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Starting Chemo September 2015; join us!

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Comments

  • el_tigre
    el_tigre Member Posts: 453

    Cajun - oh man that sounds like a pain to deal with right now, like you don't have enough on your plate. I've only had a drop of blood or a drop of meds at the injection site, thankfully. Another woman says this on this forum, I'm sorry I forget who, but I've been thinking about it more and more lately esepcially today with N skin pain, "eye on the prize".

  • Artista928
    Artista928 Member Posts: 1,458

    After this, no more chemicals on my body as well. I use goat milk stuff soaps and won't use chemical deodorant. If you're trying to grow your hair faster, Nioxin shampoo won't do it. Take B vits, esp biotin.

  • el_tigre
    el_tigre Member Posts: 453

    Artista, I hear ya. What does everyone think about microwaving food after all this?

  • Cinque
    Cinque Member Posts: 150

    Ive always been suspicious of the microwave.  I never used it to heat my babies bottles or food.  I am "guilty" of using make up shampoo.....I think so many things preservatives pesticides etc etc that cannot be good for people have been added to our foods. Like many Im not a drinker a smoker Im fit and a healthy weight.  I breast fed my children I didnt have hormane replacement through menopause and in my lifetime I took the pill for maybe 11 month.  Really pissed me off that I still got cancer.  Anyway I too will think twice about what products I use and what I eat after a big night on the town when this shitmo is over I haven't been out like forever.  I miss my life before cancer.  

  • exercise_guru
    exercise_guru Member Posts: 333

    Yahoo for those of you finishing up. Congratulations its a nice feeling to be done. After TCH it ook around 5 weeks for me to get my energy up a little.

    Praying and thinking of you that are struggling with the crap Chemo gives. Hoping that you can have a nice week with Family and friends to cheer you on. Everyone don't push yourself too hard.

    I have been a little quiet this week. I had a BC friend tell me she is going to have one last Christmas and then go into Hospice. Not going to say how young she is but it was a rough week here.

    On the good side I have dark brown fuzz coming up and my counts are low but I have been able to walk the dog and go out to a few Christmas events with the family.

    I was going to sew some things for the kiddos. Still haven't found the sewing machine yet.

  • Artista928
    Artista928 Member Posts: 1,458

    I use microwave friendly dishes. I can't live without it so that'll have to be a pass on it. I think worse is the air we breathe, especially those who live in polluted areas. I just changed the filters in my air purifier and oh man it's frightening to see what it captured! And my place gets dusted from time to time too.

  • mom2boo_and_buzz
    mom2boo_and_buzz Member Posts: 133

    exercise, I'm sorry to hear about your friend. I hope her friends and family are a great comfort to her as long as they can be. I know I am viewing this holiday season through a different filter and am trying not to take any event or tradition for granted.

    Hugs and good wishes for a lovely holiday season with your loved ones to everyone.

  • Minnesota_LisaFR
    Minnesota_LisaFR Member Posts: 316

    Exercise - Sorry you had a rough week. Thanks for sharing, it gives me perspective. We lost my late mother on Christmas Day, so I'm especially sympathetic to anyone going through that right now.

    I had a challenging week last week, so here's a lighthearted question:

    Anyone else having vivid dreams of all her hair coming back? I had my second last night and it was... glorious! The dream was very realistic. I kept running my hands through it and looking at it in the mirror from every angle.

    Of course, in my reverie it came back not only thick and healthy but also without a strand of grey - a true "wish fulfillment" dream!

  • tkemp67
    tkemp67 Member Posts: 74

    cajunqueen1- I have a red face and neck day after Taxol and next day. Only time I have any color anymore. I just figured it was an allergic reaction. I take Benadryl.

  • Shopgal2
    Shopgal2 Member Posts: 594

    had my deportation this morning. Surgery was quick and I am not in any pain. For those that are wondering bs went thru the same incision above the port and basically snipped stiches and pulled the sucker out. I gotta say it feels good not to have that bump on my chest. Today was my 5th surgery this year, from biopsy, lumpectomy, reexcision, port in ,& now out. Here's to less poking in 2016 after rads of course.

  • AnnieB43
    AnnieB43 Member Posts: 724

    Jealous! They won't take mine out until after rads.

  • el_tigre
    el_tigre Member Posts: 453

    Shopgal - did they knock you out or were you awake?

  • Cinque
    Cinque Member Posts: 150

    Hello Shopgal nice to have deportation and chemo over and done with in 2015.  My last one is on Thursday and people are like oh xmas eve but I couldn't be happier I just want it done.  Once rads is over in 2016 I want to get on with living and end this horrible chemo routine we've had to endure.  Congrats and good luck with rads and all the best for the new year. 

  • Shopgal2
    Shopgal2 Member Posts: 594

    ElTigre twilight sleep. Just a gentle nap in my IV. And on that subject I forgot how much I hate, loathe, getting an IV in my hand. First attempt by the anesthesia nurse went into a valve on the top of my hand, so second was on the inside of my wrist.

    Annie why did they say after rads? I pretty much told mo I wanted it out before rads and before the end of the year to get the surgery done because I had already met my out of pocket max. I won't need the port because I am triple negative, so no hormone therapy for me. Plus I figure I have to be able to sleep on my right side where the port was because my left side will be sore from rads.


  • el_tigre
    el_tigre Member Posts: 453

    Shopgal - just wondering since they had me awake to hold me breath for 10 secs when i got that damn thing in. Lucky gal to have ti out. I hate iv's, oh man sorry that sounds painful. But it's over with :)

  • Shopgal2
    Shopgal2 Member Posts: 594

    I wish we all were done. This time next year we will be. Hang in there gals.

  • Minnesota_LisaFR
    Minnesota_LisaFR Member Posts: 316

    Shopgal - Congratulations! Having the port out sounds heavenly.... enjoy!!

  • Shopgal2
    Shopgal2 Member Posts: 594

    thanks mLisa. I'm hoping with it out I can have less neck pain and sleep better. Gotta go back to rubbing my head now-my new fav activity while I watch tv at nite.

  • AnnieB43
    AnnieB43 Member Posts: 724

    I'm supposed to leave it until after all the treatment and I'm pronounced cancer free. In case I need more treatment I guess.

  • Shopgal2
    Shopgal2 Member Posts: 594

    Annie make sure they flush it for you every 4 weeks. My mo & infusion nurses say a lot of patients that keep theirs are not told they need to be flushed if they keep the port. I think the identification card I got with my port had instructions on the back of it with guidelines for flushing volumes.

  • AnnieB43
    AnnieB43 Member Posts: 724

    how long do the night sweats last? Is it years?

  • AnnieB43
    AnnieB43 Member Posts: 724

    Yes I have my flush scheduled already

  • Cinque
    Cinque Member Posts: 150

    Hi Annie I think night sweats are different for everyone.  I went through menopause and had night sweats on and off for two years.  Imagine how delighted a I am that shitmo started them up again.  Do you think hormane therapies will keep night sweats happening...or do you think they will go once we finish chemo.

  • AnnieB43
    AnnieB43 Member Posts: 724

    finished chemo on November 16. The night sweats are still really bad.

  • tessu
    tessu Member Posts: 1,294

    I went through menopause about 1 1/2 yrs before BC. My sweats actually stopped during this second type of chemo that I'm in the middle of now (FEC). Go figure

  • Cinque
    Cinque Member Posts: 150

    Hi Annie Im just guessing but I think some of the effects of chemo are going to take a little while to go away which is a bit shit really.  Hopefully it wont take too long.  I love the sun and just googling about it seems no sun for six months after chemo...so I think we have to give our bodies time to heal and they will heal.  Sleeping with your feet out of the covers helps you cool down..sorry I cant offer anything more.  Also want to say Ive really liked reading your posts...you have a gift for writing.  I remember you using the term shawl of pain....so descripitive and unfortunately accurate.  Take care Annie sorry 2015 was awful for you praying that 2016 is a much better year for you and indeed all the women in this forum. Xxx

  • AnnieB43
    AnnieB43 Member Posts: 724

    Thanks Cinque. I think 2015 has been shit for all of us, but WE LIVED! I'll take it. 2016 will be loads better because we can get our hair back!

    Merry Christmas chemo friends. I hope everyone has a wonderful week!

  • AnnieB43
    AnnieB43 Member Posts: 724

    I actually get ready for bed in layers and take stuff on and off all night. It's cold then hot then normal. It's all night long. I'm not the only one. I guess the chemopause is more intense then natural menopause. It's just hard to get good sleep.

  • cajunqueen15
    cajunqueen15 Member Posts: 689

    Hi all. Congrats to those being deported, that is awesome! I loathe my port, I can't wait. For those still trucking along, I'm thinking of you today!!!

    The night sweats are awful. I wake up as I feel the sweat oozing out of the pores of my head.

    The leg pain is still really bad, despite Claritin and Percocet. It starts in my joints and shoots down my legs. Really strange. It keeps me awake and I sometimes keel over in pain. Cancer is stubborn. But I am more stubborn, so cancer has met its match. You think I can't take 3 more weeks of bone crushing bone pain? Wrong!!!! ;)




  • AnnieB43
    AnnieB43 Member Posts: 724

    How do men handle chemo? My husband practically lays down to die with a cold.