Bone Mets Thread
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I've been on Xgeva for almost a year now, my jaw just now is bothering me. They didn't give me Xgeva at my appointment last week, want to wait and see if it's still hurting when I got back in 3 weeks. I'm not thrilled, it's always something.
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My mother is currently in ICU for severe pancytopenia. She is awaiting results of her bone marrow biopsy. We were told that if it did come back in her bone marrow they can’t treat it. From reading so many of your stories on here I’m wondering why they wouldn’t even try treatment. Anyone have any insight
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White4...I had cancer cells in my bone marrow. I was immediately put on Taxol infusions. I hope they can help your mom. I don't know why they wouldn't treat her unless she has other issues going on. Keep us posted...hugs!
Hope
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has anyone had bone Mets in their fingers?
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I've never heard of that, but who knows
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No but Femara makes my fingers feel like I've been pinged with a hammer
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No mets in my fingers, but had/have one in my right wristbone which surprised MO. It was imaged only because I can't put my hands up over my head in the scanner, so they velcro me - burrito style - with my hands at my side.
I think more hand/foot mets might show up if they were routinely imaged.
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thanks for responding friends. I just have been dealing with this crazy thumb joint issue which is most realistically from femara but of course my mind got the best of me as the joint feels thick and hardened and I started to go down the worst possible case scenarios list.
I did have a regular ol X-ray of my hand and it seems that bone Mets would show up on a X-ray, wouldn’t they?
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philly, I don't think a regular x Ray would necessarily show a Met. After One of the meds I was on a few years ago, some of the joints in my foot started popping when I turned my foot a certain way. Still does it. I am guessing (cause I'm not a doctor) that your finger thing is something besides cancer.
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I had X rays done and did not show bone mets but bone scan and MRI did just two weeks later........the only definitive test for bone mets seems to be MRI or a radioactive bone (?Dexa) scan
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Yeah, X-ray didn't show my Mets either and I had them everywhere! They showed up on MRI.
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thanks everyone! This will be on my list for my MO visit on monday
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Taxol took care of marrow mets, but sadly, everything else progressed
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Oh Lita sending you a big giant hug. I am so sorry - this is not the news we want to receive. Is there a plan for next moves yet? xxoo
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Sorry to hear that Lita! sending you hugs!
My bones (shin,knees and hips hurt),do bone pain a sign of bone mets? At times I also feel pain on left side and at times on right side of my head (maybe in my brain) Anyone knows,pls. enlighten me. Thank you.
Janet
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Lita....After I was finished with Taxol for the bone marrow mets, I was put on Ibrance and Letrozole. I've been on that combo, along with Xgeva for almost a year. Everything has been stable.
Hope
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Janet,
it was my understanding that if you had pain that didnt go away for more than 3 weeks you should report it to your on oncologist. However if the same pain was showing up on opposite sides of body it is unlikely due to mets. Still nothing wrong with running it by the doc. Best of luck to you
Gailmary
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Janet,
it was my understanding that if you had pain that didnt go away for more than 3 weeks you should report it to your on oncologist. However if the same pain was showing up on opposite sides of body it is unlikely due to mets. Still nothing wrong with running it by the doc. Best of luck to you
Gailmary
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Lita, hugs to you. I feel I have gotten to know you a bit and if you hurt I hurt.🤗
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Lita - I hope I am not speaking out of turn in saying this but my husband had a cancer that moved in to his brain with a large tumour.....4cm spread round from his face.......he was terminal from get go and did not want chemo so we did Cannabis oil, the full spectrum oil with THC and scans showed that his tumour disappeared after two months of using it.......I do mean disappeared, there was nothing left except a tiny dot....the doctors were amazed and incredulous.......he had several months of life he would not have had without it and his cancer was very extensive when found, it was metastases elsewhere that killed him as his cancer was simply found too late........I understand cannabis is legal in Canada......? Maybe this could help you? I know people get fed up with others offering advice on what helped X....but in this case I felt I HAD to tell you....hope you don´t mind...x
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Lita, I’m glad the Taxol worked on your marrow mets but since everything else progressed does that mean it changed? I’m not as knowledgeable about all the drugs and chemos and what they work on but I thought chemo was supposed to kill everything. At least, lessen it. I get frustrated with my doctor that he seems to pull these treatments out of the air like picking an apple off the tree. “Oh look, that looks like a good one!” I hope your doctor has something great in store for you nect
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Gailmary Thank you very much for the enlightenment.
I notified my PCP and she prescribed me GABAPENTIN 100mg 3x a day,I also am taking GLUCOSAMINE 1500 mg 2x a day which gives me relief but it comes back and I can hardly get up and walk.I amalso taking D3 2000 mg daily with Calcium 600 2 tabs daily.
Take care and May God help you with your current DX.
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Janet.
Glad to hear your geyying some relief. Besure your getting magnesium too. Bones need it!
Gailmary
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Changed Name, the thumb joint is from the letrozole in all likelihood. Over several months after I first started it, my hands and fingers became so stiff I could barely bend them and several fingers and one thumb developed trigger finger. The thumb joints swelled and the joint nearest the hand developed a hard knot which was very painful and red. The swelling has receded some, and that knot is smaller. I still have severe restrictions on my hands, especially the right one. My right hand is practically useless but, at least I don't have the trigger fingers and that hard, red knot is better.
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Gailmary,
I did not know about Magnesium ,but I am going to start taking it today,do you have any specific dosage? We just came from the beach,my hubby and I went early to soak our joints in the seashore,I hope it helps me as it helped my friend with her knees,ankles and elbows.
Thanks a lot again for sharing me your knowledge.God bless you more.
Sincerely,
Janet
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i wouldnt take more than 250 mg of magnesium. any more and it can cause loose stool and belly ache. There are different types. Don't think it matters which you use, just use one of them.
Ga
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When I was placed on kisqali, my cardiologist prescribed 500 mg a day of magnesium for 7 days. He said it aided electrical integrity of the heart and the body would bank it and use it daily for that month. I usually took it on my week off of kisqali before my new cycle
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400mg of magnesium citrate daily is essential to fight aches and pains as it is a muscle relaxer in addition to its other 200 functions. Typical American diet, full of processed foods, lacks magnesium and potassium. I mention only those two essential minerals because their lack is the real cause of heart disease, what will eventually kill us way before cancer does.... as it’sthe number one killer.
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I've been laying low for a little while trying to digest more news and waiting for more results. When I got sick last year it started with gastro issues, low hemoglobin and fatigue. Other things added into the mix until I was eventually diagnosed with recurrence. The gastro issues never resolved. After my last set of scans my MO said he could see nothing to be causing the issues from an oncology point of view and to contact my GI doctor. So I did and had an endoscopy scope done. He shared some pics with me, prescribed a med which he said would coat my stomach and said he took some biopsies. So my mind goes immediately to cancer and I ask him about the biopsies and he says it could be an infection or you do have a couple abdominal lymph nodes involved and given your history it could be cancer. He says his secretary will call me for follow up appointment. His secretary called me the next day and said he wanted my follow up in 1-2 months. They don't seem too concerned but it's put me into a bit of a tail spin as I was not expecting cancer to come up.
GI office called today and wanted me to come in for biopsy results. I was so scared that this would be bad news for m and it turns out it is bad news. My GI said biopsies showed evidence of my breast cancer in my stomach. f@$k!!!
I am devastated. I seem to win all the cancer lotteries as this is apparently rare. Do any of you know anyone dealing with this or can you steer me in a direction here?
I see my MO next Thursday, my guess is we will probably be switching to full on chemo but I don't know.
I hate every minute of this effing disease
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sherry I am so sorry I really don’t know what else to say except all of your sisters and brothers out here are holding you tight. Squeeze all our hands as much as you need to and curse all you want and need. This is a shitty disease.
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