Starting Chemo September 2015; join us!
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I saw Octo just posted in the winter rads thread.
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I'm still waiting to hear from the office. I did the sim.
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Oh are we supposed to change boards when chemo ends?
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Those of us left behind hope not but it looks like some do.
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i don't have the mental capacity to sort through another group
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I hope we ask stay here and in keep in touch.
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This thread is labelled Chemotherapy -Before, during and After..radiation is after so I think its ok to post here during radiation
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Annie I don't have it in me either I am going to stay here and read everyone's posts and contribute where I can. I would love to have everyone keep posting. I want to see everyones hair grow back.
OH and that is a really nice juicer. Does it juice carrots and harder stuff?
today I bought flax seed and a grinder. I am going to mix 2TBSP a day in yogurt and I ordered
Broccoli sprouts now I just need some jars with screens so I can sprout them.
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Lisa, I hear how important breastfeeding is to you but please talk to your doctor first. I know we both want to see our kids finish college! You might be able to get donated milk if need be if formula is the issue. This was very hard for my friend, dx at 25 and again at 31 (while engaged). She got 3 opinions and ultimately went for the bmx+chemo at MD Anderson, even though she will never breastfeed a child. Hugs, mama! ETA: I didn't mean to sound "preachy," I just know from experience how much emotion plays into breastfeeding and how hard it can be to give it up (I won't bore anyone with my twin breastfeeding story, but let me just say it left me highly stressed and discouraged and then depressed).
NOT a fan of this bone and joint pain. So much for Taxol being "easier," I'm hurting all the time!
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It juices everything! I put carrots and beets in it every day with my greens. It does berries too!
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I haven't looked at the rads thread yet since it'll be end of March start for me. Chemo is enough on the mind. I hear despite it's SE that it'll be better than chemo. That I look forward to if I must do it.
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SC: I just had sim today. I start rads on Monday.
Hugs to all!
Octogirl
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Annie, many of the old chemo groups are still going strong, months later! No need to leave!
Octogirl
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cajun-my shin splints lasted 3.5 days with my first dd taxol. Hopefully anyone's joint pains won't last that long. I didn't have L-glutamine established in my system yet so hoping that shortens any joint pain.
Love juicing and my work got me a nutra bullet too. Dark leafy greens here I come!
I'd let it if we kept posting here about radiation too. I think this board is just so well established
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Do you juicers not eat a lot of salads with greens? I've tried kale mixed with apples and such and still there is an after taste. My dad wants to get me a Vitamix but I know it will just sit here. I'd rather by TJ's mixed greens salad, put nice dressing on it and eat that than fruit mixed with greens. But he loves it.
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I like salad. But the pros for me of juicing are that it's more bioavailable and I can juice things I gag on (like radishes, carrot stems, and beets). I like my Nutribullet, but for making your own nut butter, the Vitamix is the way to go.
This pain is relentless... For the first time, I actually feel disabled, can't sleep, and am having trouble walking.
Thinking of all you sisters tonight who are sick, in pain, in the hospital, worried about the next stage, etc. And raising my mug of green tea to the lovely ladies moving on to the next step. Cheers!
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Greetings to all! Completed 3 of 4 DD taxol. Am on day 5. Still struggling with neuropathy but MO assessed and recommended we proceed with full #3 dose. Unfortunately, neuropathy got worse. Feet, fingers and tongue. MO referred me to acupuncturist. Will give it a try and report back. Likely not covered by insurance but we'll see.
Lindy, (and others?) how did your third D dose go? MO called me today to see how I'm doing. She's so kind. She says we'll likely reduce dosage for last treatment. Is that what you did?
No nausea but achey and fatigued. Looking at the finish line ahead... No rads for me. A scan and then an ooph are next. 😕 oh- and like some of you, doc is watching a spot that showed up on my illiac but was biopsied and came out negative (pre chemo). If it's not there after chemo, MO will radiate that spot/ just in case. I guess bone biopsies are not always reliable. I'll worry about that later.
I continue to pray for all in this group, and find comfort in reading your posts.
P.S. I have a Breville juicer that works great but does not get used as much as it should. You've inspired me to get back at it!
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Some insurance plans cover Acupuncture. It's been tooted to really help with neuropathy.
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Cajun- your pain seems so much worse than mine. Im so sorry. If it helps, I am taking Aleve morning and night supplemented with Tylenol as needed. (also Claritin) It seems to keep the aches manageable. I have some oxy left over from surgery, if I need it at night. So far not needed. Can you get something stronger than OTC from your Dr? Wish I could be more helpful. Hugs to you.
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Thanks, Shelly. It was never so bad on AC or weekly Taxol, but the DD + Neulasta is doing me in. I'm really wishing medicinal marijuana were legal here. I don't care how bad it gets though, if it keeps my counts up enough to finish trx on time, I'm doing it. I'm just surprised to be struggling so much with the Taxol. Sure hoping your acupuncture is covered - it absolutely should be!
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My Friday FEC dose then Neulasta took my legs out from under me. Now I have phlebitis in the surface veins from the Friday chemo and the previous dose (the next vein over). Got care instructions, apparently not serious, but still, one more hurt to try to deal with.
Husband is extremely sarcastic and nasty because I got so scared about it last night. So even with a heavy sleeping pill on top of the melatonin, I woke at 3:30 AM and couldn't get back to sleep, despite all the tricks (low light book reading, calming music, meditation, breathing...). I am so glad my poor old dog is still with me for comfort and understanding, because if it were just the husband I'm not sure how much I'd care anymore. I know others of you have things a lot worse than I do, and I'm sorry if my whining sounds selfish, but I am simply not that strong anymore. I promised my doggy that as long as she wants and needs me around, I'll try to keep fighting. But when it's her time to go, sorry, I'm too worn down to make any more promises. And I am a bad person for sincerely wishing husband could experience exactly what I am going through, the disfiguring op and lymphedema and chemo and complications and fear of mets and all, so he could finally understand, and at least stop the sarcasm...I hate this, I hate that my inability to cope fully with all the crap of this BC has me deteriorating down to my husband's level --- I never used to wish harm on others --- I used to be a kind person 0 -
Shelly..DD Taxol dose #3 of 4 was reduced 20% last thursday. I had Neulasta shot on Saturday and had some strong joint pain but nowhere near as bad as full dose DD Taxol. It was more like being hit by a truck than the totally debilitating pain of first 2 rounds. I actually got out of bed!
Reducing the dose may not be the answer for everyone but if possible, I'd recommend at least asking. My MO said its better than stopping the treatment completely with one or two infusions left (which many do because they've had enough).
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Good luck to everyone having treatment today - I'm off to weekly low dose Taxol #4 of 12 shortly. One third done after today - woo hoo!
And in general, wishing a side-effect free day to all!
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(((((((Tessu))))))) I am sorry that your husband doesn't get it. And hugs to all of you having pain!
Octogirl
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Tessu, I CARE!!! I'm heading out for my echo, but sending you some love.
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Finally the day has come for me my last chemo ttreatment!! I'm so glad to get this behind me!!
Hugs and prayers for all you ladies with a few more treatments left you can do it !! ❤️🙏🏻
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Combats to Aga over your final chemo! !!!
Good luck to Southern Charm and any others getting treatment or tests today.
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hugs Tessu...and thank goodness for doggies. I think they are little angels...except when decide to chew on something they're not suppose to.
Congrats Aga!
Started on Tamoxifen. We'll see what happens. Hot flashes sucks! It's been keeping me up at night.
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Hi all
For those of you with Bone pain and neuropathy Sending hugs and prayers. For wound healing they had me consume 100grams of protein a day( plus 30 grams LGlutamine). It cleared up my nueropathy and helped heal my wound healing but towards the end of Chemo I just couldn't handle it anymore. I also added a packet of knox gelatin everyday to help. Now with my RBC so low I have to get back to the protein for my surgery .
This is the prescription stuff for Neuropathy It is very easy to consume just mild orange taste. I had to buy it because insurance wouldn't cover it. Its really expensive. I would try it if I had continued joint pain as well especially if Claritan isn't cutting it.
Juven 7g L-Glutamine 7g Arginine
Because Juvin is so expensive Here is the brand of powdered I put in protein drinks on the days I can get them down. Otherwise I have to go back to Juven.
L-Glutamine / L-Arginine ( this is not my favorite. I usually stick with protein drinks for 7g)
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For juicing I have a confession: I own two juicers,sprouters, a vitamix, and a greenhouse BUT I like to talk about those things more than I enjoy doing them. For me its a lot of work to get excited about vegetables.
I juice green leafy vegetables purely because I don't really enjoy eating them in salad. I have done better with my Family as they eat baby greens for dinner at night. I have made a list of foods that the research is pretty significant on helping with cancer and or my heart.
I have set a big goal that after PFC I will try to change my lifestyle to fit those guidelines. I just have to find a way to make the guidelines part of my daily routine.
Sleep better, Exercise 30 minutes a day, drink more water, cut out most sugar, cut out nitrates and most red meat, eat lean meat
Eat Fish, Broccoli sprouts, Cabbage, flax seed, leafy greens, colorful vegetables, mushrooms, wheat germ oil
&possibly supplement with curcumin and turkey tail mushrooms, CoQ10, and garlic
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