Bone Mets Thread
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Hooray for Dune! Glad you're having less pain!
Carpe - Definitely have it on my calendar! Was going to PM you and ask you if you're getting close to ready. So excited! And thanks for the good wishes. I'll likely be over my pity party quickly. This house was on the market for 3 years with no success. But I assumed it would sell and we'd need to move; hence the boxes being packed. It's really more of an ego blow to feel like we've been thrown under the bus by this guy who lied to our faces and said everything was fine. i know it will be for the best in the long run, just mostly am a bit in shock and have very hurt feelings.
Annie - good to hear from you! Hope you're well. I was pretty sure you'd had some rad rads.
Glad you could connect with Doug.GG - bugger @ $60 cough syrup. I do hope you get rid of this nasty bug soon.
Hugs to all
Terre
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I'm sitting here tonite...thinking well thank you God for making my treatment go well today...will see how the next few days go....but then...a tear rolls down my face...I wish I had someone to hold me and sit here with me...I think of all the people that have that someone to hold tonite...I could use that in my life...just saying Nite Peeps!!! Bubba...come and let momma hug you...
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(((((freebird)))) consider yourself hugged. I know it's not the same but know that I'm thinking of you!
Aurora
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Sending virtual hugs your way Carla. This may sound a bit silly, but my friend just lost her husband to cancer. They were married nearly 50 years and just the light of each other's lives. So one of her friends made her a teddy bear to hug. So...it's not as good as a human, but maybe you should get a huggable bear. I have one I hug when I'm sad (DH isn't big on hugs).
I am sorry you're sad and do wish I could hug you.
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(((Hugs))) Carla. Love Bubba! Sorry you're feeling sad, hopefully tomorrow will bring a better day.
I'm still sleeping on the couch, after 2 weeks, so I ain't getting any hugs either.
(DH doesn't want me anywhere near him with this rotten cold!) Cheers, Dee
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This is the huggy bear that someone made for my friend. I want to hug him.
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freebird - thankful for your last tx been as easy as possible. I with you could virtually feel all the hugs and love being sent your way ((( hugs)))). I'm pm'ing u my phone #. Call , complain or be excited what ever you need. I am home most all the time ( if not in hospital )
Terre. Yuck on the quick move and horrible lies told on you. I am believing there is a better place for you guys to live. Cheaper , better more convenient.
Dune - glad radiation is going well and helping with pain. Keep up that great attitude !!! You got this girl !
Gg. Get well soon. $60 cough syrup. Wow
Annie and dlb ( hugs)
Doug - sorry to hear about your wife. You are going sn awesome job with research for her. Radiation to my spine mets ( only those hurting the most ) did not help the pain but did stop some growth. Way too many tumors to radiate all a of them for me. You might have said but u forget diesvyoyrveuge post here also ? Whatever work for you guys is great. You both are hearing lots of others experiences and feeling not so skine I hope. Stuck tight to your wife. She def needs you now. Going to pm you my phone # in case your wife actually wants to talk to someone who's been there done that. Ok.
Hugs to all patty
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Carla - Bubba is a lovely substitute! Glad you're feeling a bit better. Love the picture - you both are beautiful!Dee - Hope that nasty bug doesn't linger around too much.
Dune - Very happy the rads are helping - good luck with the rest of the rads and bloodwork.
And good luck to you Doug and your wife.
I think I overdid my walking in the mountain. My pelvis and leg hurt so bad. Thank God for strong narcos. Going to acupuncture this afternoon.
Hugs to all - Linda
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.Carla, I wish you the best.I wish I could hug you so tight. I know I am blessed to have someone hold me when I am frightened. I am here to hug you with my all my might. Myra
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Haven't posted in a while....
After 3 taxotere, perjeta, and herceptin infusions had my half way scan, only to find out I have a new met at T10. They said it was very light but it's there The tumors, I'm bilateral, in my breasts are gone, but bone mets look the same with the addition of the new one. my onc sent me for a bone biopsy to have the new one checked out as well as another at T5. She wanted me to do it ASAP so went in the end of the week following last infusion, I needed to lay on my stomach and was unable to do so without choking and gagging. So they were unable to do it. It was too close to my infusion and I didn't feel well. So went back on Monday and was able to have it done. The first time I went in I spent 3 hours in preop only to be sent home. Now this time they got me in quickly but had a different radioligist who was unsure on which mets to biopsy as he said none of them looked like good options so he ordered a CT scan before he did the procedure. I am so frustrated and tired of this whole thing...
Just need to vent and am hoping I get the results today. Next infusion is tomorrow..... Wish I knew if this was all going to be worth it...
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Thanks Annie for the info on your hemangioma.
Terri
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hi ladies,
Popping to get some words of encouragement, I am feeling down and don't want to worry my hubby or family. Just getting frustrating. Treatments don't seem to be working. (Xeloda oral) onc retired and my new one sucks ass. He told me I have TUMORS in my pectoral muscle and I was like what???? (Only knew about stetnum, lymph. Nodes and speck on lung) so I looked online today and they just added it to my med record a few days ago.wth???? Horrible arm pain when i lay down. Guess I just dont understand whythey are not trying to do more. Rant over. :
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Kate, so sorry about your arm pain and being blindsided with info' about new tumors. I know sometimes I sound like a broken record, but if you dislike your onc that much, I hope you can make a change to someone who won't spring surprises on you and will take your arm pain more seriously. Do you think it's from what they're now saying is going on in your pectoral muscle, or could it possible be a fracture? And where are they getting this new tumor info' from -- a recent scan or ???
Wow, Terre, I can't believe what you're going through. All I could think is, KARMA will hopefully come around to get both the property manager and the owner of your current place. I hope it sets empty for a long, long time. In the mean time, is there any point in trying to get ahold of the owner yourselves -- at least to have your say about the unfair spirit of the 90-day letter? Ugh!!! Why do some people have to be so mean? In the mean time, please do whatever you can not to let the stress get to you. I know it's easier said than done, but so very important to your health. You just have to believe that it will all work out beautifully in spite of this unfair glitch in your planning, and that a few months from now it will all be behind you and you'll be in happy new surroundings. I just wish we could all show up and help you pack!
Karla, my heart goes out to you going through all of this on your own. I hope and pray someone comes into your life to fill the void. (((Hugs))) Deanna
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Hi all,
Kate - so sorry to hear about your challenges. And I agree with Deanna. I've fired two oncologists and a radiation oncologist. Fine one who's right for you and who's on your side. Hoping you get answers and relief soon.
Thanks for the kind words Deanna. I'm pretty much over the pity party. And yes, I know that Karma will bite these people in the bum at some point and that things always work out for the best. Meeting with the mortgage broker today to see if I can qualify for a 10% down home loan. Should know within 4 working days. Fingers crossed. But, if we can't buy something now, we'll try to find a place to rent for a year or so and save up more money for a bigger down payment. I know this house thing is nothing in the big scheme of things; just needed to vent and have a bit of a pity party. My DH is beyond angry, so talking to him about it just cranks him up another notch and makes him more upset. Thanks for "listening" everyone. I'm sure I'll be posing good news on the housing front soon.
And...today is kitten day! I'm so glad I'm doing the volunteer thing. Gives me something to look forward to each week, even if it is cleaning cages.
Hugs to all,
Terre
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Kate so sorry to hear of everything you're going through. I understand totally about having info sprung on you that you knew nothing about. I was having horrible arm pain and my onc kept dissing me and saying my pain didn't match where my mets were. The pain was excruciating so I went to my family doctor who informed me there was a met in my humerus!!! It was there all along and my mo missed telling me about it. His next mistake was prescribing me chemo when I was there for my pamidronate infusion, and that's it, I'm done with him. I reported him to one of the other oncs at the cancer centre and if he doesn't watch it I'm going one step further. Problem is he's head of oncology at the hospital. I have asked to not be booked with him for now, and am seeing a female onc there instead who I just love. I'm with Terre and Deanna, please find someone who is a more suitable match for you and gives you the care you need and deserve. Best wishes, Annie
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Carla, I'm sending virtual hugs too. I'm sorry you are feeling that loneliness, and I hope you feel better quickly. It's a lousy way to feel.
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thanks ladies. Yes Deanna i had pet scan in 1/29 and it's seems as though they forgot to tell me about that part of progression. I am hoping they can offer radiation to relieve the pain but who knows I may have even more progression now. We will see what he says tomorrow. Thanks again, I will report back tomorrow night after apt!
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Sorry you are having to deal with this Kate. I hope they can offer a solution soon! Also, consider getting copies of scans, tests, and reports in the future.
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Carla-- it's tough to go through this alone, but Bubba is adorable! Know that we are all sending you love and hugs always.
Terre-- I really hope you can buy your own place. It totally sucks that you're being treated so badly, and I hope you you find a great place on your terms. There's nothing like your own home where no one can push you around. I know your pity party is about over, but you're entitled. Shouldn't we be exempt from some of life's bs while we're dealing with this cancer stuff??? I doesn't seem to work that way, but it should!
Love and hugs to all tonight. Feel better, everyone.
Sharon
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Thanks, Sharon. I am over my pity party (almost) and the nice words from all of you help. I think the pity party is exactly what you said - like enough already. However, on a brighter note, it's Kitten Inn Thursday here, so I got to get my kitten fix. This one may be a favourite..the blank look and slightly buck teeth just cracked me up. If you want more cute kitten pics, let me know!
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Kate - Hope you get your answers today. I once had a radiologist who totally misread the results. Scary.Linda
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Terre, keep the cute kitten pics coming, love them!
Kate, best of luck today. Praying you get some much needed answers.
Hugs to all, Annie
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Terri. Hope you get your kitten fix today
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OMG Terre, you're killing me with all these kitty pics!!
Keep posting them tho! Love em... glad you're having a good time at the Kitten Inn. GG
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Had another Dr's appt today, he says that this miserable cold/flu thing that I have is getting a bit better & he said I didn't have to get another bottle of the expensive cough med.
But we finally got a chance to look at my file today & discovered that my left arm that I have been complaining about pain in for the last year, actually has a bone met in it. Well duh! No wonder it hurts!
He thinks I am well on my way to stable, with my back & rib (& arm) not hurting much anymore & my TM's down from 59 to 11.8. DH & I are taking that news & running with it.
Hope everyone is doing well. Cheers, Dee
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Whoo hoo, Dee! What great TM's!!! Sorry you have a sore met in your arm and still have that stinking cold/flu thing. Hope that all gets better soon. But here's to stable!
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Terre, loving the kitten pics. Went to a kitty shelter myself today and every time we step foot in there my daughter wants to take one home. They're irresistible!
Dee, sorry about the met in your left arm, that's where mine is, the one I kept complaining about pain in and my onc neglected to tell me about. It's feeling much better since rads. Yay for low tumor markers and stable, so happy for you. Hope that stinking cold leaves you soon.
Hugs to all, Annie
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Annie, so what is it about not telling us there's a met there?? I've been complaining about it for so long, they even xray'd it. This was my PCP who read the bone scan & went back thru all of them over the last year, there it was, in every report.
Thanks Terre, hope you're not sweating about the move too much. It sucks, but I like to think that these things happen for a reason which we can't understand at the time, but in hindsight make sense. I'm crossing my fingers for you that things work out for the best.
G'nite all, Cheers, Dee
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Hey Dee, I don't know why they didn't tell either of us. Did they just miss it in the report? I kept telling my onc my arm really hurts, I can't even wipe my kitchen counters or lift a plate to put it away. He looks at me and said your pain makes no sense to where your mets are. So I go to my family doctor and tell her and she looks at me like I have 2 heads and says of course you're in pain, there's a met there. Confront my onc who totally dismisses his error, sends me for an x-ray and then is like omg you have a rather large hole in your humerus 😯. Need to send you to an orthopedic surgeon, get your arm up in a sling and all this panic. My God I wanted to slap him! I could have hurt myself, continuing to use it thinking there was nothing wrong that maybe it was pain from my MS. Well thankfully the pain is improving and I'm having it x-rayed again at the end of March and praying the bone is healing like the rest of my bones are ☺. I hope your pain improves as well Dee!
Hugs, Annie
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