Starting chemo July 2014
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Mags, Chaosrains, and my other friend that were talking about the negligence of family and friend. I wa looking to your pout and thinking what happen to me 11 year ago I wa jut 24 and I felt o alone that hurt more that the treatment. I could not understand that my friend off 10 , 12 year wouldn't call to see how I wa doing. My mom wa so scared that she would travel to anyplace to not see me ... I think was to much for her. I was extremely disappointed with the human race. After a while I got a hold on one of my bet friends and I ask it him way he would do that to me.....The answer wa nothing I could imagine...he said that I wa hi rock and the strongest person he knew so he could not bare see me that way ...he wa lot too and didn't know what to do.
Of course I know that people get busy and maybe we expect to much of them but I think sometimes people are just scared and dont know what to do or to say ...than they do what is more convenient (don't think about it) and wait for u to get better....
About the hubby, mine is ok. But I'm not the same I just ask what I want and make him do it ...kkkk .I always say when I get my period "The bitch is back" So I told him that I will be as in my period for 4 months poor DH kkkkk
XO
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Sorry girls my S And H are ruined on my pc so it's difficult to read what I wrote.
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Jennliza - my port is 2-1/2 weeks in and doesnt hurt at all any more.
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mommymel, I had no trouble understanding your post. Hmm. What does that say about me?
By the way, I forgot to say, you and your girls are so beautiful. I know you must be so proud of them.
I posted pics of my shave on my Facebook page and I can't believe the outpouring of love and support, old friends telling me they are survivors (and I never knew!); don't know whether to feel good about that or bad that I never knew...
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Mags that's amazing sure they are proud of you:)
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Hello Everyone, My computer has been down for a couple days, and once again it takes forever to get caught up on what is going on! Today was one of those days that showed me that it really isn't all about "me". I visited with two friends today, on a fellow BC sister... actually she is a very beloved (by me) current wife of my former husband..
She just found out she is diabetic and really needed advice about what to do now. I have a few opinions about that. She also commented about her husband's lack of understanding. I was supposed to say what? Then I had a visit from an artist sister, she was told yesterday that the Health Department has concerns that she may have been exposed to rabies 13 days ago and she should get the treatments started within 2 weeks of the exposure. The exposure experience was pretty horrific, so I won't go there. Her adult daughter told her that she didn't think it would be necessary because the animal in question didn't "seem" rabid to her. (Those of you whose families don't seem sympathetically engaged will totally understand her feelings on that one!) Our vet friend said it is better to be safe than sorry because once symptoms start, your toast - very ugly toast. BTW: She is going to do it, but she actually struggled with the decision because she didn't want her daughter to think she is a wimp. I'm proud to say... I convinced her.Mags: Nicely shaped head! You know, women really do look good without hair. I do remember that a sleep cap is really important. My head was really cold at night. I needed one that was really soft and not too tight - look at the materials of a newborn cap. I tried a ridge knit one, but by morning my head hurt.
Here's a thought that I found interesting. My new MO said this to me at my first visit when I asked if I had to go through chemo again. "Well, you can go through chemo treatments and radiation and we can call it a local recurrence, or you can not go through treatment and call it Stage 4."
Being "out west", I'm one of the late-nighters. So I will wish a good tomorrow for all of you. One of the best things about Sunday...Chemo infusion free day!
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Mags- I assume you mean the first day of my chemo to be my start date. It was June 25th. Beautiful bald head, by the way! Mine is stubbly, which confuses me because shouldn't I have absolutely NO hair? I remember it was sure falling out in clumps!
By the way, at night I like to sleep in a cap. The stubble doesn't rub on the pillow and my head doesn't get cold.
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Hey guys! Just popping in for a quick minute to say I hope everyone is having a SE free, amazing weekend.
I am feeling almost "normal" but I know it wont last because Tuesday is round 2!
So, I am going to enjoy what time I can and catch up with everyone later! Ive read everything everyone has posted and have replies to post floating around in my head but I'm making myself get off the computer and enjoy the day!
Talk to ya'll soon!
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I'm feeling really tired and for some reason kinda woozy this morning. Last night I wore a soft knit cap that I picked up at the cancer clinic where they are donated by a group that knits them. I'm saving my Shirley cap until I get a picture of it on my head. The cap was very comfortable and yes, Patti, I have stubble, too. I actually appreciate the cool feeling.
Patti, I will add your date above.
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Hey Shirley! Looking good!
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Mags, If I figure this correctly, your #2 is tomorrow. I hope it goes well and the SEs are not a awful as they were last time.
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Actually it's Tuesday, thank goodness! One more day of freedom. Steroids tomorrow though.
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Magdalene,
Looking great!
Shirley
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Well, day 4 definitely not as good as previous days
I'm sleeping a lot and ate a lil this morning. I felt more achey than nauseous, so took Tylenol and that helped. Then I tried to eat a lil soup my honey made and it set off my stomach...so took some zofran and more Tylenol. Hoping the combo works and I feel better in an hour! 0 -
Chaos - you must be doing it every 2 weeks? You are a trooper to get back in there on Tuesday. Wow.
I don't know about the rest of you, but now that I'm feeling better - I really appreciate my life more. I notice flowers and beautiful sunsets more. And - one great SE is that I don't crave food or sugar anymore because I can't really taste it - everything just tastes salty. I'm thinking that this would be a good time to start a diet since I won't miss my favorite foods. How long will this "no taste bud" thing last? I'm thinking it might really come in handy.v I'm going to explore medical weight loss programs vs. Paleo, vs. ?. Any tips?
I spent all last night (didn't sleep much!) doing medical research - I'm a bit of a nerd that way - I like really journal articles so I found some from this site about the middle "grey zone" that has brought up questions that I have for my MO - to hopefully bring more clarity to the chemo decision. I need to find out more about the grading of my tumor. I sure wish that the onca middle range research was done - but it won't be done until Dec or January at the earliest.
Mags - is that a storm trooper uniform for your battle? I love the symbolism.
Jenliza - so sorry to hear that your SE are kicking in. I hope you can sleep and drug them off.
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Deb,
Yes Im on dense dose... every two weeks... my cancer is very aggressive and fast spreading... I'm definitely not looking forward to it, but in the end ya gotta do what ya gotta do and some hope is better than no hope so...
Looks like Mags and I will be getting chemo on the same day this time. I'm hoping this time will be easier... and it will be in a sense because theres not all that first time fear involved...
I love all the pictures ya'll have posted.
I got my hat from Shirley over the weekend! Going to wear it to my chemo Tuesday will take a picture then0 -
hi ladies!
Just checking in. Happy to confirm that that days 6-10 have WAY better than for me. I have been reading but not posting as trying to enjoy life while it's feeling pretty normal!
Other than a skin rash (reaction to taxotere, apparently relatively common), I am feeling around 80% myself this week. So relieved - makes it all feel much more manageable...one crappy week in 3, 4 times...like MomToIrishQuads, I was in the grey zone, so when it was really awful, easy to question...but at 39 I want all the percents I can get. Even the little ones.
Chaos, go forth and ROCK the dose dense. We are with you!
MomTo - let us know what you decide. I am curious as situation is similar (although I don't think I suffered quite as bad as you did).
And all my July sisters - you have totally GOT this. At least next time we know what to expect :-)
Peace
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MomtoIrishQ, I could say I was was geared up for battle but the truth is I found the shirt on the clearance rack at Walmart and it's the style that suits me now, cotton, roll up sleeves, buttons, pockets. The camo was pure chance. It does suit for that tho, doesn't it?
RainDew, glad you've got a bit of normal, don't we just need that so much? DH and I spent the day watching stupid movies on Netflix. You know, the kind where you say, well that was stupid. Old scifi and catastrophe movies, then he'd fall asleep halfway through and I'd half to explain what happened and we laughed so hard and high fived each other when we both saw the same stupid thing. Why'd they do that? Well, that was stupid! So, we had a bit of normal too.
ChaosRains, I'll be thinking of you Tuesday. We'll get through it. Dont forget your steroids if you take them the day before, and your Emla cream if you have a port, 2 hours before start time.
Also, no1b4makidz starts tomorrow, and Nancy starts Tuesday with us.
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OK my dear chemo warriors - of course, I am second guessing my decision to drop out now that I'm feeling better and I didn't die
I am going to call Johns Hopkins this morning to get a second opinion and also ask for the "tumor board" (whatever that is - Voracious Reader recommended that) at my hospital to review my path and also come up with a recommendation. Maybe they will be more helpful than my MO. It's just all so confusing! There was evidence of vascular invasion so although it didn't appear in the nodes, it's something I want to better understand. I can tell you IF I continue - they have to change something in the chemo regime. I will definitely keep all of you posted....just hope that I enough time to get this all done in time for next week.
MomtoIrishQ
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MomtoIrishQuads - good luck!!!! Keep us posted!!!
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Goodluck tomorrow Mags I go back on Wed for round two.. fingers crossed no anaphylactic reaction this time
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You will be in my thoughts, too_young. I'll probably be hopped up on steroids by then.
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Oh yes steroids back to that starting tomorrow morn... sleepless nights
You will be in my thoughts as well
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omg is about all the energy I have to say! I had my first round of chemo, TCHP last Wednesday and I thought I was doing awesome until Saturday. Wow, it knocked me on my butt and I'm still feeling pretty bad. It's such an eerie feeling, almost like being out of body. I'm hoping and praying tomorrow I'll start to turn around. I even took the Claritin a few days around the Neulasta but that stuff is wicked! I could almost feel my shin bones stretching, lol. I've never watched so much tv in all my life!
I've been trying to at least take 2-3 walks a day even if they are only around the block. I'm sure I look like a little old man bent over 😁
Chemo ain't no joke, that's for sure
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and I know I saw it but my brain is not currently working, how do I put all dx stuff at the bottom of my page?
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Pinkninja95 - I havent figured out how to get all my diagnostic surgical and treatment info at the bottom either - not even a picture because I am posting with a Kindle Fire and its not the same as using a computer or laptop. I see you are HER2+ also and taking TCH as am I. There is another discussion group on this board just for us that I post and keep track of along with the July group. You may be able to find it by search this site for TCH.Meanwhile, I will see if I can figure out how to add a link for it.
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oh, I must have done something right because it showed up!
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Hi everyone!
Found out I'll be joining the group starting next Monday, July 28. I had a yearly mammogram 5/28 and got called back for an ultra sound and then a needle biopsy. Then had lumpectomy 6/27. Just got my port 6/14 and now I'm ready to get started with treatments. I'll be getting A/C x 4, once every three weeks, followed by Taxol x 12, once a week. Then Herceptin x 52 and radiation. I'm not sure how many radiation treatments yet, I have an appointment to see the dr. there August 8th. I've tried to read every post under this topic and it helps to at least have some idea of what to expect as far as side effects. It has helped a lot. I'm trying to get some thing prepared for when i'm home after treatment just to make things easier, i'm single and live alone, but have have family and friends near by. I guess i'll just have to see how it goes and go from there. Glad I found this group.
Terrie
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okay, I was so excited that I ended up wearing Shirley's cap today to my oncologist appointment.
When I got it in the mail, I made it mine... added a little embelishment and omg I am in love!
I was going to break down and go wig shopping, but now I think I may see if I can find someone around here who can either crochet some for me in colors to match my outfits, or either teach me to crochet so I can make my own!!
This is the first time I've gotten excited since I was diagnosed! Thank you so much Shirley!! You did way more than just send me a hat... you sent me hope and excitement as well!
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By the way, I make chemo caps too. I've been making them for Knots of Love and who knew I would have to make myself one! I'm gonna take a few pics and post them so if you want a certain color, let me know.
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