Bile duct stricture could be ILC mets
I’m reaching out here to ask for any input about ILC mets to the common bile duct. Because of symptoms suggesting gall stones, (including elevated bilirubin, alp, ast, alkP; pain below sternum, orange urine, and itchy jaundice) I had an ultra sound. A stricture of the common bile duct was seen. I’ll be getting a CT scan next, and then I suspect an endoscopic retrograde cholangiopancreatography (ERCP) in which a catheter carrying a camera is sent down the throat. I suppose a PET-CT as well. And there will be a biopsy. Lucky me.
This could be something benign but I don’t have a good feeling about it. It could be primary bile duct cancer, for which I have an increased though still small risk because of MSH6 mutation. My low normal breast cancer tumor markers perhaps suggest this. But I think the most likely thing is weird ILC mets.
If you have any experience with this, please share advice, warnings, scientific papers, best place for diagnosis and treatment, your experience. This is a whole new subject for me and I need to get up to speed quickly.
Thankfully I am at an NCCN center, and my onc is moving things along quickly for me. I went for my blood test a couple days early because I wanted my bilirubin checked even though a urinalysis (of my orange urine!) last week showed no bilirubin. Lousy lab? (Not at my cancer center.) The blood test results won me a same-day ultrasound. One worry I have is a scenario where liver function declines and I can’t have chemo. Also worried that surgery or procedures could keep me off chemo for too long. I don’t want this to snowball.