Bone Mets Thread
Comments
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Ditto. Great news on stable, Deanna! Hang in there, Patty!
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MusicLover. Jump in anytime. Some great ladies here. You r always welcome
Thanks ladies for the support !
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Ditto what Patty said to MusicLover and Heidihill! I love seeing you both here.
Also, Patty, just a quick response to your question about cucumin. In view of what you've been through with tummy issues, I wouldn't even think about trying curcumin until you've been without tummy issues for several weeks, as it can sometimes be rough on the stomach. I've tried several brands and strongly prefer Life Extension's Advanced BioCurumin, which I take at bedtime. For the most part, I am pretty negative about many of the so called "drugstore brands," including Wal-Mart. Higher quality, more natural brands can usually be found on-line at discount prices. JMO from being very into nutrition and using many brands over the past 30 years. Deanna
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Hi all,
Patty - hooray @ going home. You have been through so much and I do hope they've figured out the problem(s) and you are truly on the mend.
Heidihill and MusicLover - Great to "see" you again!
Carpe Diem has lots more pics that I'm sure she'll post upon her return. I can't tell you how great it was to meet such lovely people.
Happy Easter/Passover to everyone! Caryn, - that sounds like a wonderful dinner! We're packing, shifting boxes, etc. But there's a craft/farmers market down by the new house, and we may to to it for a bit. And if the weather holds, there's a night glow at the balloon festival tonight.
Here's another pic of Ritz being really silly with a crazy toy. Not quite the Easter Bunny, but cute nonetheless.
Hugs to all,
Terre
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Love all the kitty pics! I could never volunteer at a shelter, I would want to bring them all home & I've decided that I can't have another pet, I can't take the pain when they are gone....
Wishing everyone a Happy Easter! It's typical spring weather here out on the west coast, raining then sunny, next minute hail, then sunny! Cheers, Dee
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dlb - thanks for the curing advice. ESP the part if not taking it right now. That's why I love getting everyone's personal experiences. Not what a pamphlet had to say about a few people.
Gone and feeling stronger than in a long time. Course lazy around but much better.
More pic of the bco sisterreyup. Please. So very jealous.
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Hi all,
Just wanted to say hi and make sure you all I knew I was still alive. On a positive note, I had clear scans in February... I've been on a Herceptin "vacation:" since September... so I was especially nervous, but all seems to be stable. I've been skiing and running with no bone/back pain.
I'm going to resume Herceptin in May... my oncologist thought that I could continue my hiatus as long as I didn't have any progression, but I just felt it might be better to start again. On a note so good note, I've been home in California with my dad, who is (I think, although I am still trying to hold out hope) dying of skin cancer. I can't remember if I have already shared this... the last month has been a big blur. Anyway, watching him decline is heartbreaking and for the second time in my life (the first when I was diagnosed Stage IV) I feel like I am on a nightmare train that I can't get off.
Love the pictures and catching up on all of you. Happy Easter.... love and hugs.
XOXO
Andrea
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Sending you hugs and good thoughts, Andrea. I am so sorry to hear about your dad. Went through that with my mom and it was horrific. And a blur. So glad you're stable though!
Terre
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Andrea, glad to hear about you being stable, but sad about your Dad....very difficult time for you. Thanks for checking in & letting us know you're ok. We tend to lose track of people here because the thread moves so fast. Only good thoughts for both of you, Dee
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Hi everyone,
I am new to posting to the group although I've read the whole thing. I was diagnosed with bone mets late last fall. I am now in my 10th year of fighting this disease. It took me a few months to get through the "OMG FREAKED OUT" stage and get my feet planted better on the earth.
I'm very tired of this battle.
I'm sorry that I had to join you but it appears like I'm joining a very good group of women.
JJ
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Hi Jean! Sorry you're here, but happy you're here! This is a wonderful group of women and they've certainly helped me get through this crap disease. And it does take a while to get past the freaked out stage. I still go there once in a while just to make sure it's still there.
But it does get easier with time. And you have had a rough road - four times! Sending you hugs and good energy!
Terre
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Welcome, Jean! I'm so sorry you're joining us, but you've stepped into a group of very caring and supportive women, which I think makes a huge difference in dealing with this crappy dx. Your history really does look long and dragged out. No wonder you're tired of dealing with bc! Aside from the emotional aspect, how are you feeling/doing now?
Andrea, I'm so sorry about your Dad. You and he will be in my prayers. (((Hugs))) to everyone, along with Happy Easter & Happy Passover wishes & blessings, Deanna
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Thanks, Terre, for the welcome. It's actually been FIVE times in the last decade (the original tumor and four recurrences). And now in my bones. I have my next PET scan in a couple of weeks and we'll see if the switch to Aromasin has made any difference.
Ugh.
Hope everyone is having the best Easter they can...
JJ
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Deanna, thanks for the welcome - you posted while I was writing my reply.
I spent last weekend in the hospital - I have been telling my friends I won the Triple Crown because I have Pneumonia, Radiation Pneumonitis, and a Pulmonary Embolism. So I feel pretty rotten at the moment, almost any sustained movement robs me of all oxygen, and I'm terribly weak, but I have hopes that it will get much better before my long-awaited cruise to Alaska in 36 days (not that I'm counting). I think my entire carry-on piece of luggage will be meds, LOL - they might think I'm starting my own pharmacy when I go through customs in Toronto!
JJ
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Oh my, no wonder you're feeling down! Hope they have you on a good path now, and that you'll be breathing much better and feeling much stronger by the time your cruise sails. Clearly you haven't lost your sense of humor, which is good!
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Jean - And I was whining about moving. Sending good thoughts to you for your recovery in time for your cruise!
Hugs,
Terre
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Andrea, sorry about your Dad
. I know the pain of watching a parent's health decline. I lost my dad 6 years ago and my mom 3 years ago. Today would have been her birthday. I took care of both of them til they passed and I know the heartbreak you are feeling. I'm happy to hear about your clear scans. My thoughts and prayers are with you.Patty, so happy you're out of that hospital, hoping you regain strength quickly. Take all the lazing around time you need.
Jean, welcome but sorry you have reason to be here. Wow you're having many challenges but still maintaining a great sense of humor. Praying things get under control quickly so you can enjoy your Alaskan cruise.
Terre, good luck with the move and whine away if you need to!
Hugs to all, Annie
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Hi Annie!
Trust me, I am whiny. Not only is moving crappy enough under any circumstances, but an entire new dimension of challenge has now been added to the mix. Our plan for today: Load up the car bright and early, drive a couple of loads of stuff over to the new place, come home and pack, then do a couple more trips tonight. There's only one north/south road out of Wellington and today is a public holiday (Easter Monday). The traffic is horrific. What usually is a 30 minute drives turns into 2 to 3 hours of mostly sitting. If you're not on the road before 10, you're basically sitting in traffic.
The repair man who was theoretically going to work on the roof from the back of the house and not be in the way, and who was theoretically going to show up at 7:30, showed up at 9. With a trailer load of lumber. And a helper. So much for getting on the road early. But we still figured we could do at least one. Not meant to be! He announces that he's replacing the front entry and stairs and all the other entry ways as well! Now, by replacing, he means: rip them all out so we're trapped in the house, then replace them, starting with the one that has the least access to the driveway and car for us.
He then goes on to announce that he's got roofers and plasters/painters coming over on Wednesday, when we are meant to be cleaning. My cleaning crew will "be in their way". So would we please postpone them until Saturday? Because the plaster guy will be back on Friday to sand everything. I told him "no"; and he just smiled and said, "we have the owner's permission for access."
To say I am furious, frustrated and totally over it would be a bit of an understatement. I am not a happy chappy as they say here. The only thing he has agreed to is to not be here tomorrow when our movers are here. This is costing me time, money, and my sunny disposition.
Ok..done ranting. Off to finish packing the kitchen.
And yes, compared to what Jean, Patty, and others are going through, this is nothing. But I really needed to rant a bit.
Hugs to all,
Terre
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Terre, omg that seriously sounds stressful! Honestly I don't even know how you're doing it cuz the thought of moving sends me into a tizzy. I'm praying for smooth sailing here on out for you guys. And of course I bet you guys didn't know all this work was going to be going on during your move? If you weren't so far away I'd come help you! Best of luck to you and dh and hoping you'll be settled nicely into your new place before you know it. Sending you hugs, Annie
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Thanks, Annie. And no, they basically lied about what they were going to do and said they were going to do major works next week after we're out of the house and have everything signed off by the rental agent. We gave them access today and Wed so they could work on the roof, out of our way, and not in the house. Oh well!
As I said, compared to what other people are going through, this is nothing, and it will pass quickly. Just needed to have a bit of a meltdown.
The problem with living in NZ, is if you have a meltdown, pretty much everyone just stares at you, shrugs and walks off. I think had this guy just said, "I'm sorry we're inconveniencing you" or similar, I wouldn't be so upset. But he just looked at me with a blank stare and said "Well, your problems have nothing to do with me; we're just following orders from the owner." And he's in his 60s! When I asked him when we were supposed to clean, mop, dust, do carpets, etc., he said, "well, you'll just have to ask your boss for time off, I guess. Anyway, sorry to rather lose the plot (and perspective) here. I am so grateful that I am healthy enough to move house, am not in the hospital, am not doing chemo, am having minimal side effects, and on and on. So I know I don't have it all that bad. I'm just grumpy!
Hugs to all,
Terre
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Hi all,Came back from 2 weeks in Cuba today and just went through all the pages I missed. Wow, so much happened. Could not access internet while in Cuba.
I missed you all. Welcome to the newbies and congrats to those who had good results and healing vibes to those facing challenges - especially to you Patty!
My sister and I had a really nice time. It was so nice to feel the heat, the sun and bathe in the ocean/pool This was my first trip since dx. Gosh, I realize how I have changed - my mind wanted to do things but my body doesn't follow like it used to. I thought the heat would help with the pain but that didn't happen. In fact it got worse, so much so that I ended up in a Medical Clinic in Varadero. Doc did xrays of hip, femur and knee. Ortho material is in place and of course they had nothing to compare to. Took a lot of pain meds and walked with a cane the whole time. I had a bad dizzy spell, for a second I thought I was gonna fall. I've had 2 dizzy spells in the past and I think it may be an SE of Femara. I was in bed by 8:00 p.m. every day. We stayed in the resort the whole 2 weeks except for a visist of Varadero city. The pain was no fun and I didn't feel like going on excursions. My sister didn't mind - she wanted to rest (she works full time and has a lot of accumulated fatigue and stress). But it did me a world of good and was nice to get away in such a beautiful place. Will be sending pics as soon as my sister sends them to me.
Sending hugs to all of you - Linda
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No worries Terre, sounds like they were a little insensitive to your situation. Not always that easy to ask for time off either. Like you said it will all sort itself out, just frustrating in the meantime. I'd be grumpy too. Hugs, Annie
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Welcome back, Linda! Can't wait to see pictures. So glad you had a good time!
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Linda, welcome back! We missed you and so sorry the heat and sun didn't help your pain. I really thought it would
. Still nice that you had that time away with your sister. I'm planning a trip to Vancouver Island to visit a friend, and I'm even a little nervous and I'll still be in Canada. Glad you had your pain checked out while you were there. Praying you feel better real soon and can't wait to see some pics.Hugs to all, Annie
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Welcome home, Linda. Sorry the heat didn't help, but at least you got away for a while.
Terre, whine away! Moving is stressful enough without those kinds of intrusions. Sounds like you need to increase your wine rations!
Have a good night everyone.
Sharon
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Sharon - love your suggestion. I have a glass of wine planned for dinner tonight, so that should stop me from whining so much!
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Jean, the Alaska cruise is amazing! It was my first cruise, and the best. Mine was with Norwegian. Keep your eye on the prize.
I am allowing myself a number of short-term prizes. My trip is about 6 weeks away. I'm determined to be able to walk around the streets of Austria and Passau and Budapest. I've bought tickets to Cirque du Soleil and am watching for some concerts that interest me. My idea is to do things right working toward each goal. All the Easter candy I ate yesterday (and just now at 3 am) is exactly the wrong thing, so the rest gets wrapped up and stored away. I don't want to keep feeding these tumors.
I'm glad you joined us, and I look forward to learning more about you.
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Welcome back from Cuba, Linda. I'm so sorry your pain flared while you were there. That's just not fair. I hope it was as beautiful as you expected, though. What did you think of their health care system?
Terre, if they are going to be sanding, they will be sending wood and plaster dust all through the house. That makes cleanup THEIR responsibility. Seriously. Any time I had work done at my house, they cleaned up any mess they made. So, I think you should cross those chores right off your list.
Share a picture or two of the new house. Please.
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Welcome back Linda! I am very glad you had a nice vaca. I must say it was very brave of you to seek medical advice in a foreign land. My DH has been trying to get me to go to Europe. I have been resisting, think I will stay in the US and Canada. I sure understand your statement of your mind wanting to do things and your body not cooperating.
Just a quick update on Ibrance. The first cycle was pretty easy until day 16 when my counts went too low and my MO made me stop, but in that short time my TMs went down. Took 9 days for counts to come back up, and now I am on cycle 2. While my counts were up, ran not walked for a mani/pedi....AHHH Heaven! So far SEs are very manageable except for the counts. All our MOs are feeling their way with this drug.
Well, have a nice day all! BTW Dune, our trip in August is to Maryland to see our DIL and son who are having my first grand child. They live in Germantown. Is that anywhere near you? We could meet for coffee. Am going to try to add a picture to my profile if I can figure out how. I agree it's nice to put a face with the words.
Myra.
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good morning ladies. I am waking up feeling so very much better. !! Woohoo. Still exhausted and back hurts but the rest of me is free. Yea.
Jean - welcome. You have been on a rough road indeed. I hope you find the support here you need. So excited for you for your Alaska cruise. Get well soon
Andrea - sorry about your dad
Annie - hugs
Terri - rant on get it off your back. We can sympathize
Linda - welcome back. Can't wait to see Cuba pics. Sounds like you haas a wonderful time with your sister. Rest up
Dune - see you r still rocking the good attitude. Keep it up. Sure is encouraging
Dlb - hugs
Hugs to all I missed. Hope everyone's off to a pain free day.
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