Secondary Angiosarcoma of the Breast
I have agonized over whether to post this or not because I in no way wish to scare the daylights out of you who are in radiation treatment or have finished. I do think this is something that rad. onc. need to address as I was never told this could happen, because they do not expect it to happen.
See my original dx. at the bottom of this post.
Recently (about 5 wks. ago) I had a small red spot come up on my breast. It looked a bit like a cherry angianoma , no pain, no burning, itching, swelling, not warm to the touch. I had an appt. for my annual mammogram and check up so I waited 2 wks. My dr. said right away he would excise it and sent it to the lab. The biopsy was May 1st -- 3 wks. later.
The dx. is NOT a recurrence of the breast cancer, however, it is Secondary Angiosarcoma due to Radiation. This is VERY RARE, but being seen more often as more women have breast sparing surgery w/ rads.
At this point I don't know the grade or much else. At the very least the dr. says a wider excision is in order since there was a little at the border of the biopsy. It is being referred to the tumor board and I will know Friday May 9th my treatment options. Of course I've tried to research it but there is not a lot out there about secondary .... a lot about primary but they are telling me that is certainly not my case.... It is from the radiation.
I'm thinking at this point that total mast. is in order.... I pray not chemo because I am the queen of allergies and allergic to most meds!
Let me say this....I still am not sorry for my original treatment decisions. At the time that was what was deemed best for me. If I had not had the radiation I might have had a recurrence of the breast cancer. I am 10 yrs. out. If I had had a mastectomy with no rads .... who's to know if that might not have spread, also.
So, be vigilent about checking your breasts for any new spots of any kind and get to the dr. pronto. They are telling me that the 5 wks. is pretty quick....
Most reading this don't "know" me.... but I am a believer and have been for many years. I do not know why God "allowed" this. He DID NOT CAUSE IT but I know He will see me through it.
I would appreciate any knowledgeable input.