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Your Voice Can Shape Clinical Trials | Participate for $100 gift card!
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…
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Interview request: Breast Cancer Screening With a Disability
Do you have a physical or cognitive disability? Have you had any type of breast cancer screening? Breastcancer.org is working on an article about breast cancer screening for people with disabilities. We’re interested in hearing from people with any type of disability about their screening experiences. It doesn’t matter if…
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My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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Anyone starting brand drug, Enhertu?
I have had growth of tumors while on current treatment. My onc and I have decided to try new treatment, Enhertu (FDA approved 12/20/19)! Wondering if anyone else out there is trying or was in trial? Julie
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Lets Post our Daily Exercise
I'm doing the Firm Cardio Step mix and will walk the dog for a mile later today. Lorrie
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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🌟 March 2026 Radiation Roll Call - Support is here! 🌟
If radiation is part of your plan this March, this is your cue to step in and introduce yourself. ☀️ You’ve found your people. Whether you’re waiting on your start date, driving to daily sessions, or already ringing the bell, this thread is your check-in spot. A place for honesty. For “Is this normal?” questions. For…
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So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
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In treatment for TNBC stage 2. Feeling sad after losing my hair
Hi. I was diagnosed on Jan 20, 2026 with TNBC. Since then I’ve been through multiple scans, Dr.’s appts., biopsies, port placement and 3 (21 to go) chemo infusions. I have a positive attitude about it but the hair loss is really hard. I know it’s just hair to many but it has been how I see myself for 65 years now. Like all…
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To take or not to take Tamoxifen
I had to suddenly stop taking HRT after 25 years. Then had a double mastectomy late in Sept 2025 followed by radiotherapy. Since stopping HRT and surgery I have very bad joint pain everywhere. I am 76 years old. I am concerned Tamoxifen will make the joint pain worse. My oncologist prescribed 20mg but I have not started…
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15 years out with new finding
I will be 16 years out from diagnosis on 5/13/26 and had my annual diagnostic mammogram yesterday. Radiologist told me there was a new finding on my non cancer side so he did an ultrasound. It is less than a cm and he stated it appears to be in a duct. Given my history, he wants to do a biopsy which isn’t scheduled unto…
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💗 February 2026 Surgery Roll Call—Let’s Do This Together 💗
If surgery is on your calendar this February—lumpectomy or mastectomy—you’ve found your people. This thread is your meetup spot: a place to show up exactly as you are, whether you’re feeling steady, scared, curious, or all of the above. We’re here to swap questions, share nerves, trade tips, and offer the kind of support…
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Can we have a forum for "older" people with bc?
I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66). I notice that most of the posts seem to be from people younger than I am (often by quite a bit...). I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc. I see that there is a forum for young…
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Lumpectomy
Hi, I have IDC and I just had my lumpectomy. Surgery went well, the surgeon said he only took one lymph node. I do believe he also said that the tissue wasn’t enough to get a pathology report. But it looked normal when he removed it. I have my follow-up appt. Next week to find out more about the next steps. I would like to…
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Hormone Therapy - this counts as hard!
Shared with gratitude to the original author, Kylie Dahl. Expressing what so many of us feel but aren’t always able to put into words. “No one warned me that this part could hurt like hell. I’m on Herceptin and a hormone blocker, and the joint pain is relentless. Hands, hips, knees, shoulders, back, feet stiff, aching,…
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Joint pain on Trastuzamab (Kanjinti)
Hi everyone, I completed 12 weeks of Taxol + Kanjinti at the end of January. Since then I have received 2 Kanjinti infusions, and will continue with these every 3 weeks until November. I am wondering if anyone has experienced joint pain in their elbows related to this treatment? Both of mine ache, especially after sleeping…
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💛 February 2026 Chemo Check-In—This Is Your Circle 💛
If chemo begins for you this February, you don’t have to walk into it alone. This space is here so you can land somewhere soft, honest, and understanding—surrounded by people who truly know what this chapter can feel like. Come as you are. Brave, anxious, exhausted, hopeful, unsure. All of it belongs here. We invite you to…
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how about drinking?
Where did our thread go? Is anyone out there from our drinking group? Did I miss something - like we became too offesive or ...well, drunk? I would love to hear from you gals! Janie
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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💗 March 2026 Surgery Roll Call—Join here for support! 💗
If surgery is on your calendar this March—lumpectomy or mastectomy—this is your place. 💗 Consider this your official roll call. Whether you’re calm, overwhelmed, full of questions, or riding every emotion at once, we want you here. Post. Introduce yourself. Let us know you’re counting down the days. This thread is more…
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Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…