Bone Mets Thread
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RGC~what a lovely name to see here. Enjoyed your trip as if I was with you and your lovely family. You must have one heck of an angel. I can't think of making a trip right now. You're amazing. May you have those memories forever. Loving the pic of your mom and sister and you. As well as your DHs photography. Bless your lovely sons and family. YOU!! Soldier on magnificent woman! Of coursethey invested in you. Anyone with eyes can see how special you and your family are! God bless you ! ~M~
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Raewyn, so good to see your post and know you had such a wonderful family vacation. Thanks so much for posting all the photos! You have a beautiful family, and that quilt -- WoW! It's absolutely beautiful and so special. And big congrats on the Master Guide achievement! Boy, you've had a very busy and full summer! Hugs, Deanna
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Wendy......"You are the Placebo"......I love the title!
We can also be our own enemies...the opposite of the placebo, or the "nocebo", feeding into the negativity of cancer and xascerbating a destructive, self-fulfilling prophesy of gloom and doom. I'm trying my hardest not to be an example of that behavior, but it's getting harder and harder. That's why I need you all to keep me in a positive, fighting frame of mind, and I thank you all for your love and support.
Let us know if that book is worth perusing, Wendy.
Hugs,
L
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lita57,
Pick one thing and do it everyday, I walk 1 mile everyday even when I don't feel good and always am better and have more energy afterwards. Stay positive always
Hugs to all Paula.
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Oh Raewyn what an incredable trip building memories with your beautiful family. Well done lovely lady. Xx
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Raewyn, love seeing your pictures! You had a beautiful trip and you are blessed with a beautiful family. The quilt is gorgeous, so much intricate work and reversible at that...wow!
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Raewyn - so happy to see your post! Thanks for sharing your trip with us - the pics are all beautiful and OMG the quilt is out of this world. Big hugs
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Raewyn, I am beyond thrilled to see your post and your photos! What a fabulous family trip, and they are all adorable and obviously very loving. And your mom's quilt is truly amazing! Welcome back to the string and welcome home!
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Raewyn, loved all of your pictures. So glad you got to make beautiful memories and felt so loved. Congrats on your Masters Guide for your Pathfinders Club!
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Raewyn loved the pics so nice to spend time with family eh? The quilt is a wonderful gift
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Raewyn , the pictures from your trip are wonderful. A lovely family experience. Paula thanks for the tip to pick one thing and do it every day. I was having a lot of back pain and spasms and feeling down. So today I took that walk to buy some fresh veggies at the farmers market. Not quite a mile. Maybe 1/2 mile. Then I took a long rest. It helped a lot. No more making lists for me.
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Raewyn. What a wonderful making great memories with your beautiful family!!!! Love the quilt. Truly a gift of love!
Bab
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marie67,
It really does help, glad you almost got a mile in now try to do it everyday, it will get easier over time.
Way to go
Paula.
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Raewyn, I love all the pictures and hearing about your trip. Wow - the quilt is gorgeous - a work of art, and your husband's pic - so serene. Thanks for sharing :-)
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Chelle - I hope you are feeling good and I hope your dh surgery went well! Take care!
Hugs and prayers
Claudia
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Chelle, I am lifting you and your DH up in prayer. I hope that surgery went well that recovery will be smooth and uncomplicated. As you stay by your dh's side at this time, don't neglect yourself. You remain in my thoughts.
Hugs from, Lynne
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It's always hard to stay positive when we feel like crap-ola. But what a difference a day can make. Hang in there Lita, we need your good humor and grace here.
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I hear rads to the bone can cause neuropathy, too...at least that's what I HOPE this new "discomfort" is. I've got some cannabis rub...gonna try that tonight.
I'll have another scan in 3 wks, so I'll know soon enuf what this really is.
Keeping everyone in prayer, and hope you all have a pain-free, productive weekend. I'm going to attempt to wash the dog's bedding and blankets and do some vacuuming tomorrow, and that will probably do me in.
DH and DD are going to a Giants game late tomorrow afternoon, so I'll just open a can of soup for my dinner...no muss, no fuss.
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Lita take care of yourself don't do to much. I'm finding the heat difficult everything swells up and aches. Im thinking of you
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Thanks, Wendy! Got DD and DH to help with the dog's laundry and mop the kitchen floor, so now all I have to do is vacuum, which I don't mind because I have a Miele vacuum that pretty much propels itself. It was an anniversary gift a couple of years ago from DH, and I love it.
Everyone take care!
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Raewyn, beautiful quilt, what a beautiful family! I hope everyone's weekend is going well, hugs and smiles all around!
So, I just finished my first day of chemo yesyerday. 7 hours. I had a reaction to the herceptin within the first 30 min. I was relaxing, almost dozing off, and the pain started, like flu body aches all over, came on fast, back ache, legs, arms then neck, I was shivering/shaking/trembling involuntarily. They stopped for 30 min, gave me Demerol to stop the shaking, I ended up getting about 4 blankets piled on, more benedryl and just waited it out. I could breath and I told my nurse about it right away, they were very attentive, stayed with me the entire time.
I got my port just the day before, less than 24 hrs before I started my treatment. I wish I could have had a week to heal before starting chemo, my sternum hurts terribly, all underneath my breasts, very tender, like I was crushed or sat on. The port site looks good but hurts down the vein and it hurts to take a deep breath in, 30 hrs now gone by since I got home.
Treatment went as such: Port plugged into, saline solution first, then Tylenol by mouth, benedryl w saline, steroid (I already forgot which one), then herceptin, pause, Demerol, saline, benedryl, finish herceptin, next up perjita (went fine, no issues), then finished with taxotere, saline to flush line and done.
I don't have to go in again until 8/25/17
Update: my kidneys really hurt, I'm going to have stop taking any of my painkillers that have Tylenol, I'm worried I'm masking a fever. I don't think my kidneys should be hurting like this, anyone has this side effect after first round?
Danae (Dani, Danny...
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Wow, dani, glad you're ok. I never heard of a reaction like that to Herceptin but I had terrible reactions to taxotere, then taxol and couldn't continue either of them. The port area may be tender for a couple weeks and I've never experienced the kidney pain you refer to but can say that I was only allowed tramadol for pain, no fever reducers at all. You might want to post the reaction to Herceptin on the triple positive thread for more feedback.
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Linda, Happy 8th Anniversary! Your words are very encouraging for me, nearing 1-year post-Dx, with bone mets, new Lung mets, and trying to come up with a crystal ball game plan for the next X-number of years. Glad to hear the Tx's are working for you! All blessings for your 9th year, GraceDD.
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Hi bone mets sisters. I am back in the land of living. For awhile I wasn't sure I was gonna pull thru. But I did yet again. Trying to catch up on everyone. So many new people. Welcome.
Hugs
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Patty! Thank god! Everyone was looking for you. For a little while now. Thank god to see you. Glad you're ok and you will be in my prayers you're a tough cookie.
Dianarose~. 💕 Hope you're on the mend. Hanging with my DH. And he and I are taking DS to the airport. I already feel anxious watching him go and he's 20? Does the mama bird ever have that become easier lol? Ugh!😰
All are always in my prayers. ~M~
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Hi Patty !!! So good to see you.
Thanks Grace DD. It sometimes feels like I've been having treatment forever. As soon as I can I will share more about the study I'm on, that some of you may be able to part of for metastatic breast cancer.
M, I've had many many times taking my son back to the airport and no I don't think it gets any easier to see him leave, but so grateful for the time I get with him. sniff sniff
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Hi Patty, Glad you are still out there. I was just thinking about you wondering how you were doing since I haven't seen you on the threads. Warm hugs.
Anita
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Hi Patty,
So happy to hear from you!! I was really worried! Welcome back
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pattipeppermint,
I am new to this thread and am just wondering what happened to you? Glad your back
Paula.
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Patty so happy to hear from you!!!! Glad you're back!!!
Babs
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