IBC TN diagnosed 9/14/20 - misdiagnosed
I was misdiagnosed during covid19 for a small dog scratch infection for two months.
I am 59 years old and worried. Husband not doing well with diagnosis. His father died of cancer 56 and he survived testicular cancer at age 30.
Delays due to covid19 - I was finally seen and given amoxicillin clavid. I kept my annual mammogram and ultra sound because I have dense breasts. They kept me for a long time, The next day I saw a breast surgeon who did a biopsy confirmed cancer - when results came back diagnoses IBC TN 4.5cm tumor 3B 1 lymph nodes involvement
I met an MO and had a PET scan did not spread to other organs. Started chemo A/C 4 cycles every 2 weeks. then 4 cycles of taxol, after my 2nd treatment (6 I total of 8)of my breasts became red and swollen and I can also feel muscle twinges - is that normal. The MO said it was the chemo + the cancer. I'm not sure the taxol is working can my tumor be chemo resistant to taxol? Or is it working?Has anyone experienced this before. I see the breast surgeon on 1/4/21. I asked the MO if she wants to do an MRI - her response NO.
Breast surgeon wants to do a mastectomy on only the right breast. It was suggested to leave the left breast because IBC TN would not come back there but another cancer did they would have an area to treat vs scar tissue.
Can anyone suggest important questions to ask. I am out of my element with very limited support.
After surgery I would receive radiation for 5 to 6 weeks,