Lumpectomy Lounge....let's talk!
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Yup--the only wireless pull-on/step-in bras I've been able to stuff my girls into are the Puma 2-pack in 2XL from Costco.
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My niece is a jogger, and when she wears a sports bra it's always much smaller than she is. The intent is to smush, and keep movement to a minimum. She used to run marathons and I've seen her sports bra that I couldn't get into (I'm an A, she's a D). She used to have her mom help her. Hers were for true sport, not casual wear.
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The more "veteran" LX ladies here have heard this before, but when I was getting my LX, I wore a 38 or even 40 I bra. My surgeon's NP warned me not to freak out if I awoke in the recovery room swathed in giant ACE bandages. When I awoke, I was relieved to find that not to have been the case. Instead, "Thelma & Louise" were stuffed into (and flowing over from) a white high-back Royce surgical bra--size XL. (The site says that should accommodate up to a 38D. Hahaha). I was so happy to be able to discard it after 48 hrs. For the first three weeks or so, I just wore Amoena shelf-bra camisoles in size 18 or even 20. Still have them--use them with bikini bottoms for swim.
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Yeah if I can get a sports bra over my shoulders, it's not going to do anything for my breasts when running. My sports bras have adjustable shoulder straps, and chest strap and my breasts do not move.
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I'm contemplating a lumpectomy with a reduction reconstruction for balance. I welcome your journey's recovery time, STD and/or LTD, satisfactions, regrets, struggles? Lots of brave women out there I commend you all and pray for all you've had to endure.
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Frap: Sorry you had to join this group but we can be of great hope and help throughout your journey. I had a lumpectomy and reduction/lift due to having BC on both sides. For me the surgery was a breeze. I never even took pain meds. I was sore and stiff and wasn't able to lift for 4-6 weeks over a gallon of milk. I continued to walk, but not do yoga or any lifting. The wounds healed well. I was worried since I had radiation on the R side 13 years ago and that can affect the healing but it healed beauitifully. I did have the best plastic surgeon!! I wore the surgical bra for a week or so then changed over to a sports bra. I can't believe it's been 9 months ago. Good luck with your decision and let us know.
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Quinnie: Thank you for your valuable input and encouragement. Wishing you many blessings on your journey.
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Hello, I need some help please. I just started taking Letrozole manufactured by Accord about one month ago. I picked up my new supply today and it has the name Teva on the container. So far with the Accord LT pills I’ve had no problems no hair loss so I hope it stays that way. But is it usual that your pharmacy will change manufacturers? I got a 90 day supply and my insurance pays for it but $744. I think that’s terrible. Other countries take better care of their citizens then what the United States does. It’s all about greed. The manufacturers probably overcharge pharmacies, I have read pharmacies make money on the drugs they sell, and of course then it goes to the insurance companies. I think that’s terrible. Anyway should I be concerned about TEVA and if anybody is taking it did that cause hair loss?
Thank you for your time and I hope everyone is doing well.
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I took Anastrozole not Letrozole. And for 4 of my 5 years I took the Teva manufactured generic. Then Teva had manufacturing problems and I was switched to different manufacturers. The manufacturer isn't the problem in hair loss. It is the drug itself. It is doing what it is supposed to - suppress all estrogen. And it does. I'm on Medicare with a separate drug plan and my anastrozole was very affordable for 90 days. Even a year after I last to anastrozole, I am still losing hair but my grandmother also had a receding hairline so part of it is likely genetic. Better to lose hair than have BC come back IMHO.
HUGS!
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thank you for your information. And, yes,I don’t mind losing a little hair as long as the cancer stays away.
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Last year by the time I started on Letrozole I had met the out of pocket max for the year so Letrozole didn't cost me anything. I have to refill it later this week and am so scared to see what it is going to cost, even with insurance. My insurance has a high deductible so they pay nothing until I have met that. I am desperately hoping they highly discount it, otherwise I am going to have to stop taking it. No way can I afford it on my own. I am already making myself sick over it.
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I am retired and my insurance is covering it but I think it’s just terrible. Norway and Sweden have high tax rates and after that everything is paid for and their citizens claim they do not have a problem paying high taxes because they are so well taken care of. And here in the US it’s nothing but greed. Anyway, I looked at the GoodRx app but I’m wondering how they can have such a steep discounts. If my insurance stop paying for it for some reason I will have to try other avenues I guess.
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I would gladly pay higher taxes to not hold my breath with every medical procedure. I am having carpal tunnel surgery on both hands in 3 weeks and am worried about what my portion will be. They won't even do the surgery until both the surgery center and surgeon are paid in full. I don't know I will do. Plus there are the surprise medical bills like the anesthesia group that isn't on my insurance plan but I have no control over. Oh I had forgotten about GoodRx and paying for Letrozole. Thanks for the reminder. Dealing with cancer should be all we have to deal with, not the expense of it too.
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Holy crap! My Accord letrozole is <$9/mo co-pay on Medicare Part D.
I chose the little independent pharmacy (which has a kosher-style deli up front) where I buy it because it could get Teva at first . Then their distributor switched to Roxane. Of all mfrs. of letrozole (including Novartis' original Femara), Roxane has the fewest "excipients" (inert ingredients) that could cause sensivities & intolerances. Teva --made in Israel, not China or India--is a close second. Unfortunately, Roxane was bought by WestWard, which stopped making letrozole. So that's why I'm taking Accord. My thinning hair had already begun before diagnosis, as I was a decade post-menopausal at the time. The slight acceleration is not caused directly by anything in the drug, but instead its intended purpose: preventing manufacture of estrogen via inhibiting the action of the enzyme aromatase (which is the catalyst for converting an androgen made by the adrenals & fat cells into a form of estrogen). So that tells me the stuff is working as intended.
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The $744 was for a 90 day supply but wow.
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Do you guys think I should check around at different pharmacies? Even though my insurance is paying for it, should I still check around?
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Look at your plan's list of "preferred" pharmacies. A year ago I would have said to consider mail-order if your plan offers it (before Medicare, my plan required it), but until DeJoy is in DeJail I wouldn't trust the USPS to deliver anything safely & timely.
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OK good I will take your advice. I am new at this stuff. And yes I agree about deJoy
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well that was interesting. I went to my insurance website and looked at my prescription coverage and the bottle that had 30 pills for January was only $18. The $744 was on the sheet that I got from the pharmacy. Isn’t that interesting. So that makes me wonder who do they charge the $744 to? Weird
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Springdaisy...you are giving me hope. The pharmacy sheet that comes with mine says it is 940 for 3 months. I desperately hope my insurance is going to reduce that down a whole heck of a lot.
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yes, good luck to us all! We don’t need more things to think about.
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cm2020. I just lost my COBRA and have the wonderful Affordable Health Care insurance (not affordable and covers nothing). I am on letrozole and with GoodRx only pay 6.05 a month. Look into Good Rx and I am sure you will have the same result as I have. Good Luck
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quinnie...Thank you very much! I just took a quick look and the prices vary widely depending on the store you use. The pharmacy I currently use is the most expensive, by far (over 300 for 90 days)! So if I have to go the GoodRx route I will move the script to another pharmacy (cheapest for 90 days supply is around 30...perfectly doable thank heavens).
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I take Dexilant, which though it's come off patent, thanks to Takeda is still available only by prescription in the U.S. GoodRx did the math and told me my Part D co-pay would be less than the coupon price. So I buy it online from a pharmacy in a suburb of Vancouver (Surrey--where we used to ride around in circles so Bob could finish smoking his Cuban cigar before crossing back to the US). Bob faxed a prescription, and a local FP reissues it. $900 for 90 days on GoodRx, $600 co-pay through (in)Humana Part D...and $380 from Canada. Duh.
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My one year anniversary since partial mastectomy, reconstruction with lymph node removal. Stage 3 TNBC. No evidence of disease
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WoooHOO!
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Fantastic, Martaj! 🤗
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Great news, Martaj! Treat yourself to something nice in celebration!
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Mazel tov, Martaj!
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