Lumpectomy Lounge....let's talk!
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lumpectomy done. Not too much pain. They gave me Percocet for home but even if I just take one I get dizzy.
I peeked under the binder today at first I freaked. I thought my nipple was gone but it was under the gauze. Hee hee
I did not get to talk to the surgeon after but she told my husband it went well. My right boob appears to he about 2 sizes smaller and due to the swelling it is sitting up nice and perky. ( kind of nice change) she said before surg she would be removing about an apricot size. Which is almost the size of my boob. No drain needed and she felt it was far enough away from lymph nodes she did not take any out for testing
Now I just wait for the results. I guess I all ready know it's precancerous but I guess I will need to know if it's anything else
Honestly the pain really just feels like I had a really good chest workout including push-ips and pull-ups. The only irritating part is not really pain but a bit of burning . And my throat from the tube
And I have no appetite I did not have any nausea I'm lucky like that . So this was my first surgery ever in my life. And the first time ever being put under and the first time ever taking an antibiotic.
All and all the experience wasn't bad
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Well, that's cuz we were all in your pockets partying away and rooting for you. We kept a close eye on what they were doing too. We were a bit disappointed by no cute butts to check out. You didn't tell us your surgeon was female!
No. In all seriousness, I'm glad you came through it okay. Just remember not to chase the pain. If it starts to ramp up, take your pills. It is much easier to get rid of pain before it becomes unbearable, than it is to chase after it.
Hugs'n'kisses
Deb
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i did make a note to self for next time: always wear granny panties...there was a lot of butt exposre
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so i was able to glance at my pathology. it said clean margins no signs of malignancy size of lump 4.4x3.3x2.7
what will they do next? ALH ///does it mean they got it all
is this one of those we just monitor or am I done?
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Welcome v8grlrl- sorry about the tong...but after all the girl pics what's a bit more skin...yeah big girl panties!
Congrats on clear margins! Yes, that means the c was surrounded and out with nice clean margins. Now breathe, and enjoy your weekend with a few pain pills as needed.n your BS will review the path so don't get ahead of yourself...try and let the hazy lft ...you did it and you will have a plan very soon.
(((Hugs)))
Cindy
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rm lulu,
so here's my question. if they got it all out ie: clear margins. is that it? I dont have to worry as much? or will they want to start me on temox?i am editing this post. it says nothing about clear margins...it says margin evaluation grrr
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V8grrl - not knowledgeable on AHL...each of our pathologies drive our individual corse of treatment.
If you're ER/PR + than a hormonal most likely will be in your future. So review your preliminary path report from biopsy with the understanding your path report...than write down questions fir your BC team.
Clear margins mean BS got the t plus acceptable area around was clear if any additional c...so got it
Breathe, focus on today...healing...and just bask in successful lx! Baby steps...answers come with complete path report ...
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V8grrl - you are one amazingly healthy person if you have never had an antibiotic. Hope that bodes well for your future health too. Sounds like you are doing great and should have a good weekend. After a c-section my nurse came to tell me "there are no trophies for not taking pain pills". Be sure you are comfortable. Relax. Get a little pampered.
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hi ladies...is there anyone on this board who kept lumpectomy with LCIS , ILC ... 3/ 11 positive nodes? I am stage 2 a...had a few small tumors...5 mm...LCIS throughout right breast...I am in my 4 th chemo round... Will end June 2 with 6...then radiation...tamoxifen...I am 54 and DO NOT WANT BMX...which my surgeon has suggested... second opinion breast surgeon says I will be ok to keep lumpectomy...going for 3 rd opinion Monday and then back to my general surgeon Wednesday for one last discussion before I meet with my radiation onc....anyone in similar boat? I just need more reassurance on percentages from the docs....Thanks! Rosie
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Rosie, if you look at my profile we are in a very similar place. I had one of 4 nodes positive and oncotype score of 20. My surgeon assured me the lumpectomy was good because there were good clear margins on what they removed. You are a couple of months ahead of me on this awful ride. How is your chemo going now that you are in the 4th round? I just completed round 2 and it was worse than the first...
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hi v8grrl...I was diagnosed with ALH IN 2004....fast forward 10 years...LCIS...ILC with 3 positive nodes...for me, my husband and I gathered past mammo reports from 2004 to present...read thru pathology report and then had questions for my surgeon post lumpectomy visit, which was a week later. Have questions ready...and take someone else with you to write down what is being said...( my husband turned on recording on phone in his pocket for me to listen to later). My surgery was january 3rd...I recently got on this board and have learned so much...only researched on American cancer society and ncis site...just prepare your questions and ask for surgeon to explain!! Anything pending, like mine had, should be questioned I think. Good luck ! Rosie
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hi longislanl8y...I have been doing ok as I was terrified of being so sick with throwing up but that doesn't happen thanks to those pills...my 4 th one just made me tired longer...so after my neulesta shot day after chemo...I get super tired and achy but aches were better this time...I too one Claritin and another half at night so it helped me I think...the tiredness is the worst for me...oh, this time I got the cough that lasted longer and felt more like asthma so I went to see onc a week after treatment...I was fine he said...everyone is different as well as treatment...I have TAC... TAXOTERE andromycin and cytoxan...every 21 days...June 2 is my last...woopwoop, they say to drink 100 oz. so I start that regime 4 days before chemo and making sure I really get that much the day before and 2 days after...it's hard for me! But I think it helps...the symptoms may just be a little longer...I think I am good if I don't throw up!! Lol...I hate that! So, good luck and make sure to drink a lot! Rosie. Also...I was told to call doc with anything that feels bad...he changed my dosing because of a rash on my foot...you wouldn't think that's a big deal but it helped!
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I have been to my PCP since I asked the question about the knot due to the internal radiation. She felt I should go have a breast MRI and scheduled it at the same location I had one before my surgery. I have medicare with a secondary insurance. Due to the fact that I have only had Medicare a few months I am just learning. My secondary Cigna said the request was pending so I cancelled the MRI until we get this straightened out. Cigna didn't have me as having Medicare in one of their systems and Medicare didn't have me have a secondary. I think we have gotten this fixed. I don't want to have an expensive test and then find out I have to pay a lot of money. I have always had trouble with cysts and it is really beginning to hurt. I got a letter from Cigna that was sent to my PCP that asked several questions. Really! I really don't want to have anything else done but I really couldn't tell you if there was any other knots in my left breast due to this knot from the internal radiation. Can anyone give me any suggestion when it comes to tests with Medicare?
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hey...regarding onc test...I had that question on this forum , as I never had one and only was told chemo, then radiation, then tamoxifen....but I believe if you have any positive nodes, course of treatment is definitely chemo...for me he " threw the book at me" as I am young, 54, and 3 positive nodes out of 11...clear margins...one was close but clear at 1.5 cm and I believe they like it to be over 2 cm, but my surgeon did not try to re excision for that....I had a few small tumors the largest being 5mm...all under 1 cm...I guess that's small??? I am happy I found lumpectomy lounge...anyone struggling with the decision of keeping lumpectomy or having mastectomy of any kind?? Thanks Rosie
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I keep hearing about onco type scores!!!!!! What the heck is that???? I don't remember ever hearing one mentioned. Is it something new????? My dx was in 2009.
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jramick,
It is a test they now can do on the tumor cells that can determine the possible chance you could have a recurrance of the BC. Oncologists use it to determine if you should have chemotherapy or not.
Vickie
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My oncologist sent my tumour to California where they sliced it into 15 slivers and did 'stuff' to it. They discovered that A my tumour would not respond to chemo and B that I was 28% prone to a recurrence. That's cuz of er+pr+. Her-. So...rads and tamoxifen here we come. unfortunately I am finding the SE's of tamoxifen really hard to deal with. Lots of people have no problem with it but I'm not one of them.
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Had my lumpectomy surgery on April 14. I'm now waiting for the Oncotype results because of the Grade 3. Seeing the RO on Monday and I'm thinking I'll be getting tattooed. MO next week. Chemo is a definite possibility?????
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Ohiofan, you and I have the same stats. If you don't mind saying, where in Ohio are you?
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crap crap crap.
Met with my MO for the first time last week. All along we were told "this is a case of radiation only." Yeah, NOT SO!!! I'll be starting chemo.
crap crap crap!
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hello everyone, I had my first chemo treatment and I have to say this week has been a hard one. Reaction to the Taxotere..wooo that is awful on me but not complaining could still be worse. I will see how I feel going into week 2 after starting treatments. Just taking one moment at a time right now and go from there.
Hope everyone is doing well and you have wonderful day! :-) Hugs and blessing for all
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For All the Newbies- Remember to Breathe, write down your questions to ask your doctors and nurses. Yell if you need to, cry when you need to , but most importantly don't let others tell you how to feel. There is light somewhere in your tunnel.
For those continuing with treatment best of luck.
debster- Don't know what chemo you are taking but if you are Taxotere this link is good place for resources
https://community.breastcancer.org/forum/69/topic/800978?page=103
I had a hard time too.
I just got the "full spay" two weeks ago before I start my final journey of Femara. I so want a vacation.
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lespring - so sorry to hear. Same shit here. I hear this story wayyyy too often. I don't know if they just want to keep us in a positive frame of mind or what, but if you ask me they paint too rosy a picture, all but guaranteeing us an easier treatment and outcome only to pull the rug out from under us. Chemo sucks but we'll get through. I just had my second infusion this past Tuesday. If you want some insight hop over to the Starting Chemo in April 2014 board. There you might find answers to some questions on your mind, and get an idea of what to expect. Best of luck to you.
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lespring, I think that may happen to me, too. My family wonders why I always expect the worst.......
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Jramick, from what I was told they don't do the oncotype score for TNBC.
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I just found the lumpectomy lounge. I just had a lumpectomy last week. My BS said she removed all and the margins. She removed 2 sentinel nodes and said they didn't look suspicious. However, we still have to wait for the pathology report. She mentioned in her first office visit with me I will need about 4 weeks of radiation to make sure they kill every lingering cell. Also, I was concerned about the HER2 +, but her nurse said that once they did the lumpectomy, they will have a better idea of what may be fueling it because they will be dealing with a larger piece. Does anyone ever have radiation and it stops there? My appointment with my BS is next week. I guess I'll have the answers then. Can anyone tell me what questions are important to ask? Thanks and hugs to all.
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Mary,
I had my lumpectomy (medical people told me it was a partial mastectomy). I had the internal radiation twice a day over 5 days. Now am on Letrozole (Femara). Been 2-1/2 years now.
Good luck!!! Waiting for results and what they suggest for treatment is very hard.
Vickie
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Happy Monday Lumpies!
Mary - welcome to the lounge! Everything comes in bits and pieces so breathe. Now is time to heal and enjoy family and friends and catch your breath. This site has great questions to ask...your nurse is right...waiting for the final path to firm up your game plan.
If you are her2+ there is the strong possibility of chemo so check out the Her2+ threads than rads. Do you know if you are ER/PR + or - ...if positive than hormone therapy...check out our your preliminary pathreport which may have some answers.
Breathe, heal, renew, and just relax during this healing time... your plan will come into focus soon...so until take a no c vacation. Really between each step in treatment take a no c vacation and walk away from discussing and just try and get back your groove...it really helps clear the mind and strengthen your body spirit and mind
In your pocket
(((Hugs)))
Cindy
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FairyDogMother thanks I will check out the link it is kicking my tail!!! I keep waiting for it to ease up and prepare for the second swoop to move in.like they told me it will happen.... Have a great day everyone! Hugs to all :-)
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Hi Everyone,
My lumpectomy was 1 week ago. Why am I not feeling myself? My appetite went downhill. I lost 7 lbs since I was first diagnosed in mid April. I feel fatigued and I have loose bowels with yellow mucous. (sorry that's gross to talk about). My post op appointment is coming up this week. I will know what the plan of action is. My Mom passed away from lung cancer and I am coughing to see if I am coughing up blood - ugh. Actually, in the afternoon only, it looked a little pinkish. Not in the morning or evening - just afternoon - and not all afternoon. I'm wondering if I am just going nuts with all this. Then I'm feeling for lumps in my neck - like my mother had. Thank God, I don't feel any. I just want to feel better - does this take time? I was told by my BS and 2 radiologists that it is small and early. I'll get the full report this week. Please help ladies.
Hugs
Mary
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