Bone Mets Thread
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Lynne - so glad to hear you are home at last! Sleeping in your own bed is the best! (No advice on keeping DH under control...I've never mastered a successful technique when it comes to getting husbands to comply :-/.)
Chelle - Thanks for the photos! In Illinois I need to get fingerprinted in order to visit the dispensary...so I haven't sent in the application yet. They do give a steep discount on the "membership" if I can show my disability approval letter. Maybe that will help in NY as well.
So sorry to hear about Leah and the other recent losses. Thankful that I knew them, even if it was for a short time. Their counsel has made a difference to those on the Board.
Patty - Congratulations on 2 1/2 years! That is a big milestone! I really appreciated your comments, too. Every anniversary, birthday or event means much more than it used to. Being "in the moment" when we have special times together has become my drug of choice for feeling better. Work made me put the important people to the side for too many years, so, while cancer stinks, if being disabled means I have more time with loved ones, I'm okay with it. We had the grandkids last weekend and I was taking Ibrance and Letrosole with popcorn while watching Alvin and the Chipmunks...too busy to fret about my health for a few days.
Due to some increased pain, my onc ordered a bone scan for Monday. He called me with the news that night that after three months on Letrosole and 2 months on Ibrance the mets have been reduced. When I told my kids and grandkids, there were high fives, thumbs up and toasts all around. It was the first good news we can received since November when I got the dx.
I had told him you all have said the pain was due to healing ( or cranky mets), but I think now he may be more of a believer. Today it's time to start back on my project list and stick around long enough to complete it ...and try my best to work through pain. Feeling like Dorie today..."Just keep swimming."
You guys are the best.
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iwrite. Great news ! Tx is working !!! Yea !! And you had your family there to celebrate with you - awesome ! Just keep swimming
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Hi,
Lynne, I'm glad your husband is home, now to work on regaining strength!
Wendy and Chelle, thanks for posting photos, I wonder if I can purchase those on the internet.
So I got the printout of my CAT Scan results. I wonder if I can upload it? I just want to let you know I had a nodule in my lung that went from 4 to 7 mm since June and I now have a "6 mm hypodensity and 8 mm hypodensity in the right lobe of the liver which were not seen with certainty on prior noncontrast examination" What does this mean? My onc did not explain it well to me, basically saying time would tell but it could be anything and may not be cancer. Which I hope of course.
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Hi all.....
I am so far behind on this thread, so please don't feel dissed if I miss out saying something to you...
Jazzy -you have been through the mill! Hope things just get better from here!
Patty - loved your post about being positive. Well said! And yes, growing up in South Dakota and seeing 'snow days' with 1/2" of snow in Vegas was a revelation.
Iwrite - Hooray! Glad tx is working. It was my orthopedic surgeon who told me I had growing pains. MO agreed as he's seen it with others.
Lynne - Hooray! Glad hubby is home.
Lindalou - very cool @ trial. Will look forward to hearing more about it and how it goes.
Chelle and Wendy - so nice of you to post pictures. There's a move on here in NZ to try to get it legalised, but the health minister is a wanker.
That's as much as my brain could hold this morning....hugs and love to you all.
Terre
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Also, I keep having diarrhea. This is very unusual for me, as I take narcotics and always have the opposite problem. I never really had diarrhea even before breast cancer either. I just feel uneasy w this. Could it be the Ibrance? Could it be my liver? A virus?
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Good morning all!
Just on my way to onc appt. good thoughts please for no brain mets. These are pics from our B&B room in Victoria. I'll be back later to update. Cheers de
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Good morning
ChelleG & Wendy - thank you for the pics of the products you use. It gives me an idea of what I need to look for. Chelle, what is the product that says "cherry almond" on the label? Looks kind of like granola.
I am headed to the MO's office today to have bloodwork done to see if my wbc's have rebounded enough for me to start the next round of the Ibrance on Friday.
Yesterday I actually got back to my sewing machine for the first time in a very long time. I just couldn't seem to motivate myself to sew, but yesterday I started & finished my puppy to be's blanket. Now I just need to get him.
Hope everyone has a great day!
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Dee - the pictures are stunning. I hope hope hope you don't have brain mets.
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hi everyone.
Sorry to read about Leah. It's really been a tough week or so. My thought are with u that were close to her.
Patty. U r in a really good head space. I'm so glad. It makes me happy so see I feeling so positive. U went through a really rough patch. It's good to see u make it through.
Momma. I'm triple positive. I will join ur thread. I think it's a really good idea. I tried to post in the other thread and well, meh.
Chelle and Wendy. I'm jealous. I live in Texas so I don't know if we will ever get MM. Thanks for all ur insight.
Cristina. Hi I had nodules on my liver and lungs like u. Couldn't say what they were but they went away.
Nikki. No one knows how long we have. It just depends on how u respond to treatment. My MO said if u respond well u live longer. No crystal ball. However I've read some research articles that indicate de novo tends to respond better than early stage.
Lynne, I'm glad ur husband is home. Home is the best place to be. Prayers for him and u.
Annie, Dee, Deanna,Linda E Caryn iwrite, and Terre. Hi. Hope u r having a great day today. Sorry if I missed anyone.
I got all my scan results today. My breast lump shrunk 20% for a total of 80% and my lymph node shrunk 39% for a total of 80%. My pelvic mets are stable, no progression no regression. I was given the option of 3 more Taxotere or moving on to tamoxifen. I chose Tamoxifen. I'm nervous about switching treatment. I know, I know off of Taxoterrible. Ha ha. It just seems like people blow through Tamoxifen. I am highly ER positive. My met is HER2 equivocal. What do u think? Any feedback is appreciated. Hugs to everyone. Dan
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Dee yes no brain mets.
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Kathryn, I am doing a happy dance for you.. slow moving happy dance but what great news!!!
Christina, i bet you picked up a bug. I had 2 solid weeks of sharp pains in my stomach and diarrhea and it turned out to be a virus I caught from my grandkids. We take a longer time to recover.
Dee- Praying for great news
Txmom- Great news!!
And no you cannot buy what Chelle has on line. Wish we could!!!
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Dee I'm crossing all my appendages that you are clear of brain mets. I can't imagine the stress all this must be adding. Beautiful spot your B&B the coast is great eh?
Christina I wouldn't purchase anything on line too risky. The quality most likely won't be where it should be. I agree with LoveMaltes you have probably managed to catch a bug always easy with little kids around. Try not to worry to much about everything I know it's hard but you will make yourself crazy.
Txmom Yahoo! That's great news keep up whatever you are doing. It's working🎉🎉🎉🎉🎉🎉
Terre I find there is such a movement going on to get this legalized everywhere. NZ is cool it won't be far blind maybe time for a new minister that isn't a wander ( love that word).
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txmom - awesome news. We are all certainly due some positive news. Thanks for sharing
Cristina - no advice here. Holding your hand. You sure have had some rough times lately. ((( hugs )))
Dee. - sending good thoughts for no brain mets. Those are some beautiful pics. Thanks for sharing.
Deanna. ((( hugs )))
Linda e hugs. Hope you are staying warm up there.
Txmom. - good news. !!!! No progression. I've no experience with taxotere or tamoxifen. Surely someone will be along soon with their experiences.
Sorry to all I missed. Hugs all around.
I've enjoyed snow day with ds1. Hoping they will be out the rest of the week. I have mo appt Friday and are going to discuss radiation for my right hip. Nervous. The first time I had radiation on breast area and it was a breeze was working then so I would schedule radiation for lunch time. Great way to get a short nap. However the second time I got radiation it was to 2 spots on back. Stomach was in the way so I had vomiting daily. Also throat was in the way so my throat was raw and bleeding. Sucked indeed. Trying to keep an open mind but also remembering I am in control of what tx I accept or refuse.
Love to hear all the positive things going on today
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Hooray txmom! So happy!
Christina - sending good thoughts. Hoping the spots aren't cancer...not all spots are. I have the big D; all week now. Feels like a bug; stomach cramps are horrible. And just want to sleep.
Dee - beautiful B&B. Everything crossed for no brain mets...none whatsoever!
Loves - sorry you were ill. It's not fun.
Patty - the hip may not be as bad as the tummy/spine, but can cause intestinal issues. With the problems you've had with your tummy, I'd ask lots of questions before doing radiation. I only had one treatment to my hip and it caused no problems. The spine (at my waist) sure did cause tummy issues, though!
Jazzy, Wendy, Annie x 2, Deanna, Chelle, Kathryn, etc...wishing everyone a great day!
Terre
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Dee: praying for you.
Txmom: I had my last Taxotere (of 6) on 12/3 and started Tamoxifen about 5 weeks ago. I have had one H&P infusion on its own and have my second tomorrow. I told my MO, who I fully trust, that it scares me to feel like we aren't being as aggressive. She said "I can't keep poisoning you when you're doing so well!" My tumor marker (27-29) is 39 and my scans are very good. She said we can always go back to Taxotere, but wants to see my response without it. I am stiff, but otherwise starting to feel more normal.
I agree that a triple positive Stage IV thread would be useful.
If you have the links to any of the Stage IV de novo outcome research you referenced, can you please message me?
Thinking of all of you all the time.
Rachel
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Kathryn and txmom - Woohoo on good results! It calls for celebration.
Cristina - sorry I don't have answers re the results of CT scan. Nodules are common though and very often B9.
Patty - good luck with rads on hip if you go ahead with it. You'll probably find it much easier than on your back. Weather is milder since yesterday and sunny! My good news today is TMs stable and absolutely no pain for 2 days in a row...total bliss.
Dee - anxiously waiting to hear from you.
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Linda great on TM stable and no pain!
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lindaE. - awesome. ! Tms stable and NO pain. Doing my happy dance for you
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Lindalou- your study sound like the Impact Assay where they check your genomes for abnormalities so treatment is customized for each individual patient. I think each cancer center calls it something different
Kathryn- great news. Happy dance time!!!
Dee. Should pretty pictures! So calming!! Fingers crossed for no brain mets
Jazzy glad you got back to your seeing machine!
Linda good news about stable TMs.
Tx mom the word reduction is music to our ears! Happy dance time!
Wishing all a good evening
Babs
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Linda I'm so thrilled for you that's great news. See now things are starting to go your way. Happy happy happy🎉😊🎉
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hi all!
It's been a very long day of brain scans and X-rays. I do have one tumour on my skull which she feels could be the reason for the headaches and weird smells. But both she and the radiologist feel that it's stable so we're going to continue on anastrozole and get my hips radiated.
Anyone who says that our Canadian health care system is slow hasn't had my onc, because I had a brain scan within ½ hour.
I'm very stressed after today, so I'm going to go out and share a bottle of wine & a fabulous curry dinner with my wonderfully supportive and patient husband. I'll share pics tomorrow.
Take care all of you and thank you from the bottom of my heart for all your kind thoughts.
Cheers dee
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wendy. - did you change your avitar pic ? Seems like you were in the back not front. What a beautiful dd you have. Looks like her mom.
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Dee - Great news! I'm so happy for you. Now go and enjoy that bottle of wine and celebrate with DH! Big hugs to you.
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LindaE - whoo hoo! Hooray for good news.
Dee - sorry you have a skull met; that's got to be scary. But I'm glad they're happy to just watch it. Hoping the hip radiation brings you huge relief. Sending hugs and remember - life is too short to drink bad wine, so make it a good one!
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dee. Hope you are enjoying good food, good wine and great spouse.
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Dee-good news-drink one for me! And I meant such beautiful pictures above
My post above was from my i phone that wrongly corrected what I wrote-sorry if some of it doesn't make sense!
Babs
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Patty lol I did change it awhile a go and my daughter decided to jump into the picture. I can't tell you how much I love that kid well all three of my kids. I am so thankful for them every single day. She is studying to become an evolutionary biologist. I'm sure glad she got my husbands brains. How are you feeling lately ?
Dee I'm sorry to hear you have a brain met but I love that it's stable and that your onc isn't too worried. Love the idea of going out and having a nice dinner with your hubby. Have a glass for me we can flip cancer the bird together.
Terre so how is the weather down there? I think of you sometimes during my wet treks through the city I forgot how much it pours in Vancouver.
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Wendy - we actually had no rain since about 7 this morning. It's been a wet year where I live, but drought conditions on the southern island so the farmers are praying for rain. We're hoping we don't grow mold overnight. We have mushrooms growing in our yard - spontaneously. But it's supposed to be nice this weekend. They had predicted it wouldn't be much of a summer, and they were right. But it still beats winter! Hang in there, spring is on the way!
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Hi all!
Just to be clear, I have an existing skull (bone) met, not a brain met which is stable could be what's causing headaches & phantom smells. We had a lovely dinner and I have finally calmed down. We left here & had night caps on the patio at our B&B, listening to the pitter patter of gently falling rain showers
I'm so tired, I'll get caught up on the thread tomorrow. Cheers, dee
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Hi Dee! That looks amazing! So glad you had a lovely dinner and such a beautiful setting. And that your existing skull met is stable. Sorry you have headaches and bizarre smells, but so happy no brain mets!
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