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"Cancer Care" by Paul Marik
Does anyone know if this book contains legit information? The person who gave it to me is very much anti-"traditional" medicine... but the book itself contains peer-reviewed references. I would obviously discuss any specifics with my oncologist. Just wondering how much time I should invest browsing it, since my time and…
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Checking on a website to order from
I hope it is okay that I am asking about a website. I am thinking of ordering something from survivorroom.com, but don't know anything about them except what I see on their website. I can't find any reviews about them outside of their website. They look legit and I will probably give it a try, but I am doing my due…
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Self pay Oncologist Fort Worth
I am in the early stage of diagnosis. Biopsies to be done this Friday. I have 5 different concerns in one breast that have been flagged as highly suggestive for inflammatory breast cancer. I need recommendations for an oncologist in Fort Worth, Texas that will work with a self pay, broke patient. I'm not sure where to…
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Weigh in: What are the best and worst gifts for people with breast cancer?
If you've been diagnosed with breast cancer, what were some of the most meaningful gifts you received, whether material or non-material? Were there any gifts or offers that weren’t helpful? And if you're a caregiver, what gifts or gestures have you given that seemed especially appreciated? Share your suggestions and…
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PREDICT BREAST CANCER CALCULATOR : NEW VERSION V.3
Hi Everyone ! Just thought I'd share this here. Predict Breast Online has released a newer version of their survival calculator. This new version is based on women diagnosed between 2000 and 2017, vs. 1999 and 2003 for the former version. It now includes more details such as PR receptor status, radiation treatments, etc.…
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Life After Treatment: Hair?
Hey all, First I am extremely grateful to be alive. Given the choice to go through chemo and preventative hysterectomy, I would happily do it again without any questions asked about my hair. But at the same time I thought to ask the question, and maybe some of you might have some resources for me that are safe and not…
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Looking for your recommendations: Wigs, hats, turbans, and more
For any of you who chose to use wigs, hats, turbans, or any other head covering during chemo, we're looking for personal recommendations in your area! Was there a certain type of wig or hat you found that worked for you? A great brand of turbans? Did you try a full-service wig salon or hair loss center that offered fitting…
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post mastectomy pain syndrome
I am looking for a doctor in the Dallas area that treats Post Mastectomy Pain Syndrome. Is there anyone out there that has been treated for this syndrome?
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Magnesium spray
I stopped taking the magnesium pills and have been using this. I have been sleeping better than ever! It's amazing! Magnesium spray: Magnesium flakes (https://www.amazon.com/dp/B084HLHHWJref_=cm_sw_r_apin_dp_9T5Q2WQRCAR5PWW56ZZB) Distilled water Lavender essential oil Boil 1 part distilled water and add it to 1 part…
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Music to help kick cancer's ass
I really believe in the positive power of music. Lots of kinds of music! Since my diagnosis, I have put together playlists for myself — classical music for calming (and techno when I needed to concentrate on work and not let my mind wander), but now that my lumpectomy went well, one to keep me on the positive track. I'm…
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Program in Washington DC for high risk young adults
My young adult daughter has asked that I help her find a program in Washington DC or close to Washington DC that will offer careful screening for possible breast cancer. While she is not diagnosed at this time, due to my history and the history of my sister, she is considered at high risk. She has been using a program in…
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Virtual Free Menopause Talk this Friday 6/9 at 12:00EST
Let's Talk Menopause, a national nonprofit organization, is hosting this event with Dr. Laila Agrawal and Dr. Deepa Halaharvi. Registration is free. Please share! Thanks, Donna
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Best and Worst Books on Breast Cancer
I looked to see if there is a book review thread already and there hasn't been for several years. This is the latest one I could find easily, and it doesn't really have reviews, just some recommendations. https://community.breastcancer.org/forum/26/topics... I'm interested in hearing about books you love and books you…
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Covering your scars with tattoo work
Hi everyone, After some discussion with the mods and a few others, I am happy to start this thread! This is a safe space to discuss covering your scars and such with tattoos, or other body modification techniques. (Flat or recon- all are welcome!) Those of us with a love for beautiful ink, that want something besides…
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Genderless Breast Cancer Research: We Need More
"Breast cancer is a genderless disease with research concentrated on only one gender. Historically, males and other genders either have been mostly excluded from clinical trials for drugs to treat breast cancer. So, these cohorts are often forgotten when it comes to research. Because this group makes up less than one…
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Iris Zhi Oncologist at Sloan Kettering,
anyone use her as their oncologist I am thinking of switching oncologist don't want to go into Manhattan anymore
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Looking for a lymphedema specialist in NYC
I am not sure if this should be here or in the Lymphedema sub-forum. If anyone has advice on that, please let me know. Anyway, I had a mastectomy on the left side a bit over four weeks ago. One sentinel lymph node had cancer, so my surgeon did an axillary lymph node dissection on the left side. (None of those nodes, other…
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Genderless Breast Cancer Research: We Need More
"Breast cancer is a genderless disease with research concentrated on only one gender. Historically, males and other genders either have been mostly excluded from clinical trials for drugs to treat breast cancer. So, these cohorts are often forgotten when it comes to research. Because this group makes up less than one…
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swim suit for unilateral mastectomy
Hi there - Does anyone have a recommendation for what to do/wear for swimming? I had a unilateral mastectomy so I have one side that is a saggy 36 B and a flat other side. I know there are plenty of tops out there with slots for removable prothesis - which I have. What I'm wondering is if anyone has experimented with using…
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Skincare
Right after my cancer dx, I was on the hunt originally to a natural alternative to Aquaphor and found a few other natural skin care products. I used during my radiation, and my skin held up really well - Emu oil, Avojel, Nipple Butter, MJs Herbals Calendula Cream, Dr. Bronner's Magic Balm were my mainstays, rotated daily…
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Is there a board like this but for colon cancer?
A friend was recently diagnosed and is having a hard time. I don't think she knows anyone with colon cancer and my experience is very different than hers as I didn't have chemo, even. I've found these boards so meaningful and useful and I wonder if anyone knows of a similar resource for colon cancer? Or has other resources…
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Where to get treatment - Dana Farber or MGH?
I am recently diagnosed, ER-/PR-/HER2+, multicentric with largest tumor 3 cm, several lymph nodes involved. I live in a rural area, and had second opinions at Dana Farber (oncologist Sara Tolaney) and Massachusetts General Hospital (oncologist Steven Isakoff). The holidays delayed things. I will start TCHP chemo this week,…
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Website for Spouses of BC Patients
Hi All! I was treated for BC a few years ago at the ripe old age of 32. My husband and I were only married for 6 months when I was diagnosed. Suffice it to say, it was rough. Just wanted to put this out there. My husband created a website with resources for spouses of breast cancer patients. It's all the stuff he wishes he…
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Help preserving memories of a mommy (recommendations?)
My sister in law lost her battle with breast cancer almost two years ago. We a sitting on 1000s of photos and videos that we took specifically to document her life with her daughter, who is now 6. I'm at a complete loss as to where to start with sorting them out and turning them into media that can be more present in our…
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Prosthetics
I REALLY, REALLY do not want to order prosthetics from Liberator! I’ve had so many issues with them over the last 6 years and the last straw was them refusing to honor their own warranty for defective prosthetics. I DO want the options of asymmetrical forms that have an option to use both in bra pockets as well as adhesive…
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EMBRACE Metastatic Breast Cancer Forum Series
A series of free online educational programs from Dana Farber Cancer Institute,presented on Zoom. I came across this today, topics look interesting, I especially want to hear about research they are doing. First session is 10/23, I think recordings will be released also. About this event Join us for the EMBRACE Metastatic…
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Need feedback on doctor/breast center in NJ
Hello everyone. I was diagnosed last Friday, had another biopsy today (waiting for results) and meeting with surgeon next Thursday. I'm in NJ and go to Holy Name Medical Center in Teaneck. The doctor I'm meeting with is Dr. Brinkmann. Does anyone else go there or have any experience with this breast center and doctor? I…
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Johns Hopkins "Ask an Expert"
Johns Hopkins "Ask an Expert" is a free site where you can submit a breast cancer question and receive a reply usually within 48 hours. The answers are written mainly by Lillie Shockney RN, BS, MAS. She has been the administrative director of the Johns Hopkins Breast Center since 1997 at Johns Hopkins and has written…
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Deciding on a surgeon for excisional biopsy
Hello, I am so grateful for finding this forum! I am in the process of selecting a surgeon for an surgical biopsy of a small cellular fibroepothelial lesion as well as a fibroadenoma. Fortunately, my lesion is most likely benign though removal is recommended for final confirmation. I have narrowed it down to 3 drs in NYC…
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CO2 laser mastectomY
Hi All, I'm debating between regular scalpel surgery with top NYC surgeon or CO2 laser with a Dr Ansanelli that no medical persons have any familiarity with. I know he's legit as a friend spoke with an oncologist that sees his patients. The oncologist said his patients seem fine but he'd always go with a top surgeon. I'm…