Long time stage 1 survivors
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Hi. I'm 8 years out with Stage I. 2 small tumors, IDC and DCIS, right breast. Lumpectomy followed by 6 weeks radiation. Hormone treatment with tamoxifen, followed by letrozole, (I'm post-menopausal) ending a total of 7 years of therapy last year. Did not have any problems or side effects with either drug. All the best to you!
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I celebrated my 6th anniversary on Dec 16th. This year it was in a Friday afternoon just like it was in 2016. Even after all these years, I remember getting the call and my doctor asked if I could talk and I knew.
I still come back to this website because it helped me so much in the early years. I still get scared and come back to old friends
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Mamasha,
Congratulations on your 6th Anniversary and thanks for coming back to tell us.
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Congratulations and much appreciated 👍 .
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veeder14 congrats to you too! You just hit the big five year mark!!! Many many decades of continued good heath💕
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Hi!
I’m 23 years out from my stage IB diagnosis, in 1999 at the age of 27. I was diagnosed with IDC again in 2019, almost 20 years after the first diagnosis. It was a new primary, not a recurrence, this time stage IIA. I’m now 23 years from my first diagnosis and almost 4 years (in May) from my second diagnosis. Currently NED.
Tracy
(See below for stats and treatments)
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I have been NED going on year 12, diagnosed with 1cm IDC and 1cm ILC er+ pr- her2-, no nodes.
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8 years since 2/15....1.5cm, mixed ductal and lobular, grade 2/3, focal lymphovascular invasion but no nodes, highish ki67%, strong ER/PR, HER2 positive then equivocal then negative.. Oncotype 8 with recurrence risk 6% on meds. Did 5 years Femara after two mastectomies. No radiation or chemo. Stopped meds after Breast Cancer Index indicated no further benefit. Also did Prosigna Assay. Risk continues to go up for hormonal cancers. Risk now 6-10% according to the various tests.
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I know the distress well, my knees went weak when my ultrasound and MRI couldn't determine the mass in my gallbladder. Thankfully they removed my gallbladder and now we know the mass was a gall stone.
I try to tell myself it was a good thing to find any anomalies ASAP but you can't control the nervous shock of they found something.
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Bump
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I'm just one year post-diagnosis, but when I was first diagnosed, I discovered that I knew many others who had Stage 1 or 2 thirty or more years ago and have no recurrences. It's good to know they're out there.
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Bump
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Prahan,
May I, gently, point out that long term survivors of stage 1 breast cancer have more likely than not stopped posting on a breast cancer support forum? There are a few members who do check in occasionally but most have gone on to live their lives with bc no longer a focal point. To get a better picture of long term survival at stage 1, look for medical research not anecdotes.
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Just checking back in….12 years!
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yeah! 💞 Hope I join your status some day.
5 months!1 -
5 year survivor, stage 1A, as of today. 5 years ago today was so horrible, but now, I rarely think about it. Well, sometimes. Like today!
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Did you take tamoxifen?
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I am 5+ years NED. In May, my MO added 2 more years of anastrozole. I'm ok with that; it's my security blanket. I'll need advice/encouragement when I go off the AI in 2025. Best wishes to everyone at whatever stage you are in the journey.
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Salamander, I took 3 years of letrozole. I started having an issue with it, and my MO took me off. She said 3 years was more than enough.
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