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Occipital neuralgia?


Has anyone experienced this? I have been having what I thought to be recurrent ear infections for the past few months. I did have fluid in my middle ear for several months that would not stay gone, but would clear up with antibiotics and steroids. I also have had severe allergy attacks -- congestion, earache, sneezing, runny nose, etc., and have had a couple of colds. Finally went to an ENT -- he says no chronic sinusitis, no ear fluid, and he thinks the pain is allergy related. However, nothing seems to help except steroids, and when I stop taking them, the pain comes back. The pain is one sided (left), usually begins in my ear and radiates to the back of the scalp on that side and the upper neck on that side. It is not disabling (controls well with ibuprofen), but it hurts. And I have scalp tenderness where it hurts. I read that occipital neuralgia is common after chemo, but then it also said that occipital neuralgia is sometimes caused by tumors compressing the vertebrae in the neck. I finally broke down and made an appointment with my MO for Thursday afternoon. Anyone had anything like this?


  • lanagraves
    lanagraves Member Posts: 40
    edited December 2015

    Spoke with ENT this afternoon. He seems to think it's TMJ instead of occipital neuralgia.

  • Falconer
    Falconer Member Posts: 801
    edited December 2016

    thanks for your post. I have been struggling with similar pain symptoms for the past two months now and have been searching for info that answers the connection between bc and the pain symptoms. Have you received a resolution to that persistent problem? Hope you are well

  • moderators
    moderators Posts: 8,085
    edited December 2016

    Hi Falconer,

    Welcome to the BCO community forums! We hope you're finding your way around so far.

    Just to let you know that you may not receive any responses to your post here in this thread as it has been inactive for a year.

    You may like to create your own topic in the pain forum below for more responses to your question.

    Pain Forum

    Best wishes,

    The Moderators.

  • Bonnie7
    Bonnie7 Member Posts: 16
    edited August 2019

    Hi Falconer,

    I too am experiencing similar issues, pretty worrying at times as I have had vertigo with it and work full time!

    Hope you are feeling better and sorry to hear you and others have to deal with this on top of everything else!

    Kind regards!


  • KBeee
    KBeee Member Posts: 695
    edited August 2019

    Hoping they find something that relieves it. That sounds frustrating.