-
Weigh in: What are the best and worst gifts for people with breast cancer?
If you've been diagnosed with breast cancer, what were some of the most meaningful gifts you received, whether material or non-material? Were there any gifts or offers that weren’t helpful? And if you're a caregiver, what gifts or gestures have you given that seemed especially appreciated? Share your suggestions and…
-
MBC Caregiving Partners Virtual Zoom Meetups every other Tues at 4pm, ET
Hi All, Reminding you that we offer a free caregivers meetup for partners of someone with MBC every other Tuesday. If you are a caregiver, or have a partner who you think could benefit, please share. We meet every other Tuesday at 4pm, ET. People need to register here to participate:…
-
In Treatment? Join us on Zoom, Tues & Thurs weekly!
Hi Everyone, We have created a weekly virtual support group for all who are planning or going through active treatment. If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
-
Anyone have 2 different BC diagnosed at the same time?!?!
I had originally been diagnosed with ADH with papillary changes. Was told it was "uncommon and complex". Decided to go to MDA for second opinion. 1 month later they redo my MRI and find thr ADH area is 10 cm and diffuse, and second breast now has NME. Biopsy determines 10 cm is DCIS grade 3, ER/PR+/HER2- and other NME is…
-
De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
-
BRCA2 negative and now positive
Hello, I was first diagnosed in 2015 with early stage IIb. I had genetic testing done at the time and was negative for all mutations including BRCA1 and 2. I had a recurrence in 2022 and I had the Caris test done on the tumor and again no BRCA found. Just within the last month I had a PET scan turn up some swollen lymph…
-
BRCA2 negative and now positive
Hi I posted this in Genetic testing but thought I would post her too. Hello, I was first diagnosed in 2015 with early stage IIb. I had genetic testing done at the time and was negative for all mutations including BRCA1 and 2. I had a recurrence in 2022 and I had the Caris test done on the tumor and again no BRCA found.…
-
Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
-
My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
-
Can we have a forum for "older" people with bc?
I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66). I notice that most of the posts seem to be from people younger than I am (often by quite a bit...). I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc. I see that there is a forum for young…
-
So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
-
how about drinking?
Where did our thread go? Is anyone out there from our drinking group? Did I miss something - like we became too offesive or ...well, drunk? I would love to hear from you gals! Janie
-
My Chemotherapy Journey
My infusion nurse suggested I make a journal so I will do it here hoping people can find information that may be helpful to them. Let's start: June 11 - port placement. It went well, I guess. But not sure if there was an injury with my surgeon. I saw him discussing something with the nurse like his finger got pricked or…
-
Abnormal ALP level
My ALP level is 134 and the cut off point here for a normal level is 130. I have to have it tested again on Christmas Eve... Do you think it is a sign of metastatic spread to bone? My other liver enzymes were normal. This is the first time that my ALP has been abnormal, so I am very worried and I have convinced myself that…
-
Letdown feeling with discharge
Hi everyone, I am 36 years old, 6 years post hysterectomy. A couple weeks ago my breasts both started to become very tender, like they do when you start producing milk. It’s gotten bad enough it hurts to take my bra off, or rub up against anything. Today I had the letdown feeling. Went to check and I had a small amount of…
-
Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
-
Triple Negative Breast cancer with brain metastasis
My wife was on Trodelvy and showed no progression in the body and brain during the last scans. But her latest MRI is showing new brain Mets though she’s asymptomatic and the doctor is wondering if they should stop Trodelvy. Has anyone had this situation with your loved ones and has Trodelvy pumped straight to the brain via…
-
Long-term survival of DCIS patients without radiation or hormone therapy
I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS
-
Lets Post our Daily Exercise
I'm doing the Firm Cardio Step mix and will walk the dog for a mile later today. Lorrie
-
ER-, PR-, Her2+ Roll call
Hello everyone My mom was dx in November 2010. She is in her Chemo courses and only 2 sessions left. She is so well now and is very hopefull.My little niece makes her so happy and she is planning for the ceremony of her first birthday. Since she was dx I've explored in this site in different cathegories but sisters with…
-
Stage 2 Sisters Club
Welcome to the newly formed Stage II Breast Cancer Club! And Thank You Mods for facilitating its creation.
-
A place to talk death and dying issues
This post is for those of us with concerns and issues about death and dying to talk about them. IF YOU CANNOT HANDLE IT, THAN GO TO A DIFFERENT POST PLEASE. We do not need people telling us to live life or to hear that other people have lived a long time, we have concerns. We are living life and would like for our…
-
Trodelvy - Looking for positive feedback
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
-
Anyone have acceleration radiation?
Hi, I'm new here. My biopsy result was DCIS stage 0. A lumpectomy was performed, my surgeon said no further surgery is needed. Radiation is next but the thought of five days a week for six weeks depresses me. Has anyone did the acceleration radiation? I could handle that to shorten treatment. Can we firmly request it or…
-
thread for middle age to older Christian women.
I would like to start a forum to meet other middle age or older women who have bc and love the Lord. Try to live your life for him, walk the walk and talk the talk. Of course we all fall from grace because we are human but we are covered by the blood of Jesus. Also this forum is for people who has a large enough vocabulary…
-
Verzenio stage 2 or3
Has anyone taking Verzenio that is stage 2 or 3 done a dose reduction? Does anyone know if a dose reduction affects the effectiveness of it when taking as a preventative when you are stage 2 or 3? I talked to my physician and pharmacist about a possible dose reduction due to issues with D. The D is not terrible for me, but…
-
Lumpectomy vs. Mastectomy
Dear all, I was diagnosed 2 months ago and I am getting anxious about not having had surgery yet, but I am still confused. I have a IDC, estrogen and progesterone positive and Her2 negative. Around 11mm. Ki65 of 5%. They had to do 3 additional biopsies but they all turned benign. I am 45. I have dense breast, which are…
-
Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…
-
Starting Chemo September and October 2024 Support Thread
Join us here to support one another, share experiences, and ask questions. We're all here for you. What is the type of chemo and regimen you'll be doing? When do you start? Share your thoughts and get support!
-
Illinois ladies facing bc
I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you? I thought we might be surprised to find somebody right in our own back yard that could use some…
-
Need a little encouragement, advice, feeling a little sorry for myself and frustrated...
So, I had a mammogram in June (first if 4 years, I know, not the best but I hate doctors). Came back that I needed to follow up now with another mammogram and ultrasound. Had that done in July with a reading of benign breasts with moderate fibrocystic changes. BIRADS 2 - BENIGN. I read every "cyst's" dimensions and they…
-
Hat
does anyone wear a wig or a sleep cap
-
Joint pain
Has anyone on Anastrozole had knee joint pain in the middle of the night? I have severe knee pain but only between 2-4am every night. Very odd since I have no joint pain any other time of the day.