Chemo Starting August 2018
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Kelly-Anne; you RING that bell! You deserve to. May I ask what your plan is moving forward?
Santabarbarian; adorable wee kitties!
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Beautiful Kitties!! They will keep you company 😋. Good luck wiith them!
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Kitties are so cute! Love them, and thank you for adopting them
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Kelly-Anne, you did NOT fail. Cancer is a vicious, aggressive disease and we only have so much control. You stuck with chemo, which is no small feat. Ring the hell out of that bell on Thursday - you’ve earned it. I hear you on the “fatigue” - chemo-tired combined with radiation is a whole other level of tired. No booklet will help with that. And I’m so, so sorry about the bone met. Fucking cancer.
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santabarbarian - adorable kittens!
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Ring the bell , you went through chemo that’s a success you deserve it!!
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Kelly-Anne— you ring that bell off the f-ing wall! Let them hear you around the block!
MACTAZ—so sorry about the Thanksgiving dinner. That’s a bummer. I had just some taters.
Yes, I'm on weekly chemo now. Every Monday. Waiting for my mom to pick me up as I type. My anxiety spiked through the roof last night. Woke up about 2am with hour flashes like crazy and night sweats. I was dripping with sweat so I got up to just watch tv downstairs. 3am I started to lose my shit. I began dry heaving and throwing up. My poor hubby hears the commotion runs downstairs to try to help his lunatic wife sitting on the bathroom floor, head in toilet. Back to couch to rest then I tried upstairs again. My head hit the pillow and had to run to the toilet again to barf. Poor hubby, so much cancer drama. So I've been up since 2am. Adding panic induced vomiting to my repertoire—I've entered a new kind of fresh hell.
Exhausted and so over it.
Santabarbarian—I should have gone Black Friday ‘shopping.’ Those sweet kitty faces. While I was downstairs last night, one of my cats had to dig in the cat litter for about 20 minutes then in a show of solidarity he threw up on the floor. No joke. Thanks cat.
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Kelly-Anne, you ring that bell. You did not fail, this cancer crap is tough and you are amazing. We are all here fighting with you, thinking of you.
Santabarbarian, kitties are sooooo cute. It’s amazing how pets can help us feel better.
MGJ, I Can’t imagine doing chemo weekly, I hope this one goes better and that you are feeling better.
We are all strong, we have our days but we do rise above. Take care all.
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Praying for each of you amazing ladies!!! I am sitting here in the chair for my last chemo! I plan to stay on to keep updated on how you’re all doing!! Thinking of all going through hard times!
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Way to go KLW!! -- KWilli & I will be joining you and Kelly Anne as bell ringers tomorrow! One by one, we're staggering across that finish line.
MGJ - there is a light at the end of this tunnel... Sending you anti-emetic vibes and encouragement! Good you still have your sense of humor. Would Ativan help your pre chemo anxiety? Hang in there!
The kittens amused themselves for hours this am batting a cork around in my bathtub. They are so playful and hilarious. They love to pounce on one another and will do so whenever they can... such as when one is eating, or pooping, the other one will leap on her head. They are just absurd!
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KL—awesome! Chemo slayer! 🔔🔔🔔🔔
Tuesday bells 🔔!!! I will be listening for them! I'm so happy for you all. You all have worked so hard! Yeah
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Congratulations to the graduates! I must be in the slow class because having finished the A/C my 12 weekly Taxol treatments end January 31st. I’m getting surgery for my 70th birthday in February followed by 30 radiation treatments. A year seems like a long time to spend trying NOT to think about something. I’m doing fine but getting bored with myself
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KLW, congratulations 🎉, ring that bell 🔔.
Benji69, good luck, I will srick around for you, we all
just seem to keep on moving. Day by day we get closer0 -
I'll stick around too. We finish together!!!
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my head is freeeeezing.... Thinking of you KWill
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Congrats to KWilli, KLW, Kelly- Anne and Santabarbarian on your last round! From here you count days PFC! I plan to stick around, too - chemo is only part of the journey.
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Congratulations on your final chemos, you awesome ladies!🎉🎉🎉🎉🎉🎉🎉🎉
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done! Last chemo! We don't ring a bell at our centre, the nurses come and blow bubbles and cheer! It was so sweet and I was thinking of each of you. Thank you, my warrior sisters, my tribe!
Now the waiting begins again, for surgery and next steps. I found a lump on my other breast, my onc doesn't think a mammo is necessary since I am doing a dmx. It's like starting all over, a little bit.
I'm going to stick around to cheer you on through the remaining treatments. I care for you all deeply, and I would miss all the humour!
Santabarbarian: it is minus twenty here! My head is ALWAYS frozen (when I am not hot flashing)!! I hope you hit that bell so hard! Congratulations to you!
MGJ! I love that term, chemo slayers! KLW, congratulations to you!
Kelly-Anne, that sucks about the met; I'm sorry. You keep fighting. You've done all of this, come out the other side of chemo. You're amazing.
Slowclass Benji, that's a LOT! We're all here for you. X
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Hello Everyone! Its been awhile. Managed to catch a cold after my last round of TCHP, went to the doctor on Monday and they are trying to get my Iron built back up for surgery. It is to low right now. Could be that I went almost a week without being able to eat. I have both ends tore up again.
If all goes well I am 15 days from surgery. Gonna try and work today, I'll write more later and see if I can go back and catch up on everyone. xoxoxo
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hughope1, take extra care of yourself. Your surgery will be here in no time.
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KWilli - the bubbles are a cute tradition. Do you have your surgery scheduled yet? Sounds like the double was definitely the right choice for you.
Hughope - So sorry about the cold! I hope you are feeling better soon and the next two weeks pass quickly.
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I might just be done with this f-ing joke of an onc and their staff. They prescribed me a low dose Paxil to help with my vile hot flashes. Paxil blocks tamoxifen permanently. I’m going to end up on tamoxifen in a few months. What the everloving f**k? I’ve been absolutely hysterical. I only took a few pills but I feel so stupid.
I think I’m going to call a cancer center and see if they will take me. I have 4 more chemos left. I’ve been up since 300 crying. Mayo Clinic in Phoenix opens at 0800. I will try them I guess.
I’m not doing well
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MGJ how demoralizing!!! You have every right to switch. It is mentally exhausting to second guess a provider who has made a big mistake. That is an unacceptable mistake. It is so frustrating, to feel like your team is Fing up. If Mayo does not work out, get referrals in your community. There is someone careful out there who you can trust!
No bell at my center either ... but I said dingaling to my nurses (nearly everyone was on duty yesterday so I was able to thank them) and I am going to get them a hand bell and drop it off.
YAY for end of chemo KWilli!
Hang in there ladies, you are nearly done! We will get one another across this finish line.
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MGJ, OMG, you have every right to move on- This is totally unacceptable, how are you to ever gain comfort that you are getting the right treatment if your caregivers make that big of a mistake. How did you find out, it is a good thing you caught it. I know there are good ones out there - I wish you the best and thinking of you. So sorry this had to happen. You have gone through so much already.
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Moongirl - That's nuts and I'm glad you are loloking elsewhere. I'd never heard that about Paxil and tamoxifen, but looked it up. Certainly an oncologist should know.
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I'm better today. Thank you all for your kind words. I'm looking outside and we're getting our first snow! I love walking in the snow so I will suit up my Dane in his snowsuit (big baby) and go hit it.
I found that there is another onc group that has great reputation in Carson City so I made an appt there. Of course I can't be seen for 2 weeks but they put me on the cancel list and requested all my records and op reports. My hubby says if it doesn't work out then he will drive me to Davis every week. I have another month (4 more Taxol) and was fixated on being done by Christmas but that's off the table, I'm sure now, and that's ok.
I'm on the fence with my last treatments with the oncologist I've been seeing. I have a Taxol Monday and thankfully both she and her NP will be out of the office that day. YES! I don't have to look at either of them. So I think I will do that one. However, my new appt with the Carson City onc is on the next Monday/chemo day, Dec 10. Maybe they will give me chemo that day in Carson. Maybe not.
Trying not to whine about all these treatments, but this girl is tired.
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MACTAZ—you asked why I looked up Paxil and the Tamoxifen well I will tell you nothing other than my sixth sense. Felt something was wrong. Really wrong.
There is a MAJOR warning about those 2 drugs together. Bad bad bad. No SSRI’s with estrogen + BC.
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And the hits just keep on coming. . . Just got a call from my onc office. They have neglected to order or draw a CMP since November 5. That’s a lot of chemos under my belt since then and my liver enzymes had been all over the place. So, basically a month without a metabolic panel on weekly chemo.
I feel just thrown away like trash. They don’t care if I survive this. I’m thinking I might skip chemo on Monday. I doubt they would notice if I showed up or not.
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When you have time, this demands a complaint to someone "upstairs" -- so sloppy! Glad you have alternatives!
xox, SB
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MGJ - I can't imagine the roller coaster you are on.....thinking of you gal. xoxoxox
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