Bone Mets Thread
Comments
-
Thanks Peg and ReadingMama, I know I should feel better about it but I'm just upset because I told my MO it wasn't a good time to do one, and I'm pretty sure he knew that but I feel he's a power struggler. I may call my rad onc next week and talk to him about the scan. Maybe I should have stood up to him and said no, I want to wait til it's 8 weeks past my rads. Oh well what's done is done. This is all a learning experience, and it's great that we can all learn from each other.
Hoping everyone has a painless and restful weekend.
Hugs, Annie
0 -
hey ladies.
Annie - tm's down and stable is awesome !!!! Scans are expensive. Sure hope your mo isn't ordering unnecessary tests.
Freebird - hi. Sorry for the pain in the rear.
Ibcmets - yes I too was told must eat protein with fruit to prevent sugar spikes. Even something as simple as peanut butter or cheese with the fruit.
Linda - block dr google ! Missed the plum info from Ruth but I love plums. Will have to go back and search for that. Sounds good to me.
Kiwi - still thin king about your bob. Hope your doing ok. I keep forgetting it can be something besides this cancer that will kill me. I needed to hear that. I need to push that fear off. Thanks again.
Dlb - welcome back. You were missed ! Don't lose us again. You are so positive. Such s wonderful spirit in you.
Gg - 6+ years. Wow. Very encouraging. Everything in moderation right ? Love your specific diet ideas. Can't get my mo to say anything about nutrition. Except eat whatever you can keep down. Put on some weight. Don't mind putting some weight on but not wanting to feed cancer.
Sharon - glad your sticking with us and posting. Feel like you are gonna be a great addition to our "family ". I agree perspective changes everything. No regrets in past tx decisions. Regret changes nothing except keeps us in condemnation. And you got a flat tire in that weather! Ugh. Don't forget we want wedding pics when you do it. You have an incredibly healthy attitude so close to dx Awesome.
Romansma / hope you are feeling pretty well after tx. I agree I would think targeted therapy has to be better than rat poison for the whole body. Did you go into tx rockin your new shades ?
MusicLover - not sure what is working for you but sonething is. Keep it up. Congrats !
I am feeling much happier today. Wow I've been in an incredible funk. Today I Changing perspective. Finding purpose and many thing to be thankful for. Thanks for the encouragement from everyone.
0 -
Bosco I like your suggestions. That's the kind of diet I was following until moving in with mom after the stage iv diagnosis. I didn't have any high glycemic index foods in my house. She just WILL NOT be without it, and I'm having a hard time resisting it. I was good until I ate just 2 M&Ms. Then slowly but surely I was off and running on sugar binges, gaining back weight I had lost. Plus feeling worse and worse. She has control. She MUST cook the dinner. I MUST eat with her. She MUST load up my plate with food. I just give up. I know it sounds ridiculous to those who are not in my situation: depressed, introverted mush because of a domineering mother who loves me but does not know how to show it. Of course, I don't really blame her. I blame my father who left us all to fend for ourselves when I was 5 and my brother was 3. She had to become an uptight control freak if she wasn't one already. Argh! It's so frustrating. (I did not say this. I was not here.)
Deanna, the "remove from favorites" and "back to top" buttons are fairly close together. I've selected the wrong one a few times. I'm glad you came looking for us.
Linda, that's good news about your calcium level and I hope it continues to go to normal. Also, you have given me another reason to eat more prunes. We have a large glass jar of them on the counter, but I choose cookies instead. Can you blame me? They don't leave my fingers sticky. LOL
Music Lover, I'm glad you got good scan results, too. I don't know about you, but I look forward to meeting with my onc to see where she wants to go with this.
PattyPeppermint, I'm so glad you are feeling better. I hate the funk. I'm feeling it a little bit today, so after I finish reading through the posts, I am going to get dressed and take a walk -- to the espresso shop. Ha ha ha ha ha. Take that world!
Romansma I was very curious about your rat poison comment. I did a search and saw that someone liked to call it that. It didn't kill the rats (supposedly) though, so is it chemo in general that you are calling rat poison. I always saw it as poison, and really it is if it isn't targeting specific cells. They poison the whole organism to kill the cancer cells and hope the heathy cells grow back well. That's all the more reason to eat healthy though. Anyway, at stage 2 I was not prepared to take it. At stage 4, well, I will just have to wait until I cross that bridge.
Hello to everyone else. Have a good weekend. I'm sure going to give it a try.
0 -
hello to all
I must admit to being a bit overwhelmed with keeping up with everyone. I send my best to all and hope we all find good ways to cope with whatever comes our way in 2015.
Just finished my first week back at school after the holiday break. Both the kids and myself were very sluggish and getting back into the rhythm of the school schedule was a bit tough, but I really get so much positive energy and happiness from my 24 little pumpkins, that it's worth the end of the day exhaustion. Taking it easy today by getting a haircut (and refreshing the color) and running a few errands. Ugh, just realized I have a mound of laundry 😒
0 -
dune sleeper,
Mothers! Can't live with them, can't live without them. It's clear that despite her dominating ways, you are well loved. Mother/daughter relationships can be wonderful but fraught with huge emotional ups and downs. I went through it with my own mother and have experienced my share of rocky moments with my own adult daughters. I love them beyond words and have a close relationship with both, but we still have our tense moments from time to time. Love makes you very vulnerable to another person and that is particularly true of mother/daughter relationships.
0 -
Wow...lots of stuff to catch up on! Good stuff, which makes it great! So happy that so many of you are reporting good results.
Patty - glad you're feeling better. I am doing fine, thanks so much for the kind thoughts. Bob was so good at getting me to laugh when I thought I'd never even smile again that I know he wouldn't want me moping around for too long. But, drama queen that he was, he'd be angry as hell if I didn't have a bit of a meltdown about it.
Annie - bummer about your MO being an arrogant ass. But good that the results are good! I know my MO is really cautious about bone scans and he took a lot of time explaining to me that healing can look like cancer. I don't know if you can switch to another MO, but it may be worth checking. During Stage I, I got a referral from the rad oncologist for a new MO because my MO was such a jerk. I really despised her and she despised me. I found myself almost in tears because I was dreading seeing her. And I didn't feel like she had my best interests in mind. So, may be worth a thought.
Dune - do I ever feel your pain. My mother passed away about 11 years ago. I would give anything to have her back. But...she left my abusive father when I was 18 months old, and also "inherited" my bedridden great-grandmother when I was 3. And she was 19 when I was born. So yes, control R Us! I know it well. I know she wanted what was best for me, but it sure didn't always translate that way at this end.
Caryn - glad/sad you're back at work. The first week back after the holidays is HARD! I've been lucky enough to work from home.
Welcome back Deanna!
Hugs to all,
Terre
0 -
terre,
So sorry to hear about the loss of your friend but he sounds as if he lived his life well, everyday. Had to laugh when you said you were working from home. I had a quick, and horrifying, vision of 24 6/7 year olds running around my small townhouse (with my two dogs no less!). I think I'll confine my work to the classroom.
Caryn
0 -
Is there anything more complicated at times than mother/daughter relationships? I sympathize with you, dunesleeper, and I hope you can help your mother see that she might be hurting you more than helping you with the diet issues. It's hard, I'm sure, considering the circumstances. She has had to be very strong for a long time, and it's hard to let go of that. Love can be so complicated, especially between mothers and daughters.
I had my first injection of Xgeva yesterday and started the Aromasin. So far, so good. They warned me I might have flu-like symptoms for a few days, but that isn't happening. I had a little diarrhea last night, but who knows what that was about. It was a stressful day. Today I'm fine, and I intend to stay that way! Because we had the flu over the holidays and then got bogged down with my new diagnosis, we have not done any socializing and haven't felt like it, but friends are having a party tomorrow to watch the Packers in the playoffs, and they invited us, so we're going. It's time to get back to the real world, whatever that is.
Thanks, PattyPepper. I like it here. I don't like that I need to be here, but nobody does, I'm sure. I'm just glad we can be here for each other, no matter where we live. My only family is my sister in Florida, and my wonderful family of friends, and I am happy to increase my "family" here. I hope you all have a good weekend.
0 -
Thanks for the kind words, Caryn.
And yes - the thought of a bunch of little kids running around the house would be horrifying!
0 -
Apologies if the comments about God offend anyone, but if you can set that aside, this is good reading. It's about having your life change and keeping positive nonetheless.
http://www.stuff.co.nz/life-style/life/64799837/br...
0 -
Dunesleeper....still smiling at the mom comments. Don't get me started! Also, yes, I was referring to chemo when I called it rat poison. I did 6 rounds of TAC and 4 rounds of Abraxane, which are all IV chemos and certainly felt like poison being 'pushed' through my veins! This time, I take oral chemo 2x a day. They look like little rat poison pellets to me, only they are pink instead of blue. I'm not a fan, can you tell? Hoping chemo works for me this time, but it hasn't been that much help for me in the past. If it works, I promise to change my mental image to somethingmore pleasant.....like sweet tarts or unicorn poop.
0 -
LOL @ unicorn poop. I would say that I'm sure it feels like rat poison, but I'm sure you're more of a unicorn than a rat, Romansma.
0 -
I get overwhelmed with this thread also, especially since by the time I get on here there have been so many posts and my short term memory stinks now because of my nerves I think. In any case, I wanted to comment on Dune's good scan and AnnieO's lower TM's (and it definitely takes awhile to see the effects in your scan, so be patient). Best to you all and I hope that you are having a wonderful weekend.
0 -
KCM"Annie - bummer about your MO being an arrogant ass."
Please don't mince words, tell us what you really think! Gave me a good snort-laugh.
So sorry the "bus" got your friend. So glad he did much living and laughing before, and that he shared it with you.
0 -
Thanks Jobur. Kind thoughts regarding my friend much appreciated.
Ok..so I'm not terribly PC. And I do tend to speak my mind. Glad you got a giggle from it! As I've said before, I'm mainly here for comic relief!
0 -
Romansma, Unicorn poop. Totally. LOL . Yes, please let it work so that reference to it can be unicorn poop.
I took a walk today. I walked to Java Mammas, where I bought a latte and sat and drank it. Then I walked home. A little later, mom and I walked to church. I was a hurting pup at church. I definitely need to do more exercise! Of course, now my eyes are shutting on me because of taking extra pain medication.
OK. I can't think of anything else to add. I just keep sitting here nodding off. I bet that is a pretty picture. LOL
0 -
dune sleeper I don't have any advice for you, but I offer you big ((((((hugs))))) for what it is worth.
Sharon, enjoy the game tomorrow. I am a big football fan, watching Seattle now. I hope you find it fun to see your friends.
0 -
Sharon. Enjoy the game.
Romansma - hoping for unicorn poop not rat poisoning for you
0 -
I didn't do any exercise today -- except for climbing around the floor taking my desktop apart and cleaning it and installing a new drive, solid state. But then I noticed I was missing my nap time, lol, so I did not install the OS yet. Maybe I should have passed on the nap and done this thing that I enjoy while I can still do it. Geez. Somebody's post opened my eyes to that. Oh well. I am a work in progress.
OK. Starting a new week now. Work tomorrow. Yoga Tuesday. Work Wednesday. Enzo Thursday. Free Friday. Maybe I ought to stick with one day at a time, but I am looking forward to starting yoga at the cancer support center.
Meegan, thanks for the hug; but I'm ok. That just shows me how out of shape I am, and I'll be working on that. And the pain was not the excruciating kind. I'm looking forward to my next opportunity to walk to Java Mammas.
0 -
dune. - starting a yoga class at your cancer center is awesome !!!!
0 -
dlb - haven't seen you in awhile on here. Have I just missed you ? Maybe your out doing something fun. Didn't you say you like the rodeo ? Can't remember if it was you. Thinking of you
Shout out to all. - hey.
0 -
Patty, it's even better than doing it at the cancer center. I'll be doing the yoga at a place called Hopewell, a cancer patient and caregiver support place. There's an old house, a HUGE Amish-built barn, and lovely grounds with a stream, bridge, walking/ meditation trails, and all sorts of activities. All free to us and our families. It's set in a wooded area in Greenspring Valley, about a 15 minute pleasant drive from where I live now.
0 -
That sounds fantastic, Dune! Nothing wrong with looking forward to something, by the way. At least that's my view of things.
0 -
Hi, Patty! I'm here, and I think about you a lot too, sending healing vibes & prayers. How are you doing since your hospitalization? Has whatever landed you in the hospital been totally resolved? Hope so! (And as far as the rodeo, my DH grew up on a ranch and much of his family is still in ranching, so we have sort of a mini-family reunion each year at the NFR in LV, something we've done for 20+ years. But since my mets dx, I'm so over the crowds and smokey environments, I almost dread going because it takes such a toll on my health. Enough said.)
Terre, how is your DH doing this week? Without trying to flip back several pages, was he suppose to have some additional tests? Hope things have settled down for him, and hope you're not overdoing it for those demanding clients of yours.
Sharon, glad to hear the Xgeva didn't cause any SEs. Keep us posted on that. I'm suppose to start it, but still procrastinating as I finish up some dental stuff. And speaking of football, my DH was an absolute bear to live with yesterday as the Broncos went down in flames. He was so mad he switched off the TV during the 4th quarter and wasn't the nicest person to be around the rest of the evening. Hope your Packers party went better!
Romansma, special thoughts & prayers for you right now! Hope this chemo is the unicorn poop you've been needing!
No way to address everyone individually, but caring hugs & prayers going out to all for a great week! Oh, and don't forget to hydrate! I was having all sorts of minor issues a few days ago and finally realized I haven't been drinking nearly enough water, which I made a big effort to rectify over the weekend, and feel so much better for it today. Deanna
0 -
Thanks Deanna. DH had another test on Sunday (really!) when the District Nurse came to the house and evaluated the veins and arteries in his feet and legs with a doppler machine. Very cool stuff in the eyes of the science nerd that I am. Anyway, back to the GP yesterday for him, and after months of saying that DH has "congestive heart failure", the GP now says he's convinced it's not a heart problem. So, DH now has a referral to a lymphadema specialist. All that said (maybe more than anyone wanted to know), DH is much easier to live with now that he's decided that he's not living under a death sentence (i.e., congestive heart failure). We're still awaiting the echocardiogram to totally rule out heart problems, but things are looking more promising.
Deanna - if you follow rodeo, you may know of my cousin, Ote Berry, who's a multi-time bulldogging National Finals champion. He's my mother's brother's youngest. Quite proud of his accomplishments despite that branch of the family basically having nothing to do with me thanks to my rather manipulative and nasty grandmother. (Will definitely spare you those details!). Also, I lived in Vegas for about 20 years; it's a goofy place to live. Stayed away from the Strip unless I had client meetings or an event to go to.
I had a nice break from work. Slept, slept, slept, and slept. Did some work from home, interrupted by nana naps. Was supposed to go back today, but I have really upset tummy, roaring sinus headache, and sore throat. DH was feeling this way a few days ago and it doesn't seem to last long, but I didn't want to give it to the rest of the office. I am so lucky that I can work from home when I need to!
Overall, I'm still feeling really good. Will see the MO in February and see what he says, but other than being tired all the time (and having this minor flu bug), I feel great!
Sending good thoughts to all,
Terre
0 -
Today is my B-day...Yah...54...I could go either way..feel miserable or just be happy I made it to my 54th B-day...I think that is the way I'll go...Go to treatment tomorrow...shots for Faslodex and Xgeva booster shot...and will have my blood work done to see how my TM are at... cross the figures...they haven't gone up...but down a little...
I am looking into my life insurance today...and start making my living will...How many of you have done this yet...I just feel that I need to do it because I want my grandson's and children to have no burden's ...and I would like to leave them something...so they may hopefully use it for good things...I have established trusts for the grand boys...and one open trust for my son when he has his first born also...
Things are just awesome for me today...I just want to have 2015 completed with all my things in place...
The job didn't work out...had to stand on my feet for 8 hrs..and my right leg that has the tumor in the hip/femur...ended up getting very swollen and i was in pain the next couple days off...Oh well I tried...
Well that's it for today...I have my caregiver here helping with my chores...so I say Good Day to my sisters and please have a wonderful day...Love to all.. Carla
0 -
Happy Birthday, Carla! Congrats on 54!
I got my living will, will, trust fund (for the cats, believe it or not), and other "end of life" things sorted shortly after diagnosis. Once it was done, I felt like I could live again, as contradictory as that may sound. But I'm an engineer and project manager, so having loose ends tidied up took them off my "to worry about" list, and felt like a huge weight lifted.
Sorry your job didn't work out, but good on you for giving it a go! I can't imagine standing up for 8 hours; that would be amazingly painful. I'm sure there's other opportunities for you out there however.
Sending birthday wishes!
Terre
0 -
Happy Birthday Carla! I can't imagine standing up for 8 hours either! Are you looking at another job possibility?I've also done my living will and all my affairs are in order.
Hoping you will or have celebrated your birthday today.
Linda
0 -
Happy Birthday, Carla! Glad you're having an awesome day! Wishing you only wonderful things in the year ahead! (((Hugs))) Deanna
0 -
Linda: Yes I am...I just wanted something PT to give me some interaction with folks...I'm looking for something in my field ....Sitting down mostly would be good...I'll be fine...
Well off to bed..I'm exhausted today....Good nite Carla
Thanks for the B-day wishes.... L&R
0
