Bone Mets Thread
Comments
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Nicky, good luck with the surgery! Hoping it lets you be pain-free in the New Year!
Patsback, ADJ and Redroan, hope chemo will be kind to you while working its Magic.
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M360 - So sorry to hear about your pain, but glad you have some good news! Wishing you a very happy holiday and great improvements in your pain levels in 2014!
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Nicky, best of luck with your surgery, Hope it eases your pain.
Had first treatment of Abraxane today at 8am tolerated it well so far. Was treated with aloxi and Dex first. No nausea or anything , so feeling good! worked all day afterwords so i hope it stays this way. Trying to decide if should take a zofran before bed. Think I might just in case. Thanks for all the good wishes.
Redroan
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Nicky - good luck with the surgery hope its a quick recovery; m360 yuck re: all that pain, but glad the xeloda is helping. So far I've reacted pretty well with the xeloda too. Got fingers, toes and eyes crossed for luck for everybody!
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After a PET scan a week ago my onc got worried about my hip. He sent me to a rads doc and he determined my bone was 50% cancer so he thinks he can save it with rads. It was either that or surgery and a rod inserted. I chose rad and had the first treatment this morning. Around 2 this afternoon I started having unbelievable pain in my groin area and down my thigh. It's deep in the bones and just aches and aches. Kind of like growing pains when I was a child but much much worse. Has anyone else ever had pain after a rad treatment? This isn't my first time getting rads but the other time had it's own kettle of fish to deal with. I've taken all the different pain meds I have on hand but I will for sure be asking the rads doc tomorrow at my second treatment what the heck is going on.
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Hope today goes a little easier on you Fluff!
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Fluffernutter- I had increased pain at one point but more into radiation treatment (like 10 in of 14). Turns out I had developed a fracture. I have heard others describe bone met pain in general the way you are describing it, so perhaps it is just that. (Mine was more sharp at times than continuous and severe). If it continues to bother you, perhaps call your ortho to see if you can get a quick xray.
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I recently went thru a similar situation Spent most of the summer under the influence of pain meds, had trouble walking, It was one of the worse summers of my life..Saw the pain management Dr. and spoke to my onc in Sept.. They suggested rads to the area so I had 15 rounds of rads with very little relief, so I did 5 more rounds as a boost on the advice of the radiologist. it did help the pain a lot, but only about 75% .at least I can walk normally again, but it still hurt. So I am still taking heavy duty pain meds and am now seeing an acupuncturist, two sessions so far nd no change yet but I will see the acupuncturist 2 more times before trying something else if it doesn't work.I'm glad that there are pain meds to fall back on, but I will keep on looking for a non-narcotic way to deal with the pain.Unfortunately for me there was no immediate relief from the rads but they did help. One thing are the SEs from the rads to the pelvis area possibly diarrhea (at least that counteracted the constipation from the pain meds) and the fatigue, Here's to a pain free 2014. If I find another option for dealing with pain I will post it here.
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Hello, I have a question for you. I have extensive mets in pelvis and some on the spine. Both pelvis and spine (T11) had radiation in Aug. It helped some with pain. However we found that cancer progressed to L1 in Oct so changed the treatment from hormonal to chemo. I have been on Xeloda since November. My hip pain and walking have improved very much. I had to rent a walker in Oct but now I can get around with a cane. However, my back feels worse. I worry that Xeloda is working in pelvis but not in the spine. The next scan is the end of Jan. Has anyone had a case where one part of bone mets regressed but another part progressed? Thank you.
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I have widespread bone mets, found them 2.5 years ago. Throughout chemo, 6 rad treatments, I have had quite a bit of improvement and some progression. Wierd, huh? I don't know if I have different kinds of cancer cells or what, but I am fighting, with the Lord's help.
Anita
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hansaim,
About six months ago, I had decreased in hip and femur but then had increased and new lesions in spine at L3. Right now I'm not increasing or decreasing with Xeloda. I can't have radiation because of EDS and other medication that I take so I only take chemotherapy and have surgery and over the years I've had decrease in some areas and then new tumors and lesion throughout the body. Even though this has happened my OD, and other DR's feel that I in the last six months have not done either is a positive sign.
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the bone pain is so continuous.
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After hurting continually from Thursday to Saturday, I went to the er and had an x-ray. My pelvis wasn't fractured, it turned out that the radiation caused swelling. I have a high tolerance for pain and I was sure it was cracked, I'm amazed it wasn't. After some decadron and some pain killer in my port, I finally felt relief and was sent home on a pair of crutches. I had no idea inflammation could cause so much pain! So oxycodone and prednisone and let the rads do their thing and it should be better in the end. Well, that's the plan at least....
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So happy you got some answers. Keep the meds flowing!
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hope that pain relief works and that your feeling better really soon!
Nicky
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Just took my pain med and I'm sitting here drinking coffee waiting for it to kick in! Merry oh oh and happy holidays everyone.
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I meant merry ho ho......maybe they already kicked in!
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Too funny Romansma. Thanks for making me giggle! Sorry you're in pain, but your "ho ho" post was really cute. I'm so darn lucky and I know it. I'm a bit achy but don't have the nasty pain like so many of you. And it's summer here with today promising to be sunny and warm.
Wishing all of you the best of the season and a cure in 2014!
Terre
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Hi all I haven't been here in a while. I'm still doing good. I was wondering does anyone know how Rangermom is doing?
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Hi all I haven't been here in a while. I'm still doing good. I was wondering does anyone know how Rangermom is doing?
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The last time Rangermom posted was on 12/14/13 in the survivor story thread. She found out she had a second form of cancer which is very aggressive and seems to be focusing on that now. I haven't heard how she's doing.
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Thanks aaoaao, I hope she is doing alright. Praying for her.
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Hope everyone had a wonderful Holiday! I have another question. I have had 1 Abraxane treatement, get another tomorrow but has anyone that is on abraxane had more body aches? I feel like I have the flu with no fever, or a person with severe arthritis or something. I think my first few zometa treatments made me feel this way too.
Thanks for the info. Redroan
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Redroan , sorry for your aches. Now I have had 2 Abraxanes and whether it's because I am on so much pain meds already, I can't say I hurt anymore. Just working through constipation.
Anita
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Thanks Anita, Had second treatment today. Feeling good right now but I think the dex prior to treatment is doing that. Onc had to be called with labs so nurse told them about aches, They ordered Tramadol . I have never had that before but will think about giving it a try, At least at night to sleep. I wish all of this could be easier. Having a sad day today. Lost a good friend that was fighting ovarian cancer who was also braca 1 positive. Feeling sad for her family!
redroan
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Very sorry for your loss, Redroan. And your aches. They gave me Tramadol after I had my pin put in my femur. One of the few pain killers I've taken that didn't make me sick. And definitely helped with the pain and let me sleep.
Hugs to you.
Terre
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hello everyone! I am new to this thread. I was just diagnosed with recurrent mets to my sternum, I will be starting radiation soon. Dr offered me meds for pain today and I declined, I think I may ask for it after all I seem to be stiff at night and Motrin isn't really cutting it anymore. What kind of medication do they give you? I am a light weight but have high pain tolerance (I did mast recovery with no pain meds) but I think it's time to have relief, lol, Also, how do u all feel after radiation?? When I was first diagnosed in 2007 I didn't have it, only chemo. Any advise would be great.... Happy new year to you all!!!!!!! Oh and thanks!!!
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Hi Kate,
I had recurrent bone mets in my spine in Oct & did Radiation for first time. I did 15 days around the middle of my back. I felt pretty tired right after radiation & had to nap. A week after first rads, I had stomach aches like mild ulcer for about 3 weeks. I healed quickly and felt fine a few weeks after rads. I think pain would depend on where you are radiated. It definitely was easier than chemo.
Hope they get you stable soon.
Terri
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Hi Kate tiredness is a major SE from rads and sometimes when rads are given for pain in the bone the pain can increase for a day or two and then start to dissipate.......pain meds will help. Depending on how many are prescribed, your skin may get very dry in that area so make sure you moisturise well after each treatment.
Red, Tramadol works really well but works best when taken with Paracetamol. I have been taking both with great effect for a couple of years now. Oh and the Paracetamol thing was told to me by two of my docs. Hopefully it proves to relieve your pain as well.
Love n hugs. Chrissy
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Trying to keep my equilibrium ... I feel great, look great. On physical exam on Monday my oncologist did not find anything
that he could feel. Got my blood results from Monday – the CEA and CA27.29 are creeping
upwards (not so great) but I'm told they don’t do anything about it until it has been rising for two
months in a row – and maybe the amount mine went up is not considered
significant? The expectation is that they will wobble around (within
experimental error I guess) while they are “stable”. Still – it has unnerved
me. I guess this is the problem with getting your results online instead of from
the Dr. directly. But - I do like getting them right away instead of waiting a month! Trying to stay detached and scientific but a little nervous.
I am at the “average” time progression free for my particular treatment (letrozole + denosumab) so it
would not be unreasonable for the marker levels to start to rise.0
