Zometa side effects
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Hello Intolight - Thanks for adding your comments to this discussion. It's a help to the rest of us for sure. I wonder if getting via port is any better than as an IV infusion overall? I'm glad that you don't have too much trouble in the side effect department. Wow, over eight years of Zometa. Right now I have to say, I can't even begin to imagine that. I can't imagine any more than the 4 infusions I've had. This is not a pleasant drug. When your oncologists told you they thought the Zometa contributed to your long run of stable scans, did they say just what they think the Zometa is doing that had helped? I would be real interested in knowing just why they believe it has helped, or better yet why they "know" it has helped. I do get labs in the clinic the morning of my Faslodex shots (the whole schmeer of tests), but for some reason before the Zometa, they only want the creatinine. I'm going to ask them to start including the calcium too on that one, at least.
Good for you for going to the dentist as often as you do. I sympathize big time with your dental phobia. I have a very good/nice dentist now, but when I was a child, I had a terrible experience that I never got over. My mother used to take my brother and me to the nearest guy (she didn't drive, so walked us there), and he was horrible! He told my mother that little kids didn't need anesthetic for procedures and would work on our teeth (mostly baby teeth) with no anesthetic and of course we'd cry and scream, etc. and he would tell us we were just looking for attention or something and my mother seemed to have believed him! It was only years later that she started to think too, that he had been unreasonably cruel. Even though I have the real good dentist today, it's really hard to drag myself there, just for cleaning even.
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Hi threetree and intolight. I had a mean and uncaring dentist as a young kid myself. Maybe it was the times we grew up? I'm 60 so if you are in that range, it must have been the "thing" at the time! To this day I hate going but I do go. I took many years off from the dentist and just took good care of my teeth. Honestly they felt better during those years than they do now going every 3-6 months.
Intolight - Thanks for the positive feedback on Zometa. I know there have been some good comments from a few women here in this group that have been very helpful, I just want to know the proof as best as it can be shown or explained that it really is doing anything. I don't necessarily doubt it, but I also don't believe that it is good just because an oncologist or their PA tells me I need to take it. So far my side effects are minimal and I plan to continue it, I just wish I could get something out of the mouth of my oncologist exactly what it is doing. And then see some proof.
Hope all is going well for you all.
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My second Zometa injection has not been nearly as bad as the first. I feel a bit achey and tired on day 2 but I'm getting around pretty well. This time, I really hydrated, so maybe that made a difference? Or maybe it was the venti latte I had right beforehand, or at least I like to think so.
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Good for you tougholdcrow! Go with it again next time and see if you get the same outcome. Have a great weekend.
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Congratulations Tougholdcrow - that's progress. Please let us know how things continue.
Marcials1 - I saw my onc yesterday and got my fulvestrant shots too. I asked him about proof for Zometa benefits, and he said he will send me some studies. I'll post here after I see what he sends. He said he thinks a lot of the reason it is hard to find info on this is because the studies are old. He said that Zometa is a much older drug and that the research on it was done some years ago and not "out there" in the same way that more recent research on newer drugs is. He said that a lot of what is known about it comes from studies done with multiple myeloma patients, because they've used it to prevent bone metastases in them longer than they have with breast cancer. I might have what he said not quite right, but that was the gist of his comments. I told him I really appreciated him going above and beyond to get me some info, and he said it wasn't above and beyond at all, that anyone in this situation has a right to see what the deal is.
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Threetree - that would be so interesting to hear what your onc has to say! I am looking forward to seeing what you find out. And I just heard from a friend that is taking care of another friend that is being given Zometa for multiple myeloma. So that was interesting also. Oh, and I like what your onc had to say about going above and beyond. Sounds like a great doctor to have on your side.
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Marcials1 - I absolutely love this oncologist that I have now! My previous one, who I merely "tolerated" went on maternity leave about a year ago, and I was assigned to my current onc temporarily while she was gone. I was supposed to switch back to her when she returned, but while she was out, I got in touch with some "higher ups" and had to jump through a couple of hoops to be able to stay with the "substitute onc" instead. I'm just so glad they let me stay with him. He has been absolutely "the best"! My big fear now is that they will take him away for a promotion or to work at the bigger cancer center (I go to a satellite office), or that he has ambitions beyond what he's doing now (he's just in his late 30's). I don't want to have to change again.
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