How long have you been Stage IV?

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Comments

  • tougholdcrow
    tougholdcrow Posts: 552

    @forza I cracked a rib during chemo, didn't even know it. The radiologists were worried for a while, but now they don't even mention it. It was determined to be a stress fracture. I was coughing a lot during chemo, and just feeling generally wretched anyway. My greatest hopes for a clean PET in June. f**k cancer and let's keep on hiking!

  • eddiej
    eddiej Posts: 91

    Hi all! You hiking gals are amazing! Keep on keeping on!! @forza @tougholdcrow
    @livinglifenow @ssales13 @threetree @eleanora and everyone, I’ve been more of a reader than a poster for a bit now. I’m doing ok and may be in for some treatment changes. I am a bit unnerved. I’ll be in touch for your input if that happens. You have all been a wonderful resource and are so helping me. Please know that whether I post or not!

    Wishing all a good holiday this week if you celebrate either! Best regards! juliana xox

  • ssales13
    ssales13 Posts: 198

    Hi @eddiej , @livinglifenow , @tougholdcrow , @eleanora , @aj and everyone! I just got on to check in with you all. I hope you all are having a nice Good Friday. I’m taking it easy this weekend and hanging around the house as next week I have blood work, a mammogram and my divorce on Friday. @eddiej Juliana, thinking of you as I might be having surgery and treatment change myself. It’s hard to not be unnerved . I completely understand.But I’ve been told we still have plenty of options right now. Hang in there I’ll be praying for you.

  • tougholdcrow
    tougholdcrow Posts: 552

    @ssales13 That's a lot of stressful situations! How are you holding up? @eddiej I am putting out my best hopes for a long-lasting treatment change.

  • ssales13
    ssales13 Posts: 198

    @tougholdcrow Thank you for asking about me! I appreciate it so much. Im doing ok. I’m sad about the divorce and feel abandoned and a little lonely but I know I’ll be ok and as far as surgery and possible change in meds a little nervous but trying to stay positive about everything and thankful for the wonderful people I do have in my life.

  • livinglifenow
    livinglifenow Posts: 314

    @ssales13 So sorry you are going through all of these stressful situations at once. I will be thinking of you and praying you have strength. You are awesome! 🤗🥰

    Hugs, Pam 💗

  • ssales13
    ssales13 Posts: 198

    @livinglifenow Pam, Thank you so much for your kind words and prayers! I could really use them right now❤️

  • aj
    aj Posts: 424

    @ssales13 what an ordeal!

  • eddiej
    eddiej Posts: 91

    @ssales13 Stacey, I’m sending you waves of strength and caring!! I’m so sorry you have to go thru so much at the same time!
    I hope that you have a great support system to help you manage and make the best decisions for yourself. Please know I’m here for you in our virtual support world! May our next treatment steps bring us better health, stability and calm 🙏🙏

  • eleanora
    eleanora Posts: 558

    @ssales13

    @eddiej

    The uncertainty and anticipation are always the hardest part, especially having a divorce added onto a treatment change and possible surgery. We are all here for you, rooting for good results and cheering you on. ♥️

  • tougholdcrow
    tougholdcrow Posts: 552

    @ssales13 I hope you have a real shoulder to cry on because this is tough going. You have our virtual ones! I hope the change is ultimately for the better though it is sometimes hard to see when you're in the middle of it.

  • ssales13
    ssales13 Posts: 198

    @livinglifenow , @aj , @tougholdcrow , @eleanora , @eddiej I appreciate you ladies, I really do! I’m gonna be just fine, I have a great support system and I have you wonderful ladies. I’m blessed. Just know I’m always praying for you all. Once I go to my MO appointment on 4/14 I’m hoping to know a little more info and I’ll let you all know. I hope each one of you have a fantastic weekend. Happy Easter❤️

  • ssales13
    ssales13 Posts: 198

    @livinglifenow , @aj , @tougholdcrow , @eleanora , @eddiej Hey Ladies! Hope you all are having a great day. Well I made it through my divorce and had all my tests done and seen my MO yesterday. I had progression to 2 lymph nodes under my arm so treatment change for sure. Had genetic testing done I have the PTEN mutation so I’ll be taking TruGap and fulvestrant. Waiting for approval through insurance to start.

  • tougholdcrow
    tougholdcrow Posts: 552

    @ssales13 I hope the new treatment gets this thing under control for a long time, though I know this must be scary. You have been through a lot, and now I hope that life offers you some happy and loving times. May your friendships be a blessing.

  • eddiej
    eddiej Posts: 91

    @ssales13 Stacey, wishing you lots of luck on the new treatment!! 🤞🤞🫶

    I pray your new phase in life brings you only relief, happiness and calm 🙏🌈

    I may be there right with you on the treatment front but won’t know till mid-May.

    Stay strong girlfriend!!! Sending hugs!! julianaxoxo

  • eleanora
    eleanora Posts: 558

    @ssales13

    Congratulations on navigating the storm. Hope the new treatment is effective with few to no SEs. I have been on fulvestrant for 4 years now and the injections become easier with time.

    See my MO on Friday and may be joining you on the treatment change. My testing showed no actionable mutations, so most likely switching to Verzenio.

  • ssales13
    ssales13 Posts: 198

    @tougholdcrow Thank you for your kind words. @eddiej Sorry you might be going through a medicine change as well! Keep me posted. @eleanora Im sorry you are also getting ready to go through a medicine change. Keep me posted ok. I’m praying for all of you. I hope you have a wonderful day and I appreciate the kind words and encouragement! It makes me feel less alone🌸

  • livinglifenow
    livinglifenow Posts: 314

    @ssales13 To echo @tougholdcrow , @eleanora@eddiej , I sure wish you the best on the new treatment. Hopefully, this is the one that lasts a long time! @eleanora and @eddiej, I pray your treatment changes, if needed, also yield great results.

    Thinking of you all and wishing you a wonderful spring! 🌸🌷🌺

    Hugs, Pam 💗

  • ssales13
    ssales13 Posts: 198

    @livinglifenow Pam, thanks for the well wishes! I appreciate them.