculopathy, but injections and nerve block have not worked at all. I wonder if it is possible to have scar tissue damage that would hurt that badly. It is getting more and more difficult for me to breathe; however, scar tissue cannot define the pain I'm having in my right arm or clavicle area. Any comments or ideas?0 -
Hi auroaya, I tend to do more reading that commenting but I'm here and if you have a specific question, I will see it. I have been very busy as my DD's support person as she has spent the last month competing.......she is a Figure Bodybuilder. Her efforts have all been worth it as she has taken out the overall National title in her class and I am so very proud of her.
Jane, the pain you are describing send my mind more to bone mets than scar/nerve damage but the PET will show if there is something worth warranting a nuclear bone scan or MRI. If your pain doc can't help I personally would be digging a whole lot deeper to find out what is causing your pain........number 10 is unacceptable and needs to be sorted.
Love n hugs. Chrissy
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Congrats to your DD Chrissy! That's fantastic! Very happy for you.
And as always, you answered questions better than I could have.
#10 pain is certainly unacceptable and needs to get sorted soon.Annie - glad I could make you laugh! I think my role in life is comic relief.
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Chrissy: what KiwiCatMom said.
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Congrats to your daughter, Chrissy! I would love to see a photo if you ever feel like sharing!
jane, I can't fathom an onc and a pain doc allowing you to live with the pain you're describing without more urgency than it sounds like they have about it. Not sure what's going on, but maybe a second opinion would be in order. Is there anyway they can reschedule your Nov. 9 scan any sooner? That's a long time to wait if you are in that kind of pain. (((Hugs))) Deanna
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Deanna, this was taken just after she came off stage..........she is a very happy girl as she went there with no expectation, just a hope that she would place in the top five.
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OMG Chrissy she looks Wonderful!!! The complete opposite of me. Lol
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LOL, macyhen!
And thanks for sharing your daughter's beaming photo, Chrissy! Such an impressive accomplishment! You must be so proud of her!
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Amazing, chrissy! She almost has my physique.
i have to tell you that I started lifting weights many years ago not just because I was afraid of lymphedema at the time and read a study that contracting muscles helped prevent it, but I also remembered way back when Jack LaLanne was encouraging women to lift weights. He turned out to be right. Kudos to your daughter again!0 -
Thanks girls I am so very proud of her as the prep for the comp is really harsh. Believe me when I say she has worked very hard to get that body........only wish I had as much determination as she has then maybe I too could look like that! (In my dreams maybe)......lol.
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Chrissy, first off congrats to your daughter! You must be so proud of her and she looks amazing. Also thanks so much for your input. Sometimes when I try to use my arm I feel like it's going to break. I hope it is something other than a bone met. I am definitely bringing it to my MO's attention on Friday.
Annie
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Chrissy. She definitely has determination . She looks great. My husband was a bodybuilder years ago and it takes a certain kind of person to work that hard. She is also gorgeous .
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Chrissy - what they all said, especially Macyhen (i.e., everything I'm not). I have a friend who was a semi-pro bodybuilder and I know what she put herself through for it, and the training, etc., is intense. How incredibly proud you must be! She is stunning.
Annie - don't forget the drumstick on Friday.
Jane - I'd be on the doctor's door step or getting a second opinion. Insane that they would let you have this kind of pain and leave it un-addressed for so long.
Hugs to all and thanks again for the picture of your lovely daughter, Chrissy!
Terre
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Jane, I agree with the others. I was amazed at how quickly my doc was willing to prescribe oxycontin and oxycodone for me. It may only take a phone call, and dropping by yo pick up the prescription/s, to get you some relief.
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Hi to all and I hope you are all feeling well today! I'll be having my second pamidronate infusion today and feeling a little nervous. I felt horrible after my first one, I ached so badly I could barely walk the next day. I'm also having blood work and meeting my MO.
Terre, I've got the drumstick ready
. The more I think about it the more it upsets me. I just wonder if he will doing anything to find out what's going on in my arm.I guess I won't get my tumor markers today as that takes 48 hours they tell me. I hope they are dropping, it's so hard for me right now not knowing if my treatment is doing what it is suppose to do.
Have a great day and I will update later. Thanks for listening.
Annie
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Hi Annie,
I remember having a lot of SEs the first 2-3 months following pamidronate infusions (muscle and joint pain and profuse sweating). My nurse told me the SEs tend to wear off after the 3-4 first months. I've had 11 treatments so far an now nothing other than very mild pain which doesn't last more than 24 hours. Good luck with your treatment.
Linda
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