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Anyone starting brand drug, Enhertu?

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  • kisbah06
    kisbah06 Posts: 7

    I just started Enhertu on Monday and it's going well. This is my third time fighting this beast. First was 18 yrs ago ER+PR+HER-, 8mm, lumpectomy, left breast, no nodes. Rads but no chemo. Second was 9 years ago ER+PR+HER-, 4cm, right breast, chemo then mastectomy, then rad, then AI for 5 yrs. Now it's a recurrence in my right side by where the lymph drain exited ?? ER+PR-HER+, 1cm, no nodes. Full plan not set yet, just phase 1.

    I had the port placed on Monday at 8 then had chemo at 12. Tues went pretty well. Dealing with very mild nausea (am on lots of anti nauseas so I took Miralax on Mon as I didn't want constipation from these.) Also feeling really tired and foggy and no concentration. Wed I had chills and shakes in the AM but better as the day wore on.

    Glad we are here to support each other, encourage each other, and give advice from our experiences. I sure got a lot of comfort from my 2017 journey with all the wonderful ladies who were on this site then. I know it will be the same now.

    Prayers going up for everyone!

  • @kisbah06 What a road you have traveled! I see that you note the times you have felt an upswing. When you have felt better. This kind of outlook may not affect the outcome, but it helps the getting on with getting on. One of my basic se's on Enhertu is what I call sluggish digestion. Not full-on C. Someone on the forum recommended probiotic gummies which work for me. I have also taken Swiss Kriss, an organic laxative.

  • kisbah06
    kisbah06 Posts: 7
    edited August 14

    Thanks onlywhenitrains, I will try probiotics as I am sluggish too , I think from the antinauseas. Did you take any prebiotice like Metamucil and did they help?

    Thurs I was so fatigued in the afternoon and the foggy brain was bad. I 've also gained 5 # from the steroid, but stopping it today. Been eating out too much also. Gotta drink more water!

    It's great that you are NEAD for over a year! Prayers and Thanksgiving for that!

    My last Breast MRI they saw a suspicious spot in my left breast almost in the same location as the right, by the drainage scar (hmmm), so going in for a biopsy this Wed. I'm grateful my team is quick to move on anything they find.

    '

  • @kisbah06 I haven't used Metamucil. Hope you find something that works for you and that you have some good results at your MRI. I just finished my 24th infusion. I didn't realize I've been NEAD for over a year until you mentioned it! Thanks.