Recent Discussions
Discussion List
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In Treatment? Join us on Zoom, Tues & Thurs weekly!
Hi Everyone, We have created a weekly virtual support group for all who are planning or going through active treatment. If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
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Welcome to the new platform
Welcome and please check out our comprehensive user guide or Send a private message to the moderators. ❤️
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What's new at Breastcancer.org
Our community forums have relaunched with new ways for members to find emotional support, share their experiences, and learn from the wisdom of others who are also facing breast cancer. New ways to connect, share, and learnThe relaunch of the Breastcancer.org community forums is the start of a new day for our members who…
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Watch: 2 New Videos to Get Started
An overview of the new discussion forums:How to access and edit your Profile, add and edit your Post Signature, and adding your AvatarWe hope this helps!! —Your Mods
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3 steps to get started in the new forums
Please read these important tips that will help you to get started, and check out the comprehensive User Guide to answer many of the questions you may have. If you'd like to re-upload your previous profile image (avatar), go to Profile Dashboard to get detailed instructions on how to find and re-upload your photo. To copy…
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How to best use the discussion forums
Some quicklinks to resourcesWatch some videos to help you get started: Forum overview and Updating your Profile, post signature, and avatar Check out our extensive Community User Guide. Check out our FAQ. Read our Helpful Tips for How to Best Use the Forums. Having a technical issue? Report a problem. Have an idea or…
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Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
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Any stage IV surviving 5+ years ?
When you look up stats for stage IV they’re dismal, yet I continue to see lots of longer term survivors on this site. Some were given a year or two. Would love to hear how many are there and how life’s is for you. I’m coming up on three years and just failed with letrozole. MO says plenty options sti
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Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor
Those with HR+, HER2- MBC may find this interesting! The Phase 3 SONIA study of 1,050 patients with HR+, HER2- MBC evaluated progression free survival (PFS) and overall survival (OS) from the initiation of first line treatment through failure of second line treatment. It compared two groups of patients. One group took the…
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The Next Person Game
In this game you make a statement about the next person. The next person answers true or false to that statement. They then make a statement for the next person, and so on. Example: If the person before me stated - The next person owns a dog. I would answer - True - and add my statement - The next person has curly hair.…
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This word reminds me of....
It is basically a word association game. I will post the first word, the next person posts what that word reminds them of and so on. First word 'Snow'
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Prior calcifications, now bloody discharge
Hi all, I know this is not a board for medical advice, I guess I just needed to write this down in a place where people would "get it". I'm in my early 40's, two years ago my annual mammogram came back with a cluster of microcalcifications in my right breast. I had a follow up diagnostic, and was categorized as BIRADS 4.…
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thread for middle age to older Christian women.
I would like to start a forum to meet other middle age or older women who have bc and love the Lord. Try to live your life for him, walk the walk and talk the talk. Of course we all fall from grace because we are human but we are covered by the blood of Jesus. Also this forum is for people who has a large enough vocabulary…
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Lets Post our Daily Exercise
I'm doing the Firm Cardio Step mix and will walk the dog for a mile later today. Lorrie
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So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
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Can we have a forum for "older" people with bc?
I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66). I notice that most of the posts seem to be from people younger than I am (often by quite a bit...). I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc. I see that there is a forum for young…
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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IDC diagnosis this morning
Hello, have just learned my biopsy was positive for IDC. First meeting with breast surgeon May 10th. I don’t have my biopsy report yet. I know from my mammo it is 0.5x0.6x0.5. The nurse said pathology shows er+ but pr-. HER status not yet known. This all started from a 6 month diagnostic. Pretty scared.
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My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
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BCO In Memoriam thread, Part 2
(The original BCO In Memoriam thread started by Milica has gotten too long and is difficult to load or make additions. We need to start Part 2 of this thread, starting 5/3, 2023 to make it easier to load in this new platform. The Original thread (Part 1) will remain and can be accessed for viewing but will not allow for…
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Starting Chemo in May/June 2023
A place for you all to gather and share. We're all here for you!
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CT and Lung Nodules
I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…
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Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
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fat necrosis
I was diagnosed with breast cancer back in December. I had lumpectomy in January and started radiation 8 weeks later. During radiation i felt like I did pretty good besides the sunburn like feeling and look. I felt i was recovering good. Now in the last couple of months i been in really bad pain. It feels sore under my…
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Burn under arm 4 weeks into radiation treatment
so I am getting a little worried here because I’m supposed to be getting radiation therapy to both my left and right breast. Now on the left side, they are radiating the nodes under my left arm and by my collarbone. I had a mastectomy on the left side back in January and immediate reconstruction with an LD flap. My right…
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Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
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mets to lung
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all barb
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Spring surgeries
wondering if there are any other April or May surgeries? Just recovering from my late April mastectomy.
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Getting more Information
I now have a little more information and it helps with decisions. I am stage 2a with er+90% pr neg her2 neg and Ki67 up to 90% ( not sure what that means) My oncologist is sending the biopsy off to get the Ocotype. I do not want to do chemo because of the major side effects. My surgery is being pushed back because of…
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Stage 4- Docetaxol (Taxotere) Treatment
Last week, I started a new-to-me IV Chemo after progression while on Doxil. I have searched the Stage 4 posts but not finding much so wanted to have a thread to post my “story” to allow a place to ask questions as well as posting experiences, hoping to help others if they move to Docetaxel, too.
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2 Word Phrase
This game has the poster making a new 2 word phrase starting with the second word of the last post. Only Two Words! Example: Post : Hand out Next poster: Out cast Next poster: Cast Iron Next poster: Iron Age Now let's begin the game~ Age Old
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Starting chemo April 2023
I didn’t see a thread for this so I was hoping to find some chemo buddies. I just found out today that I will start chemo next week. I am an American in Finland and had an occult 11mm ER+, HER2+ IDC tumor found in my final pathology after my mastectomy 4 weeks ago for 9 cm of DCIS. As an added surprise, one sentinel node…
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Talk me off the ledge
I'm just about 1 year out from my Stage 1 diagnosis. Had a double mastectomy last July with reconstruction. Tissue expanders were exchanged for implants in November. Had to have a bit of fat grafting/scar revision this past April. Just after this last surgery, I felt a small lump just above my implant. At the time, I…
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Has anyone quit or reduced dosage of the hormonal therapy?
I am considering to quit, after taking Tamoxifen for a year, Letrozole for three months, then Exemestane for a month. Side effects, especially joint pains and fatigue, get worse and worse and have come to the point to make me think if I should quit. Or, would there be any option of reducing dosage, like taking every other…
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Is seven weeks too long to wait for radiation after lumpectomy?
I had my surgery on May 4th and can't even get in to see a radiologist until June 9th. The front office said radiation would usually start two weeks after this visit. I'm concerned as everything I've read said ideally radiation should start 4-6 weeks for older people (I'm 60) to prevent reoccurance. Has anyone else had to…
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Calling all triple negative breast cancer patients in the UK
With so many forums and threads on this site to go through for information, I thought it would be a good idea for all of us in the UK to form a forum specifically for us, and to give our details and experiences in a compact manner. Anyone else in the world is welcome to join in. I was diagnosed with a very large tumour,…
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Popular Tags
- Meet-ups 12
- tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox) 11
- Invasive Ductal Carcinoma (IDC) 10
- Anxiety 9
- Breast implants 9
- Ductal Carcinoma In Situ (DCIS) 8
- Bone metastasis 8
- Taxol (paclitaxel) 7
- BRCA2 6
- Verzenio (abemaciclib) 6
- Triple-Negative Breast Cancer 6
- Lumpectomy vs. mastectomy 5
- Brain metastasis 5
- Triple-Positive Breast Cancer 5
- Depression 5
- Xeloda (capecitabine) 4
- Post-Traumatic Stress Disorder (PTSD) 4
- Metastatic Breast Cancer (MBC or Stage IV) 4
- Piqray (alpelisib) 4
- Kisqali (ribociclib) 4
- Herceptin (trastuzumab) 4
- Faslodex (fulvestrant) 4
- Hormone receptor-positive HER2-negative 4
- Ibrance (palbociclib) 3
- Arimidex (anastrozole) 3