Starting Chemo in November 2017
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SDK8,
You look beautiful with and without the wig!
I just hope taking the Tylenol is the right thing to do. I hate this worrying about myself. I'd rather worry about other people. I've felt like crap since Tuesday morning and I just keep waiting to feel better. My last treatment was 12/27 then the neaulasta on 1/8. Can neaulasta make a person feel sick or am I really sick with something due to my 1.7 wbc and my low ANC. I guess time will tell. Thanks, Kate
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Hi Everyone // Chemo #3/ Day 4
Bloated and constipated and severe fatitge and chemo brain - can't spell. Did go pick up my Jeep at the my Mechanic. roads PURE ICE. I'm lucky I made it back.
SDK8 - you don't need a wig. You are beautiful. and your kitties are adorable!Meow - we don't have medical pot here - and if the Marinol has THC in it that's illegal here in my state. They won't sell anything but with THC - just CBD Oil without THC. Bummer for me - good for you! Hope it works.
1950- I would call my MO. My paperwork said if my temp got that high to call before taking tylonal. That's not normal for tingling hands ect....
Blair glad your back is feeling a tiny bit better. My left hip comes and goes. Great Pictures! Cute!
OrangeDaisy - Happy dance time ! Sorry your hurting tho.
Tina - I don't wear make up either - but I wanted to go to the class to get some free stuff and tips - but they keep cancelling ours. My dear best friend from grade school was married for 30 years with 5 kids, stay at home mom & found out her hubby was an 'idiot' she divorced, went to Radiology school at age 50. I'm so proud of her - You will get back to where you were! Keep the hope.
I need to go see my Mom in the nursing home - its been 6 weeks - but I'm terrified of catching something. Finally went to Walmart yesterday to get Rx and food with my friend. Thank God for her.
Got UREA cream for my feet - they were cracking and painful to walk on. More Compazine for everyday instead of 7 days. No Nausea for me! Just severly Constipated. Day 2 for Maralax - sure it will kick in any day now -OOOOOOHHHHHHH !0 -
sdk- luckily it looks like the noodle legs didn’t last that long for me. No side effects right now, I’m stopping my steroids a day early because I have to be to work on Monday morning and I need the big D to kick in a day early. My MO said to do whatever I needed to make it easier on me, so we will see how it goes. Legs are still so swollen with the lasix but I’m on them for so long during the day there isn’t a lot I can do about it. Sleep is what’s I need most. I woke up at 130 this morning and have been up ever since. Grrr! But on the plus side I have dropped 7 lbs this week, I’m going to keep moving in that’s direction, pretty bad when I have to jump to get my scrubs over my hips! Damn holidays mixed with steroids!!
Supposed to be cold this weekend! I hate when it’s cold. Florida is supposed to be the sunshine state. All I’m getting today is gloom and rain!!
Hope everyone has an amazing weekend! Just one more step forward!!
Tian
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I had noodle legs - was bouncing off the walls on day 1 after chemo. Tripped over the TV cable and ripped it out of the wall. Cancer sucks.
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SDK, you look awesome without a wig. I hate the noodle legs and the clumsy chemo hands.
I thought of one more help for hemorrhoids. Witch hazel with aloe soothes the itch and pain.
I don’t have to go back to the onc for 4 weeks. My blood counts have been good every round, and I got a neulasta pod again this time, so she wants to see what happens when I don’t get one at 3 weeks. I think she’ll start me on aromatase inhibitor next time I see her.
I will have ovaries and Fallopian tubes out due to the risk of those cancers from the BRCA gene mutation. Onc recommended waiting 6 - 12 months, but IDK if I want to wait that long. I need some fat grafting to help fill out my cancer side reconstruction. The non-cancer prophylactic mastectomy reconstruction side looks pretty awesome. Anyways, this journey continues, but I think the chemo will bethe hardest part. We are all strong to make it through!
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SDK - very nice photos, I agree with Orangedaisy - you could literally go around bald and look beautiful.
Rljes - sounds like you are surviving a little better. I know this week is rough for many of us. Hope you can see your mother and things stay stable.
Tina - Hope you can make it to work Monday with a new plan in the works with your meds. I’m not looking forward to our Coldshine state, but we should have our temps back to normal soon. Our past winters have been warm, and when we get a cold snap with the jet streams - we just can’t tolerate the cooler temperatures.
1950 - I asked my OM if Neulasta made one feel worse, but she said it shouldn’t as it only controls the WBC, but the bone pain can set in. The fluish symptoms are mostly caused from the chemo drugs.
Orangedaisy- It’s great your reconstruction is going so well. I guess time will let you know when you want the ovaries and Fallopian tubes out. Time has to heal and varies with everyone’s bodies. You’re young, and that will heal you faster.
Well, this is Day 2 > treatment three. I came home yesterday and had two stomach cramp events. Not diarrhea, but I think just gas pains, and it helped to go, but didn’t expect that to happen. Took a tablespoon of Pepto Bismo. I couldn’t sleep well last night. I don’t know why. Kept hearing what I thought was a roach lurking behind my bed, jumped out, got a flashlight and nothing found. (Roaches hate rain and cold, so it’s not unusual for them to appear every so often in the house in FL - I dokeep a clean house). Anyway I kept hearing this faint tapping sound like a roach munching on something. At 4, it sounded closer to my head, jumped out of bed again, but found nothing. Spent 15 minutes looking all around my bed, shook the headboard - looked under everything, I did not want a bug on my bald head! I then sprayed some Raid behind the headboard. Sound stopped, but never found a dead roach, and the smell of Raid made me get out of bed early and now with lack of sleep, I’ll be really worthless today. I shouldn’t of sprayed that Raid - hate the smell - poisoning myself twice here. Ridiculous.
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Blair...I love the wig!! You look great. Sure hope this infusion is kind to you. I hope the Aleve holds your pain at bay. Oh my....I would have gone ballistic hearing that noise. Many years ago, we lived on a small farm and in the middle of the night I heard a "scratching" sound coming from the walls. Well, turned out to be mice. So, those little mice had a field day. They always made an appearance....but, I'll take mice over those Florida roaches. I have several friends who live in Florida so I know what you're talking about!!
1950...I remember the Neulasta injection only affected me for 2-3 days and it was only bone pain. I would hope your onco would want to see you since it's gone on this long. As for the fever, I would take a Tylenol or Advil, but let the onco know.
Sylvia...That's great that you can work from home. Hope #4 doesn't cause too much trouble. I've had very little side effects from the Taxol....I will have #7 on Thursday. Wishing you the best of luck. Oh, those kitties are adorable....and so are you...with/without your wig. You young gals put this old geezer to shame.
rljes...Glad you got your jeep back and glad you made it home safely. We had ice/snow through the night. Not as bad as predicted, but enough to keep me inside....I don't do snow!
Tina...Is it the steroids that's causing your swelling?
Orangedaisy....A nice little vacation from the onco....how nice!!
Well, as I said....nothing for me today. Will just look out at the snow and have a lazy day and putter around the house.
Hope everyone has a great weekend.
Hope
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Blair, I have the horrible gas pain every round. I have constipation a few days, and then diarrhea. Gas pain warns me the diarrhea is about to start and the gas pain stays with me through the diarrhea days. Imodium, a daily Align probiotic recommended by my onc, and eating yogurt or Kefir for about a week after treatment made round 2/3 better. Still get it but not as bad
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hi everyone,
checking in. I've been off the boards for a while. Needed to deal with a few emotions i was not ready for. Did not take it well when my oncologist mentioned i mighr still need a mastectomy after chemo instead of a lumpectomy. meaning the chemo is not shrinking the tumor enough which means my tumor was already well over 5cm by the time i started chemo. My last ultrasound said it was at 7cm (taken between EC and taxol) and also this red patch on my skin hasn't gotten better. brought out fear and frustration. but i've calmed down about it now and i've read about some of the options and i’ve seen pictures and i’ve read of other ladies in threads here at BCO and what their life was like after all the surgery options and why they chose what they chose and it all sounds logical and reassuringto me. Still a tough pill to swallow of course but i’m working on it.
Aaaaand finished dose 10 of 12 yesterday.
It was delayed by one day because of low blood counts. My oncologist removed Carboplatin from my meds considering last week's allergic reaction. Xray says my port is intact and in the right place. However, 20 mins into infusion of taxol i started getting palpitations. I usually sleep through it because of allergy meds but this time i woke up with a start. Anyway they had to stop infusion and called in an emergency ECG and emergency 2D Echo to check for any chemo-induced heart damage. They all came out normal. Once my blood pressure was stable for a good 20mins they started taxol again but at a lower speed as extra precaution. And i had 2 doctors and 2 nurses monitoring me every 5-10 minutes for the rest of the infusion. All good and happy with the medical team they are phenomenal
I got through dose 10
i think the palpitations were a fluke thankfully. Or maybe it was just me thinking about surgery. Anyway my MO is flying out to San Francisco next week for a convention and he says considering that i had palpitations he was not comfortable for me to have chemo while he's away. So Dose 11 will be delayed until he returns which is maybe 3-4 days worth of delay.
It's okay though. I think my body needs to rest and i'm already looking forward to the extra days where food will taste exceptional and i will be able to walk and do things without getting winded.
I promise to backread your posts and update myself on what has been going on with you ladies. In the meantime please cross your fingers that I am able to have the last 2 doses without any allergic reactions. final stretch and despite the setbacks i have every intention if seeing this through.
I'm off to deal with fatigue and muscle and bone pain tomorrow.
I wish you all strength and a good weekend
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hope- it’s The Taxotere that they say is causing all the edema, the steroids don’t help either which is why I play with them so much. By the time I get it figured out I will be done. I don’t get time to rest normally and I think That’s why it's so noticeable on my legs. I am literally on my feet for 11 hours or so running around all day. I took a little nap this morning since sleep was evasive last night. Heading out for a short shopping trip after I can find something warm to wear, it’s getting colder here as the day goes on. Bald head makes for cold body, maybthrow a wig and a hat on. Even beat my mom to turning on the heat this morning and she is always colder hands I am.
Hope everyone enjoys their weekend!
Tina
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Mkn86 - Mercy - my prayers and good wishes are with you. I know in time you will become more comfortable with a mastectomy, because they can reconstruct your breasts probably more uniformly than they can with a lumpectomy - plus you won’t need radiation. It will be time consuming, but in the future you should be fine. I’m sorry you had such horrible reactions to the carboplatin. Sounds like you have a wonderful caring oncologist! That’s comforting in that he will guide you through this.
Orangedaisy - this morning after eating breakfast - stomach cramps set in. I should be cleaned pretty well, but I guess I have to put up with it for a while. Tomorrow I should start my flu days - dreading it. Maybe I’ll luck out. I’ll try to keep everyone posted.
Nonahope - yes I was even putting my ear to my walls, looking at the window above my bed, but nothing on it, or any noise in the wall. I swear it was a bug behind my bed board and I can’t scoot my bed away from wall to see behind it. Mice would scare the hoots out of me - field mice can get into our attics here.
Everyone - best wishes for a good day
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Hi All
MKN86 - do they give you Ativan in your IV during Chemo? I "highly" recommend it.
I always ask for it. Makes me a happy camper. 0 -
WHOO HOO to OrangeDaisy!! So happy for you to be DONE!!!! Love the video!! I get to ring the bell next Wednesday when I have my 4th and last TC.
SDK8~love the rescue kitties!!!! And, you look beautiful!!
Blair~you look great and I'm glad your back is finally starting to feel better!
195052~I am sorry you are feeling so poorly, I hope that it is transient and that you are feeling better SOON!
Girls, my last chemo is next Wednesday- # 4 TC, it seems surreal to me. It wasn't that long ago that my oncologist called and told me that my Mammaprint came back as "High Risk" as I thought I was going to escape chemo altogether. I cried for days. It has been terrific to come here and share experiences with all of you. I love reading all your updates.
God bless you Ladies!
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lizabeth I had the exact same reaction when my onc told me my oncotype score was high. Even she said she said a bad word or two when she got the report. Lots of breast cancer in my family, everyone living long lives, and I’m the first to have chemo. It is good to be done. Good luck with your last treatment on Wednesday
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rljes, nope. no ativan for me but the allergy meds knock me out so no need...
up until last friday i’ve always been calm for infusions.i’ve had a worsening dry cough since this morning. and just like that i’m back on antibiotics for 7 days. And i thought i was just going to ride out fatigue day today instead i have more meds. frustrating... makes me want to screa
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LuzabethM - you will have to do a happy dance video for us next week!
I too was so disappointed at my Oncotype score. I was mostly mad at my bs, because she acted like I had nothing to worry about. When her nurse admin told me the score - all I could say in a low tone was - well shit. I knew it was too high to consider the Mammoprint test. I don’t normally cuss, but I did then.
This should be the beginning of my flu day. Day 3.I’m not interested in my coffee this morning, so I think the fun begins for a while.
Oh - question for those of you on third > treatments. Do you all still take as many of your anti nausea pills for several days? I’m taking them 6 hrs apart as a precaution, but just wondered how the rest of you were taking them (since many don’t seem to have trouble with nausea).
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hi blair, i took nausea meds as prescribed 3x a day for 3 days after infusion at the time i was on EC. better to be on top of nausea than having to recover from it!
I hope your back is better blair.
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blair2- I haven’t taken any nausea meds this time. But I have only taken 3 total since the start. I don’t like meds and only take what I need when I need them. I figure the side effects from meds can sometimes be worse than the ones from the chemo, so I don’t want to add to what I already have. So far no big C or D but I am waiting for it. The fatigue is kicking me down this time, but it seems to let up once I rest for a bit. It would help if the neighbors dogs would bark at 5 am and wake everyone up. I think tomorrow is going to be a challenge at work but I’m off Tuesday and I should be back to normal Wednesday. The cold here isn’t helping, it’s sapping any energy I have, I’m going to bundle up in a little bit just to get out of the house before football game at 1. Grabbed some chicken wings and fries for the game and will hunker down the rest of the day.
Every morning is one day closer to being done!!
Tina
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Morning all - Chemo #3/ Day 5
I still take my Anti -Nausea meds - for about 14 days after chemo, every 6 hours. (they don't make me sleepy) I got my MO to give me more. Like mkn86 said - better be on top than playing catch up. I havn't had any nausea. at all. However I do have Stomach issues, bloating, cramping, acid reflux, and I'm on day 3 of taking Maralax and still constipated.
Having severe bone pain in left hip, both legs and feet (taking Claritin daily) The legs and feet just started with Chemo #3. Hip last month. I guess its just because its accumulative, because Chemo #1 went great. I was full of energy, got so much done. Felt great. Downhill ever since. Tried to eat a banana this morning and tasted awful. Can't drink my usual 1/2 coffee 1/2 Hot choc - immediate acid reflux.
Having bladder control issues - since Chemo started. I see or hear running water and I have no control over my dribbling bladder.
I can't sleep anymore. Up about every hour because I have to pee or the pain wakes me up. my incisions are hurting because I can't bring myself to stretch and rub out anymore. Its zero outside and layer of snow and Ice. Snow tomorrow. Can't get out of the house. Every time I call my Mom in the nursing home she is in bed - that's so unlike her - and I can't go see her to check on her... breaks my heart.
Just walked down to my mailbox (down a big hill) and can't quite catch my breath now that I am inside.
Panick attack hopefully nothing more.I am just a miserable humane being right now. Thanks for letting me whine and get it off my chest. I don't know where I would be if I didn't have you all to talk to. Thx
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Rljes - I can understand the yucky feeling, the cold bugging you, frustration over not seeing mother, stomach issues, etc. Venting helps and we all listen, cause we all suffer with this crap.
Tina- I’m just amazed how you battle yourself to work. However, you suffer too. I didn’t expect this weather to get this cold. At least it’s sunny. Sunshine helps lift spirits.
I’m definitely feeling the flu stage right now. Third time seems to be hitting slightly earlier than treatments one and two. I can’t and don’t want to eat or drink. I didn’t get dressed this morning, I’m sitting here half sleepy in easy chair (only taking Zofran for nausea), and trying to watch tv, but not into it. It psychologically keeps me sane by hearing well people talking, but sometimes it bugs me. I feel almost nauseated, but that’s why no appetite. I forced myself to eat a mandarin and earlier a small breakfast bar. Got my coffee down earlier thinking it would help me go, but didn’t. I suppose I should be drinking water - yuck! Maybe some day they will figure a feel good pill during chemotherapy, but way too complicated. Maybe I should be moving more - hard to know what to do to feel better.
No stomach cramps, so now starts the irregularities with that, since cramps help you go. Now that I don’t eat much, that throws me off as to when I should go. It seems all I eat are anti nausea pills, and without food in stomach - seems senseless and wonder if that’s why I feel worse. I too hate taking pills. Sometimes I feel I can’t breathe well, so - I just sit here vegetative and worthless. It’s fatique, but a very sickly feeling slowing me into slow motion. I think sleeping is all we can do to get through it. Does speed up the time at least. Since Zofran isn’t suppose to cause grogginess, the chemo drugs are doing it.
So - won’t be on here now. Time for snooze. Heaven help us suffering today. Make us well again so we never have to go through this again!
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Lizabeth...We will be with you when you ring that bell next Wednesday!!
mkn...Sorry you have that horrible cough, but at least you are on meds. Take care of yourself. Rest as much as you can. Those coughs linger for weeks.
Tina...Who are you rooting for today...need I ask???
rljes...So sorry you are having so many side effects. Just lay around all day and do nothing!! It does help. Don't push yourself -- just rest up. Of note, I was told not have any caffeine....this might be adding fuel to the fire of your acid reflux...especially, the chocolate.
Blair...Snooze away!!
Hope
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hope- I’m a Pittsburgh fan all the way! I am all dressed in my Bettis jersey, Pittsburgh stocking cap and sweats! Even have my terrible towel ready! I would die without my caffeine, I can’t drink soda because it just tastes horrible, but I have to have my coffee in the morning.
Blair2 I am sorry you are feeling so miserable. I’m achy and tired but I refuse to let it beat me. I dosed on and off most of the morning. Running out to the store helped a bit. Put some Parmesan chicken and fries in the oven and turned the game on.
One thing I haven’t had is lack of appetite, I wish I did. Some things taste bad but I am hungry so I can eat. I’m working on getting my weight down so I’m trying to be really careful about what I eat. Sticking to lean proteins shakes and fruit. Today is my cheat day, but I dropped nearly 10 lbs last week but I know part of that was water.
Tina
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Chemo #4 / Day 3 - Been in bed since Friday. Only up to get water or to bathroom. Energy at all time low. Noodle legs and blurry vision. I am so happy that was the last of the Red Devil. Now 12 weeks of Taxol. Will be glad when this is over... if history repeats itself, I should bounce back tomorrow sometime. Here's hoping!
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Blair, I was infused with Emend that covered nausea for 3 - 5 days and got a Sustol shot in my belly which covered nausea for 5 - 7 says. I never had nausea except 3 days after the first treatment. Insurance didn’t approve the Sustol shot for the first treatment, and I guess the Emend wore off. Took one a/n pill and slept the day away. Never took another. Onc told me the steroids prevent nausea too.
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Blair2 - I continue to take anti-nausea meds as prescribed because I'd much rather stay in front of it than try to combat something that's already making me completely anxious and miserable. Nausea was pretty much my biggest fear about chemo and I told my MO that.
However, my prescription seems lower (or at least fewer doses) than what others are mentioning: Decadron 4mg twice daily the day before and for 2 days after chemo, and Zofran 8mg twice daily for 2 days after chemo - with the option to take a third Zofran, and Compazine 10mg as needed. I get Emend as part of my premeds infusion on chemo day, and also take generic Prilosec (antacid) and Ambien (for sleep) daily.
I also take oral Ativan before leaving the house for my infusion appointments. Tylenol and/or Tylenol 3 as needed for ongoing post-surgical pain. Immodium and if need be Lomotil for diarrhea. Senokote and if need be Colace for constipation.
The PA at my MO's office said I shouldn't worry about taking meds right now; that I need all the help I can get and this is a temporary, relatively short-term situation. I agree and accept whatever modern medicine is able to provide to make things a bit easier for me.
Orangedaisy - CONGRATS on being post-chemo! You look beautiful both with and without your wig.
SDK8 - You are also gorgeous both with and without yours.
Lizbeth - Sending good thoughts your way for this week's last round for you, too!
And sending love and support to each of you who is having a rough time right now. Please be kind to yourselves in whatever small ways you're able.
My husband dropped me at the farmer's market yesterday morning on his way into work. Walking the mile or so back uphill with bags of fruit/veggies was a little slower and more difficult than usual (had to stop to rest a couple of times), but I made it. Went to have my hair stylist cut bangs into my wig in the afternoon. Made kale caesar salad and pasta with carrot top pesto (a new recipe for me - with cilantro and orange in it, which I liked) for dinner. Was in bed by about 9. Using my Instant Pot to make bolognese sauce this afternoon, which we'll have later in the week. Tonight I'm making Asian - Korean-style warm tofu with spicy garlic sauce and stir fried choy sum/Chinese broccoli.
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Today (Sunday) was my third infusion. I was supposed to have it Thurs but it was delayed and changed to the hospital location (same MO) due to an insurance issue. It went well. I feel so fortunate to have encountered such compassionate, caring and competent Dr.s, nurses and other medical personnel. They've made this hard journey a little less arduous. Sometimes a hug from a nurse makes all the difference.
I've needed hugs lately as my mother passed away last weekend. It wasn't unexpected, but I wasn't as prepared as I thought I was. It's been hard.
SDK on a brighter note, with or without the wig you are so pretty!
Rljes and Blair I hope you are both better soon. The cold weather makes everything harder. We all need to vent. Sending you my support and concern. Fingers crossed that lots of rest help.
Tina You are amazing with your work ethic. It's unfair to have to delay your nursing dream. I truly believe that when you get beyond this your positive work attitude will lead to opportunity. I'm a bit like you in that I don't take alot of meds. I don't oppose them it's just that they can end up making me feel worse. I hate the big C that the anti nausea drugs bring on. But everyone is different and needs to do what's right for them. It's a very personal decision.
Magari You sound like a wonderful cook! Lucky husband and family! I relate to your walking adventures. I live by the Sierras and I love to walk and hike. It usually makes me feel better and so far I've been doing it regularly throughout chemo.
Lizabeth so excited for your final chemo!
Best wishes to everyone.
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Hope you will be ok .
SORRY for late, I am so tired in previous days. NOW I will go to ER to check the problem of bleeding ( looks like period but i am not sure, feeling burn and this is not normal for me). plus daily i feel pain in my left legs in late time. I am in the day #15 after second infusion . I am afraid . did anyone experience these side effect specially bleeding ?
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hope99- I can’t help you with possible period issues since I haven’t had one in so long and don’t have the equipment for one. Maybe someone else has some thoughts. Most of us are older or had a hysterectomy as well so we don’t have to deal with that on top of the rest of the issues. I’m sorry you are having such a rough go with all of this. Hoping you feel better soon.
Tina
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ladies i’m sorry to hear that we’re all on our down days. i am sending you lots and lots of hugs.
i’ve been reading more about surgeries and realizing maybe this is something i should have read about sooner. i suppose i have to work out timing and options with the doctors. half of me wants to set it aside and wallow. the other half wants to know as much as i can so that i can try and make the right decision based on available options. it’s rough going emotionally. otherwise i just keep thinking: wounds heal, scars fade. and that i am not my illness. maybe if i repeat it enough it will sink in. i am also considering seeing a counselor or therapist maybe until the decision is done.
i just feel incredibly stupid for not finding this sooner. anyway thank you for letting me get that out.
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despite the side effects and issues that we’re all going through please remember to do something nice for yourself. something to make you feel better before sleeping at night: a long bath, a nice cup of tea, some good dessert, or maybe massage your feet with some fragrant oil, or run the diffuser with lavender.
for tightness around the hands and feet, the massage oils help. i put a good amount on my feet and hands and put socks on and sleep. my feet and hands feel nice and soft the next day.
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SDK...Sorry you felt so bad yesterday...I hope you will bounce back today.
Magari...Your meals sound delicious!! How do you like the instant pot? I'm thinking about getting an air fryer. Everyone I know who has one loves it.
Kivans....I so agree...having faith in your doctor and staff is key to getting through all of this nasty stuff.
Hope99...I can't help you with the bleeding. Let us know what the outcome is when you go to the ER.
Kat...I'm sure your team of physicians will help with making a surgery decision. Meanwhile, read as much as you can.
Tina...Sorry your team lost yesterday. It was a good game when Pittsburgh started coming back.. I love the Pittsburgh fans, but not so much the team. I used to go to all the Bengals/Pitts game when they played in Cincy. A friend of mine had season tickets at the time. It was always a fun time being such a rival team. Plus, we had lots of Pittsburgh fans sitting around us who were crazy fun.
More snow here in Cincy....on a winter advisory until 7:00 pm this evening.
Hope
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