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Lumpectomy Lounge....let's talk!

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Comments

  • Sloan15
    Sloan15 Member Posts: 845

    Hi ladies. I'm checking in like 614. Let's see... Yay on finishing rads, hugs to poodles (!), glad you got the shot Sandy and good luck tonight at the gig, welcome Kalypso and Greece sounds good for the summer (!), hang in there Octogirl with this workweek, and belated happy birthday Peggy! Whew!

    What happened to the vegeterian lady with the dogs who lived on snow country with her family? I forgot her name. Is she okay? We all get so busy, but I haven't seen her since before I left on my trip 2 months ago. (Wow, I can't believe my trip was 2 mo ago!)

    Sandy -got stuck on the runway for an hour waiting for the storm to pass... We went out for a cuban skirt steak and empanadas our last night there. Yum! You have a lovely city.


    I'm not home yet. We flew in from Chicago last night, but are driving to San Diego today to see some relatives and go to a memorial service. We're going to kayak some bays today. I'll stop by Newport Beach on the way home next week hoping my son willll teach me to get in my kayak in the waves. It looked hard. I have to be proficient at it since my husband has the eye disease and won't see the waves coming!

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,339

    Octogirl, Just grin and bear it for the rest of the week. You'll make it! Then you can breathe. You're so right that you have two people to visit here. And you're welcome to stay with me if you want. I'm about 30-40 minutes north of your step-aunt (opposite ends of the city).

    Sloan, please wave to my son who lives in SD!! Smart that you're going to learn how to get in your kayak in waves. Glad you did make it back to SoCal. Storms are scary to fly through. And envious of the fabulous time visiting Sandy.

    HUGS!!!

  • chisandy
    chisandy Member Posts: 11,421

    Ah, Sloan, I noticed that Cuban restaurant “90 Miles" along Armitage and was going to suggest it. WTTW's “Check Please" loved it. Was that where you ate? We used to have a couple of good ones up near us, but they closed years ago. Glad you made it out of Chicago safely, but sad to see you go.

    Shot hasn't worked yet, but at least it didn't make things worse. The surgeon said it could take a week, but the shots I had in my other thumb worked as soon as the swelling from the shot itself went down. I suspect I may have let this one go way too long, and only tendon release surgery will help. I have my 6-week followup Aug. 24, so if it hasn't stopped triggering by the time I get home July 31, I will call the very next day and schedule the surgery. My first cataract surgery will be Aug. 31, so that means on Labor Day weekend I can't do the Fox Valley Folk Festival, where I've emceed and played the Chicago Songwriters' Collective round every year since '02--except when the fest was flooded out in '07 and I was playing in Little Rock anyway--but carrying a guitar case, bending over, etc. will be contraindicated for at least a week or two post-op; and truth to tell it'll be a load off my mind booking and cat-herding the participants, not to mind having to set up, tear down and work the CSC table in the heat and/or storms all day. And no having to get up at dawn to drive out to Geneva, snag a good parking space, stay overnight at least one night and then fight the holiday traffic going home. Last year I sort of zombied my way through all of it (except on stage) because the “rabbit was running around in my head," i.e., the repeating tape loop of “biopsy Tuesday--I probably have cancer. OMG--what if I do have cancer? lather, rinse, repeat." I was so freaked out that I left early both days--and ate stuff I shouldn't have because I felt “better live for now."

    Haven't unpacked my instruments since the last gig--and this time I have freshly printed business cards. So all I need to do is wait for my singing partner to get here from Madison, so we can be at the Merion to load in by 4. We play from 5-7:30, so we'll need to tear down & re-pack so I can make the rest of the B'way Cellars Bastille Day wine dinner. (Hope Bob gets there in time--usually, our roles are reversed, I may have them pack the courses I've missed, to eat for dinner tomorrow night).

    Oh, and our MIA lady up in NH is MLP3 (Melissa, I think). Last time she checked in here, she was going through initial chemo rounds but doing well.

  • Molly50
    Molly50 Member Posts: 3,008

    Funny, you mentioned MLP3 . I was thinking about her when everyone starting calling Poodles MLP. (Poodles was the original MLP ) If you are reading MLP, I am thinking about you!!!

  • Grazy
    Grazy Member Posts: 231

    I was thinking about MLP3 as well when Poodles started being referred to as MLP - "3" was on here when I first joined this board. I think she was from Boston; only say that because my husband works in Boston... could be wrong, I could be thinking about somebody else! I'm sure she would be pleased to know that people have been thinking about her, at any rate :)

    Speaking of Poodles, I hope you're having a better day today; I hope everyone else has had a good day as well.

  • 614
    614 Member Posts: 398

    Dear Sandy:  I hope that the shot works for your finger.  Good luck.  Enjoy the vacation.

    Dear Sloan:  Have fun Kayaking.

    Dear Dara:  Have you gotten your oncotype score back yet?  I may have missed your post.  I love your pictures.

    Dear Peggy:  Good luck unpacking.

    Dear Grazy:  It is good to see you back on this site.  I'm glad that you are doing well.  It is hard to care for one's mom while going through BC.

    Dear Kalypso: My uncle is from Greece.  He played professional soccer on the Greek teem almost 50 years ago.  He is my Aunt's "Greek God".  He came to this country on my 4th birthday.  They own a house on a Greek island.  I have never traveled to Greece but it is wonderful.  Enjoy your summer on vacation in Greece. 

    I wish that I could meet my BCO sisters.  I am glad that many of you have met each other.

    Yes, MLP lives in Boston.  I hope that she is doing well.  I am thinking of her too.

    Hello to everyone else that I have not mentioned.

    BTW, my volunteering in the infusion room at my MO's office is going well, for the most part.  The patient's have thanked me profusely.  I am volunteering so that I can help to make the patients have an easier day in the chemo room.  One of the nurses told me that, "I made her day."  Some of the other nurses have thanked me.  However, the office manager is horrible and she makes me feel as if I should quit.  I don't think that she has ever smiled in her life and she certainly does not appreciate anything.  Oh well.  People are people.  I have 2 weeks before I have to go back to work so I will continue volunteering until the end of July.

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,339

    614, We'll find someone in your area for you to meet up with! That's too bad that the manager is so unappreciative. Ignore her. The nurses and patients matter more!

    HUGS!

  • 614
    614 Member Posts: 398

    Dear Peggy:  I agree.  Thanks.

    I finally finished all of the work that I must do over the summer.  Yay!  What a relief.  Unfortunately, it is unpaid work and that totally sucks.  I had to do it to make my life easier once the school year starts. 

    Now I can focus on decluttering my house.  I am reading all of the posts and I give all of you so much credit for being able to help family out and to be able to declutter.  I have such a hard time parting with things.  My house is awful right now and I have anxiety just thinking about how I am going to be able to even start tackling the mess.  Wish me luck.  I think that I am going to ignore the study and have a glass (or 3 - lol) of wine tonight!

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,339

    614 I hate that you have to do all that unpaid work. At least it's done. Now for the decluttering. Do NOT look at the big picture. Take a small slice. One closet. One shelf. What bothers you the most? Tackle that area first. If you look small then when you complete that task, it feels goods and you have a sense of accomplishment. If you say, OMG, I have to do the whole house and look, I only did this dinky bookshelf, then you are just making yourself depressed. And remember what I learned that may help you: handle each item. Does it give you joy? Keep it. If it does not, toss it out or donate it. Try on your clothes, especially the ones you don't wear all the time. Do those jeans really fit? Can you breathe in them? Is that dress to tight? Is it outdated? Do you hate it? You know what to do. And once you have done a couple of areas, it gets much easier which surprised me. YOU CAN DO IT!!!! Reward yourself with a glass of wine!

    HUGS!

  • mustlovepoodles
    mustlovepoodles Member Posts: 1,248

    I am feeling better today. Yesterday I was weepy--I just wanted my sister! She lives in western Washington, unfortunately, and it would probably cost over $500 for me to fly out there right now. Plus, there's NO WAY I could go out of town right now. So I just need to suck it up. 

    Thank you, Molly, for suggesting NOLA.  I went on their website and Holy Cow!  I was impressed.  It looks like they do a lot of DIEP recons. I looked at the lat flap topic on the site--they don't recommend it for exactly the reasons that I don't want it:  chronic pain and weakness of the back muscles and it requires an implant. EXACTLY the things that I do not want!  I feel like the PS I saw this week had made up his mind before he even saw me. I told him I particularly did NOT want implants--I am very leery of putting a large foreign body into my chest.  But he insisted that DIEP would be trouble and the Lat Flap would be the cat's pajamas. 

    I am going to put this on the back burner until  DH gets done with his surgery (tomorrow's the day, 1pm).  He is so upset. I gave him a Xanax this afternoon and I'm probably gonna have to give him another one. Thankfully, we don't have to get up at O'God-thirty. We can sleep in and stroll through the doors around 11am.

  • Lovinggrouches
    Lovinggrouches Member Posts: 346

    Poodles, prayers for no complications with surgery!!!!

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,339

    Poodles, thinking of you & DH for tomorrow's surgery. Please keep us posted.

    HUGS

  • moondust
    moondust Member Posts: 207

    Poodles, I'll be thinking of your DH and you tomorrow. May you guys have the best possible outcome from all this!

    Sandy, I hope your shot works and is just delayed. I'm giving my deQuervain's one more month. It is better than when it was at its worst, but still not pain-free and I feel disabled. If it isn't better by the end of my chemo, I'll get a cortisone shot.

    Everyone else, I hope you have a good day tomorrow! Wish I had more time to chat, but I need to keep moving or I won't be ready for my short hike tomorrow, and I'll fall asleep in the chair (again).

  • Beebazboob
    Beebazboob Member Posts: 39
    Hi, newbie to this board. Not great at this so hope I post in right place. Lol! Two days post lumpectomy. Feeling pretty good. Some nerve ending firings, heavy, tender, swollen feeling and so ready to take the tape off tomorrow to see the surgery evidence. Oh yea and shower!!! At that in limbo point now waiting for lab report. Praying for clear margins and no invasion. Last month and a half has been crazy whirlwind. Any advice on getting thru the anxiety while I wait? Thinking about bc 24/7. Trying not to but my mind just keeps going back there. Read several of the posts and just want to say bless you all for your strength in not only fighting bc but in sharing your stories with others!
  • tbalding
    tbalding Member Posts: 383

    Poodles, lifting up prayers for you & DH

    Sandy, hope shot works

    Hugs to everyone

  • mustlovepoodles
    mustlovepoodles Member Posts: 1,248

    Beebazboob, I think we can all empathize with you here.  We've all been there and done that, unfortunately. The club you never wanted to join, as they say.  I had terrible anxiety during the waiting phase. Some things that worked for me were:  Xanax,  HGTV, and  Food Channel. Forget reading--I was far too distracted to read much of anything.  Normally, cleaning works well for me, keeps my hands busy, but this time I was so overcome with inertia that I couldn't get off the couch. Ugh. I found that binge-watching things like Cupcake Wars, Chopped, Fixer Uppers, and House Hunters allowed me to zone out with a show that has minimal drama and no plot. 

    Thankfully, the waiting phase comes to an end and then you can get on with your plan. Hopefully, you'll have clear margins and your tumor will be low grade and low stage.  Wishing you good news!

  • chisandy
    chisandy Member Posts: 11,421

    Beebazboob, welcome. What got me through the waiting till my post-op path report was my sister coming in to visit (turns out she didn't need to “help" me but it was great hanging with her), friends coming over, playing my guitar, going out to eat and yelling at political shows on my TV. Actually, it was a bit more nerve-wracking waiting for the Oncotype DX (10 days) and genetic test results (2 weeks). Stay off Google--hang out here instead.

    Poodles, prayers your DH's surgery went well. I'm willing to bet that the NOLA surgeons will be more encouraging and resourceful. DIEP is a long tough surgery (much of it microsurgery, including arterial grafting), but everyone I know who had it (and some who took their implants out to have it) says it was worth it. Just be sure you can handle at least 7 hours “under." I know that if I have a recurrence in my R breast, that's what I'd pick for recon (with a corresponding reduction in the other breast).

    Triggering is milder and less painful, though I am using Voltaren gel over the bruised area. Hard to keep the band-aid on, but was able to get through my gig okay (I wore compression). Only major foul-up was that my singing partner forgot and left the most crucial part of our Bose tower sound system (the little 4-channel mixer module) back home in Madison, so that we had to make do with one hi-Z vocal mic into a crappy little Crate practice amp and my dulcimers plugged into the Bose's line-in on its base--hardly any volume at all. Nevertheless, because we were singing for a seniors' residential hotel at dinner time, they actually preferred we go unplugged (though only those in front could hear me). And they want us back. Next time, I'm going to keep my little 2-channel busking amp (runs on AC or batteries) in my car just in case. It lacks phantom power for a good condenser mic (which the Bose's mixer module has), but I have a pretty good dynamic mic that--while not as crisp--is plenty loud without distorting. We're seriously considering getting an old-school “Opry" type bluegrass large-diaphragm wide-pattern condenser mic, which would pick up both our voices and our instruments--but we're afraid that it might cause feedback with the Bose. (The Bose features a single skinny column speaker that radiates sound 360 degresss). Sorry for geeking out on you--but maybe someone here will get what I'm talking about.

    Made it to the last 3 courses of the wine dinner, and it was worth it. Unfortunately, Bob didn't--his car broke down on Lake Shore Drive. (The dashboard flashed “Stop car as soon as safe to do so," and using only the hybrid battery he pulled into one of the lots in the park along the Drive. He tried to restart, but the engine wouldn't turn over--only the hybrid battery and accessories worked. He thinks it's the starter. (6 years is about when they start to go blooey if they do, especially in Fords). But from the sound of how it behaved, I think it’s the throttle linkage. Same thing happened to my 2002 Taurus a year before it croaked--it suddenly slowed and wouldn’t accelerate no matter what. Had to pull over and re-start. The dealer couldn’t find anything wrong---but a year later I had the opposite problem: runaway out-of-control acceleration that made me have to stand on the brakes in order to get it home safely. (Which is how I ended up with the Fusion, which then I gave Bob when his Ford Five Hundred died and we bought a Subaru Outback). The tow truck driver arrived and after dropping off the car at the dealer, will bring him home. The driver joked that they're stopping at the strip club first. I replied that if they do, Bob's not getting any of the Sancerre I ordered for him. He loves that little Fusion Hybrid, and is obsessed with getting 50 mpg. with it. But it sits low to the ground and has front-wheel, not all-wheel drive so it's not very practical in snow. I hope I can convince him to get a Subaru Crosstrek (maybe even the hybrid)--it's small enough to fit in the garage with my Outback. All Subarus have AWD, and the Crosstrek has high ground clearance.



  • Molly50
    Molly50 Member Posts: 3,008

    Welcome beebazboob, sorry you need to be here but glad you found this thread. This is the warmest group of ladies you can find. Let us know when your post op appointment is and we'll have a pocket party for you.

  • Beebazboob
    Beebazboob Member Posts: 39

    Thanks Molly50. Post op is Friday, 7/22

    Thanks ChiSandy for suggestions for getting through anxiety while waiting for results. Watched six episodes myself of Love It or List It today! I waited for the genetic test results before lumpectomy and it drove me to the edge!


  • lisey
    lisey Member Posts: 300

    I had a mastectomy, so I really don't belong here.. but BC.org just recommended an article to me that I thought addressed the issue of lumpectomy vs. mastectomy really well for younger BC patients. I wanted to share with you guys in case there is a reader considering a lumpectomy and is young.

    But the chief point is simply that if you are younger than 45, then you really should consider MX rather than Lumpectomies and Rads. That for younger women, L&R's had a much higher rate of reoccurance than getting a MX did. The same did not apply to women over 45. I think the young women getting full BMX, even PBMX are wiser than most realize... I hope this study can add to discussion. I"ll leave now before you all hit me over the head. : )

    Anyway, here's the study. http://www.breastcancer.org/research-news/best-surgery-for-early-stage-may-depend-on-age

    THis study was just put out, in may 2016, and follows 1000 patients for 20 years, which is a long time. They don't address the type of cancer, and hormonals weren't really big at that time either. They acknowledge their issues.

  • Beebazboob
    Beebazboob Member Posts: 39

    Thx mustlovepoodles for welcome and suggestions. Definitely have lots to clean around here between two sons, two dogs and elderly parent with Dementia! (Husband is pretty good at cleaning up after himself. 😀). Hopefully will have a little more energy tomorrow and can do some busy cleaning. Thx again.

  • chisandy
    chisandy Member Posts: 11,421

    Actually, that's a bit misleading--the study didn't “follow" any women, but was strictly retrospective and analyzed 20 years of data that was collected before the epidemiological (population-based) study was initiated. It was not a controlled clinical trial or study--women were not selected 20 years ago, categorized by age (over or under 45), nor randomly assigned to either MX or LX+rads. As the later paragraphs in the study pointed out, other factors--such as the histology of the cancers and other health conditions of those studied (can't call them “participants" because nobody “participated")--were not eliminated, so (buried in the article) was that “deaths" included not just bc but “all causes." Targeted and hormonal therapies were neither analyzed nor excluded.

    I agree that risk-reduction is a prudent course for women with, all other things being equal, a long (up to 40 yrs) life expectancy ahead of them. So MX might be less risky than LX in younger women (especially with denser breast tissue for which radiation may be less effective or conversely, produce more SEs). But I disagree about BMX for women of any age with no disease in the other breast, unless there are genetic or family-history risks. (By “no disease" I mean no ADH, persistent lumps, cysts, DCIS/LCIS, or anything else that could turn invasive. A breast with ADH might warrant removal too if the first breast has invasive disease and needs to be removed). The risk of contralateral bc is still quite low for women who have had bc in one breast--much lower than that of ipsilateral recurrence . There is no reason to remove a healthy breast if there is neither family history nor genetic mutation--except to insure symmetry. Stories abound of recurrences in the same breast even after mastectomy. They may be avoiding radiation and the necessity for future mammograms.....but maybe not. "Peace of mind" might be illusory.

    But for us sixty-somethings and up, 20 years brings us to the brink of when we might have been fated to kick the bucket anyway. I think that if there are to be cohorts studied (assuming anyone is willing to undertake a prospective, controlled randomized study from which there's no money to be made--since pharmacologic therapies would not be a factor to be studied), I would pick three categories: under 45, 45-60, and 60+. I think the “middle-aged" 45-60 cohort needs to be more strictly studied, since that's the gray area between young women with more aggressive cancers and paradoxically longer potential lives ahead of them, and those of us who've long since been postmenopausal with more indolent cancers and maybe 20, 25 years tops left in our lives.

    I am a participant in an ongoing clinical decision-tree study conducted by the Mayo Clinic, in which we were asked first (at initial surgical consultation, before making our decisions) about our perceptions of BCT, MX, BMX and PBMX, then being given statistical information (charts, videos, articles) as to risks & benefits and asked again, and then after choosing and undergoing our treatments what our perceptions currently are--including second thoughts and our ongoing experiences. We will be periodically re-questioned as time goes by. I will probably be long dead by the time the data is released (if it’s a prospective study worth its salt, it needs to follow women for at least 20-30 years).

  • darab
    darab Member Posts: 894

    Beebazboob, welcome is a hard thing to say, but you should know what a great support group you are now a part of! I'm pretty much a newbie as well, although it the last two months seem like forever! I, too am still in the waiting phase although I'm gradually getting results back. I see you're in SD. We used to live in North County, and my daughter is in Carlsbad, My sister was in Encinitas. I found the waiting ws more tolerable if I stayed busy. Took a photography class, met with friends, movies, etc.

    614 and all... Today I got my genetics testing back... all normal, no mutations. Yea!!! Only negative was that before my appt with geneticist, I got a call from my BS' nurse. I'd called a couple of times to get my onco results. I'm really questioning the info I got. Seems City of Hope is not quite the perfect place I thought originally. Sandy, you said you got your onco results in 10 days. Mine are now 4 weeks today and just found out there was a screwup with CoH as well as the lab and they won't be available until the 27th, almost another 2 weeks! The nurse said the BS thought that she could order the test right away after surgery, but medicare says you have to wait two weeks after surgery. (???) She said that because the pathology was sent too early it wasn't processed, and the lab neglected to contact the doctor. I have a feeling that the order only went in this week when I called to pressure them to give me my results. Somehow, I can't believe I'm the first medicare patient. My supplemental is Blue Shield/Blue Cross, but they said Medicare is primary for the test. Anyway, I'm supposed to meet with MO on Monday and have a RO consult next Friday, and I think both will wind up being rescheduled. I just want to move forward and am frustrated. I asked if I can do rads first and then chemo is necessary. I haven't heard back yet. Aarrgghh! The nurse kept apologizing, but I feel like, Come on, it's not like you forgot to order paint!

    On a real life note, I finished up another photography class tonight. This one dealt with LighRoom and a little of Photoshop so I'm having fun playing around with that. My only problem is that I have a MacBook Air and I keep running out of RAM. Have to go tomorrow and buy a new external drive and move all my photos over to that. I thought I could add more memory, but that can't be added after purchase. Oh well, I can make this work.

    Hope everyone has a good Friday. Poodles, good luck tomorrow with DH. We're all thinking of you and sending positive thoughts your way. Everyone be safe.

  • Molly50
    Molly50 Member Posts: 3,008

    Dara, that's just so disappointing!

  • moondust
    moondust Member Posts: 207

    Dara, sorry about the further wait. The smoke is coming out of my ears reading about it! All of these medical offices seem to screw up so often. How can we trust them?

    Welcome, beebazboob. All of these women are totally wonderful and I hope you will be a lasting member!

  • chisandy
    chisandy Member Posts: 11,421

    How frustrating, Dara! I should clarify that my surgery & rads were done in 2015 and still covered under standard insurance, before I went on Medicare Jan. 1, 2016. My timetable was surgery 9/23, first MO consult 10/1--when she agreed to order the Oncotype DX, and I got my results 10/11. To say “your mileage may vary” is apparently the understatement of the year. Another case in point:

    My friend with DCIS had her mammo in early December; it took them a week before she was called in for a stereotactic biopsy and another 3 days before her initial DCIS dx. They wanted to confirm it with an MRI, but since she developed bronchitis (that hospital's MRI table didn’t fit her prone and she had difficulty breathing), they had her wait till her infection cleared up, referred her to a larger hospital which had a larger MRI table, and did bilateral ultrasound in the interim. By then, she decided she wanted a UMX rather than LX, because the DCIS was multifocal, large & grade 3, ER- and located behind the nipple in a small breast which would have made a LX as disfiguring as an MX. The bilateral ultrasound picked up something in the other breast. When she finally went for the MRI at the larger hospital, they didn’t do it--they reasoned that she was getting the first breast removed no matter what, so they suggested an ultrasound-guided biopsy of the suspicious area in the second breast--which revealed ADH. At that point, she decided on a BMX. Then came the surgical consult and the scheduling of the surgery. She didn’t go under the knife until the last week in April! Fortunately, there was no invasive disease and the path confirmed ER/PR-; so no chemo, rads or hormonal therapy (nor DCIS Oncotyping, because that’s only for ER+). But she didn’t find that out (nor that she was bilaterally node-negative as well) until May 10.

    I have decided to demand Prolia rather than Zometa. But if my MO refuses, I will reschedule my Zometa infusion session. I currently have a “trifecta” (labs, MO, infusion appts.) scheduled for Aug. 4. But I have to play an outdoor show early in the morning of Aug. 6, up in Milwaukee. No way I can do that if I am dealing with aching bones, joints, and possibly fever from the Zometa infusion (usually starts no earlier than the second day and can last a couple more days). I will reschedule the infusion for Aug. 8 instead--have nothing on my calendar for that week.


  • pontiacpeggy
    pontiacpeggy Member Posts: 6,339

    Beebazboob, Welcome! You've absolutely come to the right place. We are primarily aimed at those having had a lumpectomy but as you've probably guessed, we cover everything BC. And we love to diverge and discuss food, music, family and challenges, visit, provide information and most importantly, comfort and understanding.. Staying busy is the best way to survive this awful waiting time. Ask your questions and we'll be glad to answer.

    Wave at #1 Son and DIL in SD for me! I miss them terribly. You live in a beautiful city!

    HUGS!

  • Lovinggrouches
    Lovinggrouches Member Posts: 346

    Bee, welcome. Some of us are kind of newbies ourselves, although I feel as if I've been on this journey forever!!

    Dara, my oncotype took about 3 1/2 weeks or so to come in, which was ok because they wouldn't have started rads until I was completely healed from the second surgery anyway. (Hope I'm remembering correctly) The wait time drove me crazy because I was in limbo about chemo, but I was pretty sure because of my high ER and PR, her 2 negative, grade 1 and low ki, I did the online guess thing and it showed me as possible 11 or 12 and it turned out to be 14which was what a lot of women had said that the oncotype usually comes out a few points higher than the online calculator. So glad you have no genetic mutations!

    I enquired with FORCE about their study on genetic mutations that people have with unknown significance and the lady e -mailed me back and said that I may be a FIT for their family study with free testing for family members to see if they also have palb2 gene. My risk is unknown at this time, that's why they didn't push mastectomy. I pray it doesn't turn out to be what they call a deleterious (cancer causing) gene, but it may explain why I got cancer at 41. I have since done a family cancer tree and it's SCARY on my mom's side. There has been breast cancer in last 4 generations. Great grandmother and her 2 sisters had it. Grandmother and 2 of her daughter's, one of their daughters and me. Only reason the younger 2 generations don't have much breast cancer is because there were few girls born. Mom Is on family Facebook page now and is trying to track a few more of my great grandmother's other brothers families and she thinks there are even MORE cancers, ovarian and pancreatic cancers have been found also, and these cancers have all been associated with palb2 gene. If I can do this so that it can help others in the family, I will do it!!! I don't like to feel helpless!!

    Went to 5 week follow up with hysterectomy and taking it easy paid off! I get to go back to work next Friday!! I just started on tamoxifen. Not sleeping and having hot flashes from hell! Got some turmeric and icool to see if they can help, I made sure none of them interact with tamoxifen. Had interesting support group meeting last night. Some of the ladies didn't know about recommendation to take the tamoxifen for 10 years now and I also brought up the subject of hoping they approve the genetic testing so that insurance companies will pay for the tests to see how well people have the ability to metabolize the med. We made handkerchief Christmas wreaths lol! I had fun!

    Sorry I went on and on! Hugs to all!!!

  • Lovinggrouches
    Lovinggrouches Member Posts: 346

    Never been an artsy crafty person, but thought it was cute idea !!

    image

  • Peachy2
    Peachy2 Member Posts: 319

    Beebazboob, welcome! We have all been in your shoes. Watching Love it Or List It is the perfect thing to keep your mind off of the waiting. Or Fixer Upper. Or Flip or Flop. (I might be a bit of an HGTV addict.)

    Dara, so glad to read about your genetics test results!

    Sloan, I'd been wondering about MLP3 too. She lives in the North Shore area near Boston, but also has a house where she spent weekends near the ski areas in New Hampshire. A while ago I checked the member list and her last post was in May. Her Facebook page, The Daily Vegan, also hasn't had any recent posts. Hoping she's well and just needed a break.

    LG, that is a cute wreath. Would be really nice in pink too!

    Poodles, you and your husband are in my thoughts today.

    I celebrated my re-excision-iversary a day late yesterday with my one year follow up with the breast surgeon. She said "It's good to see you looking so well! You are actually done with me now, but please do call for anything. And I do mean anything! I've had patients call me and ask if I know a good orthopedic surgeon." I told her that this makes me both happy and sad at the same time. She's a phenomenal doctor who gave me all the care, empathy, and common-sense direction that I didn't get from the surgeon at my local hospital where I was diagnosed.