Starting Chemo September 2015; join us!
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Southern charm: What do they say. Doing the happy dance for you? Well I am doing the happy hula for you. You have been such a great person on this board along with Annie and shopgal, tessu, fidget and so many others that I have followed and they really helped me keep my sanity.
Tessu: You are one strong and brave lady. Perhaps you can send some of that strength to me.
I will not be following you ladies when you are finished because in the beginning when I joined the Dr said I would start chemo in September. I did not realize at the time that I have matasticized breast cancer, but all you ladies on this forum have given me so much hope and answered so many of my general questons that I couldn't help but to stay on. And I will say I think it is one of the biggest and most read forum. You ladies are the reason for that. I will of course follow along as I always have. Best wishes to all who are finishing this horrible time out of our lives. You have conquered it and most of you are a lot younger than I and have a lot more living to do. So my God Bless you and give you a long and wonderful life ,
Rosieo
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Southern Also wanted to mention I so enjoined your many hats and wigs. The all looked really great on you because you are a beautiful lady with or without.
Annie Thanks for all the poop remedies :-) :-)
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southern cute sign and hat/hair combo.
Aww Rosieo you are so sweet. I am teary eyed reading your post. Please check in when you can. I worry about those who don't post often.
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Rosieo - Just saw this on Twitter and thought of you and every wonderful, brave woman here.
<<<hugs>>>
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Rosieo-- So glad you are still stopping by here. I wish nothing but the best for you and your husband both. God bless the both of you. <<<hugs>>>
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Rosieo- I'm so sorry. I am adding you to my prayer list. Where is the CURE for all you amazing women?
Tkemp - did they do a SNB with lumpectomy? Some people choose mx to avoid radiation and some because of genetic mutations and others may be worried about clear margins or the breast's appearance. My understanding is that there is a 2-3% difference in recurrence rates between the two but recurrence and survival rates are different animals. It's such a personal decision and I'm sure you made the right one for YOU.:)
Eta: I chose a mx before genetic testing because I knew they would find IDC with lymph node involvement. I just knew. Kind of like how I knew I was having twins before my first ultrasound. Prior to surgery and after my biposy, I was dx with "just" DCIS by two facilities. I was told anything else was highly unlikely. WRONG.
Tiger, I have a pink wig too! Maybe I will rock it with my party hat. It's so cold in there, I bet my head wouldn't sweat, lol.
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((((((Rosieo))))))- where are the mets? Gentle hugs that you are free of pain and have a solid trx plan in place. So much research is going on for stage 4 bc right now...any day, any day.
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southern, I love that picture!! So proud of you and tessu and all the bell ringers!
Tessu - bless your heart, what a nightmare.
you have the wrong file? This is my life!!!! Ugh. 0 -
I knew from the time I heard aggressive bc that both were gonners. I made that decision when the biopsy thought I had 2 cm. MRI saw 4 cm. Nope! Wrong again! I had 4 cm but then a dumbbell bar of cells had formed from it and formed the other 3 cm size that no one saw until I was in sx. So 7 cm for me! I love not having to wonder about recurrence so much, and I'm not trip neg, trip + or Her2+. My third cousin had lx in 2013 for a 2 cm tumor, aggressive. Now she wishes she had canned both and did reconstruction because now it's in back of her mind more.
If you get a lx, radiation is advised if you have lymph node involvement. That cousin did the whole gammet, throw the book at it. Even though only 1 SN had micromets of cancer cells in it, radiation is highly recommended. Before sx at 4 cm, thinking no node involvement, it was a maybe due to the large size of my tumor.
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You look great Southern, and those goodies! Much better than a bell imo.
Roseo, best wishes. There are lots of stage IV folks who are doing well NED some years out. I follow that board as I like to learn about it event though I'm so far not considered stage IV. The ladies there are amazing. I follow the death and dying forum. How these women think is absolutely amazing and so positive. Opposite of what I thought I'd read. Very very loving and supportive to each other. Hope you find peace and stay positive. Lots of good txs and research going on for stage IV. Who knows, I may be joining that board over there if they find the nodule in my lung was a met. 0 -
Roseio, sorry to hear. You as well as all the brave women on here will be in my prayers. I know one tough chick with stage 4. She's been kicking ass for over 5 yrs. Her cancer is almost non existent from the last chemo she had.
Southern, nice! Congrats, love the pics. Cupcakes look yummy
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Roseio I can't tell you how sorry I am to hear about your cancer. Will keep you in my prayers.
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southern, what an amazing surprise! Xo
I'm dragging my butt out to brunch with my 2 time, 34 y.o., triple + bc survivor friend. Night sweats from hell all night long. Yuck.
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((((Rosieo))))
Yay for finishing Southern! Happy Dance!
Hugs to all;
Octogirl
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Hi - just found this group (and this site!) though I started chemo in September. Saying hi and introducing myself - I don't know how to do that detailed sig stuff yet, but in brief - Stage II, Triple Pos, lumpectomy, finished AC and now half-way through 12 rounds of Taxol (with herceptin and perjeta every 4 weeks). Looking forward to learning and sharing!
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A belated Merry Christmas 🎄 to ALL of you strong women!! I have been very busy with my kids here for a week. I just read through the posts from the last several days. You all are conquering this crappy sentence we were given!! I was sad to see my kids (they are 31-34) go, but eager to get to today. They were a great distraction!
It's official - I will be done in a few hours! Deportation first thing tomorrow morning! YAHOO! Congrats to all who have come this far - we are all warriors in a battle we did not choose and we are strong and mighty! Hang in there if you are still approaching the finish line. It will get here!
I go for rads set up Monday and then I'm looking ahead to early March!! My hair has started growing a little on my head. Eyebrows and lashes are still there. I used Brian Joseph's gel the whole time...and will use it after too. Fingers crossed they hang in there! Actually felt stubble on my legs. Could they just stay smooth and put that energy into my head hair?? (Likewise with mustache, etc.)
Lots of love and gentle hugs to all of you!
Deedy (aka Sailor Girl
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Yay Sailorgirl. Congrats on reaching your chemo end date. Here's hoping it's all good for you from now on.
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Saw my BS this morning. I love that guy. He seems to wash away my fears when I'm with him. He's scheduling an MRI for next week after my last chemo. He says unless the MRI shows something weird, he's confident a lumpectomy with sentinel node biopsy is the way to go. He couldn't feel my breast lump or enlarged axillary node. He wants the surgery done 3 weeks after my last chemo on Tuesday. Now we'll see what my MO says Monday. Geez, I hope I don't have to poop in the middle of the MRI. I did warn them though of my stomach "issues" for the first 10 days after chemo. LOL. Ugh, not funny. Well, I guess it kinda is.
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big congrats sailor (Deedy). Yay you are done no more chemo! 🎉🎉🎉 good luck with your deportation tomorrow. Your smile is great, I love the thumbs up, but I am jealous of your brows/lashes. I am enjoying the head hair genie here in pa, but thegenie has many cousins who visit all over.
d lighted welcome aboard.
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Southern, Saliorgirl, and everyone else who is just finishing up - congratulations and thanks for the great pictures!
I had taxol #2 of 12 yesterday, so still more than two months to go on chemo. I know my body could not have handled the dose dense AC schedule, and probably not the DD taxol either, but the longer schedule is daunting. My biggest concern is still the nervous system issues with taxol, since I have existing issues in that area. It does help to see everyone else making it to the end, even if there are some delays and dosage reductions.
Sending healthy and happy holiday wishes to everyone, and especially those who are struggling with tough SEs, sad news, or difficult decisions.
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you are one cute fuzzie! I swear the b bits and biotin helped me. Not brave enough to post pics but fuzzy fluff is a good thing...
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fidget - my doctor told me the same thing, I could have had 2 lumpectomies(different types of cancer in each breast) with the same 20 year outcome. I opted for a bilateral mastectomy because my gut told me that was the way to go. What he told me afterwards is that while outcomes are the same, what he sees is a whole lot of worrying surrounding the frequent screenings in patients with lumpectomies.
By choosing the bilateral mastectomy I also eliminated the need for radiation (in my case).
I am happy with the decision. in my gut I knew without a doubt that I would experience a recurrence in the breast. Don't ask me how I "know" this, I just do and I have learned to always follow my gut/inner voice/guidance from above.
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Southern Charm - Thanks for sharing your pictures. I always have had stubble on most of my head with just a few bald areas. Those areas now have stubble too!! I'm optimistic that the regrowth is starting. Yours is getting long!! he he he It's all relative, isn't it??
I found some biotin shampoo you leave in for thre minutes. I figure "why not!" I'm also taking biotin.
Oh, BTW, today three of the nurses came over and I rang a little bell and they threw confetti on me! It was a very quiet bell and they lady across from me got her bell rung too! I was touched - they each gave me a hug.
Fidget - I'm sure they are used to interruptions! Maybe take some Imodium before you go so you aren't a nervous wreck! (Now that's a saying my mother used to use a lot!! LOL)
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So many finishing chemo and others so close....we made it. Docetaxol was not my friend and hopefully not cancers friend either. The last round of it though was easy no bone pain....just a little fuzzy go figure Im so grateful. I was given the option of mastectomy or lumpectomy and opted for lumpectomy. There is no wrong or right it just depends on the iindividual and the set of circumstances they have been dealt. With this illness we are forced to make very difficult decisions. Im wrestling at that moment whether a I should go on the hormone medication . I have a bone density scan today to help onc decide which one...if any for me. Anyway Im feeling more positive for the new year and hope lady luck smiles on all of us.
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Congrats to all the recent graduates! I'm happy to report that my bald spots are filling in nicely. soon...I can do without the beanies.
Hazel_nut
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I have started stuttering since chemo.... No, nnnnno thank you!
Welcome to the party d lighted!
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Bad start to the day --- I woke at 4:30 so got very little sleep. Got up before husband left for work to inject myself with Neulasta so he'd be able to take my to the hospital if I got a bad reaction to it (oncologists still aren't sure is my rash from chemo, the antinausea meds, or the Neulasta). I was tired and very scared --- husband was extremely sarcastic about my being scared, and I just lost it and cried and said he had no right to criticize my feeling so frightened and worn out and miserable until he himself has gotten a bad cancer and mutilating surgery and lymfedema and crappy chemo side effects. Of course he left still sarcastic and nasty, because that's his nature.
I realize and he should also that this is most likely the start of the psychological "breakdown" I got after the other two doses of FEC, but god he can be so horribly hurtful
Sorry for the rant. I just feel awful right now. And he will come home this evening and probably be all sarcastic about my NOT getting a bad reaction to the Neulasta, all "I told you so!" and that kind of crap
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I feel so much for you Tessu. We have had to go through so much its no wonder we break down. I could not give myseld the shot I went to the hospital and got them to do it and that made me feel like such a baby but we need compassion and kindness not sarcasm. I hope you get no reaction youve got more than enough to deal with. Much love to you darling...I wish I could do more...this whole thing is so frustrating.
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Cinque thank you so much for your support. Husband is husband, stupid of me to expect him to change.
My son just texted me a funny pic, that helped a lot.
And this group is what keeps me going. I'm so sorry most of my posts are so negative, though
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tessu, you should rant all you want and please don't worry for a minute about being negative. (((((hugs)))) to you. I would have fallen apart if my husband acted like that. Hell, he gave me every shot I had to have of neupogen, and in a loving way. You don't deserve that sarcasm. I know saying that doesn't really make a difference but it is true. Sending love.
Octogirl
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