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Can ILC be grade 1?

JudyO
JudyO Posts: 18
edited November 2019 in ILC (Invasive Lobular Carcinoma)

In my path report it said ILC grade 1. Is this possible?

Comments

  • meow13
    meow13 Posts: 1,370
    edited September 2019

    Judy I think it can, by definition I believe the tubile formation is ranked 3 but nuclear grade and mitotic score could be 1. On Nottingham score 3-5 total is grade 1. My ILC was a Nottingham score 6, grade 2. Tubular score 3, no formations found, nuclear grade was 2, and mitotic score 1.

  • JudyO
    JudyO Posts: 18
    edited September 2019

    My was graded 1 but see mostly 2 or 3 so wondering if an error was made. Thnak

  • claireinaz
    claireinaz Posts: 719
    edited September 2019

    It's very possible. And very lucky. ILC tends to grow more slowly than IDC, etc. so very possible it is grade 1.

    Claire in AZ

  • arizonaboundgal
    arizonaboundgal Posts: 38
    edited September 2019

    Hey Judy. Yes, mine was given a grade 1.

  • Runrcrb
    Runrcrb Posts: 202
    edited September 2019

    yes very possible. Mine was grade 1. As others mentioned grade 1 is good.

  • JudyO
    JudyO Posts: 18
    edited September 2019

    Thanks for the replies. I was diagnosed in 2008 grade 1 2.2 cm and 7 positive lymph nodes. I did AC and T then 10 years of arimidex. I worry because I am PR neg high ER. Hopefully the arimidex kicked butt. Some say it works for PR neg others no.Now at 11 plus years I am having scans due to back issues...hopefully just arthritis. I had put it all in the back corner of my mind now the worries are overwhelming agai

  • beach2beach
    beach2beach Posts: 247
    edited September 2019

    Mine was also grade 1.

  • dakrock
    dakrock Posts: 17
    edited September 2019

    What does it mean if it says Stage 1A Grade 2

  • Georgia1
    Georgia1 Posts: 188
    edited September 2019

    Hi Dakrok. The main part of this site has info on stage and grade. Here is a place to start:

    https://www.breastcancer.org/symptoms/diagnosis/st...


  • karen1956
    karen1956 Posts: 4,682
    edited September 2019

    yes, I was stage 3A, grade 1 - ILC


  • robinblessed54
    robinblessed54 Posts: 485
    edited September 2019

    Judy, Yes, mine was grade 1. That means it is slow growing and is a plus. Especially since ILC is very sneaky and may be hard to detect. I am almost 5 years on Femara (Letrozole). Have most of you long term ILC survivors doing more than 5 years? My MO said I can stay on longer if I wish. It is like a security blanket. I don't have side effects that hinder my daily life like I did on the other two AIs.

    Take care, Robin


  • karen1956
    karen1956 Posts: 4,682
    edited October 2019

    yes - I was stage 3, grade 1

  • lillyishere
    lillyishere Posts: 815
    edited November 2019

    I am stage !B, grade 1. I had double mastectomy in September and I started Lupron and will be starting Letrozole. Grade 1 means grows slow, however, it spread when the guard is down after 5 years.

  • karen1956
    karen1956 Posts: 4,682
    edited November 2019

    yes - I was stage 3A grade 1

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