Bone Mets Thread
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So much for a nice weekend. I ended up in the ER and eventually admitted to our local hospital with kidney stones. The pain was at least as bad ab labor but with no breaks. I couldn't get into a comfortable position, i was in such pain I rated it 10 out of 10. However the CT scan couldn't find stone surmising I passed it/them already. I was loaded up on duladad which helped. They admitted me for the night and surprisingly I slept.
At my request I was approved to go home, however that pain in my right lower abdomen and around to my back is creeping in again. Not with the intensity of Friday but it's there. When I read about my symptoms, I see things like liver mets pop up besides kidney stones. My question is, wouldn't liver mets/lesions show up on a scan?
Has anyone else had kidneys stones that took a long time to resolve?
Thank you.
Amy
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Amy, My CT scans always comment on my liver and it say's it is unremarkable without any mass. I think it commented also that I had a little fatty liver too. I would think if there was something with your liver at CT scan would show that. With that being said, It also says I have stones in one of my kidneys. I have had the same calcifications in one of my kidneys since the first CT scan in Oct. and each time I get a scan it says it is the same. What about your gall bladder? Did they check that?
Hope you feel better.
Carol
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Amy- hoping you feel better and that this doesn't happen again to you.
I would call my MO and tell them what happened.
Babs
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Amy - OMG I'm sorry. I hope you're feeling better now. Did you have dye contrast with CT? I don't think liver mets could be missed especially with contrast. Do let your MO know.
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Amy, Are you feeling any better? I hate kidney stones! Have you been checked for UTI as well?
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Hi Suems. They mentioned I might lose some pubic hair, but that hasn't happened yet. Only 3 more treatments to go. I lost all of my hair, except for eyebrows and lashes, which thinned greatly during my chemo. Everything came back, but the body hair returned faster and thicker than the hair on my head!
Deb
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Hi Suems. They mentioned I might lose some pubic hair, but that hasn't happened yet. Only 3 more treatments to go. I lost all of my hair, except for eyebrows and lashes, which thinned greatly during my chemo. Everything came back, but the body hair returned faster and thicker than the hair on my head!
Deb
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Little update from Patty: She's trying to recoup from her 2 week hospital stay. Still very sore and tired. Told Patty her bco friends are sending love and hugs.
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Linda, Thank you for the update. I have been thinking about Patty a lot and was hoping that she was recovering at home.
Lynne
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Linda thanks for sharing your news with us about Patty. Has anyone heard from Myra? She was my first friend on the boards when I was was dignosed in October. I am always thinking of her and hoping she is doing well. If anyone has heard please let me know.
Thanks
Carol
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Hi ladies, the party for my daughter went very well, a LOT of girls there. It was a joint party for both Karina (my daughter) and her friend Riya. We had 28 skaters plus a few girls who didn't skate and younger siblings. It was busy but fun and she got a ton of presents we need to sort through.
Patty, sorry to hear you are still sick but at least home from the hospital.
Amy- that's awful! Sorry about the pain and ER trip. I've heard different things about liver mets- painful for some, not painful for others, plus I know the gallbladder can get very painful and need to come out so keep that in mind as well. I hope the pain resolves and you get answers. ((Hugs)).
I'm looking forward to the summer. I wish this weather would hurry up and act more spring-like but yesterday was awful, cloudy, rainy, cold, and today is warmer but still not nice. I hope Mother's Day will end up nice. I just want a picnic in the park, no restaurants. I will pick the park
I got my spit kit too, brought it to work. I will work on spitting in a little bit. Looks like I need a lot!
Here's a recent photo of my daughter w her foster kitten and a book:
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cjanet your daughter is beautiful I love her hair! And the kittie is cute too!
Aurora
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Christine, What a beautiful little daughter you have! I can tell she loves her little kitty!
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Cristina, Your daughter is beautiful. The party sounds like it was a lot of fun, but you must have been exhausted. I still haven't spit into my kit. I plan to do that tonight. I want to make sure I have a lemon first.
Amy, I am sorry for your recent issues with kidney stones. Are you seeing a urologist to try to get to the bottom of things? I do hope that you are feeling better and that you don't have mets in your liver. I hope whatever is causing the issues is easily and quickly remedied.
Carol, I am worried about Myra, too. I know she was having a difficult time, but I was hoping she was getting better and would be able to send us an update.
Bosco, How are you doing? I hope you are feeling better.
I have to go for my Zometa infusion this afternoon. This will be my second time at the new-to-me center. Last month I liked the phlebotomist and of course my onc, but I didn't think the infusion experience was as warm and comfortable as my old center. We'll see what happen so today. Maybe I was spoiled in the past. Tomorrow I see the urologist again. Ugh.
The weather is cool and rainy here today, and it sounds like it won't improve much for the next several days. I always feel better when I see the sun.
Lynne
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Hello ladies & DH's, I have taken a break from discussion boards. Has any one else had shingles? I started Afinitor /aromison combo in Jan & have had terrible time trying to make this work. I know stress increases one's chance of Shingles outbreak. That said , on April 2nd my son competed for state wrestling title for 152lbs. I stayed away due to immune system compromised. When I was told he was in final I about had a panic attack, my baby, last one home, was going for 1st place. Good stress is as bad as bad stress sometimes. Long story short I went to venue to get to sit ring side to watch my son win his 2nd state title. A little over a week later I had intense itching on my left foot & shooting pain through foot, worse I had ever had. I also noticed tingling around my mouth. The next day my foot had red dots all over it & I noticed a patch on my forehead coming out of scalp & I started having head pain. I told MO about outbreak & they put me on Valacyclovir . Rash decreased pretty quick as did pain, but skull/head pain remain & radiated through right eye. A week & half ago I had intense itching on my back & next day had another patch of red on my upper back & still w/terrible h/a. Told dr, who ordered another round of Valacyclovir. Last Wednesday night I had the most pain I have ever had. Dilaudid wasn't doing anything to help, I was seriously considering going to ER, which I hate above all things. My MO convinced me to be admitted for tests & IV antibiotics, fluids, figure out what was going on. I also was running low grade temp since Mon. I did not want to be admitted, but now realize it was right thing to do. Severe h/a continued inspite of IV dilaudid. I was also started on IV acyclovir. Late Saturday I felt like I finally took turn for better, came home yesterday. Slept best I have slept in a while last night. After experiencing pain like I never had had before, It had me thinking about when end is imminent, I do not want to experience that pain ever again. My MO thinks A/a combo not working as I have increase in skull mets she is recommending I see RO this week. Seeing him tomorrow. I feel sad & am trying not to stress over this too much, do not want another out break of shingles. Oh & my 76y/o mom has had terrible outbreak of shingles too. She says her pain is unlike she ever had also. & she had shingles vaccine.
Sorry to have written book here. I have had bone mets for over 3yrs now. PET scan is most definitive for picking up mets to bone. I complained of hip pain for 6 months, bone scan said nothing there. I demanded PET & finally got it. RO called immediately said my hip was at risk for fx just walking around, started radiation 2 days later. Went to MD Anderson after that. They offer clinical trial with A/A combo & metformin , I went home & MO at home said he did not reccomend A/A, it would ruin quality of life & not help prolong it. I changed oncologist & here I am facing A/a combo again & last oncologist's words are ringing true.
As to DH writing for wife, Iberance knocked my white count out ANC less than 1000, meant stopping drug, getting Neupogen injection & dose change. I lasted for a yr & 1/2 in clinical trial. Major life stress brought on more bone mets, MO glad it has remained in bones.
Sorry so long, hope Patty u r doing better. Sue
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Sue, Amy and Patty sending hugs and wishes for hospitals and ERs stay in your rear view for awhile. Amy I hate kidney stones. I can not imagine passing them and not being aware. I hope your MO has a good answer to your pain.
Christine sounds like a fantastic birthday party. Your daughter looks so happy with her book and kitten.
Peace to all
Mary
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Good Afternoon.
I take comfort in all the good wishes from you ladies, my virtual friends on BCO. I certainly feel better, but not 100%. If this was/is a kidney stone, I hope to never repeat that again. At least with labor, there's a break, even if it's short...not so with kidney stones. How dreadful.
Patty, I'm happy to hear you're home at last. Let's keep it that way, shall we? ,
Sue, talk about dreadful, I've heard shingles can be worse than stones. Oh my gosh, I hope you're better.
Going to take a nap, I feel wiped, but thanks again for your thoughts and kind words. They mean the world to me.
Amy
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Carol, I pm'd Myra a week ago and she did not reply. I hope she is okay. Linda, thank you for Patty's update.
Amy, glad you are better....do you have Xgeva shots? I had a bad..... intensely painful musculoskeletal reaction to it that we all thought was a kidney stone at first. Started in my lower back and right side.
Sue, What an ordeal you have been through. I had singles from the shot but they were very mild. Hope you are on the road to recovery.
Christina, beautiful photo of your daughter and cat.
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Hi All,
Just wishing those who are dealing with kidney stones, shingles or other pain some relief as soon as possible.
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Patty so happy you're out of the hospital. Hoping you continue to feel better
Christina your dtr is beautiful!!!!! Sounds like her party was a huge success!!!
Sue so sorry you got shingles. I hear it's pretty awful- very painful!
Linda thanks for the update on Patty
To everyone else. I wish you all an easy week
Babs
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Hello ladies on this forum. I was just diagnosed two months ago with bone mets. Four spots. two in spine and two in pelvic that measure no more than 2cm in size for one and the others are less than 1cm. I have been reading all your post the whole time and not writing myself about my cancer. I too have been searching for good stories for hope that I can live a long time to see my 8 year old daughter grow up. I was five years out from my breast cancer primary and was thinking I was going to be a survivor. My heart is total broken that I want be around to see my little girl get married and have children herself. How can I even possibly deal with this. I don't know how to even think these days. I am hoping I will be what I guess is the lucky ones who survive this for a long time. It's like who knows. Doctors don't nor we don't. I guess just God knows.
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Oh Robbin-M, our stories are so similar. I just found out on St. Patrick's day I am stage IV too and have a 9 y/o daughter. I cry daily when I think about possibly not being around for her. It's just heartbreaking. I haven't told her anything yet because she was 7 when I was diagnosed with my primary BC and took it so hard. I am completing radiation tomorrow for the lesion on my femur and am going to have the few spots on my spine radiated too. I'm on Ibrance, Letrazole and get Xgeva shots monthly. Good luck to you with your treatments and hopefully we'll be on these boards and around for our daughters for years to come!
Deb
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Congradulations on completing your rad treatments and hope you feel no pain. It's so hard to think about my litle girl and know that this disease could shorten my life with her. i am going to fight as hard as I can for as long as I can. We have to stay strong for our families. Thank you.
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My mother's first scan results since diagnosis was today. She's been on Femara for about 3 months and they said that the lump in her breast can hardly be seen, her lymph nodes that were infected were reduced and bones were stable. I'm so happy for her that she can now enjoy the next summer months. It feels like this is the first bit of good news we've had all year, most of my family are in tears. I know there's a long way to go but right now I'm just happy she can have a bit of a breather. They are going to keep her on Femara and see how things progress.
Good luck to everyone else!
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That is great news! I'm so happy for you, your mom and family! I hope you all have something fun planned to celebrate!
Suzy
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That is great news! I'm so happy for you, your mom and family! I hope you all have something fun planned to celebrate!
Suzy
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lostboyc,
Thanks grateful news about your mum and a relief for your family that treatment is working well for her.
Robbin and Deb I too was diagnosed around the same time as you. I have a 5 year old boy and I get very emotional if I think too far ahead. Its hard at the moment as we are starting. I've just read lots of positive stuff from the ladies here. I've a met in my pelvis and femur and small spot showed up on last scan on sternum and one on spine...spread before I even get started with treatment. Got pelvis and femur radiated with no major side effects. Am on Arimidex and getting my first zoledex tomorrow to surpress my ovaries. Just wondering do you feel the effects immediately?
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lostboyc,
Thanks great news about your mum and a relief for your family that treatment is working well for her.
Robbin and Deb
I too was diagnosed around the same time as you. I have a 5 year old boy and I get very emotional if I think too far ahead. Its hard at the moment as we are starting. I've just read lots of positive stuff from the ladies here. I've a met in my pelvis and femur and small spot showed up on last scan on sternum and one on spine...spread before I even get started with treatment. Got pelvis and femur radiated with no major side effects. Am on Arimidex and getting my first zoledex tomorrow to surpress my ovaries. Just wondering do you feel the effects immediately? Best of luck ladies with ongoing treatments x
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I finally had my appointment with my MO and he said we're going to swing for the fences and proceed with aggressive treatment with a curative intent (which I think he means remission or NED but I'll clarify when I go back in a couple of weeks), pending my bone scan next week. The plan is to finish rads on my hip and then do the elbow; breast surgery on May 25, then rads to the breast, then Tamoxifan. I'm also going to start Xgeva after my dental appointment in a coupe of weeks. I was a little in shock because it's what I wanted to hear but not what I anticipated hearing
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Welcome new friends. I'm pretty new here too and have found this group so helpful, supportive and inspiring in the way they are living their lives. I too have a young child (he turns 7 next month) and am also recently divorced. If I can help at all in how to talk to young kids, let me know. I got a lot of advice on what to say and a few book recommendations
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