A place to greet and meet newbies to stage III
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Hi, I'm new to forums and cancer. It really helps reading about other people who are experiencing the same thing. My cancer is a rare form, micropapillary, however my treatment is similar to some. I was lucky to qualify for a clinical trial because I am HER2 +. Right now I completed 2/4 of the AC infusions. Most annoying SE is indigestion, acid reflux and nausea. My next treatment when AC is finishedwill be with Kadcyla and Perjeta. Thanks for letting me part of your experiences.
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swiss: Sorry you have to join us, but welcome. There are some good HER2+ threads and always a group for people going through chemo at the same time - like Chemo April or May Chemo. Hope the rest of your infusions don't increase your SEs.
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minusTwo, thank you for the insight I will certainly check out the other forums
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Have room for one more? Just found out today, stage 3.
Just wanted to say hi
Julie
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Welcome, swissrn and lulu. I'm sorry you both have reason to be here, but glad you found us.
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Thanks for the welcome, Tectonic and 2tabbies. Yeah this sucks, but I am glad I found this forum. Lots of great ladies here with loads of helpful info.
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Big hugs to all the new people out there
I remember being a newbie to cancer and being so scared I felt I could not breathe sometimes. I had no family members or close friends that had gone through this. I realized I needed to reach out for my sanity's sake and it was the best thing I ever did.
I joined this online group and a local group and immediately felt better. Just to see people living normal lives after cancer DX and treatments was inspiring. And on this site I have met up with other ladies with almost the exact dx as me - same large tumor, same amount of nodes etc...same treatments. And that meant the world to me I was not alone and could talk to people that were or had experienced exactly the same things as me.
For any of you newbies out there if you are feeling sad or scared or even just curious trust me there are so many people on this site that will help you day or night there is always someone kicken around.
Hugs
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hello newbies....I started a year ago and the people on this site have thaught me so many things, and that we r not alone.
DD
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You ara my hero
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and ladies, they don't care about spelling or grammer - so relax...and spill you guts out...it does HELP a lot....I haunt this place daily...I live alone, go through treatment pretty much alone...But - I'm not alone - I'm here, with "my family".....sigh
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Thanks. So good to have others to talk to and know you are not alone. I have had 2 treatments and due for next June 15th. First treatment was enlightening since it was my first experience and went better than I expected. 2nd treatment really slammed me. So will I expect 3rd to be worse? My BP and pulse is running high. I have not vommited , but have been nauseous with no appetite. Bummer. I tried to clean bathroom today and it took me all day. This stuff really sucks. I am so blessed to have a supportive family and friends, but it is really nice to be able to get on here with people that really know how it is. Thanks and HELLO!
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Welcome to the newbies and sorry you had to join us!!
Cchix49 - I had same experience as you. First chemo was good, second was the most horrible and the third was better than the second. I even got other nausea meds but I didn't need any at all. I heard other ladies that found the second chemo to be very hard. Fingers crossed for an easy next treatment.
Hugs!!
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thanks Lois! That is encouraging YAY!
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Hello ladies. Starting my AC/T chemo treatments this Wed, well the AC part anyway. Just curious when I can expect my hair to start coming out. Already ordered a few "coverings" for my head, trying to get prepared.
Thanks
Julie
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Lulu mine started falling on day 16. My chemo was every 3 weeks. I cut it short before surgery and shaved it off once it started falling. When you feel the scalp hurt and itch you will know it is time.
Good luck with chemo and stay hydrated!
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Day 17 here. It really does ache, like taking down a ponytail that has been in for awhile. I also cut it short prior to losing it. Then buzz cut it when the aching began.
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2 wks to the day I started AC, it just fell out in clumps. I cut it shorter and shorter, was never totally bald and I never shaved it so it didn't itch. The eyebrows always stayed on. While on taxol they started to get thinner. Afterl the 12th. Taxol, they fell all out. Grew back In a Month
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Thank you everyone for the replys. It helps to know what to expect so I can better prepare myself.
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I am so excited I actually feel human today! Like I finally crawled out of a deep dark hole. Yes, I am back! Thank you Lord! The 2nd treatment really slammed me. Thanks to all the posts of your experiences. It was a ray of sunshine while in the hole.
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Glad you're feeling better, cchix49. You can get through this. It's a cliche, but one day at a time is the way to do it.
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thanks 2Tabbies. I do feel head above the water today.
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Yay chix. I tackled every event like a challenge to surcome. 1 more down and x amount to go. I concentrated on that 1 event until it was over and then started thinking of the next one. If I saw the whole picture I would start to freak out. So breaking it down really helped me. You can do it. We can do whatever we r faced with.
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about to head for 2nd chemo of 6 tomorrow... Nervous but trying to stay positive. The sooner I get round 2 the closer I am to round 6. Not looking forward to being sick again... And from what I'm hearing. Each round is a little worse.
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jenga ... i actually had an easier time with round 2 than with the first ... i think my nerves played a roll in that ... but if you had nausea talk to your onc or onc nurse as different meds help different people and maybe they can find one that works better for you ....
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Jenga, good luck tomorrow. I agree with jenni that you should ask about different nausea medication of what you had didn't work.
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a/c round 1 was worst of any of the rounds for me . part is the fear of not knowing and part is your body being shocked by the chemicals the first time. It got easier. Even taxol was easier. My next phase is rads and it finally seems official that chemo is done. These Forums was my ability to deal mentally with everything. Glad I had them.
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live, rads are definitely easier than chemo when you're going through them. The can have some long lasting side effects but hopefully nothing severe. I was kind of sorry when I was done with rads because the techs were so nice.
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well I'm on day 6 since my 2nd round of chemo. I felt better the first couple of days but I'm very weak now. Last time by day 5 I was my old self and could do anything. No so this time,.... realizing how much this is going to impact my life and my daughters (22 months).
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Hi Everyone
I just received pathology from my post op report. Had Mastectomy of left breast with 4 lymph removed. 1 positive. Doctor characterized the tumor as very aggressive, but he was pleased with outcome and astounded over my overall health.
This has been drastic for me on every level- I am slammed with my own lifestyle and eating practices basically 'failing me'- hatha yoga my whole life- have always sourced and prepared my own food from scratch ( garden/local farmers/organic)- could go on and on - but I think you get it.
So here I am- the Dr, seemed to loosely suggest that I may just need hormonal therapy ( not that I want ANY chemicals- but I know I may be facing something) but now I'm faced with sifting through consultations with a range of people- from traditional MO to medical acupuncture
I would appreciate any insights, any one commenting if they were able to go 'only hormonal therapy' at such and 'advanced stage'? Mine was classified as IDC- 5cm, IIIA , ER/PR +, HER2-)
Also ANY recommendations for NYC practitioners ( NOT SMK).
On a last note I had my surgery via laser, with Dr. Vincent Ansanelli- And it's a crime that this option is not more widely available. I was home that day. It's 7 day's post op today, i had NO drugs, No after effects of anesthesia, I'm showering and dressing myself. PLEASE if you unfortunately know of anyone who must face this tell them about him.... but more on that later
Thank everyone in advance for any insights you might offer
CA
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