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Weigh in: What are the best and worst gifts for people with breast cancer?
If you've been diagnosed with breast cancer, what were some of the most meaningful gifts you received, whether material or non-material? Were there any gifts or offers that weren’t helpful? And if you're a caregiver, what gifts or gestures have you given that seemed especially appreciated? Share your suggestions and…
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What do you want from your caregiver(s) after being diagnosed?
November is National Family Caregivers Month. We thought it might a good idea to share here what you might want from your caregiver(s) so they know how to best support you through your breast cancer experience. So, what are you looking for from your caregiver(s)? Information, emotional support, help with daily tasks,…
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What do you find most difficult about caregiving?
November is National Family Caregivers Month. We'd like to take a moment to acknowledge the challenges our caregivers face and show them some support. As a caregiver, can you share with us what you find most difficult about caring for a loved one with breast cancer? Take our poll and elaborate in the thread below!
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How to fill out your Profile to let others know more about you!
Our community is built on connections and shared experiences. So, we’re excited to announce we’ve made it easier for you to learn much more about each other with our NEW Member Profile! Filling out your profile benefits you and others by allowing registered members to compare your information with theirs and create a…
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MBC Caregiving Partners Virtual Zoom Meetups every other Tues at 4pm, ET
Hi All, Reminding you that we offer a free caregivers meetup for partners of someone with MBC every other Tuesday. If you are a caregiver, or have a partner who you think could benefit, please share. We meet every other Tuesday at 4pm, ET. People need to register here to participate:…
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In Treatment? Join us on Zoom, Tues & Thurs weekly!
Hi Everyone, We have created a weekly virtual support group for all who are planning or going through active treatment. If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
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Tumor marker results and changes truqap
I have stage iv metastatic breast cancer in my bones. Multiple sites. I was on ibrance. Now on Truqap. . My tumor markers jumped 25 points recently . My oncologist does not seem very concerned. What kind of jump have you had that the oncologist was concerned about?
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Nobody told me...
In the last week of September in 1999, I was first diagnosed with breast cancer. After 8 months of chemo & 8 years of Tamoxifen, I thought I was done with that battle. Last fall, I began to have severe joint pain. 6 months of going from one specialist to another found no diagnosis Then in a routine scan for an unrelated…
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My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
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Setting off Airport TSA scanners
This is an out there question but has anyone’s cancer ever been flagged on the airport tsa scanners. In the last year I have flown about 6 times and every airport to/from my trip highlights my abdomen. I have to get my stomach patted down. I finished treatment for triple negative in 2016 but every ache and pain still makes…
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My Chemotherapy Journey
My infusion nurse suggested I make a journal so I will do it here hoping people can find information that may be helpful to them. Let's start: June 11 - port placement. It went well, I guess. But not sure if there was an injury with my surgeon. I saw him discussing something with the nurse like his finger got pricked or…
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Long Shot - DIEP experience with Drs. Cacioppo and Cohen in Indianapolis?
I am currently undergoing delayed reconstruction with tissue expanders. My first plastic surgeon left the practice and I was transferred to Dr. Jason Cacioppo in the same practice after my first two or three fills. My current PS seems to think that my 400 cc expanders are likely too small for my frame (and I tend to agree,…
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Lets Post our Daily Exercise
I'm doing the Firm Cardio Step mix and will walk the dog for a mile later today. Lorrie
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Can we have a forum for "older" people with bc?
I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66). I notice that most of the posts seem to be from people younger than I am (often by quite a bit...). I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc. I see that there is a forum for young…
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So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
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Just received my Pet Scan results
Hi everyone, I have unfortunately been on this site for 9 years now. Diagnosed with early stage in 2015. Then had a recurrence in 2022. Yesterday I had a follow up Pet scan and the indication says "New hypermetabolic abdominal, pelvic, and thoracic lymphadenopathy, presumably reflecting metastatic disease." I briefly spoke…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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how about drinking?
Where did our thread go? Is anyone out there from our drinking group? Did I miss something - like we became too offesive or ...well, drunk? I would love to hear from you gals! Janie
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Stage IV NED crew : lets support each other
Well, I'm now a stage four NED girl, and would like to connect with other stage four people who are also in remission. Could this be a thread for supporting us all through the complex world of stage four remission, check ups and routine scans, anxiety, side effects, ongoing treatment, expectations from family and…
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Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
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Illinois ladies facing bc
I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you? I thought we might be surprised to find somebody right in our own back yard that could use some…
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IBC lounge: roll call, support and just a good place to hang out
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are: I'll go first: dx June…
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Painful lump in left breast, what should I expect?
Hello everyone and thank you for taking the time to read my post! I had my first ever lump in my right breast 3 years ago, it was easy to feel its shape and it never hurt, and moved somewhat easily. It turned out to be a mass of fribrous tissue. This time I have a lump in my left breast, and it is very different from last…
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Lump in nipple of nipple sparing mastectomy
Hi! I’m wondering whether there are others who have had a nipple sparing mastectomy that developed a lump in that nipple and it wasn’t something to be concerned about? I’m two years out from surgery and have a hard lump right in that nipple. There has been some gunky white stuff that has come out too but I think that is…
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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Anastrazole
Hi! I have a question about how anastrazole works. I am taking lupron for ovarian suppression and anastrazole because I'm premenopausal. When my estradiol was checked before starting anastrazole, it was 11. When it was checked yesterday, after being on anastrazole for 3 months, it was 19. I'm confused as to why it would be…
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DIM and hot flashes
Anyone take DIM? Its helping except im experiencing hot flashes while on it. Anyone have experience? I have the headaches and body aches but didnt expect hot flashes. How do i know if it lowers estrogen too much or if it’s just an estrogen flush out effect? Thanks!
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Architectural distortion
I had my first mammogram ever in September with no history of breast cancer in my family. They called me back in for a diagnostic mammogram and ultrasound. The doctor then came in and told me that even though she was scheduling a biopsy I would be having surgery no matter what. She said that the biopsies aren’t always…
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ADH Club
Can we start a thread on ADH (known as atypical ductal hyperplasia)? There may be one already existing, but without a lot of hunting around, it's not easy to locate and may not be recent. I'm 51 and have (had) no risk for BC other than being a female - non smoker, no immediate BC in my family, I'm fit, I exercise, eat…
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All about Xeloda
I will complete my first cycle of Xeloda today (2 weeks on; one week off). I have already noticed some signs of HFS on my feet. Sometimes they are red and feel hot. I've had some minor skin peeling, but not any blistering. The heels are the worst (the most sensitive) and it is uncomfortable to walk. I hope I get to see the…
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How are people with liver mets doing?
I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely…
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Newly diagnosed and in treatment can’t sleep enough yet
There is so much to know and the only one I’m trusting is the oncologist. The tests are factual but there are too many initials and I haven’t memorized what they all mean. There’s a super supportive team at the High Risk Breast Center but I don’t yet fit in. The less professional employees aspire to be in the know but they…
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thread for middle age to older Christian women.
I would like to start a forum to meet other middle age or older women who have bc and love the Lord. Try to live your life for him, walk the walk and talk the talk. Of course we all fall from grace because we are human but we are covered by the blood of Jesus. Also this forum is for people who has a large enough vocabulary…
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Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…