Anyone starting brand drug, Enhertu?
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Going in for Infusion No. 19 on Thursday. I'm still at full dose with minimal side effects. I have been on Enhertu for a year. So far, my worst SE has been cataracts from the Dex. I had cataract surgery on both eyes, I'm off the Dex. Perhaps I didn't need it, but I now have perfect eyesight because of it, so I can't complain. I also suffer from ONJ due to my years on Xgeva. Another weird SE, but it forced me to slow down my chewing. Enforced portion control! I lost 40 pounds in a year. Some of which is also due being on Enhertu, I think. I had 40 pounds to spare and I have leveled off. Again, I got some benefit from a bad SE. I want to be encouraging to anyone out there who is following this forum. It's possible to feel well on this protocol. I just got back from Puerto Rico. I snorkeled and swam and drove an ATV through the rainforest. I don't think I'm rare. I just think that people who are feeling well don't post on forums.
At the same time, I am grateful to those who keep us all informed about their difficulties and setbacks and how they manage to work through all of it. Even though I've felt fine so far, I know it can't last forever and I'll keep up with this forum so I will have a store of information on how to cope with the little stuff and the big stuff and the existential stuff.1
