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Johns Hopkins "Ask an Expert"

lynn1234
lynn1234 Member Posts: 90
edited September 2021 in Recommend Your Resources

Johns Hopkins "Ask an Expert" is a free site where you can submit a breast cancer question and receive a reply usually within 48 hours. The answers are written mainly by Lillie Shockney RN, BS, MAS. She has been the administrative director of the Johns Hopkins Breast Center since 1997 at Johns Hopkins and has written several books on breast cancer and won many awards.She herself has had breast cancer twice.

There are several categories regarding breast cancer on the site. I have asked several different questions and always received a good reply. Sometimes it's nice to get another take on an issue from someone with experience or ask something that I would be too embarrassed to ask my doctor, etc.

There is a search bar where you can see if a similar question has been asked also. It's a fantastic resource that I highly recommend. The link is below:

http://www.hopkinsbreastcenter.org/services/ask_expert/


Comments

  • nancy2581
    nancy2581 Member Posts: 407

    I second what Lynn has shared. I have asked a question on "ask an expert" too. It was nice to get a helpful answer. Lillie does get back to you quickly

    Nancy

  • lynn1234
    lynn1234 Member Posts: 90

    She must be a busy lady, being an author, nurse, speaker, professor and answer all those questions!

  • nancy2581
    nancy2581 Member Posts: 407

    I agree! There are tons and tons of questions yet she manages to keep up. Amazing

    Nancy

  • ruthbru
    ruthbru Member Posts: 46,722

    I have also used that site and been very pleased.

  • bevin
    bevin Member Posts: 519


    I've used it and loved it too. Really great concept

  • melissadallas
    melissadallas Member Posts: 929

    I got good answers too

  • PatRN10
    PatRN10 Member Posts: 110

    ditto to above but I could not locate the search feature .

  • lynn1234
    lynn1234 Member Posts: 90

    It's at on the top right side of the front or home page

  • farmerlucy
    farmerlucy Member Posts: 596

    I also asked a pathology question at CellNetix.com and received a great answer from a pathologist.

  • lynn1234
    lynn1234 Member Posts: 90

    That's great to know-I'll check it out!

    Thanks,

    Lynn

  • treelilac
    treelilac Member Posts: 138

    Sometimes if the search function doesn't work well, I also use the browser's search command Find (Ctrl F). A small window should pop up and you can put your keyword there.

  • bostonnorthwest
    bostonnorthwest Member Posts: 5

    This site appears to be disabled.

  • simonerc
    simonerc Member Posts: 151

    image

  • pi-xi
    pi-xi Member Posts: 177

    SimoneRC, it seems to have been that way since early in 2019. I used to enjoy reading the questions and answers on that site.

  • simonerc
    simonerc Member Posts: 151

    That’s a bummer! I am treated there and they are so great! I can ask them if they have any info on the ETA if you want

  • pi-xi
    pi-xi Member Posts: 177

    Sure, SimoneRC, that would be great. Wishing you the best!

  • simonerc
    simonerc Member Posts: 151

    Hi Pi-Xi!

    Just sent a message to the Nurse Navigator. Will let you know when I hear back from her!

    All the best to you as well!

  • marcar1
    marcar1 Member Posts: 6

    I was dx iDC in right breast, Jan 2021, lumpectomy, 23 radiation treatments. I am on Letrozol. I just had my 6 month, post-treatment bilateral diagnostic mammo and ultrasound. Left breast has developing focal asymmetry. Radiologist recommended birads 3 and 6 month recheck. I am not going to wait six months for recheck. Is it feasible that I request a biopsy now?

  • moth
    moth Member Posts: 3,293

    Marcar1, usually with BIRADS3 insurance will not cover a biopsy. The evidence based approach is a recheck in 6 months. So frustrating, I know.