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Starting chemo July 2014

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  • knmtwins
    knmtwins Member Posts: 438

    OK – coming out of chemo hell week and trying to catch up,
    hence, some of these responses will have additions as I read others’
    comments, it has taken me all day, wow, a week away from this group is tough!  I'm feeling better, ate some dinner.

    Jenliza – a good post chemo weekend – so jealous, but great
    to hear it is possible, and glad you could enjoy your birthday. Personally, I would not have been brave
    enough to schedule that.

    Magdelene – lovely wig, lovely you. Not from OK, but have family in Rush Springs
    and have done a wedding in Tulsa… oh it
    sure can blow.

    Blownaway – are you done, or did you mean next week…

    Kebab – maybe I missed it, but what trial are you on? Did you get the shot to up your WBC?

    Gilesmt – wow – so sorry – document everything. “Under the ADA, State and local governments, businesses, and nonprofit
    organizations that serve the public generally must allow service animals to
    accompany people with disabilities in all areas of the facility where the
    public is
    normally allowed
    to go.
    For example, in
    a hospital it would be inappropriate to exclude a service animal from areas
    such as patient rooms, clinics, cafeterias, or examination rooms. However, it
    may be appropriate to exclude a service animal from operating rooms or burn
    units where the animal’s presence may compromise a sterile environment.” http://www.ada.gov/service_animals_2010.htm I’m sure you know all this already, but as a
    parent to a child with a disability, it just pisses me off when people violate
    the law! File a complaint, http://www.ada.gov/fact_on_complaint.htm Yea, never mind, you are having chemo, you
    don’t have the energy. Sorry, the outrage
    gave me a burst of energy. Oh, I just
    saw Mags post. Brilliant, get the Am
    Cancer Society to help you. Just
    brilliant!!! BTW – I’d do as much
    through email as possible and then call someone to complain that you aren’t
    getting good service. You will have the
    date stamps on the emails on your side.
    Again, I know, who has the energy, but I’m just so angry. Wish I wasn’t in chemo crud and you were
    closer, I’d come straighten them out for you.
    That is what we moms of disabled children do every day.

    My dad had an HMO, years ago, and they weren’t moving fast
    enough, IMO with his kidney cancer diagnosis, testing or surgery. My mother was scared to upset the doctors
    (odd she normally would scream at anyone) so wasn’t doing anything. I finally called her, after doing some
    research on the NIH website (remember this was in the 90’s so if I hadn’t been
    in IT, I probably wouldn’t have had internet) and said, Mom, based upon what
    you have told me, Dad is stage 3 or 4 with renal cell carcinoma and neither
    chemo nor radiation work. NIH is doing
    some research with Interferon, so his only chance is removal, call them and get
    his surgery within the next week. It
    worked. You need an advocate! Do you have a family member or friend that
    could help? If not, what about through
    an organization for the visually impaired?

    Also – tell us your symptoms and will tell you our
    knowledge, and if you pay for the over the counter drugs, try to get ones that
    are Rx if they are cheaper.

    Mags, how did they find out it was in the muscle? And what muscle, the pectoral? I’m thinking skin saving double with reconstruction. They put the expander under the pectoral. I wonder how they know if the cancer is in
    it???

    Blownaway – all your body hair, as in the hair on your arms
    too??? I’d love to lose that, but… in months will we be complaining it is growing
    back as ingrown hairs. Oh, no! Sorry you have 2 more to do, but, you can do
    it! What regime are you on?

    Gilesmt – never thought about having to shave without being
    able to see, except if water gets in my eye and I have to close it. These are the things that make walking in
    someone else’s shoes so important. Until
    you do, it is the little things that you just don’t get. Now, I’m on a different regime than you, but
    my armpit hair is done, leg hair almost, eyelashes falling out, eyebrows
    thinning, pubic hair thinned and almost completely lost in the ‘private area’
    but still some on the mons pubis.

    Jennliza – Oh yea, as a TCHP, this round was harder on
    muscles, but not as hard with the C and the D.
    I think much has to do with conquering the C on day 3. Also, what is L-Carnitine?

    Redheeledwoman
    – did it all fall out or did you shave it for symmetry? I still have about 2 – 5%, but cut it to 2”
    so it wouldn’t creep me out. As for the big D, get an Rx for lomotil,
    either round 3 wasn’t as bad as the others, or this is a miracle drug. Also, love your personal
    motto is: I Ask, I Believe, I Receive.  Too bad that can't be in your signature. Although I do this with God, I need to learn more to do this with others.  

  • redheeledwomen
    redheeledwomen Member Posts: 74


    Pinkninja9560-

    I bought the L glutamine at Super Supplements. You can also buy it at most drug stores.   Please make sure its 100% powder and not mixed with any other supplements. 

    Here's the link I got from amazon:  http://www.amazon.com/s/ref=nb_sb_ss_i_1_11/181-0499387-5895252?url=search-alias%3Daps&field-keywords=l%20glutamine%20powder&sprefix=l+glutamine%2Caps%2C1065

    I take the Jarrow formulas L-Glutamine Powder.  I found it at super supplements for less than $20.00  You can also get it on Amazon.  Its a white powder and very chalky.  I mix in four tablespoons with 10 oz of water and MIO water flavoring to hide the taste.  This stuff works incredible!!  I drink it on an empty stomach around 7am the day of my chemo treatment (my chemo sessions usually start around 10am) then I eat a good breakfast about an hour or so later after drinking the powder.  I take it again at night after my chemo session.  Then again the next moring.  My Naturepath (who works with the Cancer center) told me to take it immediately if I felt my finger or toe tingling which I did the day after my very first chemo session.  I've had not issues since. 

    Good luck!!

  • verukany
    verukany Member Posts: 55

    hey JennLiza- you should call and see what your onc/on call says...they really do want to know what's going on in order to treat you the best way they can...i  know it's a drag, but if you call you can see what they say about taking something for the aches and chills- a fever is your body's way of fighting something off so trying to get it down for the sake of just lowering it doesn't make a lot of sense.  Hoping for an easy resolution to this for you.....

    In the meantime, had Taxol DD #1 today.  Not too bad- i got a bag of dex, benadryl and pepcid.  Luckily no reaction today (although the onc nurse said it could happen as well on the 2nd once I get sensitized so they will monitor closely), and no nausea (hurrah!).  I was already tired and sleepy, but i think the benadryl just knocked me out so I got to take a 2.5 hour nap while the infusion was going on. Mothers of little ones, you MUST know how amazing that is!  I think that's the longest nap i've taken in the last 4-5 years!!!  They say aches can come 2 days after infusion, but am hoping for the best!

    Gnight all- I am pooped!!

  • Mumford
    Mumford Member Posts: 88

    Jennliza, I hope you made the call. My favourite onco nurse gave this advice: 'Don't go to bed with a fever. Have it seen to.'

    On the Advil/Tylenol debate. Don't take either for a fever until you've been assessed. Tylenol crosses the liver, so don't take if your liver enzymes have tested high. Advil is a bit of a blood thinner, so I guess this could be a concern if platelets are low. 

    I hope all of you have a restful night. 

    I have Pinkeye. 

  • Gilesmt
    Gilesmt Member Posts: 22

    I just here to vent again, just an I understand is all that is needed. 

    Had round three this morning, I had an 11:05 appt ( every time I ask for the earliest morning appt and this was the earliest I was ever giving) I got there at 11, but they wanted me there at 10:50, I did my blood work yesterday. I was weighed in at 11:30 and the onco came in at 11:50, she spend 10 minutes because I don't bother to tell her anything since she will only tell me I am not a team member.

    Chemo was scheduled for 11:35, because the doc was late I signed in at 12:05 when they told me it would be 12:45 before they could take me, at 12:45 they said it would be 40 more minutes.

    I am pissed this is how it always goes for me. I am told CT should take 3 hours, add another half hour because I have to take benedril because of reaction, but it only takes 10 mins but I will give it that. 

    First round took me 7 1/2 hours

    Second round took 6 1/2 hours

    Third round would have taken that long but I thru a fit, I have complained and made grieve nice and nothing this time I told them to start but I would pull out iv when ther clock hit. 3 1/2 hours and what I get is what I get. I think I scared them, they finished me in a total of 4 1/2 hours even though they started late. I told them everything I read said cytoxen can be giving in 1/2 hour, they said not thru and arm, I said look internet even iv in arm it only takes 1/2 hour, they have been running my drip for 75 min. I said if you don't run. It in 30 I will pull it out and leave, do what you want, they did it.

    I guess I finally figured out how to get there attention and get them to listen. I think they also realize I will do it because I did pull the tube out after surgery when after severe pain for days and the doc would not, I just pulled it out. I don't complain much, had two children with no pain med, and I had biopsy and two surgeries in June with no pain meds, but that tube hurt more everyday and I was in tears and they refused to pull it out so I did. (The doctor wrote and refused to rewrite my chart that a child accompanied me and that I drove myself. I wrote the med board because i told them the doctor was on of something and hallucinating, I had a guide dog and a I have been blind since four. They still refuse to change my chart.

    Anyway,needed to vent get it out and now move on. Third down, maybe one more to go. I lost my job from last onco doctor, and I might have another job so if I do, I might not go for last treatment since I can't call in sick, I might just do rads and skip last chemo, we will see. 

    Anyway, came home and cut grass, yes even blind the grass needs to be cut. We are planning to go to ocean this weekend me and ex. Taking my guide dog, maybe she will like to swim again, we use to live on Columbia river and she swam everyday. 

    The side effects I have the most is due to dexathemisone, or a steroid. I get the shakes, vomiting, muscle and bone pain, diarrhea, headaches, sleepless days and nights, edema, actually every side effect you can have from that med I have, so they cut my dose in half, and I still have the side effects not as bad.

    The other side effects from chemo don't seem to bad, no real fatigue yet, no real nausea, diarrhea that could be from antibiotics, dexathemisone, chemo or all the above. Started probiotics and it seems to be helping. Imodium is my friend daily six to eight times. 

    I still have side effects from the surgeries that have not been treated because I am told rads is going to make it even worse so I am waiting. I have neuropathy, which is in my right hand, I can't read Braille which sucks. I also can't fell things so blind I cut my finger real bad a week ago and ended up in urgent care since I could not stop the bleeding. But being blind you use your hands to feel and when you can't feel as sensitive it is I guess like being told you are blind for the first time and you don't know how to feel. It also effected how I guide with my dog, we were off for over a month because we could not figure out, he moves by how I manipulate the harness, when my sensation is off his walk is off and we trip over each other, but we worked it out. They say the lymphoma and neuropathy will be worse with rads so I will treat it during or after rads since chemo is enough to deal with for now.

    Anyway, don't worry about my vent, as I said I needed to roll it off me. Moving on, beaches, maybe a new job getting thru this is what I need to do.

  • kebab
    kebab Member Posts: 98

    Gilesmt -- I'm sorry you're having such a rough go. I hope your trip to the ocean will be peaceful and healing for you.

    Knmtwins -- wow girl! I am impressed by your ability to remark on everyone's goings-on! I would love to be able to reply to everyone like that, but my chemo brain just won't hold onto any info that long. All I can do is send up quiet thoughts as I read each post.

    I'm on the Brocade trial (www.brocadestudy.com if you're interested). It's for BRCA1/2+ advanced cancer patients, trialing a PARP inhibitor drug. They've had good results so far. I just hope I'm getting the actual PARP drug and not in the placebo group. I do get Neupogen shots for my white blood cells and those are fine; it's my platelets that took a nosedive. Nothing to do for that but give them time to build back up, so I'm told. Thanks for asking.

  • knmtwins
    knmtwins Member Posts: 438

    kebab - I can't look at the computer for 5-6 days after chemo, so I had a lot of catching up to do.  I had MS Word open and this page open.  It took me all day, many breaks, because I still can't look at the screen for long, but got it done, but did you notice my quick little blips throughout the day...  Don't expect another long one for 3 weeks.  

    May I ask how they found your new cancer this March?  So many seem to have recurrences, and since I'm neoaduvant, I have a moment to stop and think about what my next course is.  I'm HER2, so not the same, but still.  Also, they didn't do a Sentinel Node Biopsy when they put my port in, don't ask, I'll rant about the MO I fired, so I'll never know, as I'm now on chemo.  I wonder if there is another topic on this that maybe I should seek out.  To me, this one keeps me busy enough, so I don't look for more, but it is probably time to start doing that.  

  • magdalene51
    magdalene51 Member Posts: 2,062

    You girls have been busy tonight! I've read everything but retained little. Jennliza, I hope you have called the onco by now and are getting some answer. Knmtwins, in answer to your question about the muscle, my understanding is that they test the tissue as they remove it and keep removing until they have clean margins. Because my friend who was with me through the journey is a nurse to her ob/gyn husband, I had a lot of preparation for the possibilities. I really felt strongly about having the BMX although the surgeon thought she could just do a lumpectomy. And even though I was firm that I would not have reconstruction at any time in the future, she left quite a bit of skin flapping – like having a deflated Bcup. But I've read too many horror stories about recon.infections, discomfort, cancer coming back behind them, all kinds of problems. The Flat & Fabulous Facebook group has so many women who have had recon reversed for various reasons, some simply because they couldn't stand the presence of foreign objects in their chests – I know how I felt when I had my port placed. Drove me crazy. Some of them had unrealistic expectations about recon, and came to realize that they were never going to be the real thing. I don't really bother much with what other people think of my appearance, of course I learned in the business world to dress appropriately and be well groomed, but I'm not a fashionista by any means. I have yet to even get fitted for foobs, and am quite comfortable in public flatter than a pancake. Who cares what others think about it? But I've not seen any reactions that would lead me to believe that anyone even notices. I'm frankly more comfortable without them. Truth be told, I'm kinda liking not having hair to mess with, too. Silver linings.

    I'm going to try to get some sleep. Day 2 in the can.

  • kebab
    kebab Member Posts: 98

    knmtwins - I was actually dxd at stage iv in the spring of 2012. Because I was BRCA+, I was having either a mammogram or a breast MRI every 6 months. The mammogram in the fall was all clear. Around Christmas I started having a stiff neck, pain between my shoulder blades and pain in my hip -- all of which I put down to stress and injuries. The MRI in February showed mets in my spine though. Finding the mets in my liver last spring was just because I have a PET scan every few months to track the effectiveness of my treatments. There were no symptoms.

    My advice would be to just finish treatment and go and live your life, but pay attention to your body and be vigilant when something doesn't seem just right. But the most important is to live your life and not waste precious time being worried about something that may or may not happen.

  • knmtwins
    knmtwins Member Posts: 438

    Kebab - Sorry, chemo eyes didn't read that correctly.  I guess my questions are more general, like what is next for me because I have so many options.  I can do nothing, although I don't think that is advised, do a lumpectomy, do a mastectomy, do a bi lateral mastectomy, do reconstruction, not do reconstruction, do radiation, not do radiation.   So much is new once we are Dx'd with BC, like forever we have worn lead aprons, but might now ask to be radiated.  We got mammograms every year, yet if we do a BMX, how do they test?  40 years ago, my mother had a modified radical mastectomy, pretty standard.  They took her pecs.  I do not think that is the norm now.  

  • jennliza
    jennliza Member Posts: 176

    So I called my doc last night...she called back and said I have to go to the ER. I waited an hour to see if my temp would go down if I got out from my warm down comforter. It increased to 101...so went.

    By the time they took me in to finally see a doc...my temp had lowered. They ran blood test, urine test and even made me get a chest X-ray. They were concerned because my WBC was 17....the opposite of Neutropenia...it was indicating an infection. I said my temp is normal again and I don't have symptoms of an infection...perhaps it's my Neulasta shot working it's magic. So I demanded to be released even without them consulting an oncologist @2am. I feel fine this morning...

    My gut told me to take Tylenol and stay in bed, but my Oncologist scared the bejeebus out me with the possibility of sepsis. 4 hrs wasted!!!

  • jennliza
    jennliza Member Posts: 176

    Knmtwins- just know there really isn't a right and wrong answer. A study that just came back showed that the OS of a woman who did lumpectomy with chemo/rads was just about the same as a woman who a mastectomy...within a few % pts.

    I opted for a BLM...I had to get a mastectomy because my DCIS (didn't have IDC going into surgery) was too large compared to the itty bitty size of my breast. I chose to take my left breast too for a few reasons...some medical some aesthetic. I am happy with my decision....

    One thing I do want to remind you of...I have to remind myself. While these boards are great....most of the women on them are here because they have BC...first time or recurrence. Don't forget that for every woman here with recurrence there are 1000's more who didn't get recurrence and just don't come back to share their experience. Keep positive thinking!!!! I'm also triple positive...and pray that I only have to go through this once!!!!

  • knmtwins
    knmtwins Member Posts: 438

    Jennliza, so what is your MO saying this morning?  As to reoccurrence, I guess I'm worried about that, but not really, I still think what I do now is going to get rid of everything and like my mom, I'll live another 35 years, but it is more what should I be doing now, that I actually have time to think, interview doctors, research.  Back in June, before I was told I had to do neo adjuvant chemo, I was bim bam boom, skin sparing mastectomy with reconstruction, although all the doctors were pointing me in the direction of a lumpectomy.  I didn't even know I had the option of a BMX, no one told me, and who would tell me but the medical professionals and they wanted a lumpectomy, so certainly didn't tell me anything about a BMX.  My PS said something about it, but I didn't catch on.  I was in the sprint, to get out in 3 weeks, not realizing I would have this time to think.  Now that I do,  I want to know where to go to find these answers that are right for me.  

  • Gilesmt
    Gilesmt Member Posts: 22

    jennlize, my onco who I don't put to much trust is is always telling me to take tylonal, she tells me not to take naproxen which I have been on for more than 10 years for arthritis (to many broken bones when you are and active blind person who refuses to use a cane or a dog for thirty years, but I grew up), anyway sorry to here you had a rough night, glad your feeling better.

  • kebab
    kebab Member Posts: 98

    Jennliza -- sorry you spent so much time in ER, but I'm really glad everything is ok!

    RE: recurrence -- I'm just going to "ditto" what Jennliza said. She gave you some great info there. Sorry I can't point you in the direction to find more info. I hope you find the answers you're looking for and are able to make the decision that works best for you.

  • elainetherese
    elainetherese Member Posts: 1,635

    kmntwins, I'm neoadjuvant as well, and I feel as though I haven't really thought through my surgical options either: do a lumpectomy (if lump has shrunk), do a mastectomy, do a bi-lateral mastectomy (cancer is only in right breast), do reconstruction, not do reconstruction? Everything just has happened so fast -- when they found a 5 cm, grade 3 lump, +++, my surgeon just pushed for neoadjuvant because he wants to be able to take out the lump, as well as with some healthy tissue around it and smaller seemed better. Plus, surgery would work better on a smaller lump because of its location in the breast. 

    MO bought into the neoadjuvant because she feels that with AC/Taxol/herceptin, we have a good chance of shrinking the lump. And, so far it seems to have shrunk about 3 cm, though we won't really know for sure until we do our next MRI.

    But, I don't know what happens when we get to plan my surgery. I sort-of like having modestly-big breasts (C cup) on a 5'2" frame. They minimize my the impact of my tummy, which has never quite recovered from carrying14 pounds of twins during my second pregnancy. Mags, I have thought about how just going flat has its conveniences, and my wig lady is licensed to fit foobs. I know this thread is about chemo, but if anyone would like to comment on their surgical outcomes, I'd appreciate your input.

  • jennliza
    jennliza Member Posts: 176

    my Onc's nurse called me this morning and the breast surgeon who put my port in... 

    The nurse thinks I should finish the 3 days of antibiotics I stopped on day 7....I was given 10 days after the whole Port fiasco. I had decided that 1 week was enough given the fact that nothing ever grew on the cultures...so it probably wasn't an infection but bad reaction from the tape they cover the port with..:I have a latex allergy. So will finish the antibiotic....

    I don't go back to the hospital tilly next chemo on 9/17... The surgeon wants to see me...but till then...status quo unless I something pops up.

  • CoyoteNV
    CoyoteNV Member Posts: 286

    Jennliza; Well. at least they didn't blow you off.  It might have been an inconvenient exercise, but I hope you find comfort in the fact that they are paying attention to the details.  I'm very glad that there was nothing bad happening.

    Since I am one of recurrent ladies... and had a bilateral mastectomy... I thought I would weigh in on the conversation about choices.  I happen to also be triple negative, which has a propensity for returning.  That was the primary reason I chose to go bilateral and chemo.  At the time (summer of 2012) radiation was not deemed a necessary addition. 15 month later, it was back in a lymph node.  I thought I made a very aggressive decision. The triple negative always increases the risk.  There may be percentages, but there are no guarantees.  I could beat myself up and say, "Why didn't I insist on radiation treatments back then?"   The radiation oncologist says the odds of my recurrence were very low.  But. there it was.  This time, radiation is on my treatment schedule.   Make the best educated decision for you and your life that you can.  Then, don't haunt yourself with worry. 

    I did have reconstruction, and all went well. I had a good PS and feel it was very successful - understanding that my Beach Babe years are long gone.  My goal is to look and feel normal in my clothes.  I did not want to deal with breast cancer on a daily basis. It worked, but I have been since May , but for a different reason.


     

  • verukany
    verukany Member Posts: 55

    JennLiza- am glad that you are feeling better.  I know it was inconvenient to go, but as coyote nv said, it's good that your docs are paying attention.  I know you know your body best, and I'm glad that it turned out to be uneventful.

    Re: surgery, I also chose a bmx with reconstruction for a number of reasons- I am as well triple negative and while I know it is an agressive surgical course, I mostly knew personality wise that given the tnbc odds of recurrence, I would have a hard time not just walking around constantly feeling myself up all the time out of anxiety.  I had little breasts before, and was not particularly attached to them although a little sad because they did a good job extended nursing my 2 babies.  

  • pinkninja9560
    pinkninja9560 Member Posts: 178

    Much better day today! Rough night sleeping with the acid in my throat but it's a little better today. It seems like day 8-9 is when I start feeling good again. I'm definitely gonna start chugging more water and Gatorade. I think because I couldn't drink, the chemicals stay stuck in your body instead of flushing out and that makes feel horrible. Got an appt next Wed with the gastro spec . 

    I'm glad to read about the surgery options. I'm also neo adjuvant and I've had brief conversations w my bs about lumpectomy versus mastectomy. I have a lot of calcifications near my tumor that she said absolutely have to come out. They don't shrink w chemo so we're just waiting to see what happens when I'm done chemo then discuss options. 

    Part of me is sick of having surgeries (I've had 5 on the same knee and an additional 5 on other things) so I would love to have a lumpectomy. On the other hand I'm her2+ so do I bmx? I haven't done much research cause I don't have the energy and like knmtwins, I have blurred vision now too. 

    It seems like many if us are turning the corner and I'm praying for the next 2 weeks to be awesome!  

  • puffin2014
    puffin2014 Member Posts: 979

    I'm wondering if my hemoglobin and red blood cell count have finally dropped. I have no reserve energy, don't think I could walk fast if the house was on fire, got winded at the grocery store picking up 4 items.

  • JenKay2001
    JenKay2001 Member Posts: 117

    jennliza, I had the exact same thing happen to me on Sunday. I went to urgent care (longer drive to the facility that has the capability of assessing me, but much better than a shorter drive to the ER!) with a fever and my WBC turned out to be 18. They sent me home after blood tests and such. I wanted to take a Tylenol and stay in bed too, but since the last time this happened I ended up in the hospital for 3 days with neutropenic fever I'm still glad I followed the triage nurse's advice and went in to get checked out. 

  • jennliza
    jennliza Member Posts: 176

    Ugh...fever back! I was fine till about 1:30...the lb I felt myself heating up. It's 100.7.... I called the doc...but they know I'm not neutropenic...so said take Tylenol. I hate taking more drugs....already back in the antibiotic. Going to play it out for now...sleep/fluids...and hopefully...fever goes away on it's own like yesterday.

    Jenkay- hope you feel better soon too!

  • WalleGator
    WalleGator Member Posts: 80

    Day after my 3rd chemo and my legs too feel like they're 1,000 lbs each. A little queasy, but I've got compazine for that. A good husband, too, who's making dinner for the kids as I type.

    Regarding surgery choices after neoadjuvant...I'm TN, too, so I wanted to be as aggressive as possible. I did the BM, now chemo. Found out I was BRCA 1 positive so hysterectomy schedule for Oct. We all want to beat this thing, so I told my onc to be as aggressive as possible in all decisions. 

    November will bring reconstruction, and am meeting a surgeon tomorrow about their suggestions. That's another thread...

    Funny story - can't remember any darn thing right now. Ordered my daughter shoes, didn't fit so I'd need to return. Found them out in the recycle bin the next day!  Total black out on memory there. Even though it rained they weren't ruined...lucky!

  • Mumford
    Mumford Member Posts: 88

    JenKay, Puffin, and Jennliza...GET BETTER! Boy this is rough. Walle is even recycling shoes!

    The palms of my hands and parts of my feet feel hot and itchy. Do you guys think this could be the beginning of neuropathy? Fingertips okay. I always thought that neuropathy would present as numbness in the fingertips, but it occurred to me today that my itchy palms may be chemo-related. Just to be safe, I'm going to buy a lottery ticket (doesn't superstition say that itchy palms mean you're going to get money?)

  • JenKay2001
    JenKay2001 Member Posts: 117

    Thanks you guys. I'm actually feeling much better the last couple of days, I think the worst part of #3 is over for me.

  • JoeysMommy
    JoeysMommy Member Posts: 64

    Jennliza I have a question...  I saw my oncologist yesterday for check up which was 1 week after chemo last wed...  He said my blood counts are great..  white was normal and red slightly under normal by ok for chemo this coming wed.. last night I started with the running nose that just drips out right on to my clotges ugh... and started feeling like I was getting a cold...  I stayed home today and rested but started getting low fever. .. it didn't go higher than 100 but I had bad headache so I took advil ... temp is down still have slight headache.. should I be concerned about neutropenic after having normal levels yesterday... just curious

  • jennliza
    jennliza Member Posts: 176

    joeysmommy - I think your fine. Would tell you to notify your doc if you temp goes about 100.4. Plus you had your bloodwork done...all good! My doc today wasn't as concerned about my fever since my counts were high.

    As for the runny nose...I seem to get that after each treatment. I walk around with a tissue in my pocket...so could just be normal...though taking it easy isn't a bad idea. 

  • pinkninja9560
    pinkninja9560 Member Posts: 178

    I hope everyone had a good night of rest. I'm feeling so much better, most of the fatigue is gone. Last night the acid reflux was a little bit better so I hope I'm on my way to getting rid of it permanently. Today looks like a beautiful day and I'm gonna take my hot rod out for a joy ride. I haven't driven in almost 10 days and I miss my Pink Ninja. Here's a pic of her. She's all custom and really fast and loud! My unusual hobby and love is muscle cars. I go to car shows too Winking I hope everyone has a great day!

    image

  • magdalene51
    magdalene51 Member Posts: 2,062

    Wow, pinkninja! You go, girl! I once rode in the back seat of a 65 mustang across country. I was 15. It was not comfortable. But I love the darn things anyway!

    Ladies, the runny nose is from the taxotere, my onco tells me. Also the drippy eyes. 

    I am curled up in the recliner with my tea and Chopin. Day 4 is never pleasant, but right now it's just a general malaise. Giving thanks for that.