For Arimidex (Anastrozole) users, new, past, and ongoing
Comments
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I should try birkenstocks, have not as yet
do like my New Balance sneaks and also my Clarks are real good
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I've been alternating my Clark sandals (which are great), my Merrill flip flops, and the best by far, Gel-Kayano 19. My daughter took me to Dick's sports store and I told the salesman that I had trouble with my feet, which was the best?
He showed me the Gels, they cost $150 but walking on air is worth it. They soften the impact on the joints. But ultimately, I know the pill is causing the pain. I'm approaching a month back on and I'm starting to wonder how long I can last. My muscles cramp up too. I wish I understood why.
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hmmm, may have to check out my local Dicks for those
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I'm going to Dicks too!! !Let's all meet at Dicks.... My NB's are wearing out and I'm ready for new gels...I also have Clark sandals and birkenstocks but they are the hard cork ones that don't flex too much - considered giving them away...
.Oh did I mention to you girls that since I switched to the Brand Name Arimidex 2 weeks ago, my hot flashes are less - still have the joint pain but I'm hoping it eases up - Of course with Claire as our guidance counselor, we might all be biking and getting those creaky joints loosed up....
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That is so encouraging luvbug! I have to get the arrimidex. My sandals have the hard sole too and I can't wear them for long. I just took a mile walk in my gels, (Ok Claire, i know it's nothing) but for me it's something. My feet didn't hurt! Well, not much anyway. Yes, Claire is our cheerleader.
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Speaking of foot pain....I got out of bed today and the fleshy part of my foot pad (near but not very close to the big toe) felt like I had stepped on a thorn or glass. I couldn't see anything even with a magnifying glass (that was a bit of stretch--not to mention a sight.)
Is this the type of foot pain I can blame on the AI? It gets somewhat better with shoes and walking.
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One reason to wear footwear is to prevent doofusitis attacks like the one I had back in December when I slammed my little toe into a chair leg making the bed. Fortunately, I was still able to cycle and ski, although I did limp around for several weeks.
I wear mostly flats and today have on dress shoes. Heels much less than I used to, but who can walk in Seattle wearing heels???
Anyway, I feel so blessed that I can do all these fun things. Now that I am fitter than ever, I am looking forward to finding out if I can make it up the hill to the East Renton Highlands. I think you get the idea from a name like "highlands" that hill might be involved. But the slow downhill route back to the finish will be fun after that. - claire
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Thanks to Plantar Fasciitis (not related to Anastrozole
) no more going barefoot or wearing flip flops for me - unless they have a built-in orthotic. I now have quite a few pairs that do. My favorites are Mephistos, which cost about as much as my mortgage - but they make my feet feel WONDERFUL!!! For all my other shoes, my Podiatrist told me to get Power Steps (orthotic inserts) for support.As for biking, I have several neurological balance disorders (again, not related to Anastrozole) which were very severe a few years ago. I used to love riding my mountain bike until I had a bad fall. My DH said I looked like a Hollywood stunt woman as I fell and rolled off to the side. I never got back on the bike for fear I would fall.
Last year, he got me a Miami Sun adult tricycle. We switched seats with my old mountain bike (more comfy) and had the bike shop make it into a three-speed bike. I LOVE it!!! I can fly down the road and never feel like I'm going to fall off. Plus, if I get tired, I can just stop pedaling and sit.
I also love the fact that it has a big basket on the back, so I can go out prepared with all my supplies.... (or food, for a picnic
) It wasn't cheap, but it was sooooo worth it. WalMart does make an adult trike (Schwinn Meridian) that sells for $249. It's a little bit bigger, and only a single speed, but that may be all you want.
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Glad to hear about the gel shoes at Dick's. Our town just got a Dick's. I am lining up all my options for when/if I get some of the se I hear about. I am a new cancer patient, and have not started on the hormone therapy yet
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Claire, you are inspiring!
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yeap, gonna hit the Dicks this weekend
I have found on my lovely purple Cannondale, that it was perfectly comfie when I bought it as the guys set up the seat angle and the hight, just right
when I took it in for a service this a while back, they messed up the seat and it hurt like heck.....I took it back and said fix it guys!
my expereince on the spin bikes are the same, you really someone who knows how to adjust them to get it comfie, but don't give up
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Bicycle seats make a major difference. Going for a ride in a few to get ready for tomorrow's event. What I WANT to do is walk a mile or so each way to the pastry shop and indulge.
One thing I do use more of these days is energy potions. They make a difference in performance and endurance. Plus get me moving when I really want to sit on my butt.
Slept in this AM as was beyond tired from a hectic week of work.
Cool and cloudy here so fine for cycling. Hoping the rain holds off tomorrow until AFTER I am done. But if not, I have done events in rain before. Just more fun when not soaked to the skin. - Claire
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Claire, I wound up walking over 2 miles yesterday and while I ached from head to toe when done I slept 14 hours! When I woke up (at last) I remembered what you said "I sleep fine". No doubt it has to do with excercize. And now the aches have gone and I want to do it again. Thanks for the inspiration!
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I am so thrilled for you Timbuktu!!! Yes, it's wonderful to sleep and be really rested.
My ride went fine....23 miles all told. I finally got the alignment of my bicycle speedometer gizmo correct so I know for sure. I had screwed this up after installing a new battery.
Fun sights such as the Ballard Beavers are making their pond in the park ever larger and seeing someone with two baby dachshunds in a trolley behind their bicycle.
I came back with fresh salmon for dinner. Early start tomorrow for the cycling event. Plus got out and uploaded a new LinkedIn profile for the Founder of the President of the nonprofit I do work for. A GREAT day!!! - Claire
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I have been on generic Arimidex 5 months. My dry eyes are a lot drier now, according to Opthamologist, using a lot of eye lubricant drops, and my left thumb joint is very tender.
But just a few days ago I awoke with tingling on the bottom of my left foot. This lasted only a few hours then went away, haven't had it since. Also, recently, I have had bilateral heel pain. Thought my work shoes needed to be replaced (I'm a nurse), so bought new expensive work tennis shoes, which did not help.
I suddenly had an epiphamy that these foot symptoms are related to the Arimidex. Anyone else experienced foot tingling?
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What about clogs??? I am not kidding. Back in the day, Dr Robert Linton (of Linton Compression Stocking fame) wholeheartedly endorsed them for the Mass General OR staff. He was still doing 12 hour vascular surgery in his 70s. (BTW - the MGH blurb on him has it wrong.....he was doing vascular surgery as late as 1972. I was there.)
Good clogs have hard soles and over a long day, offer a lot more support. Just a thought. - Claire
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Yes, I have had numbness and tingling in one leg and foot in particular. Sometimes I wonder how I would know that I'm having a stroke or getting MS, I seem to have the symptoms but they are from Anastrazole, I'm sure. My onco says that it makes your nerves more sensitive but then why the numbness? I try to reassure myself that numbness is better than pain.
Walked another mile, pretty quickly today. It's dawning on me that it FEELS GOOD! LOL
Tomorrow the bike. It's always been my ambition to bike my age but I keep getting older too quickly.
Now I have a role model in Claire who is exactly my age and can bike MORE than her age! Go Go Go Claire!
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I remember coming in for #3 of Taxol, having done a 35 mile bike ride the day before. My oncologist asked if any soreness or pain. I mentioned my butt and glutes. He said he didn't think that treatment-related, and that sports medicine was down the hall and he would make a referral if I needed it
I am not sure the poor guy has ever recovered from having me as a patient. The interesting thing is that Group Health now has sports medicine doctors who are helping cancer patients. I think I had something to do with changing their thinking. My oncologist had to bail at the end of my chemo.....mother diagnosed with cancer and new baby. He just couldn't do it all, and needed a quieter practice close to home. I am grateful for his help.
Anyway, congrats Timbuktu.....new vistas. Make sure you do FUN walks and let us know how the bike works out. Good luck. - Claire
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Ruth - I asked this question over in the other thread on AIs... but I thought I would ask it here, too, since it's been discussed so much.
Can you tell me why they need to be GOLDEN raisins that are soaked in gin? I've always avoided those like the plague because the golden color is not natural.
The raisins are made from Sultana grapes, which are dark in color to start with. During the lengthy drying process, they are treated with sulfur dioxide, which bleaches out all the color.
A large amount of sulfites remain in the fruit, which is why some people may find them to cause allergic-like reactions. They are especially dangerous for people with asthma (like me).
The sulfites can cause breathing problems, hives, and even anaphylactic shock.
The answer, of course, would be organic raisins... but those would not be golden.
What do you think? Would organic (dark) raisins work just the same as golden raisins soaked in gin?
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Blessings, yes they need to be golden, the sulfur is one of the three main reasons why it works. Here's the run down:
1. Golden raisins- the ONLY type of raisins worthy of the recipe- require sulfur or sulfides in their processing to make them golden. Sulfur is an active ingredient in 2 effective natural arthritis supplenents: glucosamine sulfate and chondroitin sulfate. Golden raisins come from sultana grapes and are cultivated under the name Thompson seedless grapes in the U.S.
2. Sultana grapes contain proanthocyanidins which are thought to help fight infections and reduce inflammation. Grapes also contain resveratrol, a powerfrul anti oxidant that is being studied for many of it’s disease fighting properties.
3. Gin is flavored with juniper berries and juniper berries contain Terpinen. Terpinen has anti inflammatory properties. The essential oil that is in juniper berries contains more than 100 compounds including myrcene (an anti oxidant), catechins (anti oxidant), and flavanoids (anti oxidant). Test tube studies have shown that juniper berries can inhibit prostaglandin synthesis. Prostaglandins help mediate an inflammatory response and increase the sensitivity of nerve endings to pain. By inhibiting their production, a reduction in pain can occur.
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Me too with the coffee. Can't drink after 12, only red wine on occasions. I miss my Cosmo. Oh well
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Ruth, would you post the recipe again? How many raisins? How much gin? How long to soak them? Thanks
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Claire, I had to laugh at your onco reaction! Yeap, 35 miles on a bike and a little muscle ache...sounds normal to me! You are a good inspiration on cycling more than your age. Most I ever did was 45 and I am way past that now in age! So hanging with spin bike or indoor gym stuff these days.
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savgigi - its my understanding a batch is a bag/box of golden raisins -place in a bowl -cover raisins with gin... let sit for 2 weeks and then you eat 9 raisins a day.. I lightly covered the bowl with plastic wrap but poked holes in plastic to let gin evaporate every few days we'd stir -after 2 weeks we drained raisins (there wasn't alot of liquid left) and covered them in a container in refrigerator.
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Thanks, Nancy
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To prepare gin-soaked raisin, first empty one box of dried white raisin in a shallow container. Only white or golden raisin should be used for this recipe. Then pour enough gin into the container to cover the raisin.
Cover the container and keep it covered for 7 – 10 days to allow the raisin to steep in the gin.
Allow all the gin to evaporate to leave gin-soaked raisins in the container. These raisins keep well when refrigerated. The popular advice is to take nine of these “drunken raisins” every day. Most users report improvements in arthritis symptoms between 1 – 8 weeks of using this remedy.
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ruthbru is 2 posts short of 25,000!!!!! There should be a party for her!
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I play too many games!
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Ugh. I just started my first batch of raisins, but used organic ones. Off to buy regular golden - so much for trying to be healthier !
At least I found out now before I just decided these didn't work for me! Thanks for all the detailed info ladies!0 -
and since I have brain fog....what are the raisins supposed to do for us?
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