Bone Mets Thread
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So happy to hear all the good news. I love hearing good news! Gives all of us hope.
Hope
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I love good news!! Keeps me hopeful - hope is so important these days!
Just finished an MRI with IV contrast to see how my neck is doing. It all went smoothly. I was a little anxious but survived
didn’t need any anti anxiety meds this time around, which is nice to be clear-headed afterwards. I was in a bad car accident right before my diagnosis de novo. My neck hasn’t felt the same since, so I got the MRI to rule out and cancerous activity so I can possibly see a physiatrist and/or PT and really start to work on the tissues in my neck. Fingers crossed for good results!
Happy Friday everyone!!
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well Delvzy, Snooky had a ton of great advice. I will add that it helps to itemize your blessings daily. Mindfulness meditations help me and getting outside for exercise ax much ad posdoble. Can you walk thd neighborhood before sunrise when its hot? Good luck.
I was lucky to get over the anxiety part of the diagnosis after 6 months and no depression - this time.
I'm doing great. 1 big bone met. Scan on monday showed its shrinking finally. Only side effect is severe insomnia. Cbd oil is working for that. Hubby just started it to for his bad anxiety. Suppised to help with depression too and so much better for you than those pills.
Gailmary
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delvzy - both my son and daughter in law called from Robina, QLD today, 'complaining' of the incredible Australian heatwave! When we left there mid November it had reached 33, so I imagine a constant temp like that and higher would make it difficult to enjoy the outdoors for any length of time - wish the weather balance was better as we could use some heat here in Alberta!
Peaches - we celebrate with you and the positives we hear from each other give hope for sure!
Have a great weekend everyone!
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Gailmary Congratulations that the med is working on your bone met, that's hugh. I've been wanting to try CBO I just don't know anything about it. There are so many sellers now that quality bothers me. Although, I can get a med. card to purchase the canabilis (sp) and make my own oil the cost is outrageous. I truly am so glad that you are doing well on this protocol. Hugs
Oh, and also, getting outside walking is excellent therapy. Our bodies were made to move.
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A gentle reminder:
What is pill shaming?
Let's say you've finally decided to talk with your doctor about what you're experiencing.
You're even open to taking medication to help rebalance your brain's chemistry.
Then a friend tells you that you don't need pills. You just need to work out more, or eat better, or spend a bit of time meditating.
This is a form of pill shaming.
Pill shaming occurs when someone expresses negative opinions or disdain when you tell them you're using medication to treat a mental health issue.
They assume — wrongly — that taking medication signifies weakness of character or an inability to work through tough times.
"The reality is, psychotropic medication is being prescribed to assist in medically balancing a chemical imbalance," Gold explains. "Unfortunately, many individuals suffering from this condition do not wish to be treated with medication due to societal stigma and a misunderstanding of what this diagnosis actually means."
It's not just friends, families, or strangers on the Internet that may attempt to weigh you down with this shame.
"This belief is pervasive in our culture as a whole, but is even found in some self-help books or mutual-help support groups," Hu said. "It is never helpful to shame individuals struggling with mental health issues and to discourage them from getting help in the same way that they would for any other medical condition."
The bottom lineTreatment for mental health conditions can help end symptoms, restore quality of life, and allow you to feel healthy once again.
But it requires adherence to the medication and treatment plan your doctor gives you.
"Mental illness is not a moral failing or a lack of motivation and it doesn't only affect people who don't try hard enough," Koncilja said. "Instead, mental illness is a chemical imbalance in our brains, and in order for us to not experience symptoms or active illness, we need to seek out and receive ongoing treatment."
From: https://namiillinois.org/how-pill-shaming-hurts-those-who-take-medications-for-mental-health/
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Hello friends,
Last night I told my DD about an upcoming consultation with a lung doctor and she was concerned. (I hadn’t said much about new concerns. No need worrying ahead of time.) I just laughed about the number of doctors I see.
She said the doctors at one of the hospitals where she worked had “baseball cards” made up and the pediatric cancer kids would collect and trade them. When i think about the number of doctors we all see I think there would be enough cards for a few leagues. Now I want to make some mockups. We can choose the all stars! ( And the ones who need to go back to the minors.
Hope the weekend treats you well!
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gumdoctor, I have to chuckle everytime you mention your ex doctor, the strangler.
Yes sneezing and coughing can crack ribs or sternum.
Susan, congrats on 10 years! I would have to say you respond well to the treatments you've had. No reason to think that the future wouldn't be the same.
Depression is a horrible thing. A person can go years without knowing why they don't feel "right". I have lifelong depression. I'm antidepressant resistant so it took 4 years to get the cocktail right. If it's not sadness, it's everything is too overwhelming. (With me). It's hard to explain , but there's a commercial about a dog that wants to play ball with the owner woman and she just stares at the dog.
I can talk forever about my depression but won't. I will say that if anyone feels they are depressed, TAKE A PILL!!. With all that's going on in your life, anxiety and depression are something you don't have to carry around with all the other awful things. I thank G_d that my regimen has been good (not perfect) for 15 years now.
I carry 2 phrases with me.
"These are my "I don't give a $hit pills" , meaning the med helps me not feeling overwhelmed about things that don't get done, and "I used to care but I take a pill for that now", meaning that being overwhelmed by caring about stuff too much is not good for me. And these pills help me with that and not start a downward spiral.
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Princess, I would like to have some pills like that! I have trying to you MMJ, but have been having a difficult time getting it regulated. I also take Effexor, which I know is terrible, and trazodone. I don't really think either one is helping. But my ammo did ask the question what how do I know it's not helping, because I've been on it for so long. Anyway, we go along as best we can.
I have been following all of you on here oh, and celebrating your highs and lows right along with you. What a great bunch of people!
Claudia
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For anyone who feels they may have treatment resistant depression (not responsive to multi-drug or combination regimens), please be aware that there is an option approved by the FDA a decade ago called transcranial magnetic stimulation. It is not shock therapy which means there is no anesthesia or sedation. Short daily sessions for about a month may be denied by insurance so be sure to get authorization in advance.
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I have loved reading through some of the pages and getting to know a few of you. So thankful to hear all the news that’s shared.
I’ll be restarting Abraxane tomorrow for extensive bone Mets progression. My sternum didn’t crack as I had feared but is loaded with Mets as well as lots of new rib pain. I’m hopeful because it worked so well in the past but gave me some pretty tough neuropathy. Doc is hoping to use the Abraxane just long enough to knock the bone Mets back and then find something else.?
Susa
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I use acupuncture for my severe rib pain and it works a trick
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Hi All,
I am ILBC stage IV bone mets. I started Anastrozole in December. Although I don't feel happy about it I start Ibrance this week-end. It is nice to have the many sites here at BCO to have support and the many experiences that others share. So helpful.
SusanR we are somewhat neighbor's if you are in Crete, IL. 😊
Stay warm everyone in the cold zone!!
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Hi bootsie! This is a great thread and also the Ibrance thread,
https://community.breastcancer.org/forum/8/topics/....
Why is it you're not wanting to start Ibrance?
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Hi MuddlingThr,
I am just leary of side effects and putting all these toxins in my system. I worry about the neutropenia risk. I was in hospital a week in October after 2 iv chemo with severe infection and there they found bone mets. So I was Denovo and shouldn't have been on Chemo. Life is so altered and not too much assurance any of these will will even work.😯
Everything since my DX in 5/18 has been so frustrating and sad/frustrating.
That being said I am doing ok and happy to be alive. Grateful for what I have and the support of family & friends and this site.💖
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bootsie, obviously I don't know your situation but I was de novo at diagnosis and was on taxol chemo within a couple of weeks. After 12 weeks of taxol was done, I started Ibrance the same week. I do understand about the meds, but speaking only for me, I'm grateful for the Ibrance capsules that keep me alive (along with the letrozole) and the side effects for me from Ibrance are not too bad, very doable. My bone mets and liver mets seem to be under control, knock wood. Your doctor will check your blood more often at first to keep watch for neutropenia. So far, my numbers have always been good, knock wood again, ha ha. All the best to you on a new treatment!
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Thank you Muddling Through for your response. It encourages me.
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Well , I start 14 rounds of radiation to mets in my lower back on Monday. Second time in a year
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just got off the phone with my MO...my MRI of my neck came back with “abnormal results.” Now have to do another bone scan to see if it clarified whether or not there’s new activity. My intuition tells me that the MRI is picking up on sclerotic healing of metastasis but of course I am nervous and my fear wants to doubt my intuition. And then I am wondering if my intuition led me to get the neck MRI in the first place? Ackkkk! I need/want a drink! 🍷
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Like you told me Philly, Breath. I'll be praying for you
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thank you sweet Snooky! It's all I can do ❤️ I am just recognizing, thanks to these boards and the amazing people on these boards, that we can't jump to any conclusions and this is all a process. We get to dig our way through the messiness of it. Hoping once the bone scan happens, we will have more clarity. My MO was talking about changing course of treatment and of course I don't want that. I am so happy with Ibrance!!!
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LovefromPhilly, argg, the dreaded 'abnormal'! Have that drink (even if it's just tea). I will be praying for positive news.
Delvzy, great to see you, how are you doing? Check in if you get a chance.
JoE and bootsy, sending you prayers that your treatments are successful.
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thanks Jaylea - I am just relaxing and did have a little sip of some really yummy rum that I brought back from the Caribbean! ;-)
And Jo - sorry to hear you are about to embark on this journey of radiation for several weeks. I am sending love and positive thoughts.
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Hi Girls WBR finished now chemo starts
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Thanx Love and jaylea, I keep looking at everyone's DX aNd say I can do this too. Radiologist was confident on knocking it down just hope I don't have to change meds. Like Love...I was happy with my success. Feeling you Love
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feeling you too Jo 💛💛💛💛💛🧡 we are all here for you.
Delvzy! How are you holding up???
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Hang in there Philly! That rum sounds just about right for scanxiety....thinking of you all. I get a new MRI in mid Feb of my L spine.
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Wow Jo. 14 rounds? I have had a zap here and there but never more than one to an area. I’m not really sure what it’s supposed to be like and here I am with hip and groin pain again just a few months after treatment to the area. Ouch! You are a trooper.
Sending positive thoughts to everyone.
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Liz just had her first infusion of Zometa on Tuesday. It wiped her out as she slept for almost 14 hours that evening.
She is still dealing with some groin/hip pain but a x-ray showed no fracture and a CT is scheduled for Feb.5.
Praying for all you on this board!
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thanks everyone!!
It’s so funny how the mind and body can do two different things at once!! Like my mind is rational about the whole thing and yet my body decided to show me I was stressed out with some runs to the bathroom this morning and a very poor nights sleep :-/
I did just go out in the 15 degree weather and ran some errands on foot. Even worked up a sweat from lugging some heavy stuff around! Made me feel “normal!” 🤗 ❤️:)
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