Starting Chemo September 2015; join us!
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Jabe what did they tell you about the anti hormone treatment? I was told that the post menopause treatment had better success. They are suggesting if chemopause isn't permanent I should have menopause induced and go that direction.
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problem is the "low-line" is not what the study is defining as low. 11-25 is intermediate for the big study...with 1.9 tumor and grade 2...throwing all shit at it but--trust me--i wonder why I'm doing this some days and then look at my kiddo and remember
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so interesting, Annie, how many different versions we get. I was told pre or post menopausal should not make a difference by both my MO and second opinion. I've read otherwise but they do not seem interested in inducing menopause at all
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Annie- IMO throw the book at it. My second cousin was low too and she did chemo and rads after her lumpectomy. No guarantees that it won't come back for any of us no matter what we do, but I've seen so many people here who have in their sig skipping chemo and then coming back later with a higher stage and on chemo. I hate the regimen I"m going to be on and for 6 months of being in chemo so to speak but I"m throwing the book at it, even if I wasn't stage III. I don't want to look back and go what if and should have in the event I face this again in the future.
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I'm considering prophylactic hysterectomy since all the drugs have uterine and ovarian cancer risks. If I need to be induced into menopause with a monthly shot I'd rather get it all taken out and get it over with rather than take shots for 10 years.
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yes, artista! An MO put it to me this way: you need to know yourself. Will you constantly wonder if you don't do it all or will you be able to be comfortable. Then you choose. So here I am. Bleh!
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On the research end of it, I have processed plasma samples for triple negative.
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Annie: get other opinions. My gyno was all about me getting prophylactic hysterectomy etc due to increased risks and then both MOs said those risks are less than 1% but--for some reason--th gynecological community has become quite hung up on it. May not be necessary per my multiple opinions
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Well my bs, not the MO, put it to me this way. If I don't do anything, 100% it'll come back! If that doesn't scare you I don't know what will! Ah!
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Yes but I don't want a shot every month and have menopause side effects for a decade if I can get the hysterectomy, have the menopause side effects then it's done quicker.
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funny cause my bs was all--"you'll be fine...have the surgery, rads and you're good to go." Very positive but also very ho hum.
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Annie your score is low 20 wow! Ugh idk why I chose it. Honestly it was a hard decision. I couldn't even make the call to my Dr. I had my husband do it for me. I only ended up choosing chemo because if in the end I did not do everything I possibly that I could then I would regret it. Also if it a cancer cell does end up escaping and going to liver or lungs Dr said it could turn into metastatic cancer. He said " if you were my sister I would recommend you to do chemo" What do you think? This chemo is hard on me . Hard for my little ones to see . I was hoping that the onco score would me super low but it was in the middle. So that did not help at all!! I had a reaction to Benadryl and a reaction to taxotere. Is that why u are doing adrymyacin?
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Good morning ladies! So much new stuff going on here.
Jackbirdie, hello from a fellow Oregonian. Last week I went to LGFB in Portland having already read your comments about the products they give out. The lady giving our class said they were product neutral but said several times to keep the packaging for the products so we could check the ingredients if we wanted to.
Amy, I hope you are doing better! BC is bad enough without all the extra issues.
Hang in there everyone. We will get thru this.
Hope your today is better than yesterday!
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best case scenario...chemopause is permanent and I don't have to decide.
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true Annie. I don't know. My team seemed against inducing menopause so we're just getting totally different opinions (shock of all shocks)
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so far two periods in two rounds of chemo so I see no chemopause in my future...stubborn freakin body!
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no oncotype for me either, but agree that they don't do it for node positive.
So sorry for you ladies that are ending up in the ER. I am lifting you up in prayer today.
Today is a stay in bed kind of day, at least until the afternoon. I busted my hump all weekend to have the kids have a good weekend and I am totally spent and queasy.
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Aga score 20 just put me into the gray area. My MO said 10 years ago they would have told me not to worry and chemo wasn't necessary. He said now if it were him he'd do the chemo. So I did. I had a reaction to the taxotere so they switched me to Adriamycin.
Did you get an Oncotype score?
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I think the chemopause depends on how close you were to menopause in the first place. I'm 43. I was having hormonal issues the last couple years. I think maybe I was starting to head that way.
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I asked my MO about getting an ooph at my last appt. She said at my age 52 the chemo pause will likely be permanent and that we should just wait and see. I had a period last chemo cycle and I'm waiting to see if another one comes.
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Jade- I'm glad my MO is straight up as is my BS. Hair gone permanently and if I do nothing, it'll for sure come back. Not at all what one wants to hear, but have to know the truth. I don't like ho hum myself, at least with a life threatening disease. Just because you have a lower stage/scores than someone else doesn't necessarily mean you will be more ok. I learned that from the stage IV forum looking at their history in their sigs.
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I had a period in September but I'm 9 days late now. I'm really hoping it's permanent. I've just had enough "procedures"
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I'll be 43 in two weeks but I don't think anywhere close to menopause (mom didn't go into menopause until late 50s) so here I am...
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I'm 51 and in peri-meno. MO told me for sure it'll be permanent which considering it all, yay! I'm on the rag now and going to the dentist soon. Double sucks. I still get some cramps before and to have that gone for good would be a blessing for me!
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Jabe- They say look at your mom in terms of meno. Mine was 52 so I'm pretty much there.
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I have no family reference. There are few women in my family and my mom and her mom had early hysterectomy from endometriosis which I do not have. Other women in my family died of other stuff early. I'm the first girl born in 5 generations on my dad's side so I have very little reference points.
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My oncotype score is 24, right in the middle of the intermediate range. My MO convinced me that due to my age (I'm 42), I should do the chemo. I really didn't want to do it, and most days I want to quit, but I never ever want to deal with this again.
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Thanks YourOtherLeft! I think everyone's input helps the next person make thier decision.
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Onco score 25 . Well glad I'm not the only one that doesn't feel like that. I want to quit too. But I too don't want to go through this ever again!!!
What hormonal pills did your dr's recommend? Just got my period. Most dr's recommend ovaries removed. Are any of you ladies going that rout or hysterectomy?
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I'm leaning toward hysterectomy if chemopause isn't permanent
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