Bone Mets Thread
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Wonderful Bans! Such great news!
Hugs
Claudia
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Wonderful news, Babs! So very happy for you!!!!!!
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Babs, that is awesome news! I am so happy for you! Maybe the tm's increasing was a sign of cancer dying off. Regardless, I'm ecstatic for your good scan results and that you'll be able to proceed with the study.
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OMG Babs - What a wonderful shock! Congrats!
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Babs wowowoow happy dance!!! That is just terrific indeed! How weird is that?? Enjoy,enjoy. Yes, there is something about getting into the trial, I used to be so scared of trials, and if you would have told me Phase I, I would have said no way, but like e/t else in life, we learn, and unfortunately we all do things we never thought we would. I am thankful for her having this opportunity, and there is a lot more out there. And you are right, Halaven will be there if you need there, most of these trial will only take able bodies etc…so that's definitely a call to make.
Yes, it all makes sense about them keeping her still on the trial. They are not doing us favors, only if it's a possibility
Lindalou sleep is much welcome. Let's just say I was taking bigger doses these days. The stress was just unbelievable. I was shaking.Never liked scans on the weekend, I think it's a much harder wait. Scan showed some pleural stuff that got me worried, and some other things, but I really liked the way this Onco was optimistic, I told her so.
Very moving I think for all of us. He gets it. Yes, the study could be very interesting. We cannot wrap our head around my daughter, her age, and the aggressiveness of this beast, w/t any knowing factor, family, thin, healthy, never smoked, drank, babies early, nada. No words.
Wiegp22 that maybe, but markers are not a for sure thing, scans see what's going on inside your body. And the reason to have scans at least time to time is to get these buggers before they get a lead. Just saying. The echo is to keep an eye that treatment is not affecting your heart. To be honest you wanna get it before it really starts to hurt you so maybe you should have a plan. Are you triple positive? With liver mets? And no plan for scan?
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Wendy yes, thanks. You guys know, honestly there is no way I could go through all this without having all of you around me. Like all of us, we feel the love, the support and the true caring from everyone here, it's amazing. I push myself because of you guys.
And thanks everyone for the accolades but really kudos to you! And she is so awesome one cannot even think of a different option. You kidding she has these girls worshiping her, and her sibs, too many ppl depending on her, like I read here before, no one can take your places.
Curi-ous that's a smart take on it. I was even afraid they find out her HER2 changed status, but I have to let them know. I thought they would get discouraged. They were excited when they knew she was HER2+++. Interesting about the probiotic, I will talk to Dani about it, thanks a lot. Yes, new Onco is young and optimistic. But, the last Onco is moving to Sloan, and I don't know in the future how this works, Dani would stay with the current one, but the former did not give up on her so...yep, we'll deal with it, it's a better problem than not having anyone caring about you. Works for me!Annie hiya!! oh my nice to see u!
Deanna how are you??
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Momallthetime,
I am getting a scan at the end of August, I hope to know what's going on then, yes I am triple positive and after taxatere they did a scan and told me they couldn't see the tumor in my liver anymore plus I also have bone mets. Don't have a lot of money to travel so I go to Green Bay Oncology. I live in a small town in the up of Michigan, I had 6 rounds of taxatere and now get herceptin and perjeta and Zometa every 3 months. I asked for arimidex they gave me generic made me very sick, stopped it cause mo told me that it probably wouldn't help anyway since I was weak er.
Paula
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Babs you are living proof that things can get better. Paris here you come
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Yay Babs!
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Whoop, whoop, whoop, BABS!!! What's the trial again?! I can't keep up everybody's changing dance partners around here
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Hi all. I am back on the boards after 11 years. Just diagnosed with mets to spine, rib, femur and pelvis. I've had 2 falsodex and one Xgeva. This week I have both again. My MO is saying this is not so serious since a brain MRI was clear and spots are small . I am reading some of the previous posts to get an idea of what I can expect. Some pain with spine but managing with an Aleve. I have arthritis and a disc injury from a car accident. After falsodex that seems to get worse for the first few days. My question is are symptoms cumulative as time goes on? Xgeva made me nauseous or I think it was Xgeva. Thank you.
6 years on aromasin. AC. Tax/Herceptin radiation initially stage 3 with one positive node. No reconstruction. age 65+
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Babs, joining the happy dance party!
Mom, good update and encouraging that they are continuing the trial.
Marie, welcome! Sorry you've joined us but this is the most lovely, spunky and wise group. Many are living years with bone mets. Did your doc also talk with you about Ibrance and adding that to the faslodex at some point
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Maire, welcome. This is a wonderful, supportive and knowledgeable group. Do you know about taking Claritin 2 days before, day of, and 2 days after for less pain with Faslodex? Works for a lot of us. I use the generic.
Ronnie and Babs, great news! Your daughter in Israel must be beyond excite that you're coming!
Cure-ious, should we all be considering a probiotic?
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Babs, WOOHOO! The happy dance for you is getting bigger and bigger. I am thrilled for you WOOHOO WOOHOO WOOHOO!
Hugs from, Lynne
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Quick question about the Claritin thing - will any antihistamine work, or does it have to be Claritin? My grown kids (still living at home) have allergies, and I have 300-count bottles of Zyrtec, Allegra, Singulair, and Benadryl on hand. Just wondering if I really need to add Claritin to the shelf, LOL.
I started Femara two weeks ago. After my port removal next week (if one more medical person asks why my previous oncologist insisted I get it before doing the scan that showed bone mets, making the port unnecessary, I'm going to cry), I start Ibrance on Tuesday. Then two weeks later comes the Xgeva shot.
So glad to finally be DOING something!
Hope everyone has a wonderful day!!
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Ciaci, I wish that I could reply to that question. I did call the pharmacy which supplies the Ibrance, as suggested by all before taking any medications or supplements, to be sure that Claritin was approved for use while taking Ibrance, and it is. So, of course, is the generic, Loratadine. Good luck with your launch(es)!
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Nona - unless you have stellar vein's, I would keep port. Mine were shredded during a/c chemo. You will be getting blood draws, possibly fluid restoring IV, as it is easy to dehydrate on these mess. You also may need radiation to Mets for pain management, which can cause its own side effects like nausea, vomiting and diarrhea, which can cause you to need fluids. I am not trying to scare you, but I am 5 years with bone Mets and have really wished I still had port. Something to think about.
Claudia
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I'm still new but I am finding that a lot of threads have so many people that have so much information and knowledge I know I can learn some great things.
Congrats Babs, that's really great news!!!
I read early on the first page: I have to disagree that X-rays are a waste of time. My mets DID show up on X-ray in my femur head as a 50 cent piece size hollowed out gray spot circle while the healthy bone was dense and white. Same thing in my other met sites.
I will admit that I did not read all 600 pages though. I read first middle and last. And it's still a phenomenon.
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Maire - Joining my voice to welcome you to this thread. SEs vary from one person to the other. Personally, SEs tapered down with Xgeva for me. I still get the occasional mild nausea with it but doesn't last long. Flue like symptoms can be experienced the first few months. A lot of gals have zero SEs with it. Hard to answer your questions because while on Fas, I also had nausea.
Danielle - a warm welcome to you as well!
Illimae - your above congrats post is priceless!
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Linda, I might be having too much fun with the bald emoji, it looks just like me right now and they're just so amusing.
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Hey lllimae it really does look like you. Gowgeous. Don't loose that sense of humor, it's a big fear of mine.
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wonderful babs!!! Congrats!!!
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Bab,
Congratulations on the great scan results you deserve it!
Keeping everyone in my prayers.
Ronnie
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Ciaci, I take Benadryl before I get my Zometa infusion. A quick call to the head nurse at the infusion suite wouldn't hurt. One of them can tell you.
My first 2 bone infusions were a little rough, but now after my 6th, I think my body has gotten used to them. I still take a prophylactic dose of antihistamine to help the body tolerate it.
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Great news babs! Off to Paris and a new baby soon too. Awesome.
Welcome Marie!
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Thank you all for the congrats. Illimae lived your emoji.
Welcome Dani and Maire. You'll find everyone here truly amazing- their knowledge and support is priceless!!!!!
Babs
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Hi everyone. I haven't caught up on the boards, but I'm close. I feel so bad for those of my friends with setbacks and I'm glad that the treatment seems to be working.
I'm just checking in because it's been three years since my diagnosis. I've still had no progression. My doctors don't use any great terminology, like NED, but I figure I must be as there is nothing showing but the three healed lesions. (Edited to say two lesions...they never mention the rib any longer)
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What a fantastic report, Milaandra....keep it up!!
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Greetings Everyone,
I'm not angry being diagnosed a couple of weeks ago with spinal metastases in all three parts. I must say, it was a good run considering I was stage IIIC at the time of my original Dx in 2010. What I am surprised about is the dramatic decline of my health. I was in pretty good shape. I traveled and was was doing fine other than some back pain over the last couple of months. Now, I feel like my spine is about to collapse with a lot of weakness in my legs. I also have a shooting pain from the back of my neck to the top of my skull. Sometimes it feels like my head is about to explode. I can't even bend over without pain. I've been prescribed pain meds, with some relief. Don't like em. I am going to get a cane, I surely don't want to take a fall at this point. I'm going to look into the cannabis oils to rub on my spine. It can't hurt at this point. I will never give up the fight.
Blessing to All
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